twins
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There’s beauty in the breakdown
Ronan and I headed to PCH this morning for his clinic visit and audiology test. Once we got to the clinic, I could tell Ronan had been put through enough this week, so I ended up calling audiology and rescheduling the rest of his test for next week. Enough is enough. It was a good…
angels, anger, arizona, AZ, basketball, best friends, breakfast, bullshit, Camelback Mountain, Cancer, Chemotherapy, Child, Childhood Disease, Conditions and Diseases, doctors, Dr. Eshun, Dr. Maze, Dr. Wood, dreams, faith, Family, Father, fuck you cancer, Health, honesty, Hot Yoga, kids, maya thompson, Music, Neuroblastoma, New York, new york city, Parent, Parenting, Ro baby, Ronald McDonald House, Ronald McDonald House Charities, sadness, Sandy “ho” Fromm, sloan kettering, stem cell transplant, strength, The Bravery, The Ronan Thompson Foundation, the village, true friends, truth, twins, woody thompson, World Cancer Day, YMCA -
Goodnight moon
Home. After over a month of being in and out of hospitals, between Sloan and PCH… we are home again. So sweet. Yesterday, Ronan’s ANC was only at 80… today it jumped up to 240! That is very high for just one day. Ronan’s little body is fighting so hard to come back after being…
angels, arizona, bedtime, best friends, bone marrow, Bone Scan, boys, brothers, Cancer, Candy Shop, Chemotherapy, childhood cancer, Childhood Disease, doctors, Dr. Maze, dreams, Dylan’s Candy Shop, Family, Glitter, happiness, Health, Home, laughter, love, Lovely Bones, Macy Wood, maya thompson, Medicine, MIBG scan, Neuroblastoma, nurses, raw, reality, Rockstar Ronan, sloan kettering, Snow cones, soulmates, Star Wars, strength, sunshine, sweet dreams, twins, woody thompson -
There’s no place like home
The morning started off early and Stacy offered to bring me coffee; which I really needed. She then ever so sweetly offered to stay with Ro so I could run home and shower. So thankful for her because just being able to go home and shower makes such a difference in my day. Ronan was…
angels, arizona, Arts, AZ, baseball, basketball, best friends, brothers, Cancer, Chemotherapy, Childhood Disease, Conditions and Diseases, Energy, Family, happiness, iPad, maya thompson, mickey mouse, mom’s, Neuroblastoma, Parenting, ricky bobby, Rockstar Ronan, sloan kettering, Star Wars, strength, twins, woody thompson -
Living is easy with your eyes closed
I have no idea what day it is even…. Wednesday I think? The days and nights are so blurry here and it is so easy to lose track of the time, days, and nights as they all seem to blend together. I do know that today is my dear birthday bunny, Jen’s birthday. Happy Birthday…
angels, anger, arizona, AZ, best friends, Birthday, Birthday Bunny, blogging, Bose Headphones, bullshit, Cancer, Cancer sucks, Charisma Carpenter, Chemotherapy, childhood cancer, Christmas, Coconut Water, Conditions and Diseases, Dr. Wood, Health, honesty, immune system, Insomnina, Jen Wood, maya thompson, Music, Neuroblastoma, new york city, Pandora, Parenting, pearl jam, Phoenix, reality, Ro baby, Rockstar Ronan, sleep, sloan kettering, Soul, Star Wars, Starbucks, strength, The Ronan Thompson Foundation, twins, Yoga -
An old soul
Ronan had his clinic visit this morning. His levels have dropped just as we were expecting. We are so used to this chemo thing now that we know where his counts will be. What I didn’t expect wash his platelet counts to be so low. They were 10,000 today. WHAT?!?! 10,000 and not a bloody…
angels, anger, arizona, Arizona State University, AZ, basketball, beauty, best friends, blue eyed boy, brothers, bullshit, Cancer, Chemotherapy, clinic, Coconut Water, Dr. Adams, faith, Family, friends, friendship, george clooney, happiness, hope, isolation, King Cake, little seal, love, maya thompson, Neuroblastoma, New York Miss Macy, NOLA, Old soul, platelets, Rockstar Ronan, Ronan, ronan sean, ronan thompson, running, Skype, Star Wars, stem cell transplant, strength, twins, woody thompson -
Hospital Reality sucks
We moved out of the POU (Pedatric Oncology Unit) today and into a different area of the 9th floor. I wish we could have stayed in the POU, but moving to this room is a step up as far as getting us out of here. The POU only has 3 rooms and they are so…
angels, anger, arizona, AZ, baby ro, best friends, blue eyes, bullshit, Cancer, Central Park, Chemotherapy, childhood cancer, Childhood Disease, death, doctors, Dr. Kusher, Dr. LaQuaglia, dreams, Fred’s team, fuck you cancer, hell, life, love, maya thompson, mom’s, Neuroblastoma, new york city, New York City Marathon, nightmares, nurses, pain, Rockstar Ronan, ronan thompson, sadness, sickness, sloan kettering, strength, The Ronan Thompson Foundation, tricia tinney, true colors, true love, twins, woody thompson -
I’m just a girl in the world
Favorite conversation of the night: Me: “Ronan, you’re so nice.” Ronan: “Thank you.” Me: “You’re welcome.” Ronan: “Mom, you’re so cute.” Me: “Thank you.” Ronan: “Your so welcome.” I love his little voice so much. And that smile could melt your heart. I love that every night, he curls up beside me and holds my…
anger, arizona, AZ, baby blues, best friends, boys, brothers, bullshit, Cancer, Channel 12, Charisma Carpenter, Chemotherapy, childhood cancer, Childhood Disease, Christmas, Conditions and Diseases, doctors, dreams, Energy, faith, Family, friends, friendship, Gwen Stefani, GwenStefani, Health, hearts, iPhone, kids, Lin Sue Cooney, lipgloss, love, mama bear, maya thompson, Mother, Neuroblastoma, new york city, Pink, reality, Recreation, Rockstar Ronan, sarah matheson, shopping, strength, tears, true friends, true love, twins, United States, woody thompson -
Feathers, Glitter, and all things Sparkly
Today was a very productive day. My sweet, dear, Fernanda stopped by for a coffee drop off and a visit. She went over my “To do” list with me and helped me decide how to tackle it. We also talked about our little project we have in the works… she has an…
2010, 2011, and all things Sparkly, arizona, best friends, bullshit, Charisma Carpenter, Childhood Disease, Christmas, Christmas shopping, Dr. Kushner, Dr. La Qualia, Energy, facebook, faith, Feathers, friendship, Glitter, here comes the sun, honesty, insomnia, Johnny Cash, mom’s, Mother Fucker, neil young, Neuroblastoma, New York, OCD, Phoenix, raw, reality, Rockstar Ronan, Ronald McDonald House, sadness, tears, The Goo Dolls, true angels, twins, Twitter, woody thompson -
I heart Pamela White
Today was busy. I spent most of the day prepping for our Channel 12 news interview. Mama, ready. Boys ready. House ready. Check, check, check. I’m a perfectionist when it comes to things like this. It was surprisingly very laid back. Woody and I sat at our dining room table and Ann, the interviewer, asked…
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Clinic Day
Ronan and I went off to the clinic this morning to do his usual Monday checks of his blood and platelet levels. Poor little guy is having bad tummy aches from the chemo last week. A lot of diarrhea and him saying his tummy hurts. I talked to “A” about this and she said it…
angels, anger, AZ, best friends, bullshit, carefree, Childhood Disease, Conditions and Diseases, cooking, creepy, determination, doctors, Energy, Family, family bonds, football, fuck you cancer, Gatorade, guilt, honesty, hope, I love woody, laughs, lessons, Lin Sue Cooney, Lindsey Beller, love, Marisa Friedman, maya thompson, mom’s, Mother, Neuroblastoma, New York, Niki Tarbell, Parenting, poster child, Ronald McDonald House, shopping, Soul sisters, tantrums, Travel, tricia tinney, truth, twins, Wooddawg
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