2 thoughts on “I’m going to be doing a lot of throwing up tonight.”

  1. Great photo/quote to go with this mama…

    I’ve had a lot of revelations about this shit of a situation the children of our future is in. I have got a damn good letter in the works that is going to go to the White House every fucking week until I get a personal reply and response to my questions and concerns.

  2. Maya,
    The Rally Foundation sent out a great email about this today giving the links to the proper people to contact including the manufacturers and what exactly to ask for. I hope you will find this helpful and pass it on so that the word gets out and we bombard them to step up production. These kids suffer enough from lack of funding and research and to not have a medication that does work is just plain wrong. Thanks!

    Dear Rally Families and Rally Supporters,

    The past few days Rally has been receiving calls and emails from concerned parents and supporters asking if it is true that there is a critical shortage of preservative-free methotrexate, a vital drug for children with the most common form of childhood cancer, Acute Lymphoblastic Leukemia (ALL). Unfortunately, this is true. As you know, Rally’s mission is to find better treatments and cures for childhood cancer. Unless production of preservative-free methotrexate increases, hospitals will run out of the medication completely in the days and weeks ahead. Some institutions have already begun rationing preservative-free methotrexate.

    Chief of Oncology at Children’s Hospital of Philadelphia and member of Rally’s Medical Board of Advisors, Dr. John Maris, M.D, was recently featured on CBS news discussing the issue. This news story will give you a good overview of the problem.

    The childhood cancer community has come together as a whole and is asking all supporters to help. PLEASE ACT NOW! This is how you can help:

    Contact the US manufacturers of Methotrexate and ask them to:

    1. Prioritize the production of the preservative-free form of methotrexate.

    2. Consider working with the FDA to import preservative-free methotrexate if sources are available.

    Hospira, Inc.

    Mylan Inc.

    Sandoz, Inc.

    APP Pharmaceuticals, LLC (currently does not make preservative-free methotrexate but is working to get FDA approval to do so)

    Second, contact your Members of Congress and ask them to immediately send a letter to these same pharmaceutical companies requesting that they:

    1. Prioritize the production of the preservative-free form of methotrexate.

    2. Consider working with the FDA to import preservative-free methotrexate if sources are available.

    Contact your Representatives here , and your members of Senate here.

    To read more about this issue, please see People Against Childhood Cancer.

    Thank you for your concern and your action.

    Rally On!

    Dai H. Chung, M.D. Dean Crowe
    Chair, Rally Foundation for Childhood Cancer Research Rally Foundation for
    Medical Advisory Board Childhood Cancer Research
    Professor and Chairman, Department of Pediatric Surgery CEO and Founder
    Professor, Department of Cancer Biology
    Monroe Carell Jr. Children’s Hospital at Vanderbilt

    Meet Rally Kid Mia, ALL Fighter

    Mia was diagnosed with High Risk Acute Lymphocytic Leukemia (ALL) on 3/13/3009 at age 2. She was sent immediately to Seattle Children’s Hospital, where they began treatment. This was only the beginning for Mia and her family. Mia and her family spent most of 2009 living in Seattle away from home and away from Mia’s best friend and biggest supporter, Noah, the best twin brother a girl could ask for.

    Mia is now 4 1/2 years old and has been fighting cancer for over half of her life. She was in remission until Christmas 2010, when she went in for a routine chemotherapy appointment to find out the unthinkable. After almost 2 years of chemotherapy, and only 6 months out from finishing treatment, Mia had relapsed. She was again hospitalized, and endured chemotherapy, radiation, and a stem cell transplant. Her twin brother Noah was a perfect match and was her stem cell donor.

    Mia was preparing to go home after her stem cell transplant when her family received the news that Mia had relapsed yet again. Mia is truly in the fight of her life.

    Mia’s parents are so proud of her for being brave and strong throughout her treatment, and so proud of Noah for being a loving and supportive twin brother. They say “It’s absolutely amazing the strength of a child and the beautiful connection these kids share. Mia loves dancing, listening to music, art and is an incredible athlete. Mia is a hero and reminds us that everyday is a gift – enjoy life!”

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