Tag: baby

TGIF!

It’s the weekend! So excited to spend it with my little family. Today was a typical day for us. Big boys went to school and Woo went to work. That left Ro and I home alone. We spent the day enjoying playing outside, carved a pumpkin, and I took him to the drive through car wash that he loves to go to. He was really giggling and laughing when we were getting our car washed. He loves to watch the colored soap spray all over the windows. It was cheap entertainment and a nice little break from being stuck at home. He took a nap and I worked on some things for his website. It’s been fun doing the research on it and figuring out what I want it to look like. It’s been a good distraction for me to say the least. I talked to my friend Laurie today for a bit to get caught up on Baby Jack… the little boy who is a few months ahead of Ronan with his treatment for Neuroblastoma. She sounded so great and Jackers is doing amazing. I am always amazed at her strength and positivity. She is a good role model for me and Jack is such an inspiration. They are an amazing family and so deserve all the good things that are coming their way.

Liam and Quinn came home with their “report cards” from school today and they were so excited to show me. They both ripped them open and we went over what they said. I could not have been more proud of them. They are becoming such little men. We played outside and waited for Woody to come home. Woody and Uncle Jay came home around 4:00 with pizzas and beer. They stopped at A.J.’s and brought home a bunch of things for “Game Night” at the Thompsons. They started a game of  Risk with Liam and Quinn about 3 hours ago. I kept Ronan busy so they could play and it is still going on. Ronan had a nosebleed tonight so I tended to him and after about 20 minutes, it finally stopped. I was praying that we wouldn’t have to go to the hospital. Hoping it won’t start up again in the middle of the night. I know his platelets are starting to dip down but I think if I can keep him sleeping, he should be fine. He had a rowdy day.. lots of running and playing.

Not sure what else this weekend has in store. Liam and Quinn have a basketball game tomorrow but we won’t be taking Ronan. Now that it is turning into that time of year when the flu hits, etc…. we won’t be taking him out at all. Time to put him back in his bubble. I am going to have to get very creative as far as keeping him busy at home. Thinking some paint supplies and lots of arts and crafts are in our very near future. We have been working a lot on his school stuff and he is still fighting me on it a little bit; but I know he is learning. I hear him repeating things when he is playing and he thinks I am not listening. Stubborn little boy.

I’m going to have to say that my husband has been extra amazing lately. If that is even possible. I have no idea how he does all he does. I am so impressed by the way he is handling everything. Keeping his law firm going, being such an amazing daddy, and doting on me 24/7. If anyone is carrying the weight of the world on their shoulders, it is him. I am so thankful to be married to such a strong man who can take care of his family. There is nobody in the world who I respect and love more then him. After all that we are going through, he has kept the best attitude and positivity. He really is one of a kind and I will forever stay madly in love with him. I am thankful that my 3 boys have such a strong male role model in their lives. I know how important that is in forming what type of men they will grow up to be. Thanks Daddy Woo<3

Throughout this journey I have come to see things in such a different light. Life will never be the same again for us, but I honestly think it can be better. I have such a new appreciation for the littlest things. It is a life full of nothing but pureness and simplicity. It’s like we have been given a new chance to soak up all the things we do have and enjoy them to the fullest. Life is too short to be unhappy or worry about petty things. We are making the most of what we have, right now, in this very moment. There is no point in worrying about the future because it is the here and now that matters most. A hard lesson to learn, but a beautiful lesson indeed.

I am going to leave you with a quote that I came across today when I was doing my website research for Ronan. <3<3<3 LoveLoveLove<3<3<3

Be who you are and say what you feel, because those who mind don’t matter and those who matter don’t mind.  ~Dr. Seuss

Strong enough

Ronan had a great day. We went into the clinic to have his blood levels checked to make sure they are high enough to start the harvest of the stem cells tomorrow. They are through the roof so we got the green light! I am so happy we are staying on track with things and Ronan is such a little Rockstar that he is busting right though all this cancer crap. While we were at the clinic, I quietly asked our nurse Sharon a question that has been on my mind all weekend…. eating away at me. I asked her if it was common to never see your doctor. O.K…. not never, I’ve met the man one time to be exact. This is just not sitting well with me. I can always count on Sharon to be honest with me and I got my answer. From that point on, I knew what I had to do but I wanted to make sure Woody was on board with me. I stepped out into the hall and made a quick phone call to him. I then walked back into the room and told Sharon and Marsha, our social worker, that we would like to request a change of doctors. In the blink of an eye, they made it happen. Ronan’s primary doctor, who will be taking over his case is Dr. Eshun. I’ve seen Dr. Eshun a dozen times… he is always checking in on us to say hello or to quickly look over Ronan. To me, that means the world. As a mother, I know I have to be my son’s biggest advocate and I have to feel like he isn’t just another number. He is a child, my child… not some science project. I am feeling pretty out of control about everything to do with Ronan’s situation. This gave me a feeling of control back and tonight, I am feeling much better about things. I need to know that we are in the right hands at PCH. If we are going to stay here, we have to be happy with how everything is going. Otherwise, they are going to hear about it. We are not the type of family to sit back quietly and not express the way we are feeling.

We have a very early and long day tomorrow. We have to be down at PCH by 7:30 and will be there until around 4:00 in the evening. I am hoping to get some sleep tonight without the terrible nightmares. Everyone is already asleep in our house… guess I will try to get some shut eye too. Tonight, Woody and I had some time alone. We cuddled on the couch together and watched Bill Maher. It was nice to just be with him. I am going to leave you with one of my favorite song lyrics tonight. Anyone who knows us knows that we are family that is crazy about music. I heard one of my favorite songs on the radio today… it’s by Sheryl Crow. It reminded me how lucky I am to be married to Woody.

“When I’ve shown you that I just don’t care.
When I’m throwing punches in the air.
When I’m broken down and I can’t stand.
Will you be man enough to be my man?”
– Sheryl Crow, Strong Enough

Woody is so strong. I promise I will stay strong too… for the sake of my amazing husband. I won’t let him down.