I never fall asleep without thinking of you all

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I just want to take a minute on here and say thank you to all of you. After being away for the summer, I came home to piles and piles of mail, gifts for Poppy, checks for the foundation, and I even got glitter bombed after opening up a box. You all make me smile, laugh, and cry on a daily basis and although I can’t write each and every one of you thank you’s… please know that I am doing it here, and I say thank you to you all about 100 times a day in my head.

There are so many amazing things going on. If you have a second, please read about what the amazing Jim Fry is doing below.

http://www.firstgiving.com/fundraiser/jimfry/hauteroute

If you have the means, please donate to his fundraiser. Every little cent helps. If you don’t have the means, please spread the word for us. What Jim is doing is inspiring and so moving. Even with all of his determination, he knows it is nothing compared to what these kids go through and that is the most moving thing of all.

I feel a movement happening in the world. One that I am so touched by. I’ve literally received thousands and thousands of emails and letters from not only adults everywhere, but kids as well. Kids who I swear are going to change this world of pediatric cancer. They are holding fundraisers for Ronan, starting clubs at their schools, writing reports about the lack of awareness out there, doing amazing school projects about Ronan’s foundation, writing songs for him, doing their birthday parties and instead of gifts they are asking for donations instead, etc…. I live for the youth of America. I live for these kids who are going to grow up to do amazing things all because of a little boy they learned about because he will never get the chance.  And they know that is so wrong and how it could happen to anyone; even them. They aren’t scared and running the other way. They are being proactive about this very broken world and to me, the mother of a child who died from this… that means everything.

I got sent a little poem from a 13-year-old girl named Eugenia. She had a class assignment and it was to describe a room and explain how the objects in the room say things about the person living in it. She chose to do it about my bedroom. The poem is below.

The light on at night illuminates how she doesn’t sleep well thinking about how she feels it’s her fault

The athletic shoes next to the door jog the idea that she runs to clear her mind

The pictures of her son all over the room visualize how they were close and that she misses him like crazy

His little bald head in the photos discloses that his life was a hard one even though it was short

His toys on the floor play out his innocence; how he was taken too young at 3 years old

The boxes of tissues whisper about how she spends every day crying over him

The spot on her bed between her and her husband portrays that he would sleep in their bed

The urn on her night stand murmurs that they keep him close and never let him go

The necklace around her neck filled with some of his ashes witnesses how she needs to keep him close to survive

The letters of apologies opened and unopened spell out how many loved ones he had

The bracelets with his name on them tie up the fact that they are trying to spread the word of this horrible disease

The computer on the floor next to the bed reminds us how she needs her blog to express her emotions of grief and pain and tell his story 

The sonogram under the pillow wet with tears of joy and despair portraits how her new baby will be a girl; he always said he wanted a little sister

The deep sad look in her eyes sends the message to us that even on the happiest of days she will always be sad because her life is incomplete without him.

 For Maya and Ro. Always for Ro.

 

 

This 13-year-old gets me better than most adults. As I read the words above, the tears just poured to the floor. I thought it was so heartfelt and beautiful. I am so moved by this younger generation of kids and the way they are helping move these mountains. Thank you, E. Don’t let anyone every dull your sparkle;) You are making this world a better place.

I’ve got to run now and work on this book.

I hope you all are well and please know that I know, that I would not be where I am today, without you. Thank you for helping me to fight for my little boy so much so that his name will never get lost.

xx