Simple and Sweet

Last night we had all 3 boys stay at the RMH with us. It was so sweet. Liam slept on the couch, Quinn snuggled up in the twin bed with Woody, and I cuddled up with Ro in ours. Ronan woke up this morning and the bloody nose from HELL had returned. He has been doing so well and has not had any for months. I sat and held it for 45 minutes, trying to get it to stop. The icing on the cake was Ronan telling me he was going to be sick to his stomach and he then went to the bathroom and threw up a massive amount of blood. We all got dressed, put Ronan in the stroller while Woody pushed him and I managed to walk beside Ronan while holding his nose. We made it to the Urgent Care at Sloan which is basically their own private ER. Platelets were ordered as soon as we arrived and they drew his labs. The bloody nose continued but we all remained calm. Mimi and Papa soon came to get the twins, but Quinn wanted to stay with Ronan. The kid passed up a chance to go to Dylan’s Candy Shop to stay with Ro. Unreal. He sat with us, helped me by getting me Kleenex after Kleenex, and didn’t flinch when Ronan once again, threw up blood. You would think this would all be pretty traumatic to a seven year old, but it doesn’t seem to phase Quinn at all. He is just happy to be with Ronan and to be helping out. Woody took Quinn back to the RMH to shower, do laundry, and clean up while I sat with Ronan and got his bloody nose under control. We both fell asleep curled up on the bed while they pumped platelets into him and then blood. A few hours later we were admitted up to the 9th floor where we will remain for probably most of the week. Ronan’s ANC counts have hit rock bottom and are now at 0. This chemo has wiped him out. As much as I hate to see him this way, I just keep telling myself to keep the bigger picture in the back of my mind. He has to get worse before he gets better and the chemo is doing it’s job.

Mimi and Papa took Liam and Quinn to the movies and Woody returned back to the hospital around 7. Ronan was asleep so I snuck out and walked back to our place. It was so freezing that I had myself talked out of the run that I had been planning on doing all day. It was already dark, freezing, and I was beat but I convinced myself to just try to get in a few miles. A few miles turned into 12. Not sure how that happened….. I ran my usual route and then some. And it had nothing to do with taking a wrong turn out of the park, running the streets of NYC, and then getting lost. Thank god for GPS on my phone!! After I found my way back to our hood, I went to grab Quinn from Mimi and Papa’s. He will stay here with me tonight while Woody sleeps at the hospital. The twins are not allowed to visit Ronan due to their age and it being RSV season. We will all rotate taking care and spending time with them. Having everyone here makes everything seem o.k. and everybody is so much happier.

So, no Internet still at RMH. Writing from my iPhone is getting annoying but I wanted to share with you all our latest update. Going to leave you with something that has totally made my night tonight. A few days ago, when I was walking from Sloan to RMH, I had noticed that someone had taken chalk and written,”Become your dream.” It made me smile. Tonight, on my run in the middle of Central Park as I was about 4 miles in, I saw the same thing written. Throughout my run, this person had written the same thing over and over at least a dozen times. Each time it made me smile. What a beautiful thing to write and I wish I could hug this person. Something so little filled me with so much happiness and love. What an amazing gift and it truly does show you how the simple things in life, mean so much.

That’s all for tonight my loves. Sweet dreams to you all!!



16 responses to “Simple and Sweet”

  1. I am O- if you ever need blood or platelets. Our thoughts and prayers are with you all. So glad the thompsons are there together. I hope the run cleared your mind, very impressed with all your positive thoughts…they will take you a long way. Keep up the good work and know that thousands are praying for you all.

  2. I was thinking of you last night as I was re-arranging the room at PCH to accommodate the toilet next to her bed, but still allow me to pretend to sleep on the couch/bed.

    It’s not the same there without my drinking buddy. Especially since they busted me! Miss you guys. Hang in there.


  3. Where is the “love” button for this blog? You all are so blessed to have each other. And you are right, it is the small things in life that matter the most. Take care Maya. Have no fear, TeamRockstarRonan is here!!


  4. I have been reading your blogs and am so in tune with you.
    All the bad times will turn and you will be a new family.
    Not the same but new and stronger.
    Prayers and Angels are coming to help you.
    Much love, D

  5. It is a real pleasure to read your blog. I feel like I gain so much strength reading what you and your family are going through. Thank you for sharing your amazing journey. Stay strong…you have so much love coming your way from so many people who care so much.As always we will continue to pray for you.

  6. May God bless you and keep you all. Hopefully spring will come soon and you can enjoy some of the beauty of the season in this area.

  7. Also, please let me know if there is any need for blood/platelets! When my son was being treated at Sloan lots of our friends in the city came and donated right at the hospital.

  8. I hate to hear about the bloody nose and the throwing up blood, but you are right, that is the way chemo works. Makes it all so much worse before it works its magic. Praying the magic kicks in quickly. He is going to get through this, and so are you. I am sending lots of love and prayers to you!

  9. What a wonderful image of the Lord writing notes to you in chalk…just a though….continued prayer for all.

  10. Praying Ronan’s #’s go back up and chemo kicks in to make him feel better soon.

    Stay strong!!! Fight on!!!

  11. You inspire me and encourage me through your life’s journey as well as mine. I know each day you will continue to be brave, strong and like the “little engine”…I know I can, I know I can I know I can…. I knew I could, I knew I could, I knew I could…

  12. I read this today and thought of you right away, Maya.
    “Why, sometimes I’ve believed as many as six impossible things before breakfast.” -The White Queen, Alice in Wonderland.

    Sending prayers, happy thoughts, love and strength to you and Ronan and your entire family.

    Oh and a big F you to cancer and to nurse ratchet or whatever her name is.

  13. I meant that quote to be positive. I hope you read it way too..

    1. Meg, This is one of my favorite Quotes ever! I’m obsessed with that movie and say this in my head at least once a day:) Thx for thinking of me!!!

  14. Willits family Avatar
    Willits family

    Great talking with you the other day. We love and miss you so much. Sending much love and prayers. Hugs to all my buddies and yourselves.

    The Willits Family

  15. That was clearly an angel sent by God to let you know that Ronan is going to “become his dream” and beat this disease. God knew that you needed to hear that after some of the negativity on this blog the few days before.

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