“This is how dreams die.” -Woody Thompson

 

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 I’m not going to go into why I titled this post this way tonight because not everything can be shared. Let’s just say Woody came home and said this to me tonight for a very good reason. All I am allowed to say is screw anybody who sets out to get rich off kids with cancer. Fucking unreal.

Ronan. I cannot believe your baby sister has been here for three weeks today. It has gone by so quickly. We have still been lying pretty low, and I swear it feels like I have been doing nothing but nesting and breastfeeding her since she arrived. The quiet has been good for me. Or at least that is what I am telling myself for the time being. I do miss my crazy, insane, I’m-losing-my-mind days. Those days got me through a lot of the darkness. I’m sure those days are not over yet, but for now I am just trying to soak in the peacefulness your sister has brought into our lives.

We’ve had a couple of out-of-town visitors. Your Nana came to help out with things and to meet Poppy. It was, of course, wonderful to have her here, as it gave me a chance to do nothing but focus on your sister and let myself become somewhat human again. I was exhausted — not from the lack of sleep I’ve been getting — but from the physical part of your sister’s birth and the toll it took on my body. Now I am starting to feel somewhat normal again, and I know a big part of it is due to the rest I was able to get with your Nana in town. She picked up a lot of the slack, and for one full week I didn’t have to touch the laundry or cook a thing. It was heaven and so very helpful.

Your Fairy RoMo popped into town just for a day to see her new goddaughter. That was a magical day indeed and so special that I can hardly put into words what it was like to see the two of them finally meet. It was like, for once, something in this world without you made sense for a split second. If I can’t have you here to meet your Fairy RoMo, having Poppy here is the next best thing.

We took Poppy all over with us that day. We had an impromptu Poppy party thrown together by Stacy, where we sat around at a cute little restaurant and had a nice lunch. It was pretty much her first time out in the world. After that, we took Poppy to your favorite restaurant, Chelsea’s Kitchen. We sat on the patio and went ga-ga goo-goo crazy over your sister.

As I was sitting there, I was taken back to the night of your funeral — the celebration of life — one of the worst nights of my life. I remembered being there after we had your services. I thought to myself, how in the world could I have come here with a bunch of people the night of Ronan’s funeral? In my white dress, looking like a zombie, I’m sure. I hardly remember the night, except that somebody snapped my picture with Quinn on my lap, and I remember smiling into the camera. How I was able to form a smile is beyond me. I know I did it because Quinn was right there, and I was trying to act somewhat normal — like this is a fucking normal thing to do. Eating tuna tacos with a bunch of people after my child had just died. Sitting in the front row listening to people talk about you, holding your brothers’ hands, without tears streaming down my cheeks because I was too numb to feel anything.

And now here I am, sitting right back at that same restaurant, holding your sister and kissing her sweet cheeks. How is this my reality again? I wanted to vomit right there on the spot, but I just sat there quietly instead, doing everything in my power not to cry and crawl underneath the table. I let the scene of that awful night play out in my head instead.

Every time I think about you and what has happened lately, it’s like my mind goes back to not being able to process it. My brain automatically screams, “FUUUUUUCCCCCKKKKK!!!!” and that’s about it. Sometimes I cry. Sometimes I don’t. I always feel like I’ve been punched in the gut.

I took your brothers back to their therapist last week just to check in. Quinn didn’t understand why he had to go because, as he told your Nana, “If I needed to talk about something, I would just talk to my mom.” That was sweet to hear and made me feel good, but I still wanted him to check in with Dr. Rachel.

After she met with Quinn, I spoke with her. She said he is doing really well — that the worry brain he used to have seems to be totally gone. He also told her that he hasn’t seen me this happy in a long time. That stung a little bit. Happy? How can that be? It almost felt like a betrayal to you, Ronan. Don’t get me wrong, I do want your brothers to see me this way. This is the way they deserve their mom to be. But it still felt weird to hear that. I just wasn’t ready for that word quite yet. It was like swallowing a really big horse pill and doing everything I could not to choke on it.

Dr. Rachel told me she doesn’t feel like she needs to see Quinn anymore — even though she would love to because she thinks he is such an amazing little guy — but it’s not necessary at this point. Liam, on the other hand, still needs some time with her. He is still pretty emotional about all of this. He tends to keep things to himself more than Quinn does. We talked about making sure she gets some time with him before the shitstorm of May 9th and all the lovely dates that follow.

Your brothers are, of course, so in love with your sister. It is so strange to watch them with her, thinking they were doing the exact same thing with you after you were born — and how you are just gone now. They fight over who gets to hold her, kiss her, and love on her. They say the funniest things about her.

The other day, I had an outfit on her that was too big because she is so tiny. The little tank top she had on kept sliding down, and Quinn said, “Mom, why isn’t she wearing a bra? People are going to see her privates.” I almost peed my pants over that one. The innocence at nine years old melts my heart like crazy.

They both can’t get over the fact that she doesn’t have teeth, and Liam sits there trying to teach her to talk. He’ll say over and over, “My name is Liam. L-I-A-M. Your name is Poppy. P-O-P-P-Y.” It is the cutest thing ever. I’m sure if you were here, you’d be coloring on her with markers while I had my back turned, or putting toothpaste in her hair, or cutting it with scissors. You were always causing trouble in the best way possible.

Your daddy has been doing things like playing guitar for Poppy. The other night I was sitting in bed with her, listening to him play. I said, “You need to learn a Taylor song for her.” He asked which one and said, “Not Ronan. I love it, but I don’t think I can get through that one just yet.” I agreed and immediately thought of one of my favorites from The Hunger Games soundtrack, “Safe and Sound.”

Fast forward a week later, and your daddy has that song down perfectly. I remember where I was the first time I heard it. We were in Maine for the one-year anniversary of your death. Your daddy and brothers ran into a restaurant to pick up pizza, and I was sitting in the car alone. That song came on, and I started bawling. I thought it was so beautiful and couldn’t understand how I hadn’t heard it before. I sat there thinking how much I would have loved to sing it to you.

Now here we are, and your baby sister will grow up with your daddy singing that song to her. Once again, the next best thing to having you physically here.

Our visitors have still been few and far between. Your Sparkly came by last week just to check in. I showed him your room and how different it is now. I think it was hard for him to see, but he said it looked beautiful. It was hard for me to show him. After that, we just sat on the couch and stared at your sister while catching up. Sometimes a lot of words aren’t necessary.

He asked where your Nana was. I told him she had gone out to run errands and that she has a hard time sitting still. He said, “Now I know where you get it from.” I smiled. Then he asked, “Where is your mom sleeping? In Ronan’s room?” I paused and said yes.

You see this, Ronan? This is why Sparkly gets it when not many other people do. Those three words — “in Ronan’s room” — meant so much to me. Sometimes the littlest things mean the most. He quietly said he couldn’t believe how much she looks like you.

Cue tears.

That dimple. I still cannot get over it.

That’s my update for today. I’ve started hiking and running again. I know I’m supposed to wait six weeks postpartum, but they don’t call me a rebel for nothing, right, little man? The exercise feels good.

Today has been a little tough for a couple of different reasons, but mostly because I seem to be missing you more than ever. Throw May on top of that, and it’s a wonder I can even leave the house and function like a normal person.

I’m going to go for a run to blow off some of this never-ending pain.

I miss you. I love you. I hope you are safe.

F U Cancer.

xoxo

 

Comments:

34 responses to ““This is how dreams die.” -Woody Thompson”

  1. Rita Dickinson Avatar
    Rita Dickinson

    She is so beautiful. I can’t believe how much she looks like Ronan, but with dark hair. Congratulations to you, Woody, Liam, Quinn and Ronan.

  2. Glenda Avatar
    Glenda

    Love all the pics of Poppy.
    I was over in your neck of the woods Saturday when you posted you were hiking. Someday we will run into each other?!
    Rolove RoMama
    Xo

  3. Deborah Avatar
    Deborah

    Poppy is so beautiful!! She has SO much hair!!

    We are working on plans for May 9th to spread the RO-LOVE!! My heart is so heavy for you.

    Ps….my son had a birthday party this weekend. He tied an army guys to his balloons and let them go. We agreed that Ronan would play with them. <3

  4. Chelsea Avatar
    Chelsea

    I too cannot believe how much poppy looks like Ro. So special. I’m not at all surprised you’re hiking and running again, you and Ro will always be rebels at heart 🙂 I cannot even begin to fathom how shitty May is going to be, and I continue to be amazed by your strength and beauty.

  5. kristin from Ahwatukee Avatar
    kristin from Ahwatukee

    glad you are rested a bit Maya…I’m sure Nana LOVED being there for you. Baby Poppy is beautiful. I wish this was “smell-a blog” 🙂
    xoKristin

    1. Jenn Avatar
      Jenn

      smell-a-blog…that’s a great idea! what mom doesn’t love new baby smell! 🙂

  6. Danielle Avatar
    Danielle

    Precious all around!!!

  7. Emily Avatar
    Emily

    The first thing you wrote in this post is exactly what I was thinking the other day. I went to the store and outside the doors people were collecting money for the American Cancer Society. They asked me if I would like to donate and I simply told them that I don’t support organizations like this. The man looked at me confused. I pointed to his sign and said look at the kids faces on here. Your using their innocent little faces for your benefit. They don’t get anything out of this. I know where your money goes and it’s not right. And with that I walked away.
    P.S. Poppy is beyond amazing. She looks almost identical to Ronan.

  8. Jennie Duggan Avatar

    Maya, it’s ok to be happy. Ronan wants his mama to be happy, that’s why he sent you Poppy 🙂 She looks like a darling child, like all your children. It’s lovely to see the pics of her, even if she does refuse to wear a bra (still laughing over that one)

  9. Kodiak My Little Grizzly Avatar

    The part about a bra… oh my!!! my kiddo’s are all asleep and i lol i almost peed my pants! I absolutely love the glasses on her. I agree with Jennie. It is ok to laugh and be happy. There is a verse in the bible that says “even in laughter ones heart may be in pain” It’s not a betrayal. But our memories and love we will carry with us with different measures of pain. You are a good mom. Be kind to yourself. Liam and Quinn are going to bring more laughter to you with a little sister. running and walking we do as well. Just blogged about that earlier tonight about our walk as a family. 🙂

  10. Yvonne Avatar
    Yvonne

    RoMama, I’m so fascinated by your strength and your unconditional love to your husband and your kids. It really touches my heart so much everytime I’m reading some lines from you. You fill them with so much wisdom and love. I’m so sure that you will rock May with all you are, Ro will be so proud of you. To me it was so clear that you start hiking as soon as possible, you are not a rebel for nothing :-)))
    Your Poppy baby girl is so beautiful and I love your pics with her – it’s wonderful that she makes you enjoy life the way you are doing.

    Lots of greets from Germany to you RoPoMama!!!

  11. Megan Avatar
    Megan

    Safe and sound is the perfect song for her and omg the bra comment – too freakin’ cute!!! It is ok to be happy. It is not a betrayal to Ro at all xxx

  12. Sara Avatar
    Sara

    She is so gorgeous.I bet Ronan is going to keep her safe and sound…I am really happy that you are “happy”.It’s ok to be happy,you are not betrayling Ro.I don’t know why but I think he can understands you but I wish he was with you and not understood you.Love u

  13. Patty Avatar
    Patty

    Maya, thank you so much for continuing to tell us your story. We’ve all fallen in love with your whole family. I continue to admire your grace and resiliance and strength learning to find joy in the midst of your grief. I think the moments that you find yourself feeling happy are when Ronan is with you the most. He’s got to be loving watching over Poppy and seeing you, Woody, Quinn and Liam smile again.

  14. andrea Avatar
    andrea

    You always make my day!!! Hearing from you is like talking with a sister!! You have connected me to your family in a crazy way!!! I fucking hate cancer I will fight this fight with you 🙂

  15. Jenn Avatar
    Jenn

    She really does look so much like Ronan…it’s incredible. Now get that girl a bra! 🙂 Love you Maya and your amazing family.

  16. Charee Harrison Avatar
    Charee Harrison

    Fuck cancer and fuck all the people who take advantage of the most horrible situation imaginable. Love you Maya!

  17. iheartpinning Avatar

    Poppy is beautiful. Love the full head of rich, dark hair!

  18. iheartpinning Avatar

    Poppy is beautiful! Loving that head of dark gorgeous hair!

  19. Michelle Avatar
    Michelle

    Maya I know exactly what your talking about ppl trying to get rich off childhood cancer…There was a mother in NJ who was raising money for her 9 year old son who supposeably had ” Hodkins Lymphoma”… She raised over 35,000 dollars which is freakin unreal, considering she actually told her son that he had cancer (which he did not), Makes me want to kick her ass!! BC what good mother would tell their child that!! who knows what damage this is going to cause mentally for this kid , I mean shit your mother tells your dying of cancer and now she is in jail for fraud BC she was raising money for your cancer treatment !! Oh by the way kid your cancer free and you never had cancer WTF!!!…Stupid people ruin things for the rest of the world!!! Oh by the way POPPY IS SOOOO ADORABLE!

  20. donna Avatar
    donna

    Maya……Poppy looks so much like you, and so much like Ronan. The gift is to see her everyday and be reminded of him, and your love for him. He lives on in your family and your love for your family, of which he will always be a part of. <3

  21. Katie Avatar
    Katie

    she is beautiful. I have been reading your blog for awhile and thank you for sharing with the world. I have learned so much through your story even though I wish it did not have to be your story and you still had your precious Ronan here with you. Thank you for your authenticity and braveness through it all and I hope you feel everyone’s love and prayers for your family and your new beautiful Poppy, I know she will never replace Ronan and I hope she heals your heart a little, while Ronan still is with you always….

  22. Sam Avatar
    Sam

    What a beautiful baby… and what an amazing mom. xoxo

  23. Donna Tine Avatar

    Quinn is one funny little man – love the innocence of a child! Poppy is one cute baby. Sending you all love – thinking of your Ronan always. Thank you for sharing the pics. F/U cancer indeed…..

  24. LucyBre Avatar

    Reblogged this on Being Weirdly Awesome.

  25. alina Avatar

    Poppy is the most precious baby doll cuddlebug and your twins are hilarious. If only Ronan were here your family would truly be perfect and complete.

    On a side note, does that baby EVER wake up? Her eyes are always closed! 😀

  26. Sarah Avatar
    Sarah

    I have been following your blog for quite some time an have cried with you and laughed with you and now I celebrate your Poppy with you. Your Ronan is such an awesome spirit and reminds me of what is truly beautiful in life. I am inspired by your will to kick cancers tail. I truly know you will change childhood cancer. While I can never put myself in your shoes because only YOU know of the most special relationship you shared with Ronan, I am a sister in loss and can relate to the peace that a child born after loss can bring. Children are magical in the healing they bring to the heart and I know the hole will never be filled but the new love for Poppy I hope will bring some peace. And I totally think she looks like Ronan. He will always be gorgeous. The first time I saw his picture where he is holding the flower, it took my breath away. Much love and luck to you! F U Cancer!!

  27. Ali B Avatar

    Such a perfect song to play to Poppy…I’m glad it wasn’t ‘Never Grow Up’ (which I noticed a few people had mentioned on your IG account) because as much as the baby phase is beautiful, don’t we all want Poppy to grow up into a beautiful adult? Isn’t that what we want for all kids?
    Whatever it is that Woody is referring to in that quote, I hope it doesn’t affect that work you are doing for Ronan’s foundation xo

  28. Katie Avatar
    Katie

    She is beautiful. Congratulations to all.

  29. withasmile Avatar
    withasmile

    I read here a lot, but I’ve never commented before. I just wanted to say that Poppy and Ronan are both so beautiful, and that your family is very sweet.

    Melissa 🙂

  30. amourningmom Avatar

    Poppy is so adorable. I agree with the others that you deserve to be happy and that is what Ronan would want for you – but as a bereaved parent I feel like all the “happy” in my life is bittersweet. Everything good would be so much better if our child/children were still physically with us. Sending you hope and hugs.

  31. Anne Avatar
    Anne

    Hi Maya – Just wanted to add my words of support. There is just a spaghetti soup of emotions in your last post. You have an incredibly difficult month coming up. I will continue to say prayers for you and your family. I wish I had some amazing advice to offer, but I don’t. The only thing I have to offer up is a fairly ridiculous piece of advice considering you are breastfeeding a newborn, but I will offer it up anyway. Please protect and defend your need to sleep. I know that is ridiculous, but if you can just get a reasonable amount of sleep you will increase your “dealability”. This is a totally fabricated word, but I use it all the time. Us parents, we have to deal. Sleep helps. Lame, I know, eye roll understood. Thinking of you and wishing you well.

  32. Chloe Avatar
    Chloe

    As you said once “not a beautiful life, but a life filled with beautiful moments” enjoy the beautiful moments with your little burrito <3

  33. Gabriela Minescu Avatar
    Gabriela Minescu

    Dear Maya,
    I have a child and I am expecting the second one, and because I didnt feel well, for more then a month I was running to all the doctors so, I didnt have time to read your blog.
    Today I read your posts, from April and May, and when I saw Poppy’s photos, I was so confused, I didnt know if it is Ronan or the litlle baby girl.The resemblance is striking.
    It is like Poppy reincarnated Ronan. It is amazing.Like he was feeling your pain from where he is, all these years, and he decided to come back to you.To embrace you, to complete your life again.
    It was so emotional.So incredible.
    I send you all my love and my energy,
    Gabriela
    Romania

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