No “Silent Night” Singing to Poppy Allowed

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 Ronan. I am currently watching your Poppy sister play in her crib. At almost six months old, she has still not spent a night alone. Is that bad? I’m not sure — because I had all three of you boys in your cribs pretty much from the time you came home from the hospital. Babies in our beds happened sometimes — but not like this. Not every night. Not like we are doing with this Poppy girl.

Your daddy has been saying lately that it’s time for Poppy to go in her crib. And I launch into my “No way. Never happening.” rant. It usually goes something like this: “Kids who sleep in their cribs die. I’ve sat in support groups and heard at least three stories of eight-month-old babies who just up and die. She’s not going in her crib to die.”

The stories are true. The drama is mine. But I am not about to be separated from your Poppy sister through the night.

My mind doesn’t get to be naïve anymore — it doesn’t get that luxury. I live in a constant state of low-grade paranoia.

Here’s another example of how messed up it is inside my head.

I was at breakfast with Fernanda and Stacy and Fernanda was standing up, bouncing Poppy to sleep. She started singing “Silent Night.” You know — the song I always sang to you before you got sick.

I lost it.

“YOU CANNOT SING THAT SONG TO HER. THAT SONG IS JINXED. IT’S THE SONG OF DEATH.”

They both looked at me like I had eight heads.

“Sing her ‘Twinkle Twinkle Little Star’ like I used to sing to Ronan instead.”

Poor Fernanda pivoted mid-verse and Stacy just rolled her eyes. I didn’t want to explain the whole song thing — but when you first got sick, I remember telling Tricia and Marisa something insane.

“I always sang him ‘Silent Night.’ Is that because he’s going to die and now the nights are going to be silent without him?”

They told me no. Of course they did. But here we are.

I know “Silent Night” didn’t cause your death. I know that. But what if it was the universe foreshadowing something? What if it was some cruel warning I missed?

These are the fun thoughts I get now.

No “Silent Night” for Poppy. Ever.

The Gold Party came and went and I still feel emotionally wrung out from it. It was beautiful — sparkly — exactly the kind of night you would have loved. I was surrounded by my favorite people, minus a few who couldn’t make it.

At the end of the night I said, “I feel like Ronan would want us to jump in the pool.”

After a little Stacy magic — meaning convincing the amazing W people running the event — that is exactly what happened. Fancy clothes and all, into the pool we went. Me, Stacy, Fernanda, and your Fairy RoMo.

We laughed. We swam a lap. And then I sat at the edge of the pool and cried with Fernanda.

“I still can’t believe he’s gone.”

I don’t think the shock ever leaves. Time doesn’t soften it. It just teaches you how to stand up inside it.

Everything still hurts just as much, Ronan.

But in that laughing-crying, chlorine-soaked moment — I felt grateful. Grateful for the people you have put in my life. I am so lucky in that way.

I’m doing my best here — but sometimes everything I’m doing takes a toll. I miss you. And I miss just being a mom. Just that. Not a foundation. Not a spokesperson. Not an advocate. Just a mom.

I feel pulled in a thousand directions.

Sometimes I want to scream “TIME OUT” and run away to New York. I know that’s not the answer — but sometimes I wish it were.

I’ve been getting emails asking if this blog is ending because I’m not writing as much. I don’t think I will ever stop writing here. But it has to go on the back burner for now. A book. A foundation. A baby. Two ten-year-olds in three sports each. A marriage. A house. Friendships that require maintenance.

Being a friend while being a bereaved parent is exhausting work. The ones who have stayed are family now.

Add in worrying about my brother. Add in trying to get back into some kind of exercise rhythm — because the baby weight and my childhood body image baggage like to tag-team me.

That leaves zero time for stillness.

And I know what happens when I ignore my grief.

I unravel.

There was a time when unraveling meant too much Ambien. That was the old, shattered me. Not this version. Not the mom with a baby in her bed. I won’t go there again.

But I need a plan.

I tried to get to Sedona to see Dr. Jo and it didn’t work out. So this week I’ll make a new game plan. Maybe stillness looks like hiking with Poppy. Maybe grief time looks different now. If that’s the only time I get — I’ll take it.

One more thing — thanks to the Phoenix Coyotes, we now have funding to do the Candy Cart at PCH once a month. That makes me really happy. If you have new, unused non-candy goodies to send — toys, books, stickers, crayons — the kids who can’t eat deserve something, too.

The Ronan Thompson Foundation

P.O. Box 44935

Phoenix, Arizona 85064-4935

Thank you for being patient with me in this quieter season. I am trying. I am just overwhelmed.

It’s almost 9:00. Which means I’m done.

Time to curl up with Poppy.

G’nite, Ronan. I miss you. I love you. I hope you are safe.

xoxo

 

 

Comments:

22 responses to “No “Silent Night” Singing to Poppy Allowed”

  1. glenda1203 Avatar

    Love to you RoMama & Poppy girl.
    It was Romazing seeing you at the goldparty. Wish it was more often!
    #mayasmafia
    #rolove
    Always Rolove
    XO

  2. Melissa V Avatar
    Melissa V

    Much love to you, Maya. Always and only love. Whether you write or not it is sent to you and your family each and every day. Ronan will never be forgotten–but someday neuroblastoma and pediatric cancer will be. He will still help you change the world into the brightest sparkliest wildest and free place it should be. Take care of YOU along the way. I know in my heart you will as you would never do anything to hurt your babies.

  3. Jaime Avatar
    Jaime

    Hang in there Maya! Still think of you and Ronan all the time! Keeping you in my prayers! xo

  4. Ali B (@AliBeeee) Avatar

    Miss your blogs, but completely understand that so many other things take priority right now, the most important of course being Poppy, Liam, Quinn and MAYA! I know childhood cancer never sleeps, but I do hope that things are a little less hectic now that September has passed. As always, I love you so much and I hope you get to be still more than you have been.

  5. Laura Avatar
    Laura

    Maya,

    I just want to say, that I think your an amazing woman, mother and someone who is taking on cancer & saving lives. Think how many little children’s & adults out there who’s lives you have saved through this blog through awareness. Also I think you have saved all readers in way or another, I know that you have helped me. Never doubt your self you are a true hero in my eyes. Also I have a grandmother who is 90+ years old who’s had 8 children, she lost the first one after a few days of his birth. Till this day she still grieves that baby and dosn’t know why he died. I truly believe any loving mother will never forget or stop grieving a childs loss, till the day they die.

    Never doubt yourself!

    Love L. Syd.

  6. Shannon Avatar

    Maya, I love you so much! You are truly one of the strongest persons I know! Keep fighting cancer Ro mama! Xoxo! lots of love to you and your family. I understand why you won’t be writing as much! Take care of yourself along the way! no matter how hectic life may seem remember that we are all rooting for you! XXX lots of Ro love!

  7. Lidia Giubilaro Avatar
    Lidia Giubilaro

    Always thinking of u and Ro 🙂
    xoxo

  8. Samantha Avatar
    Samantha

    It is actually super healthy for Poppy to sleep with you. It helps the baby connect with the mother more than you just sharing a room with Poppy. There are many studies on it.

  9. Daniella Avatar
    Daniella

    Keeping you and your family in my thoughts, always. Sending you some deep breathes, some self forgiveness and thoughts of the fresh PNW air – and of course love.

  10. Liz J. Avatar
    Liz J.

    Maya – I have loved your family since “Life is no way to treat an animal…” I have laughed with you, cried with you, been angry while you have been angry, scared while you have been scared…you have opened your heart, and most of your life for that matter, to readers, and we are forever blessed because of it. For months, I checked your blog daily, sometimes even 2 to 3 times a day, because I wanted to follow your journey step by step. Over the last few months, I find myself checking it less, not because I am following you less, but because I understand that this blog, and your life, are evolving into something even more beautiful and special than before. So never, never, NEVER feel like you are not doing the right thing by not posting here as often as you did in the past. Just always remember that the other things that you have going on, ie the book, foundation, Poppy, the boys, your husband, etc, are exactly what you should be doing. I know that this blog is also your way of writing to Ronan, and that is what your readers who question “Is this the end of the blog?” should realize. This blog started for you and for Ronan, and if you stopped writing it tomorrow, there are still a million other ways that you are honoring him, remembering him, talking to him, and still being his mama forever! Stay strong, love fiercely, break down when you have to, and stay on the the path that is right for YOU and your family! Love, Liz J.

    1. Michelle Avatar
      Michelle

      Beautifully put.

    2. Des Jordan Avatar
      Des Jordan

      Amazing and perfectly written. If I could have put into words what I really wanted to say after reading this blog post, Liz J. did it! Maya, no need to apologize for not blogging as much. All of us who have been reading, supporting, sending love from afar, will still be doing so, no matter what, no matter how often or how little you blog. You’ve changed the lives of so many people. Thank you. Keep going just as you are mama, amazing RoMama! Find stillness, and then keep going. Love, Desiree

  11. Amy Avatar
    Amy

    My thoughts are with you, I hope you find your way through this chaotic time. You are so lucky to have your husband, he seems really caring and strong. Your kids are amazing. Your friends love you. The charity is soaring high. You will get through it all. But while you work it out, remember to live like a rockstar and have fun!

    Sending my love to you and your family!
    From a British Ro-Lovie xx

  12. amourningmom Avatar

    It is not bad at all that Poppy has not spent a night alone. And, it is very reasonable to ask that no one sing her Silent Night. There are no rules to being a bereaved parent. Whatever works you should do and continue to do until it stops working.

    My life is one of those stories of my youngest son who went into his crib to die (although I try to talk myself into believing that he would have died no matter where he was – the guilt and not knowing is brutal). We unfortunately, our oldest also predeceased us but we know the cause. Either way it is the worst thing ever to have your child die and however you can get through the days on this earth without him (or them in my case) is what you should do.

    I am so happy that the Gold Party went well and that you went swimming :-). Sending you hope and hugs and always a big FU CANCER!! xoxo

  13. Kate Buckley Avatar
    Kate Buckley

    Maya, it is nice to hear from you on this blog, but I am also really glad you have a lot of other things going on. We are still here, supporting you and Ronan. Stay strong.

  14. Amy Avatar
    Amy

    I don’t like ever comment. In fact I go months without reading sometimes. But I think of you and your little Ronan often. Had a little cry stumbling across Taylor’s song again tonight. Gets me every time. I’ve never been able to sing it through because I just cry. I was reading your block when he was still fighting his fight. I just wanted you to know even if you only blog now and again, he’ll never be forgotten.

  15. Shannon Avatar
    Shannon

    Although I miss reading your beautiful writing, when I don’t see a lot of entries in the blog, it makes me think that you are doing OK and living life. That doesn’t mean that Ronan and all he stands for is dwindling away. It just means – to me, at least – that grief isn’t pulling you into hellish depths on those days. And that makes me smile for you and your family.

  16. S.F Avatar
    S.F

    You have the loveliest baby girl in the world, but I wish so badly you could have your lovely little boy returned to you, back in your arms, where he belongs <3

  17. S.F Avatar
    S.F

    P.S – I’m sure the safest place for Poppy is sleeping between her mama and daddy…just make sure your giant husband doesn’t roll over and squish her by mistake 😉

  18. Becki Avatar
    Becki

    We love you Maya!

  19. Susan Avatar

    Maya,
    I haven’t stopped in in far too long. I had no idea you had a new baby girl. Congratulations.
    I just want to say, I have no idea how you feel {and I hope I never do and that no one would ever have to again. A HUGE WISH} but I know that I would feel the same way. You are an amazing, amazing mama.
    I can’t get through a post without crying which is why I stopped coming. Well, I’m back. And I’ll just have to cry along with you.
    Your last line kills me every fucking time.
    Love you. Kiss that sweet baby.
    xo
    Susan

  20. cami Avatar
    cami

    Maya I am always happy to donate headbands. It was a hit with girls at PCH last month. ANy way I can help is my pleasure. Love you!

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