You. Simple, beautiful you.

Started this Friday, June 10th…. didn’t finish due to crashing out.

Ronan. I made it through today. By the skin of my teeth. We all woke up late and your brothers were excited for their day. Your daddy and I gave them their presents. Quinn got his first skateboard, which he is so excited about. Liam got some video games, some new Nikes, and a new basketball. All your daddy’s doing as I didn’t buy one present this year. It’s usually all me who goes crazy on them. This year, thankfully, your daddy handled everything. After they opened their gifts, I snuck out of the room and went and let myself cry about missing you for a few minutes. After my cry, I pulled it together and we all got ready and headed out to grab some lunch. We went to a BBQ place on the island and I had forgotten that I had been there before, a couple of years ago, with you. The memory was almost too much to handle. After lunch, we headed to the grocery store and picked up food and the birthday cake for your brothers. Your daddy bought a ton of fish, chicken, and veggies to grill for our pool party. After we returned from the store, your daddy prepped all the food for our BBQ by the pool and I took Liam and Quinn down to play with your cousins at the beach. They spent the rest of the afternoon and evening running, swimming, and playing.

We grilled down at the pool with your Mimi, Papa, Larry, Joan, Tiffany, Chris, Brandon, Janette and all the kiddos. It was freezing out tonight but none of the kids seemed to notice. All of the adults were frozen. Your daddy cooked up all the food while I sat over by the hot tub to keep an eye on everyone. At one point, I was missing you so much and I looked out into the ocean. Guess what appeared?? Two dolphins. I watched them for a long time and Tiffany came over and I pointed them out to her. She smiled and said it was a sign. It was indeed. I haven’t seen dolphins here yet except for tonight. Watching them I was filled with peace for a few minutes. It was just what I needed as I had a really hard day just trying to breathe today.

The rest of the night was filled with lots of laughter and love. Thank god for family and friends. We would have never gotten through today without them. Your brothers are going to be sad as your cousins return back to AZ tomorrow. They have so enjoyed being with them. Hopefully, they will find some new playmates to fill their days with the laugher and love that they so need now. It’s hard for me to give them all the playfulness that used to come so easily to me. I am trying my best, but everything is just so hard. Just getting out of bed is a struggle. I somehow manage to do it, but it takes so much effort and energy.

After we finally got all the kids out of the pool, it was after 9 p.m. We all came back up to our place for a little downtime before your cousins went home to get to bed. I was pretty restless and although it was late, I headed out and went for my run around 10 p.m. Our friends were still at our place and as I was getting ready to head out, I heard a piece of the conversation that was going on. Something about a mom. A mom who is so lucky to get to be a mom to all the kids she has. A mom who is lucky to have heathy kids. A mom who has a nice life. But this mom tends to take this for granted. This mom tends to not make the best choices. This mom likes to drop her kids off at school and come home and pass out on the couch after drinking during the day. Something inside me snapped after hearing this story. I looked at everyone in the room, and called this mom a “Stupid bitch,” and said something else that was not very nice. I don’t even know this mom, but at that moment, something took over my actions, my words, and I could not control what came out of my mouth. I ran out of our condo, tears steaming down my face, and I continued to cry for 2 miles of my run. I know what I said was not nice at all, but I don’t care. All I could think about was how lucky this mom was and she doesn’t even know it. I would give my right arm to be able to have you here, to have never have gotten sick. Hearing stories of mom’s who have all of this, but take it for granted, makes me crazy. CRAZY. Physically sick. I was overcome with such anger, jealousy, rage, bitterness, and sadness during my run. You know why?? Because I deserved you. I deserved to have you for the rest of my life. I was a good mom. Not just a good mom. But a really, really, good mom to you. I never took a second for granted. And now, I don’t get to have you anymore and there is nothing more fucked up on this planet than that.

June 11th…….

Ronan. I had to stop that post after that last night because I got myself all worked up. I’m sorry. I miss you so much. I know I tell you this all the time. I know you feel this. I still am waiting to wake up from this nightmare. I don’t even know what the hell is going on anymore. What even happened today? My mind is still in a constant fog. I think we did the usual things. We got up to say goodbye to your cousins and we were all sad to see them go. We came back to our condo, I made breakfast for everyone and cried the entire time that I was cooking. I laid back down for a nap. I got up and ran into town for a bit. I met your brothers and daddy at Mimi and Papa’s place to watch the ASU baseball game. I tried to concentrate on just being there and in the moment. All I could focus on was how different things would have been if you had been there. I pictured you running around, playing with your guys. Nothing would have been calm and quiet while we all tried to watch the game. You would have been the center of attention like you always were. I hated today and not having you with us. After the game, we had Brandon, Janette, and Cameron over again. My friend, Katie and her husband came over as well. Katie gave me a beautiful necklace she had made for me with your picture on it. I bawled when she gave it to me. It is beautiful and was so thoughtful of her to do.

It was around 9:00 p.m. and I hadn’t gone for my run yet. I was obsessing about it and somehow before I knew it, I ended up down at the beach with Katie, Liam, Quinn, and Cameron. I ran a really fast couple of miles and joined everyone else in the ocean for a nighttime swim. Thanks, K for hijacking my run tonight:). We had a blast out in the ocean, with all 3 boys, swimming in the dark. We went to the hot tub and swimming pool after. It was time I really needed to have with Liam and Quinn. I soaked up just being with them, and enjoying them. It was totally worth cutting a few miles out of  my run for.

It’s now 1 a.m. and I’m still restless. I’m hearing my mother hen, Stacy, in my head telling me that I shouldn’t have had that Coke to drink at 10:30 at night, tonight. Yeah, Yeah, Stacy…. I know. My Coca Cola addiction. My pretty much one and only vice. Everyone is asleep now. Everyone except me. I need to go to sleep. I want to go to sleep, but I hate that when I go to sleep all the thoughts that creep in and take over. I try to think about you and all of our happy times. But I mostly just cry and with I didn’t have to wake up in the morning without you. I wish I could stay asleep forever and just dream about you. I’m sad tonight. I am missing you extra much tonight, my beautiful boy. I hope to see you in my dreams. I’m trying, Ronan. I hope you know how I am trying so hard to go on. But I will never be the person that I was before losing you. And I liked that person so much. I don’t even know who I am anymore and I don’t know who I am supposed to be. All of these unknowns, keep me restless, scared, and exhausted. All I wanted in my life was simple. This is far from simple now. Simple will never exist again. Simple was so easy, so pure, so innocent. Simple was the 5 of us. Simple was bliss.

I love you to the moon and back my little monkey. Sweet dreams, Ro baby.

The ocean didn’t swallow me whole

 

 

 

Ro baby. One of our favorite movies is on. “The Fantastic Mr. Fox.” This is the first time I’ve watched it without you. Quinn is sitting next to me, eating a sandwich I just made for him. It is late but we are still awake. Daddy and Liam are asleep out in the other room. Quinn and I wish you were here with us watching our movie. You used to crack up at it, which in turn would make us crack up. There is none of that now. Watching this movie will never be the same again.

Did you see us today? I sat and wondered if you were watching us. I wondered if you would have been happy to see me smile. I smiled today while I watched your brothers play in the pool with their cousins. They laughed a lot and there was a lot of wrestling and horsing around. They looked so happy. As I watched them, I was overwhelmed with a mixture of happiness and sadness. It made me happy to see them so happy, but it also made me sad. How can they go on, how can the laughter continue without you? I know it is a beautiful thing and I know it doesn’t mean they miss or love you any less. But it still felt wrong to me. Will it always feel this way, Ro? I hope not. I hope someday I will learn to feel happy again and not have to sit and second guess it and not have to feel guilty about it. It still feels like I am betraying you.

I spent the day with your brothers. We enjoyed the sun. I went boogie boarding in the ocean. I ate a bit for you too. I tried to soak up the time with your brothers. I am watching them form a new kind of relationship now. They seem to fight less and love more. They seem to be aware of how lucky they are to have each other. They seem to be developing an understanding of how precious life is and how we have to make the most of everyday. They are being respectful and there is less sass and chaos. We are getting them back into a stable routine which they are thriving on. I know how important structure is, how important our family time together is to them. I know how much they have missed it. I’ve missed being able to give it to them too. I won’t say it feels good, because nothing feels good yet. But it gives me a purpose in life which I really need right now. Knowing that I have to work hard to help them get through this is something I feel so lucky to be able to do.

I went on my nightly run on the beach tonight. It hurt and I ran hard. I ran with a lot of anger tonight. Guess who I was angry at tonight? Everyday it is somebody or something different. Tonight, I directed my anger towards Dr. Kushner. I know, so not fair and so pointless. I know he is a good doctor, Ronan but I am pissed about the way he ended things with us. It wasn’t right and someday I am going to write him a letter and tell him all of this. I wrote it in my head tonight on my run, but I don’t have the energy to sit and have it out with him now. The way he sent us off, without even giving us a proper goodbye; I’m sorry it just doesn’t sit well with me. And why didn’t he look me in the eyes, Ronan. I don’t care how badly he felt; the fact of the matter is he wasn’t the one who had just been told in not so many words that there was nothing else that could be done for you. Nobody was hurting more in that room than me. He just sent us on our merry way and had his freaking assistant call us the next day to tell us he thought we should go to Chop. That will never be enough for me and it will never sit well with me. He owed you more; he said he would fight for you and not give up. He did give up and that is not right. Someday Ronan, I will fix this. I will make sure he never forgets you and I will give him another chance to make things right. I know he has this in him and although it may seem so pointless, it is not to me and I know it is not to you. I need closure in so many ways and this is one of them.

Did you see me after my run, Ro? It was such a long and dark run tonight. I still had so  much energy running through my body so guess what I did?? I went down to the beach, threw off my shoes, my hat, my shirt and ran into the black ocean. I swam in that deep, dark ocean until I could now longer breathe. I waited for it to swallow me up, but it didn’t. So, I swam out as far as I could and let the strength of the waves carry me back to shore. I did this for about a half an hour. The beach was empty, the ocean was mad, and I screamed and cussed at it until I physically could do no more. I told the world to fuck off for taking you away from me. I told the world that I was going to kick it’s ass. I told the world a lot of things tonight. After my swim, my mind calmed down a little bit. I think it was the physical exhaustion that kicked in and did it. I did it for you tonight, Ronan. I swam in that dark ocean because I am lucky enough to be alive and I am lucky enough to be able to do something like that. You will never have the chance. So tonight, when I jumped into that water, I took you with me. I wasn’t scared because we did it together. I wanted you to feel the coldness with me. I wanted you to be able to do it too. Everything I do in my life, it will be with you. I will always take you with me, Ronan. Just you and me, Ro. Just like you used to always tell me. You’ll be with me everywhere I go and with me in everything I do. I promise you that.

Alright my little monkey. That is all for tonight. I hope you are safe. I hope you always feel the love surrounding you. There is so much of it in the world for you. I miss you so much. Every second of every day. G’night my love.

Hello you lovely peeps. I hope you are all well. I just wanted to add a little something tonight before I drift off into my restless sleep. As much as I try to keep up on all the comments on here, I can’t. I try to do my best and I love what you all have to say. I checked them first thing this morning which I normally never do and something was written about how a certain person wished the lesson I would have learned through all of this is that there is no such thing as the perfect family. That there is no such thing as having it all. This remark has bothered me all day. Who is it who decides such a thing? To me, perfection can have a million different meanings. To me, I know what the perfect life was because I had it. To me, the perfect life was very simple. A roof over our heads, two parents who are madly in love with each other; who created a very safe and loving environment for our 3 heathy boys. I am living proof that the perfect life can and did exist until Ronan got sick. I now look around and I see all of my beautiful friends and I know they all know that they have the perfect life due to what we have just went though. I know they are all so thankful for the “imperfections” that they deal with on a day-to-day basis that mean nothing because they have a healthy family. My world would be shattered if I didn’t believe that a perfect life does still exist for some people. I have no doubt that my definition of perfection will now become different because Ronan is gone; but I still feel so very lucky. For going through such an awful thing, I look around and see perfection in my husband and my twins everyday because they are full of love and health. After looking up the definition of perfection, I still stand by what I say. It’s sad to me that somebody wishes the lesson I would have learned from all of this is that perfection does not exist. A better lesson for me to have learned through all of this would have been to open up my heart and embrace all the love that surrounds my family. To open up my mind to a world full of imperfection and to try to make a difference. To just be me, which is all I am trying to do to get through this thing called life. Perfection does exist and I had it for 4 blissful years. I will fight for the rest of my life to get pieces of it back here and there because that is what Ronan would want. He would want me to fight for the perfection that existed in our family. He would not give up on me and I have a slew of the most perfect friends who are here to help me achieve this. Perfection is real, perfection can have many different meanings. Perfection to me means not taking a thing for granted and living with the most love in your heart that you are capable of. It means stopping at nothing to get it until your heart is fulfilled in the way mine was when we had Ronan in our family.

I love you all; even the one’s on here who try to knock me down because lord only knows why. It’s not going to happen. I have a message to send and a job to do and if you’re not with me, or you just want to say hurtful things, then please stop reading this. I’ve done nothing except love and fight my hardest for a little boy who deserved so much more than what he was handed in life. If this offends you for some reason, I’m sorry. This is my life, my feelings, and my Ronan.

That is all for tonight. Love and blessings to you all.

xoxo

The oldest definition of “perfection”, fairly precise and distinguishing the shades of the concept, goes back to Aristotle. In Book Delta of the Metaphysics, he distinguishes three meanings of the term, or rather three shades of one meaning, but in any case three different concepts. That is perfect:

1. which is complete — which contains all the requisite parts;
2. which is so good that nothing of the kind could be better;
3. which has attained its purpose.[4]