Ro Baby Steps


Ronan. The past couple of days, have wiped me out. Mentally and physically. I cannot believe tomorrow is Friday. Where did this week go? I blinked and it was gone. I tried to tell Tricia today, what I have been up to. I couldn’t even remember. Still waiting to find that memory of mine that seems to have disappeared. Good thing I write to you at night. Could you imagine if I did not have this blog, to keep track of everything that we have been through/done? I would not be able to remember a thing. I was trying to give Dr. Joanne, an idea of the timeline of some things that we went though. I could not remember the months that we did your treatments and traveled with you to save my life. That is one of my homework assignments this week. To create a timeline of events for her. I also get to write that letter to Dr. Kushner that I have written, a million times in my head to him and bring it to her. Should be an interesting session the next time I see her.

I woke up today, tired. I took your brothers to school and came back home. I crawled in bed. Fernanda came by and I told her I was hiding. She told me it wasn’t allowed but crawled into bed with me anyway. We snuggled in bed together and talked about a lot of things. We talked about you a lot. We held each other and she just sobbed, really hard. I held her and let her. I cried too, but not like she did today. I’ve been crying so much I guess my body just took a little break and let her do some of the crying for me. I told her that I am going back and fourth between two things. I am either thinking that you were never real, you were never mine. Or I am thinking none of this is real and you are still here. My mind has been furiously playing tricks on me for weeks now. I cannot remember what is reality or what is not. I guess it’s in protection mode again. Maybe that’s why I have not been getting any little signs from you. It’s been awhile since you changed my radio station.

Fernanda left our house with a couple of chores to do for me. We are on a mission to change the face of Childhood Cancer. We have recruited 2 of our lovelies. Tricia and Stacy. We are putting together a game plan as far as where we want to start. We are meeting in a couple of weeks to go over our ideas and to make sure we are all on the same page. We all seem so scattered right now. We need to come back together so we can work with each other on what it is we want to do. Baby steps are beginning. Ro baby steps.

I left the house soon after Fernanda. I ran some errands. I came back home and decided to skip my Inferno Hike today. I threw on my Purple Running Shoes, just for you, and decided to go on an Inferno Run instead. This is a new one. This is how you know, I’m truly in HELL. I hate running in the heat. I used to complain about it so much. I was determined to do it today. It was awful, but in the best way possible. I only made it about 5 miles. I could hardly breathe due to my throat being so dry, the entire run from the heat. Oh well. At least I am lucky enough to be alive, right?? Yeah right. So lucky. It’s just where I want to be. I have to get my butt back into running though if I’m going to do our half marathon in January. I’m going to do that thing and make it my fastest time ever, just for you.

After my Inferno Run…. which I did not die on, but I wished I would have… I came home and showered. I had to meet your Daddy at Dr. Rachel’s office for our therapy together. I don’t know why, but I always feel so peaceful sitting in that room with your Daddy. I tend to be a little more quiet, calm, but always sad. I listened to your Daddy explain your treatment path to her and why he knows we did everything we could do. Why we made the decisions we made and if we had chosen differently, he still thinks the outcome would have been the same. He’s in a good place with the things we decided for you. I am not. But that is not a reflection on your Daddy. It is a refection on me and the way I am beating myself up now. I could have 10 of the best doctors in the world, standing in front of me, telling me we made all the right choices, and I still would not believe them. I’m convinced if we would have made the right choices, you would still be here. So in my mind; I failed you. I killed you. This is my fault because I am your Mama and I should have been able to protect you. I should have known that you were dying right in front of my very eyes those past couple of months. You were my child, my soul-mate, my other half. How could I not have known, that you were dying? That makes me the worst Mama, ever. This is where I am now and I don’t need anyone to tell me differently. I don’t need your Daddy to convince me that this is not true, because it is not going to work. I have to come to a place of acceptance, by myself.

I like Dr. Rachel. She is good for the both of us, but she is really good for your Daddy. He needs to be talking to someone, other than me. He went to see her without me yesterday. I am thankful he is being open to that as I know it is not easy for him. He is good at not dealing with his things and pouring all of his energy into taking care of other people which is just not healthy. He needs to deal with the sadness that has come from everything we have been though. Otherwise, it is going to eat him alive later on in life. We cannot have that. Your Daddy is such a strong man, Ro. But he needs to realize that he doesn’t always have to be. This is why Dr. Rachel is good for him. She is good about letting him know this. I’m thankful for her.

We came home to the boys’ and my dear friend, Melissa who had picked them up from school for me. They got to have a play date with her 2 kids which they always love. Your Daddy took the boys to play basketball and I stayed home and “cooked,” dinner. Does taking food and throwing it on the grill count as cooking??? It does to me. I have not cooked in so long. I miss it, but the thought of cooking food, makes me sick to my stomach. Cooking food, sitting down to dinner, with your spot empty kills me. I did it tonight and it was just sad and lonely. I hated every second of it. I hate every second of everything right now.

I love you. I miss you. I have a wicked headache and it has nothing to do with the 100 degree heat I ran in today. Nothing at all, I’m sure. I love you. I hate this. I hope you are safe, my sweetest blue eyed boy. G’nite Ro baby. Love you forever.

xoxo

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9 thoughts on “Ro Baby Steps

  1. Dawnee

    You are amazing. I have just spent the last 4 hours reading your blog. My eyes are swollen, my heart is heavy and I am in awe. Maya, every word you’ve written is like a hammer blow to the heart. Thank you so much for that. For being so transparent and willing to to share your family and your love for them with us. And you can type/say the word *fuck* as much as you want. You’re absolutely right… Childhood Cancer is the worst curse word out there. Connecting your blog to other mom’s I know who need it.

  2. Melanie

    I’ve been following your blog for a while now, and my heart breaks for you. You, Ronan and your family are in my thoughts every day…you and your beautiful boy have touched the hearts of so many of us who don’t know you personally. I cannot imagine the excruciating pain of losing your little one. I have a toddler and I fear every day that something will happen to her–and from reading your story and sadly so many others I cherish every moment with my daughter. Thank you for sharing your story and your soul so candidly and openly.

    I also know you are really into music and for some reason every time I hear the song “This Ain’t Goodbye” by Train, I think of you and Ronan and the tears come. Kind of along the lines of the notes you saw on your run the other day.

    Wishing for you the strength you need to keep on keepin’ on. One step at a time, one breath at a time. Sending love your way.

  3. Alyssa Crews

    It sounds like you are doing good, considering. Whatever good means. You’re still writing. I’m happy to hear that your therapists are doing a good job and connecting with you so well. I’ve been outside with the little guy I babysit hanging up our new swings. He’s skipping nap today while his little sister is snoozing away. I’m so thankful for him and his health and spark. I know it could be taken away so fast. I wish Ronan was still here. With you where he belongs. I’m going to get me some purple running shoes in Ronan’s memory. My gray ones just aren’t doing it for me. I’m only running the 5k in Memphis this December, but hopefully next year I will be doing the marathon 🙂 Sending you strength and love today. Thinking about you always…
    Alyssa

  4. Glenda

    Maya,

    Always thinking of you, Rockstar Ro and your beautiful family.

    You’ve touched so many people with your rawness and realness.
    Ro touched us all. He captured me with his beautiful blue eyes…his strength…his fight.

    Baby steps…one step at a time.
    Ro is always right there with you.

    Peace and strength
    xo

  5. Jaime H.

    You’re awesome you can run 5 miles in this heat, I’m impressed! 🙂 I pray for you and Woody daily, think of Ronan all the time, too! Sometimes I wake up in the night and I think about him and feel sad and am always reminded to pray for you and your hubby, too. Always wishing you all the best…God bless!! xoxo

  6. MafiaMember

    At Chili’s restaurant right now and they have a ‘Fight childhood Cancer’ campaign going on. Maybe an avenue for you.

  7. Pamela

    Ronan visited me in my dreams last night. He was with me and my son while we were running errands around town. He didn’t like his shoes so I got home new ones. But then he didn’t like those either. He picked out another pair and made us all get the same ones so that we matched. It was like he could talk us into
    anything! Those blue eyes…

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