I heart bacon. Because I am too tired to think of a whitty title tonight.

Ronan. How did I do what I did today? Looking back at today, I have no idea. It wasn’t me today. It was all you……

Started off the day like always. Up, showered, dressed, boys up, showered, breakfast, backpacks packed, lunches packed…. out the door to school. Dropped Liam and Quinn off. Kissed them good-bye. Drove over to Taylor’s to meet a girl named Samya. Samya, the beautifully talented Mama who I sat and had coffee with. Who lives her life filled with LOVE. Love for her job, her kids, her husband, her running, her friends, her friends’ daughter who is battling Cancer…. who I know, very well. Little Mia. You remember, Mia, right Ro? I know you do. We will go back to Mia in a minute. Samya…. Samya knows what it means to really have it all. And not in a big spender, money kind of way. In a way that; and I quote, “I am married to a Firefighter who is going to freak when he sees the water bill because I let my kids take a 40 minute shower together this morning. They were making potions out of soap, water, and having the best time doing all the things kids should be doing,” kind of way. In the kind of way that she knows what it means to be married to her soul mate, the man of her dreams, to have 2 healthy kids, and a job she LOVES. She is thankful. She is appreciative. She also knows that shitty things happen in the world and if she can do something, like making a dear friend, an awesome shirt to wear in the hospital, while her daughter battles Cancer; that she is more than happily willing to do so. I sat with Samya and talked to her like I have known her forever. I cried in front of her when she asked if I was ever going to sleep well again. I just told her, how would I ever sleep well again, when I don’t have you to kiss goodnight? She made me laugh when she told me that the first time she talked to me, she expected my voice to be different…. how surprised she was at how young I sounded. I told her how I get that a lot. I told her how I just had one of our lovies point that out to me. How he told me I sounded like a 15-year-old girl, on my voicemail and that I needed to change it. I told him I would only change it if it could go something like this…..”Hello. You’ve reached Maya Thompson. I can’t come to the phone right now. Please leave a message, and I will get back to you as soon as possible. Thank you. Have a GREAT day. And FUCK YOU CANCER!!!!!!!!!!!!!!!!!” The thought of this makes me laugh out loud. How AWESOME would that be? Shocking? I guess. Immature? Maybe. Totally worth it? Absolutely. I wonder if anyone has this on their personal voicemail. If they do, I would like to be their friend. Anyway Ro baby. Back to Samya. I ran some ideas past her. She ran some past me. I think we came up with a new slogan for one of her shirts. So excited to be a part of it. More to come, later on this:) Thanks, Samya…. for today and for reminding me that once you meet your soul mate(s) in life, that’s just all there is to it. Do people have more than one soul mate in this world?? Totally. I have several. They come the form of my husband, a few close friends and my boys, you included, Ro baby. Some have been around for a long time, others, I have found after going through something like this. I am lucky enough to have all of mine, right in front of my face, holding my hand during the worst time in my life. Refusing to let go.

I got to talk about the Wooddawg today, like I haven’t been able to in a long time. Like we were that normal couple, once again, that we never will be again. But we are still here, working and fighting because we know what it means to have everything ripped away from you, and to still be expected to be left standing. I don’t want to stand alone in all of this. As much as I say I do, that I am a tough ass, that I can do this, alone. I can’t. I don’t want to. I would not survive it. I can name on one hand, the things that are saving my life now. A few people are responsible. I am learning to accept them. I am learning to let them help me. I have to embrace them. Or else big trouble lies ahead. I don’t want or need anymore trouble.

After I left Samya, I drove to PCH. Our old home away from home. I let a few of our favorites, know that I was coming. Sharon was one of them. I parked in the same parking garage, that we parked in hundreds of times. I got into the elevator, without you, and walked into the clinic, without having you to carry. I asked to person working at the desk, to let know Sharon that I was there. I sat down and after I realized, where I was and what I was doing, I almost threw up. I thought I would be o.k. to walk into that clinic today. I wasn’t. Sharon read me like a book as soon as she came out to me she gave me a hug and we quickly walked out of the waiting room and headed outside. We went into the old hospital, sat down at a table and I told her what I was there to do at PCH today. I showed her what I had brought with me, to help plead my case. She loved all of it. I told her how I felt as if there was a lot of room to improve as far as taking care of the parents. How I know what it is like to be so overwhelmed, scared, lost, confused but expected to make a choice in regards to a horrific diagnoses. How lost and lonely it feels. I told her my ideas. I told her I hoped someone would listen. I told her how badly I want some things to change, for the better. I told her how I keep asking myself what I did wrong that you had to die. My strong voice, became weak and soft as the tears poured down my cheeks as I told her I must have let you eat too much candy towards the end of your life, which is why your disease spiraled out of control. She held my hand and told me that was not why this happened. That we, as parents, did everything we could. That your Cancer, was just too strong and too smart. I know she is right, as I made you eat all things healthy, but you loved your sweets every once in a while, as all kids should. I still think to myself, that I killed you. That this is all my fault. I don’t know if I will ever think otherwise. You were my baby. It was my job, as your mom, to save you. I promised you I would. I will forever hate myself for not being able to. I know how barbaric this sounds; but it is instinctual to feel this way after losing a child. It is human nature of a mother and a child. For as irrational as this sounds, it makes perfect sense to me.

Sharon and I parted ways with our hugs and I love you’s. I do love her. I remember how much you loved her, which makes me love her even more. I am so sad, that you no longer get to chase her around, hug her, give her your Hi-Fives, let only her, change your Broviac Dressings…. how I never get to hear you tell me, “Mama… Sharon’s so nice. I love her.” I swear I can still hear your voice telling me that. God, I would give anything to hear you scream at the two of us, “I NOT A BRAVE BOY!!!!” as Sharon would clean your skin while changing your dressing. I would give anything to be back in that hospital, cuddling with you, thinking that the poison that was being injected into your body, was actually going to save you. Now, I am left alone, standing in the middle of PCH, without you… trying to fix what I think needs to be repaired, because I truly do care and want to make a difference in as many ways as possible. Even if it just means getting that damn coffee cart to come around more often than it does, to make mom’s like, Sandra, (Mia’s Mom) HAPPY. (for the 5 minutes of the day that she gets to feel happy).

I met with 2 lovely women today. I sat with them and they listened to what I had to say. I don’t even know where my words came from, but they were there. I don’t know how I was able to sit there, without sobbing and running away. I played with my locket that holds some of your ashes in it. I kept telling myself, that you were right there with me. I felt like you were. I felt strong. Stronger than I have in a while. I was able to present my ideas and have them welcomed with open arms. The best part of it is how comfortable I felt, expressing what it is that I felt could improve. How these 2 women didn’t just handle me like a crazy mom, who’s son had just died, so WTF is she doing back at PCH so soon? They didn’t shove me out the door, telling me they would get back to me. They made what I was asking, what I was suggesting, happen right there in front of my very eyes. They told me the position they were willing to create…..with some fine tuning….for me and some other lovely volunteers, once I was ready… to just say the word. DONE. Just like that. Unbelievable, Ronan. All because of you and the kind heart of these two woman at PCH, who believe they can do better and are willing to do whatever it takes, because no parent should have to feel so left in the dark.

Ronan. I am beyond tired right now. Too tired to finish my thoughts for the night. I’ve got to take advantage of my sleepiness while it is here. I love you. I love you, Sandra, my dinner date tonight. Ro. Please watch over Mia down here. Please. I am so sad from hearing tonight how she cannot even walk right now because of how badly her disease has destroyed her little body. Sandra deserves a break. Throw a little happiness her way. Take some of the happiness that you are saving up for me, and give it to Mia and Sandra. They deserve it. They need it. I can wait. I love you baby boy. To the moon and back forever and ever. I hope you are safe. Sweet dreams, Baby Doll.


My husband is my hero

I think I have officially cracked. I’m sure I’ll have lots of times where this is the case but I think it happened yesterday. That’s where my family, friends, and husband come into play and put me back together. Especially my husband. He is my rock, my pillar of strength, my everything. I tend to overdo things in my life… this has pretty much always been a theme of mine. I’ve been overdoing¬†everything, except the most important thing which is connecting and being present with my family. I have been keeping so busy… so overly busy… I guess so I didn’t have time to sit and truly think about what is going on. I mean, I know what is going on… but it is easy not to think about it when you have too much on your plate. This has been my coping mechanism. So the last few days, I’ve taken some time away from researching, blogging, emailing, etc…. it felt nice. Woody and I have had some good talks. Somewhere in the middle of all the chaos I forgot about my best friend; him. And I know why. It’s easier for me to not look at him in the eyes and to not see his pain. It’s easier to be too busy, because it’s hard for me to see him hurting and I don’t want him to see how scared and sad I am. But he knows…. I married one of the smartest men out there… it’s one of the reasons I love him so much. He sat me down and told me that I need to put my faith back into him and trust that he has already done all the research, talking with doctors, etc…. He did this weeks ago. I guess I just got lost in the shuffle of all of this… by obsessing. It has been my way of dealing with things. It’s not the right way and it’s not the healthy way. I see that now. I’ve got to trust the people around me more, trust the doctors, trust in all the prayers and good energy. It’s hard for me… but the person I trust most in my life is my husband. 110 percent. He is the most amazing man in the world and I know with him by my side we will get through this. Some people search their whole lives for what Woody and I have and never find it. Even though all of this, I still think I’m the luckiest girl alive. I’m going to focus more on being in the present… I can’t think and obsess about the future. I am here, Ronan is happy, and that is all that matters. We have to make the most of our good days with him because as of now, these are the good days. He is home with us and everyday I have to remember that the days we are together as a family are the best days of my life; no matter what our circumstances are. Ronan, Quinn, and Liam need to have things as normal as possible and that is going to be one of the main things I focus on. I have to bring back the balance and harmony in our lives.

After hounding Phoenix Children’s Hospital for 24 hours, we received Ronan’s CT and Bone scans back. I am just going to touch on this and say that it looks like the chemo is doing what it is supposed to be doing. It appears to be working but we will know much more next week after our second set of scans. This is very good news for Ronan and for our family. Please continue to pray for our little fighter… he has such a long road ahead of him.