Talia Love

I’ve followed Talia’s story for a very long time. I don’t follow a ton of childhood cancer stories, due to just being overwhelmed by how many there actually are out there. This is a girl that I check in on, on a regular basis. When I first starting watching her YouTube videos, I was amazed by her beauty, strength, and her infectious love for life… even though she had fought Neuroblastoma for 5 years. That didn’t damper her spirit, if anything it seemed to make her shine more. Her spicy ways reminded me a lot of Ro.

Talia’s disease has recently gotten worse and she is having to make a very hard decision. I don’t know what it is going to take for this world to wake up and make childhood cancer a priority in life. None of these kids or parents deserve this. How is it that childhood cancer is the number one disease killer, in children, yet everyone just looks away. These kids deserve so much better. They deserve the chance to grow up into adults and get fucking prostate cancer or breast cancer. Why are we not putting them, before everyone else??

Who can ignore the facts that come along with childhood cancer and decide that it is o.k. to look the other way?

Cancer is the number one cause of non-accidental death in children
At present childhood cancer cannot be prevented and occurs regularly and randomly, sparing no ethnic group, socioeconomic or geographic class
Approximately 46 U.S. children and adolescents are diagnosed with cancer every single day
For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives only 30 cents.

My Ronan deserves to be here. This beautiful, brave girl should not have to make the decision to go forward with a very harsh treatment or just stop everything all together and enjoy the time she has left. It is all so very wrong. Today, 2.4 billion dollars to explore Mars can go and get fucked. It’s just one of the many examples I’ll use to show how wrong this is. You are telling me Mars is more important then this girls life? Then Ronan’s life? Then all of these other kids out there who will be diagnosed and die from childhood cancer? I don’t fucking think so.

I miss my son. I miss my son and the only thing I can do is continue to fight for him like I know he would want me to do.

Please watch this little brave souls video and be thankful for all that you have. Just not today, but every single day you are alive.

http://shine.yahoo.com/beauty/12-old-8217-heart-breaking-life-affirming-videos-170800971.html

rockstarronan

August 10, 2012

childhood cancer, dreams, honesty, I hate Mars, love, maya thompson, Neuroblastoma, Rockstar Ronan, sadness, Taila Love, tears, true love, truth

10 responses to “Talia Love”

Jenn

August 10, 2012 at 1:13 pm

She’s awesome. I’m glad they are putting it all over the internet, so hopefully people will start to see what the priorities should be. What a beautiful girl.

Reply
Penny

August 10, 2012 at 1:32 pm

I watched this beautiful girl’s video yesterday (before I knew you followed her too) Everything about her reminded me of your spunky attitude. She is simply a gorgeous girl inside and out. I wish that girls video would go viral just like that elderly lady being bullied on a school bus did. They raised hundreds of thousands of dollars in like 2 days. Oh, I so wish this world had it’s priorities straight. Why do we save every country from all their natural disasters, yet the world has a natural disaster called cancer and our lovely government does nothing to help (Unless it’s breast cancer, then we all know about that… yes, I resent how much attention it gets… ) I have no idea how you’d do it, but not knowing how to do something has never seemed to stop you…. If you could get Brett Michaels, Taylor Swift and any other famous people you know to help you in setting up a national telethon (like after sunami’s), I believe seeing the videos/pictures on TV would raise awareness. I don’t think people even realize how deadly it is, because anyone without a sick child has been sheltered from the staggering statistics.

I’m sorry this happened to your beautiful Ro and your family. I hope the world wakes up and starts saving our children.

Next week, our city is having a Rock Cancer Event. I bought a purple Rock Cancer shirt in honor of Ronan. I will attend this event in honor of Rockstar Ronan as well.

FU Cancer!
Penny Grissman

Reply
Glenda

August 10, 2012 at 1:58 pm

She’s beautiful!!! So mature for her age!
FUCancer! Cancer definitely sucks!
Thinking of you and Ro! Always Rolove!! xo

Reply
Jaime

August 10, 2012 at 2:25 pm

Such a pretty girl! So sad. My prayers go out to her and her family. It sucks. I always feel helpless to do anything . Thinking of you and ronan today as i always do. Xoxo

Reply
Donna Richards

August 10, 2012 at 2:46 pm

My Maddy has been obsessed with watching Talia’s videos for a few months now. In fact, after watching some myself and talking to my kids about what cancer is…this is another reason we decided to do the race. My heart is sad :-(. There are no words.

Reply
Christina Appleget Van Hise

August 10, 2012 at 6:04 pm

She is beautiful, inside and out! I love her spiciness! She is 100% right, no one should ever have to go through what she has or make decisions like this, especially not a child. I will stand by your side to see to it that someday there are no stories like this to be told. Cancer is an asshole.

Reply
Sam

August 12, 2012 at 8:57 pm

I was Talia’s counselor at Sunrise Day Camp two summer’s ago. Sunrise is the only day camp in the country for children with cancer and their siblings. It is a truly incredible camp for these children to go and just be kids are try to forget about their illness ( or their siblings illness, while they are there). Just knowing Talia has made me a better person. She is so strong, courageous, beautiful, and definitely spicy. I actually found your blog through Talia’s facebook page over a year ago and have been following your heart-wrenching, brave, and powerful story ever since. It is hard to comprehend those statistics about childhood cancer and the lack of attention and funding it receives. I know you have amazing ideas and big plans in the works and I can not wait to hear all about them. I think of you and Ronan very often and I want you to know how unbelievably sorry I am that he died. Please continue to fight for him and all of the other children who do not deserve to suffer from this horrible disease. I know that I will dedicate my career to this cause and always keep Ronan in mind while doing so!

Reply
bee

August 14, 2012 at 9:58 am

She is such a brave frighter!

The last lyrics to “You are my Sunchine”….Which it seems everyone leaves off
“The other night dear,
As I lay sleeping,
I dreamed I held you in my arms.
But when I awoke dear,
I was mistaken,
So I hung my head and cried.”

Reply
candysblog

September 12, 2012 at 3:11 pm

You are so AMAZING!!! As I was reading your blog and just taking it all in I came across this one. I had my ITunes on (I have a very eclectic mix of songs) the song You are my Sunshine came on. I said out loud WOW!!! My 8 yr old and I, that is as he says “our song”. Thank you, for sharing your journey, for sharing your heart and soul, for giving the gift of coming to know not just you but your Ro.. Thank you for so many other things.. You have touched me to my toes.. I wish I lived closer so I could run for your Ro… Thank you again so much..

So much love coming to you from the state of the Fighting Irish
Love, Candy

Reply
candysblog

September 12, 2012 at 4:20 pm

You are AmAzInG!!!!! You put so much of not just you but your Ro into everything you write. When I was first reading this I had my ITunes going and the song that started playing was You are my Sunshine. I said to myself WOW.. Thank you so much for giving us the gifts that you are blessing us with.

Lots of love from the state of the Fighting Irish

Love,
Candy

Reply