The beautiful stranger, life, death, and life again

Ronan. 2 steps forward, 3 steps back. Is that how this is going to work? That’s how I feel today. I had one of those days, where I feel as I can’t breathe without you. It started off the way it always does. “Good Morning, boys! Time to wake up. I’ve started your shower.” (insert happy face here)

Shower, teeth brushed, breakfast made, ….. wait. Where’s Ronan? I need to make his eggies. Oh. Ronan is not here….. but continue on anyway. Lunches packed, water bottles filled, dishes done, lights off, boys in car… off to school. Where are you? Because once again, you are not here. I always know this, but some days it smacks me in the face, harder than others.

Autopilot continues on. Boys dropped off, but I knew this morning, that I could not go home to an empty house. I took all of my “busy,” work and my computer to Starbucks so I could sit and get some things done. Coffee, couch alone, laptop out, headphones on, music blaring, and I did my best to ignore all the happy people walking around like sunshine was coming out of their asses. WTF you jerks. Don’t you know that my son just died of cancer? Why is everyone so happy and bliss? Don’t they know there are hospitals all over the world, filled with kids fighting cancer? Of course they do not. Why would they? It is much easier to live in,”The Real Housewives of Scottsdale,” than in, “The Real Housewives of Childhood Cancer.”

Just as I was about to fling myself onto the couch across from me, to strangle the two happy mommies, as they sat in deep in conversation in regards to our worlds problems….. “What are we going to do with all of our free time now that our kids are back in school??? “Yoga or Tennis?” mommy # 1 said. “Tennis has much cuter outfits. Let’s take up Tennis.” mommy #2 said. “I agree, but what am I going to do without my Nanny?” mommy #1 said. “I have to hire a new one soon, because taking care of a one year old, alone, is just too much for me. And it’s interfering with my Yoga.”

Deep breaths, I told myself. No judging. I closed my eyes as the conversation continued on… the screaming started inside of my head. And then she appeared. She, as in the beautiful woman, with the bald head, and hat on. She sat down right next to me. She looked like an angel. I touched her arm. The words, “Do you have cancer?” Just flew out of my mouth. Fuck. Did I really just say that? So elegant, Maya. I wish I would have just said to her, “Are you o.k.?” She smiled, told me yes. My next words were, “Are you going to be o.k.?” I wished they would have been my first. I’m still so very new to this world. I have no idea how to navigate it; and my bluntness tends to just organically take over. She told me she was going to be o.k. That they had caught her Breast Cancer at Stage 1. I felt a wave of warmth wash over me. I told her I had a bracelet for her and handed her an F U Cancer bracelet. I had my computer screen open, and your picture was on it. I then told her about you and how you, my 3-year-old, had just died of cancer. She looked shocked to say the least. I put on my bravest face as she sat with tears in her eyes and asked all about you. I did my best to tell her some of your story. It felt like another out-of-body experience. We sat for about 45 minutes and talked. It turns out, her little boy goes to the same school as Liam and Quinn. Such a strange, small world we live in. Such a coincidence. Or not. Such another sign from you. We exchanged smiles, tears, anger, and phone numbers today. I have a feeling I will be seeing her again. This story literally leaves me with my head spinning. Babydoll. I don’t know why this happened to you; but I know there is a much bigger reason than life. You were meant for so much more than just being on this earth. As much as I hate it, and would give anything to have you back here; I know there is something else. Watching all of these little things, that you are making happen, feels as if I am watching you being born, all over again. It often leaves me breathless, exhausted, scared, and vulnerable. But the “life,” part that you are creating, is going to be so beautiful. I just know it.

After I left Starbucks, I went to visit one of our lovies. I tried my best to sit still and articulate all of the thoughts I have swarming around in my head. I couldn’t even do it. My quietness crept in and took over. I am such an easy book to read. The quietness on the outside is always when I am screaming the loudest in my head. Our lovie knows this. Conversation went something like this:

Me: “Hi. I’m just sitting here, trying to figure out how I’m going to change the world.”

Lovie: “You are going to change the world. I have no doubt about that.”

Lovie: “What is going on with you? Why are you so anxious today?”

Me: (insert smartass reply here) “Um, I don’t know…. maybe because of the fact that my child is dead.”

Lovie: “No. That’s not it. There is something else going on. These past few days, your anxiety has been really high.”

Me:(insert another smartass comment here) “Fine. Maybe it’s because of this list. (throw yellow legal pad across couch) My shit list of 500 nothings, but everything, things that I have to get done.”

I tried to blame my anxiety on the “Shit List,” today, which has everything on it from buying toilet paper to writing Dr. Kushner a Fuck Off letter. The “Shit List,” of 500 nothings but everythings that are bogging me down. So many things that I don’t even know where to start. Did I really just not pick up our dry-cleaning, go to the bank, to the grocery store, today because I just couldn’t?? What the fuck is wrong with me that I could not complete these simple tasks today? Those things could have been easily done and checked off my list. I went Inferno Hiking instead; just hoping to run into that Pink Rattlesnake that Tammy told me about yesterday. I actually had a full on conversation in my head today with that Pink Rattlesnake as I was running up the mountain in 112 degree heat.

In my head, it slithered in front of me, showed me it’s fangs and told me it was going to bite my leg. I told that Pink Rattlesnake, that if it tried, I would kick off it’s head off and kill it because the world took you away, so now, I am invincible to any kind of pain. I know what it is like to feel the worst pain possible, so the pain inflicted by the Pink Rattlesnakes bite, would not hurt me at all. He would be wasting his time and his venom on someone who would feel nothing. I watched as the Pink Rattlesnake, slithered away down the trail to take cover under a shaded bush. I continued on my run up the rocky trail. I was almost to the top, where most people choose to stop, at the first bench. A man was sitting there. I took out my headphones and said hello and what in the heck are you doing up here, as nobody is ever out hiking when I am, in the middle of this heat. The man laughed and told me to come sit down next to him. I told him, no way…. that if he wanted my company than he was going to have to keep up with me and continue up the rest of the hill to the second bench. He got up and followed behind me. I told him that I was running up the hill, not walking, and that he’d better keep up. He did a pretty good job, all while managing to tell me that he had just moved here from Idaho, just got a divorce, he has 3 kids, used to live here when he was little. I listened, quietly, and didn’t really say much of anything. I focused on getting my butt up to the top of our place, as fast as I could. Mountain Mike said I was trying to kill him. I laughed. We got to the top, I did my breathing, pacing, and just being. Mountain Mike did all of the talking for about 15 minutes. I kept thinking…. fuck…. I’m going to have to say those words again when he asks about me. Sometimes I don’t feel like telling strangers about you, but then I feel like I am being dishonest about you, us and what has just happened. Mike asked me what my story was.

Me: “Well, you are basically looking at a human being, living life on this earth, in Hell.

Mountain Mike: “Why? Are you going through a divorce?”

Me: “No. My 3 year old son just died of cancer, hence the reason for the Inferno Hiking.”

Mountain Mike: “I am so sorry. You know, I feel like my divorce is a death. I was married to her for 25 years.”

Me: “Mike. That sucks. But you know what, I’m sure you will fall in love again and your heart will be repaired. Mine won’t ever be. EVER.”

I gave Mountain Mike one of your bracelets, told him to look you up, and then maybe he would understand a little more. I told him goodbye, it was nice meeting him, and I would see him on the way down. He started the trek down the mountain. I stayed at the top to do my talking to you. I stayed for about 15 minutes, put my headphones back on, and hauled ass as fast as I could back down to the bottom. I passed Mountain Mike again during my run. I told him to have a good day.

I was hoping the Inferno Hike would have helped to quiet my mind today; but it didn’t. I survived today somehow, but barely. I picked up your brothers from school, took them to Doctor Beth for a 2 hour individual session. Stacy came by to try to help calm me down over my “Shit List.” We went over everything I need to get done. She settled me down. After Dr. Beth we went to dinner with Daddy. I cannot even tell you how painful that was. We to to Wally’s and the owner goes, “How many?” I automatically said, “Five.” Fuck. I than said, “Actually just 4.” I keep forgetting that you are not behind me, running off, throwing rocks or doing something else naughty that I loved so much. The 4 of us sat at a table. It was just sad and pathetic.

We came home, played a board game as a family. We all got ready for bed. I tried to just sit and watch T.V. with everyone. I hate the T.V. now. I got up, headed into your room and just wanted to be alone so I could sob into your pillows, stuffed animals, and let your bed swallow me whole. I don’ t go into your room very often and tonight I so just wanted to sit in there, alone. But Quinn followed me. GODFUCKINGDAMNIT. I could not break down in front of him, I could not sit and sob for you, the way I so wanted to and needed to. Instead, I sat with Quinn quietly in the dark, held it all inside, and listened to him talk about how he used to love to sleep in your bed with you. I talked to him about you, let him love on me when that is so the last thing I wanted. I loved on him back, told him what an amazing little boy he was how I am so lucky to be a mommy to both him and Liam. None of it felt good or comforting to me. But as of now, very little things do. This is a hard pill for me to swallow. I am still so numb, sad, and in shock. Your daddy said to me tonight that he thinks the sadness from us of missing you is only going to get worse. I told him I agreed. For once, I didn’t try to argue back. He’s right. He knows too. We are all broken, Ro. I don’t know what to do with all of these broken pieces. Are they fixable? I don’t know. All I know is the pain today, was too much because I sat by and watched as all of us had a tough day. I can deal with my pain, but sitting back and watching your brothers and Daddy is so overwhelming sometimes. Just when I think I am strong, that I can get through this; it’s days like today that have me wanting to just throw in the towel. It’s days like today that I have to remind myself of you and how you lived your life. You never gave up. I have to use that strength from you, to survive days like today.

I have to go now, babydoll. I love you to the moon and back. I hope you are safe. I love you, Ro.

xoxo

The beautiful stranger, life, death, and life again

Ronan. 2 steps forward, 3 steps back. Is that how this is going to work? That’s how I feel today. I had one of those days, where I feel as I can’t breathe without you. It started off the way it always does. “Good Morning, boys! Time to wake up. I’ve started your shower.” (insert happy face here)

Shower, teeth brushed, breakfast made, ….. wait. Where’s Ronan? I need to make his eggies. Oh. Ronan is not here….. but continue on anyway. Lunches packed, water bottles filled, dishes done, lights off, boys in car… off to school. Where are you? Because once again, you are not here. I always know this, but some days it smacks me in the face, harder than others.

Autopilot continues on. Boys dropped off, but I knew this morning, that I could not go home to an empty house. I took all of my “busy,” work and my computer to Starbucks so I could sit and get some things done. Coffee, couch alone, laptop out, headphones on, music blaring, and I did my best to ignore all the happy people walking around like sunshine was coming out of their asses. WTF you jerks. Don’t you know that my son just died of cancer? Why is everyone so happy and bliss? Don’t they know there are hospitals all over the world, filled with kids fighting cancer? Of course they do not. Why would they? It is much easier to live in,”The Real Housewives of Scottsdale,” than in, “The Real Housewives of Childhood Cancer.”

Just as I was about to fling myself onto the couch across from me, to strangle the two happy mommies, as they sat in deep in conversation in regards to our worlds problems….. “What are we going to do with all of our free time now that our kids are back in school??? “Yoga or Tennis?” mommy # 1 said. “Tennis has much cuter outfits. Let’s take up Tennis.” mommy #2 said. “I agree, but what am I going to do without my Nanny?” mommy #1 said. “I have to hire a new one soon, because taking care of a one year old, alone, is just too much for me. And it’s interfering with my Yoga.”

Deep breaths, I told myself. No judging. I closed my eyes as the conversation continued on… the screaming started inside of my head. And then she appeared. She, as in the beautiful woman, with the bald head, and hat on. She sat down right next to me. She looked like an angel. I touched her arm. The words, “Do you have cancer?” Just flew out of my mouth. Fuck. Did I really just say that? So elegant, Maya. I wish I would have just said to her, “Are you o.k.?” She smiled, told me yes. My next words were, “Are you going to be o.k.?” I wished they would have been my first. I’m still so very new to this world. I have no idea how to navigate it; and my bluntness tends to just organically take over. She told me she was going to be o.k. That they had caught her Breast Cancer at Stage 1. I felt a wave of warmth wash over me. I told her I had a bracelet for her and handed her an F U Cancer bracelet. I had my computer screen open, and your picture was on it. I then told her about you and how you, my 3-year-old, had just died of cancer. She looked shocked to say the least. I put on my bravest face as she sat with tears in her eyes and asked all about you. I did my best to tell her some of your story. It felt like another out-of-body experience. We sat for about 45 minutes and talked. It turns out, her little boy goes to the same school as Liam and Quinn. Such a strange, small world we live in. Such a coincidence. Or not. Such another sign from you. We exchanged smiles, tears, anger, and phone numbers today. I have a feeling I will be seeing her again. This story literally leaves me with my head spinning. Babydoll. I don’t know why this happened to you; but I know there is a much bigger reason than life. You were meant for so much more than just being on this earth. As much as I hate it, and would give anything to have you back here; I know there is something else. Watching all of these little things, that you are making happen, feels as if I am watching you being born, all over again. It often leaves me breathless, exhausted, scared, and vulnerable. But the “life,” part that you are creating, is going to be so beautiful. I just know it.

After I left Starbucks, I went to visit one of our lovies. I tried my best to sit still and articulate all of the thoughts I have swarming around in my head. I couldn’t even do it. My quietness crept in and took over. I am such an easy book to read. The quietness on the outside is always when I am screaming the loudest in my head. Our lovie knows this. Conversation went something like this:

Me: “Hi. I’m just sitting here, trying to figure out how I’m going to change the world.”

Lovie: “You are going to change the world. I have no doubt about that.”

Lovie: “What is going on with you? Why are you so anxious today?”

Me: (insert smartass reply here) “Um, I don’t know…. maybe because of the fact that my child is dead.”

Lovie: “No. That’s not it. There is something else going on. These past few days, your anxiety has been really high.”

Me:(insert another smartass comment here) “Fine. Maybe it’s because of this list. (throw yellow legal pad across couch) My shit list of 500 nothings, but everything, things that I have to get done.”

I tried to blame my anxiety on the “Shit List,” today, which has everything on it from buying toilet paper to writing Dr. Kushner a Fuck Off letter. The “Shit List,” of 500 nothings but everythings that are bogging me down. So many things that I don’t even know where to start. Did I really just not pick up our dry-cleaning, go to the bank, to the grocery store, today because I just couldn’t?? What the fuck is wrong with me that I could not complete these simple tasks today? Those things could have been easily done and checked off my list. I went Inferno Hiking instead; just hoping to run into that Pink Rattlesnake that Tammy told me about yesterday. I actually had a full on conversation in my head today with that Pink Rattlesnake as I was running up the mountain in 112 degree heat.

In my head, it slithered in front of me, showed me it’s fangs and told me it was going to bite my leg. I told that Pink Rattlesnake, that if it tried, I would kick off it’s head off and kill it because the world took you away, so now, I am invincible to any kind of pain. I know what it is like to feel the worst pain possible, so the pain inflicted by the Pink Rattlesnakes bite, would not hurt me at all. He would be wasting his time and his venom on someone who would feel nothing. I watched as the Pink Rattlesnake, slithered away down the trail to take cover under a shaded bush. I continued on my run up the rocky trail. I was almost to the top, where most people choose to stop, at the first bench. A man was sitting there. I took out my headphones and said hello and what in the heck are you doing up here, as nobody is ever out hiking when I am, in the middle of this heat. The man laughed and told me to come sit down next to him. I told him, no way…. that if he wanted my company than he was going to have to keep up with me and continue up the rest of the hill to the second bench. He got up and followed behind me. I told him that I was running up the hill, not walking, and that he’d better keep up. He did a pretty good job, all while managing to tell me that he had just moved here from Idaho, just got a divorce, he has 3 kids, used to live here when he was little. I listened, quietly, and didn’t really say much of anything. I focused on getting my butt up to the top of our place, as fast as I could. Mountain Mike said I was trying to kill him. I laughed. We got to the top, I did my breathing, pacing, and just being. Mountain Mike did all of the talking for about 15 minutes. I kept thinking…. fuck…. I’m going to have to say those words again when he asks about me. Sometimes I don’t feel like telling strangers about you, but then I feel like I am being dishonest about you, us and what has just happened. Mike asked me what my story was.

Me: “Well, you are basically looking at a human being, living life on this earth, in Hell.

Mountain Mike: “Why? Are you going through a divorce?”

Me: “No. My 3 year old son just died of cancer, hence the reason for the Inferno Hiking.”

Mountain Mike: “I am so sorry. You know, I feel like my divorce is a death. I was married to her for 25 years.”

Me: “Mike. That sucks. But you know what, I’m sure you will fall in love again and your heart will be repaired. Mine won’t ever be. EVER.”

I gave Mountain Mike one of your bracelets, told him to look you up, and then maybe he would understand a little more. I told him goodbye, it was nice meeting him, and I would see him on the way down. He started the trek down the mountain. I stayed at the top to do my talking to you. I stayed for about 15 minutes, put my headphones back on, and hauled ass as fast as I could back down to the bottom. I passed Mountain Mike again during my run. I told him to have a good day.

I was hoping the Inferno Hike would have helped to quiet my mind today; but it didn’t. I survived today somehow, but barely. I picked up your brothers from school, took them to Doctor Beth for a 2 hour individual session. Stacy came by to try to help calm me down over my “Shit List.” We went over everything I need to get done. She settled me down. After Dr. Beth we went to dinner with Daddy. I cannot even tell you how painful that was. We to to Wally’s and the owner goes, “How many?” I automatically said, “Five.” Fuck. I than said, “Actually just 4.” I keep forgetting that you are not behind me, running off, throwing rocks or doing something else naughty that I loved so much. The 4 of us sat at a table. It was just sad and pathetic.

We came home, played a board game as a family. We all got ready for bed. I tried to just sit and watch T.V. with everyone. I hate the T.V. now. I got up, headed into your room and just wanted to be alone so I could sob into your pillows, stuffed animals, and let your bed swallow me whole. I don’ t go into your room very often and tonight I so just wanted to sit in there, alone. But Quinn followed me. GODFUCKINGDAMNIT. I could not break down in front of him, I could not sit and sob for you, the way I so wanted to and needed to. Instead, I sat with Quinn quietly in the dark, held it all inside, and listened to him talk about how he used to love to sleep in your bed with you. I talked to him about you, let him love on me when that is so the last thing I wanted. I loved on him back, told him what an amazing little boy he was how I am so lucky to be a mommy to both him and Liam. None of it felt good or comforting to me. But as of now, very little things do. This is a hard pill for me to swallow. I am still so numb, sad, and in shock. Your daddy said to me tonight that he thinks the sadness from us of missing you is only going to get worse. I told him I agreed. For once, I didn’t try to argue back. He’s right. He knows too. We are all broken, Ro. I don’t know what to do with all of these broken pieces. Are they fixable? I don’t know. All I know is the pain today, was too much because I sat by and watched as all of us had a tough day. I can deal with my pain, but sitting back and watching your brothers and Daddy is so overwhelming sometimes. Just when I think I am strong, that I can get through this; it’s days like today that have me wanting to just throw in the towel. It’s days like today that I have to remind myself of you and how you lived your life. You never gave up. I have to use that strength from you, to survive days like today.

I have to go now, babydoll. I love you to the moon and back. I hope you are safe. I love you, Ro.

xoxo

New obsession. Inferno Hikes. My physical Hell.

Ronan. The Sunday Blues. I hate Sundays. Always have. I woke up in an awful mood due to the dreams I had all night long. They were long, intense, and I was mad at everyone in them. I fought with your daddy in my dreams. Quinn and all of your cousins were smoking cigarettes in front of me. I was crying, screaming, and yelling. Everyone in my dream, knew you were dead and it was all they talked about. Is it too much to ask for a little peace in my life? Apparently, yes. To say I woke up on the wrong side of the bed, is an understatement. I woke up, vividly recalling what I had just dreamt about; and then I remembered that I was really waking up to you not being here. I walked around in a zombie state of mind for most of the day.

Hi baby. I started that yesterday, but didn’t finish due to trying to go to sleep. I passed out around 10, but tossed and turned all night long. My dreaming is out of control. I could be sick just thinking about it. I saw you in my dreams last night. Yes, indeed I did. I wish I could tell you it was amazing, but it was awful. I had a dream that I was holding you. You were still alive, but you were being cremated in my arms. Your skin was burning off and it was so hot, that I could feel it. I was supposed to just wait it out and watch you burn. I woke up, barely being able to breathe. I got up, walked around the house, went into your brothers’ room, and tried to go back to sleep in there. I did, but didn’t. I slept for a couple of hours and got up early to start my day. I was so tired of trying to sleep so I just aborted mission. I got up, showered, made your brothers breakfast, got them ready, got myself ready, made myself a list for the day of things to do and headed out to take your brothers to school.

I filled my day with errands. I went over to Gay’s house to give her a hug. I have not seen her since your services. I miss her and her little guys so much. So do Liam and Quinn. We are planning a play date with them tomorrow. It will be so bittersweet without you. After I left Gay’s, I finished up the things on my list. I came home, threw on my workout clothes, and decided to do hike at 1:00 in the afternoon. The temperature on my car read 114. Screw it. I’ve hiked the mountain everyday for a week now. Tricia hiked with me Saturday and Sunday. We are OBSESSED. Inferno hiking is our new Hot Yoga. As I was getting ready to head up the mountain, I decided I’d better tell someone where I was. I texted Trish and told her if she didn’t hear from me, it was because I had died; hiking. I made sure she knew where I was in case I didn’t make it back down. I had a moment of hesitation before I started. An empty mountain, the thought of rattlesnakes, the heat, and god knows what else; was enough for me to think twice about braving it today. But then I thought of you and everything you went through in your little life. All the pain and suffering. My fear subsided and I ran, as fast as I could for 35 minutes, up, up and up. I got to the top, started to dry heave, and threw up the only thing I had in my stomach the entire day which was coffee and water. No biggie. I took about 20 minutes to feel the sun burn my skin and I did my talking to you. I can’t remember if I cried or not as I was in a daze. I headed back down and just as I was thinking in my head, that I must be really be crazy; because nobody else in their right mind would do what I had just done….. a man appeared. I thought I was hallucinating at first. I took out my headphones and watched the man who must have been about 75, with his walking stick, approach me. He was carrying a spray bottle mister full of water in his hands. I smiled and told him I couldn’t believe that he was hiking today as I thought I was the only crazy person on the mountain. He told me to take off my sunglasses so he could spray me down. I laughed and thanked him and he told me it would keep me cool for about 10 seconds. I told him that was better than nothing. I think that 75-year-old man, hiking today, was clearly an Angel. It was a little sign from you to let me know that no matter how alone I think I am, without you… that you will never be far from my side. I really needed that today, Ro. Thank you.

I picked up your brothers from school, came home and we did their homework. The rest of the night has been pretty low key. Everyone is tired from the heat of today. Tomorrow, I have a busy day full of therapy appointments. I’m seeing Sarah and Dr. Joanne. I am going to try to go to boot camp at 5….. so please let me get some sleep. I need the rest, emotionally, physically and mentally. I miss you so much. We all do. We spent last night all crying about you. Quinn was hysterical, sobbing so hard that he couldn’t even talk. Liam was crying in your bedroom with your door closed, playing with your Star Wars guys. I cried most of the night as your Daddy tried to take care of all of us; but he was just as sad. I just don’t know what to do with days like yesterday. I almost can’t handle them. We survived somehow. Quinn is watching your favorite movie, “Home Alone,” now. I really can’t handle that. The little boy in the movie is you to a tee as far as the way he acts. You used to quote this movie every other day as you loved it so much.  I so badly wish we would have went on a vacation, and left you at home alone. At least this movie has a happy ending. I don’t see how our life can possibly have a happy ending without you here.

I’m going to go now baby. I’m so tired I can hardly see straight. I love you to the moon and back and hope you are safe. I miss you so much. Sweet dreams, my “not spicy, little monkey.

xoxo

I would like to dream about these sparkly shoes tonight. Something crazy, gorgeous, and girly.

Pain is my Peace

Ro baby. Hi my spicy boy. It’s time for my love letter to you tonight. I’ve missed a couple of days of writing. I always hate when I don’t get to write to you. I’m learning that this writing thing is like a beautiful, tragic, love story. One that I don’t know if I’ll ever be able to stop writing because I never want it to end. It’s my way of keeping you somewhat alive, I guess. It helps me, even though it may seem like nothing is helping. I think today is Monday….. I think. Crap. I’m wrong. It’s Tuesday. The days are still blurry and the things that go on in my days are all jumbled together. I remember yesterday…. somewhat. I didn’t wake up for boot camp. Sorry Tammy. My sleeping is still out of whack. I stopped taking my Ambien and started trying Ristoral. We shall see. The first night I took it, I still tossed and turned and had very vivid nightmares. So I went to basically not dreaming at all for the past few months to having such excruciating nightmares that I woke up 5 or 6 times during the night drenched in my sweat. I wandered around the house. Looked outside at the moon for a while. Sat in your room. I fell back asleep around 4 a.m. There was no way I could get my booty to boot camp. I dropped your brothers off at school after sleeping until 7, then I went hiking at 9 a.m. It was bloody hot. I was determined to sweat all of the demons out of my body from the night before. Sweat them out I did. It must have been about 104 by the time I got to the top. It felt good. I did the same thing today. Same time, same place, with nobody else in sight. I love how empty the mountain is. Once I get to the top, I sit there for about a half an hour and cook in the sun. I talk to you out loud a lot. I always cry. I tell you, hi. I tell you I miss you. I ask you where you are. I tell you I’m sorry. That I need your help to get me through this. I tell you I don’t know what to do without you and I always tell you I hope you are safe. It’s become therapeutic to me. As I was running down the mountain today…. full speed with Katy Perry blasting, it dawned on me. This exercising is the ONLY thing that gives me some sort of relief from all of this pain. It is during this time that I have to focus on not breaking my neck as I plow down the hill as fast as I can. I focus on my body and pushing myself so much that the physical pain hurts. I don’t stop no matter how tired or out of breath I get. I want to stop sometimes, but then I think of you. I like the physical pain as it gives my mind a break. It is my church, my meditation, and it is slowly becoming my peace.

Oh, Ro. You made me smile tonight. Just as I am writing to you, the thunder starts, the lighting, the buckets of rain. You know how I love the rain. I’ll never forget that one day with you. We had just moved into our beautiful house. It was your nap time and it was pouring rain. We made a bed on the floor in my room and sat and watched out the french doors in my bedroom as the rain flooded everything. We sat and watched and listened. We rolled around and laughed and I don’t think you ended up taking a nap. You little rule breaker, you. It was pure bliss. I remember that moment, and how happy I was. I felt like the luckiest mama in the world to be there with you, watching the rain. It was one of the sweetest, most simple moments of my life. I have Quinn here with me now. We made a bed on the floor in the same spot the two of us did. We are watching the rain, together. We are missing you, together.

Last night, we had Curriculum night at your brothers’ school. Holy anxiety attack. I about lost it. It was way too stuffy in the cafeteria, way too many people, and way too long to stand still. At one point I whispered to your daddy that I had to leave. He just grabbed me tight and told me it was o.k. That I could do this. I stuck it out. Melissa was there, close by. She knew I was about to flip out. She said she almost grabbed me and ripped me out of the cafeteria. I so wished she would have. But I survived. Don’t ask me how, but I did. We had to go to your brothers classrooms after the cafeteria. I went to Quinn’s, your Daddy went to Liam’s. I did o.k. there. I was strong and fought back the tears as a picture of you popped up on my phone, randomly. My mind started racing about how I would never be taking you to school again, how I would never get to meet your teachers, your new friends, etc….. I quickly wiped the tears away and tried to get back to focusing on the task I was there to do. I left the classroom quickly when the talking was over. I didn’t stay to sign up for things with the other mom’s. I couldn’t mentally do it. I went to find your Daddy but he was still in Liam’s classroom. Just as I was getting ready to sit down outside, Melissa came and found me. My sweet saving grace. She didn’t want me to sit alone, so she sat and waited with me for until your Daddy came out. Thank god. I had the chance to say hello to some moms that I really like though. That was nice. It is always nice to get a hug from some friendly faces. It’s funny though all of this, you really see who are genuinely, good-hearted people. I feel like I have a gift for this now. I had the chance to give somebody a big hug that I have wanted to do for a long time. One of my busy, little bees. It felt so nice to hug her and tell her thank you. I want to do that with everyone who helped and I am going to set something up, as soon as I get myself a little more organized and my head on straight. I am hoping that day will come sooner rather than later.

Today, I hiked again. Bloody hot but worth it. I don’t mind the heat the way I used to. As long as it involves an escape for me, I’m down with it. Bring it on, Mo Fo. I am getting my butt up for boot camp tomorrow though. I have my alarm set. I have to otherwise I know what happens if I don’t. I sit and obsess about it all day long. Add it to my list of things I’m fixated on now. Boot camp or Bust. Who’s going to start joining me???? Hello my friends…. I’ll take all the motivation I can get to get there. If I had you all, counting on me, I would be less likely to skip days. www.phxbootcamp.com. Get your butts there with me. Stop making excuses. I promise, it will change you life:)

So, Ro baby. I’m nervous to tell you this…. but I actually had an o.k. day. Just o.k. but it was a better day than I’ve had in a long time. I had lunch with one of my busy bees. It was lovely. We talked about The Brightest Star in the Sky event next year. I got to know her a bit and loved every second of it. Pure heart, smart, caring, and no hidden agendas and passionate about making a difference in this world. She had me at hello 🙂 I’m so thankful to have had so many people step up to the plate, to teach me that they care more about shopping, vacations, and wine drinking. Not that there is anything wrong with that, but adding a little something more to your life in such a meaningful way is good for everyone. It’s good for the soul. And a good soul can make all the difference in the world. After our lunch, your daddy picked me up so we could go to our therapist together. I was honestly dreading it. I feel so disconnected to everything now. Having to reconnect with your daddy, in front of a stranger, gave me a lot of anxiety. But once we got there, within 10 minutes, I knew this was going to be a good thing and something we desperately need. It was hard and we didn’t even get into the hard stuff yet. It was mostly an introduction and then she wanted a background on us and what we had just been through. There were a lot of tears, a lot of not being able to speak because having to re tell the story of you is so unbelievably painful. But we did it as best we could. And we did it together. I am proud of us. I liked this lady too. She knows stuff and I liked her honestly. We will go back together, I’m sure for a long time, as this is not something we can work through overnight. This is also something we cannot do without outside help. We both know this. Afterwords, we spent some time together and it ALMOST felt good to me. ALMOST. My pain is not capable of letting me feel good about anything now, but it is the closest I’ve come in a long time to feeling this way around your daddy. He is the most amazing man on the planet. I know this. As hard as all of this is, I think we will be o.k. I know there are no guarantees in life, but what we have is too amazing to throw away. He is my best friend, despite my brattiness that I often display to him. I don’t mean to, which is why I have to figure out how to deal with all of this pain, instead of taking it out on him. He is my easiest target and does not deserve any of it. You don’t get a better man/father than the Wooddawg.

Alright my little man. I’m tired. I’m going to try this Ristoral tonight We shall see. I love you to the moon and back, my blue eyed boy. I miss you so much and hope you are safe. Sweet dreams, my dear.

xoxo

                                                   I LOVE US….. FOREVER TOGETHER.

My Ro. I miss you so.

 

 

 

 

Ronan. I think it’s been a few days since I’ve written. The days are still creeping along, ever so slowly. You’re still gone and I am still here. Barely. We are still at the beach. It’s getting closer to the time when we will leave this place, and return home. The thought of that makes my stomach turn. Back to reality. In a big way. Back to life going on, without you here. Your brothers will return to school and life will move forward. I don’t know how I am going to do this without you. It doesn’t seem possible.

I’m not really sure how the days have been going by; but they have. My memory is still foggy as I sit and try to recall how we’ve spent our time. A little time at the beach, eating out, seeing some movies, running….. I think I’ve slept a lot. Mostly just laying in bed, missing you. Not really living as I’m still not ready to. I had dinner with your daddy last night. It was a sad dinner. Everything with him is sad because we are both so sad about you. We talked about you a little, but dinner was mostly filled with silence and small talk. We saw a movie afterwords and it was really hard for us both to sit though it. My lack of concentration is distracting to everything I do, even trying to sit through a mind numbing movie. You would think things like that would be easy for me, but they are not. Even the simplest things have become difficult.

I think I’ve been avoiding phone calls. Crap. I haven’t called your Nana back in a week. Grandpa Steve has called for weeks and I haven’t returned his phone calls either. I’d really just prefer it if I weren’t here in this world anymore to worry about returning phone calls or having people worry about me. I just wish I were with you. Not my choice though, I know. I miss you more than ever.

I’m reading a new book. I like it so far, although I’m not that far into it. It’s called, “The Other Side of Sadness.” It’s basically about the way the mind works when losing a loved one. It is making sense to me as it’s more of a scientific approach to the way the mind and body work when dealing with so much pain. I think I’ll finish it in a few days, but it takes me longer to read books now. I used to fly right though them, absorbing everything easily. Now, I find myself having to go back and re read things and taking the words at a slower pace. It’s as if I’m becoming an entirely different person. Even the way I read a book is fucking different now. Just when I thought I had myself and life all figured out. Turns out, I knew nothing and I only really existed as the person I was, due to being your mom. I don’t know who I’m supposed to be without you. You were such a big reason to why I was the way I was. That person seems gone. I do get glimpses of her every once in a while. Certain people bring out parts of me that I miss so much. Macy is one of them. So are Liz and Olivia. I guess it’s because I feel so comfortable around them. One second I can be looking at Macy, and we will both be crying about you and a second later a song will come on and the next thing I know we are singing our lungs out together to an old school song, while laughing so hard we can hardly breathe. Thank god for those moments…. I need to be around people who make me laugh. Laughter really is the best medicine. For a few minutes a day, it makes me happy again.

I started Liam and Quinn in a camp over here today. They desperately need something to keep them busy, especially Quinn. He’s been really clingy to me which is understandable, but also not healthy for either of us. They both seemed to think it was o.k. and the will go back all week. I am hoping they will like it a little more tomorrow. I think it looks like a really fun camp, but I know for Quinn it’s just that he is separated from me and worries about where I am, what I’m doing, and if I’m coming back. He seems unsure about everything no matter how much I try to convince him that nothing is going to happen to me. What I really want to do is scream that he is absolutely right, that he is so fucking smart, that there are NO guarantees in life, and something could happen to me, as they could happen to any of us at any time of the day, because they can. Look at you, baby. My healthy, strong, baby boy who had this fucking cancer eating away at his body and nobody knew it. Quinn is completely right, completely intuitive, but that is not proper knowledge for an 8-year-old to know. It’s my job as his mom, to reassure him that everything is going to be o.k., when I know this in fact, could be a fucking lie. I am trying my best to protect the shred of innocence that your brothers have left. They have had to learn such a very hard lesson, one that a child should never have to learn. I have to make a choice with this lesson. I can either let it destroy them, or make them in to better human beings because of it. I am working on making them better human beings, trying to take losing you and the lessons that have come with it and turning it into something positive. It feels like such bullshit to me though because it’s not the truth. The truth is this is totally fucked and they shouldn’t have had to learn such a hard life lesson this way. All I really want to do is hide in bed, cry, and scream and let your brothers do the same. I can’t though. I have to go on, I have to give them what tiny pieces of me that I have left. I am giving them everything I have, but it is not much. They really are amazing little boys though. Such good, sweet, funny, smart, boys. Liam has the mind of a 30-year-old and Quinn and his memory that blows me away. I do find myself blown away during many points of the day over things that they say or do. Life has so quickly gotten ahead of me and it’s as if I cannot catch up, no matter how hard I try.

O.K. baby. I think I’m tired now. It’s 2:30 a.m. Ambien is kicking in. UGH. Once again I had so much more to say to you but just cannot do it tonight. Just know I miss you so much. I love you to the moon and back and hope you are safe. G’night my Ro baby. Love you forever.

xoxo

 

TGIF!

It’s the weekend! So excited to spend it with my little family. Today was a typical day for us. Big boys went to school and Woo went to work. That left Ro and I home alone. We spent the day enjoying playing outside, carved a pumpkin, and I took him to the drive through car wash that he loves to go to. He was really giggling and laughing when we were getting our car washed. He loves to watch the colored soap spray all over the windows. It was cheap entertainment and a nice little break from being stuck at home. He took a nap and I worked on some things for his website. It’s been fun doing the research on it and figuring out what I want it to look like. It’s been a good distraction for me to say the least. I talked to my friend Laurie today for a bit to get caught up on Baby Jack… the little boy who is a few months ahead of Ronan with his treatment for Neuroblastoma. She sounded so great and Jackers is doing amazing. I am always amazed at her strength and positivity. She is a good role model for me and Jack is such an inspiration. They are an amazing family and so deserve all the good things that are coming their way.

Liam and Quinn came home with their “report cards” from school today and they were so excited to show me. They both ripped them open and we went over what they said. I could not have been more proud of them. They are becoming such little men. We played outside and waited for Woody to come home. Woody and Uncle Jay came home around 4:00 with pizzas and beer. They stopped at A.J.’s and brought home a bunch of things for “Game Night” at the Thompsons. They started a game of  Risk with Liam and Quinn about 3 hours ago. I kept Ronan busy so they could play and it is still going on. Ronan had a nosebleed tonight so I tended to him and after about 20 minutes, it finally stopped. I was praying that we wouldn’t have to go to the hospital. Hoping it won’t start up again in the middle of the night. I know his platelets are starting to dip down but I think if I can keep him sleeping, he should be fine. He had a rowdy day.. lots of running and playing.

Not sure what else this weekend has in store. Liam and Quinn have a basketball game tomorrow but we won’t be taking Ronan. Now that it is turning into that time of year when the flu hits, etc…. we won’t be taking him out at all. Time to put him back in his bubble. I am going to have to get very creative as far as keeping him busy at home. Thinking some paint supplies and lots of arts and crafts are in our very near future. We have been working a lot on his school stuff and he is still fighting me on it a little bit; but I know he is learning. I hear him repeating things when he is playing and he thinks I am not listening. Stubborn little boy.

I’m going to have to say that my husband has been extra amazing lately. If that is even possible. I have no idea how he does all he does. I am so impressed by the way he is handling everything. Keeping his law firm going, being such an amazing daddy, and doting on me 24/7. If anyone is carrying the weight of the world on their shoulders, it is him. I am so thankful to be married to such a strong man who can take care of his family. There is nobody in the world who I respect and love more then him. After all that we are going through, he has kept the best attitude and positivity. He really is one of a kind and I will forever stay madly in love with him. I am thankful that my 3 boys have such a strong male role model in their lives. I know how important that is in forming what type of men they will grow up to be. Thanks Daddy Woo<3

Throughout this journey I have come to see things in such a different light. Life will never be the same again for us, but I honestly think it can be better. I have such a new appreciation for the littlest things. It is a life full of nothing but pureness and simplicity. It’s like we have been given a new chance to soak up all the things we do have and enjoy them to the fullest. Life is too short to be unhappy or worry about petty things. We are making the most of what we have, right now, in this very moment. There is no point in worrying about the future because it is the here and now that matters most. A hard lesson to learn, but a beautiful lesson indeed.

I am going to leave you with a quote that I came across today when I was doing my website research for Ronan. <3<3<3 LoveLoveLove<3<3<3

Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.  ~Dr. Seuss