The morning started early. Had to wake up Ro and he had to drink contrast in order to have his CT done. We had to fill up a big cup with sprite, added the contrast, and Ronan had to drink all of it. If any of you know my strong willed child, you would have been so proud of him this morning. I was thinking all night, there is no way he is going to cooperate and drink all of this crap before going to the hospital. We got him a straw, it took him about 20 minutes and I talked him though it the entire time. He did it, without putting too much of a fuss. What an amazing little guy…. this is all so unfair to him but he handles most of it so well.
Ronan’s scans are done. We won’t know final results until next week. Dr. M took us back and showed us the CT though. He couldn’t give us exact measurements, but the tumor looks very contained. Maybe about the size of a small apple now. I hadn’t seen the very first set of scans that Ronan had done, until today. His tumor was massive. It had pretty much taken over his entire abdomen. Dr. M said it looks like it has come off of the aorta which is great news… but we still won’t know final results until next week. The bone marrow was done as well so we will be waiting on that too. Lots of waiting, trying to be patient. Good thing we are in such a great city to keep us busy. We don’t have to be back at the hospital until next week so we are going to enjoy our little break. I will let you know as soon as I hear more.
While we were waiting for Ronan to come out of anesthesia, there was a big fuss around the hospital. I quickly learned that Jake Gyllenhaal was going to come by to say hello to the kids. He showed up for about 2 hours and was so adorable. He took pictures with the kids, talked to parents, etc…. As he was getting ready to leave, our little Olivia ran up to him and handed him a Rockstar Ronan card and the naughty version of his Rockstar Ronan bracelet. Olivia pointed to where Liz and I were sitting and Jake came over to say hello and talked to us for about 5 minutes. He was so sweet and adorable. He put on Ronan’s bracelet and said he was going to wear it and took one look at Ronan’s picture and told us how beautiful he was. Which we all already know, but it was very sweet of him to say and to take the time to talk with us. You can tell he really is a nice person and he totally made all of the kids’ and mom’s day today:) Not to mention, Liz, who was over the moon to say the least:) Maybe he will rock the Rockstar Ronan bracelet on the red carpet and help us raise awareness for childhood cancer:) He seems like he has a very good heart.
That’s all for today, thanks for checking in with us and Happy Holidays!!
The picture below is for playroom Cathy at PCH. Ronan says “Hellllloooo Mr. Potato Head!” We miss you!!
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