Sunday, bloody Sunday

Ronan. Sunday has always been my least favorite day. Sundays to me are depressing, sad, and I’ve never liked them. Why should today be any different? Let’s start with the fact that I didn’t fall asleep until 6:30 a.m. I had an awful night last night of worrying about you, about life, and I couldn’t get myself to wind down. I ended up popping an Ambien at 5:30 a.m. I was being stubborn because all I wanted last night was to fall into a blissful, non medicated sleep, and dream of you. Instead, I fought off the demons that now live in my head until I could take no more. Ambien induced sleep soon came and as I was halfway between being awake and sleep, I was holding my phone looking at pictures of you. I remember falling asleep and I was touching the screen on my phone with a picture of you smiling. I swear the picture came alive and you were moving, laughing, and smiling at me. I played with your face on the screen of my phone until I finally went into my coma. I don’t remember dreaming of you at all, but I played with you before I drifted off for the next five hours. When I finally woke up, I told your daddy that we should get out and go grab a late breakfast somewhere. We headed off to some restaurant a lady on the airplane had told him about. I don’t even know where it was, except we had to leave the Island of Coronado to get there. It was a really cute restaurant, and I sat on the patio with your daddy and brothers. We all ordered breakfast and I was just sitting there, looking at home handsome your brother, Liam is. I stared at him for a few minutes and then the crying started. I couldn’t stop the tears from pouring, your daddy just looked at me and brushed them away, and I put back on my sunglasses. There was a table of people right next to us. I nicknamed them “The pretty people,” in my head. They must have been in their 30’s and they were celebrating a birthday. Their table was full of so much happiness, laugher and love. I used to know what it felt like to sit at a table like that. Not to have a care in the world and everything was so carefree and pure. Now, the table I sit at is full of tears and sadness with a reality that I never wanted, but will always be mine. I will wear these scars for the rest of my life and they will never fade, because you are missing. Because you didn’t get to be a breakfast with us today, nor will you ever be again. I pictured you with us though. You would have loved the gooey cinnamon roll Quinn and Liam had. You would have gotten the frosting everywhere and probably wiped it all over Quinn. You would have taken the pure sugar chunks they had sitting out to sweeten the tea with and chucked them across the table at one of your brothers. I would have done my best “Ronan Sean Thompson! Use your manners!” to you as I tried to scold you but I would have ended up in a fit of giggles. Your naughty ways were always my weakness. Your carefree spirit, freed my soul.

I was writing last night to Mr. Sparkly Eyes and my exact words to him were, “Ronan completed everything in my life. Everything. After I had him, I finally for the first time in my life felt complete, whole, and perfect. He tied our whole family together in a big, pretty bow.  Now what? What do you do after that is gone? Survive I guess. Float, so you don’t sink. Swim, so you don’t drown. Go on. Move forward. Continue to fight. Fight to stay alive, to get out of bed, for that glimmer of happiness that I sometimes get to feel during the day.” Those were my words last night and you know it’s my truth. I’m fighting baby. I’m fighting every second of the day to hold on to you, to me, to your brothers, to your daddy. I won’t let go no matter how much I want to give up. I won’t let you down.

After our breakfast of tears, we explored the streets a little. Walking down the sidewalk, did you see the 4 of us? I know you did. We were all walking down the sidewalk, holding hands. All of us, linked together. I turned around to find you, expecting you to be running behind us. When I realized you weren’t there, I had to let go of your daddy’s hand. I couldn’t  hold on without you. The tears burned my eyes, but the pain in my heart was worse. Everyday seems to be getting harder and harder. I did forget to tell you about something so silly that happened last night though. Something that made me happy. After the crazy ocean swimming night I had with your brothers, we all went to the hot tub. When we returned back to the condo, Quinn realized he had forgotten his flip-flops down by the pool. I took his hand and told him we could walk back to the pool to get them. We got to the pool, but it was after hours so my card that lets us in, wouldn’t work. Quinn was devastated but I tried to tell him we would come down in the morning to get them and it was no big deal. His eyes got all teary as you know what a little worry wart he is and he was upset that they would be gone in the morning. I told him there was nothing I could do, but the look on his face  told me I had no choice to somehow get into the pool and rescue his darn flip-flops. So you know what I did?? I looked around to see if there was any way I could scale the concrete wall that surrounds the pool. I told Quinn to hold my things and I somehow managed to hoist myself up and over the wall, and I landed on the other side where his flip-flops were waiting for me. You should have seen the smile on your brothers face. I smiled at that and the thought of you and how I knew you were watching me, “break the rules,” as we used to love to do. Quinn told me that I was the best mom ever and now he understands why I like to run all the time and why it’s important to me. He said it’s so I can do things like that and he bets no other mom would have done something “so cool.” It made me giggle. He’s been talking about it non-stop to me since it happened last night. Sweet boy. The smile on his face was priceless. It made my night.

I ended tonight with my late night run and a movie night on the couch with your daddy and brothers. I’m going to say goodnight now baby. My most favorite movie in the world is on, “Lost in Translation.” I’m going to try to unwind while watching it in hopes for some sleep. It’s a movie I will never get tired of, no matter how many times I see it. It’s a good way to end just another painfully hard day. I miss you so much. I hope to see you soon. Sweet dreams, my blue eyed boy. I love you.

xoxo

 

TGIF!

It’s the weekend! So excited to spend it with my little family. Today was a typical day for us. Big boys went to school and Woo went to work. That left Ro and I home alone. We spent the day enjoying playing outside, carved a pumpkin, and I took him to the drive through car wash that he loves to go to. He was really giggling and laughing when we were getting our car washed. He loves to watch the colored soap spray all over the windows. It was cheap entertainment and a nice little break from being stuck at home. He took a nap and I worked on some things for his website. It’s been fun doing the research on it and figuring out what I want it to look like. It’s been a good distraction for me to say the least. I talked to my friend Laurie today for a bit to get caught up on Baby Jack… the little boy who is a few months ahead of Ronan with his treatment for Neuroblastoma. She sounded so great and Jackers is doing amazing. I am always amazed at her strength and positivity. She is a good role model for me and Jack is such an inspiration. They are an amazing family and so deserve all the good things that are coming their way.

Liam and Quinn came home with their “report cards” from school today and they were so excited to show me. They both ripped them open and we went over what they said. I could not have been more proud of them. They are becoming such little men. We played outside and waited for Woody to come home. Woody and Uncle Jay came home around 4:00 with pizzas and beer. They stopped at A.J.’s and brought home a bunch of things for “Game Night” at the Thompsons. They started a game of  Risk with Liam and Quinn about 3 hours ago. I kept Ronan busy so they could play and it is still going on. Ronan had a nosebleed tonight so I tended to him and after about 20 minutes, it finally stopped. I was praying that we wouldn’t have to go to the hospital. Hoping it won’t start up again in the middle of the night. I know his platelets are starting to dip down but I think if I can keep him sleeping, he should be fine. He had a rowdy day.. lots of running and playing.

Not sure what else this weekend has in store. Liam and Quinn have a basketball game tomorrow but we won’t be taking Ronan. Now that it is turning into that time of year when the flu hits, etc…. we won’t be taking him out at all. Time to put him back in his bubble. I am going to have to get very creative as far as keeping him busy at home. Thinking some paint supplies and lots of arts and crafts are in our very near future. We have been working a lot on his school stuff and he is still fighting me on it a little bit; but I know he is learning. I hear him repeating things when he is playing and he thinks I am not listening. Stubborn little boy.

I’m going to have to say that my husband has been extra amazing lately. If that is even possible. I have no idea how he does all he does. I am so impressed by the way he is handling everything. Keeping his law firm going, being such an amazing daddy, and doting on me 24/7. If anyone is carrying the weight of the world on their shoulders, it is him. I am so thankful to be married to such a strong man who can take care of his family. There is nobody in the world who I respect and love more then him. After all that we are going through, he has kept the best attitude and positivity. He really is one of a kind and I will forever stay madly in love with him. I am thankful that my 3 boys have such a strong male role model in their lives. I know how important that is in forming what type of men they will grow up to be. Thanks Daddy Woo<3

Throughout this journey I have come to see things in such a different light. Life will never be the same again for us, but I honestly think it can be better. I have such a new appreciation for the littlest things. It is a life full of nothing but pureness and simplicity. It’s like we have been given a new chance to soak up all the things we do have and enjoy them to the fullest. Life is too short to be unhappy or worry about petty things. We are making the most of what we have, right now, in this very moment. There is no point in worrying about the future because it is the here and now that matters most. A hard lesson to learn, but a beautiful lesson indeed.

I am going to leave you with a quote that I came across today when I was doing my website research for Ronan. <3<3<3 LoveLoveLove<3<3<3

Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.  ~Dr. Seuss