It’s going to be amazeballs! Buy your tickets now or you can also purchase at the door! I hope to see you all on Saturday!
Ronan. It is amazing to me, that because of one girl, the entire world seems to know your name now. I am getting so many emails, blog comments, phone calls, and all I am hearing is how much people are inspired by you. How better the world is going to be, because of you. I am trying my best to keep up on everything but today, I made myself stay inside of our house so I could try to get caught up on some things. I didn’t happen. I am so beyond beat that I am thinking I may have a baby vampire growing inside of my belly, because it is literally sucking the life out of me. I’m not used to this. I don’t do well with anything that slows me down and I am having a hard time just letting myself be with all of this. I’m not going to lie. I am scared about this new baby. I worry a lot about not feeling attached to it yet. I think that is normal, after you go through such a heavy loss. But this being pregnant thing only seems to make me miss you more and more. My heart feels a thousand times more heavy then it has in a very long time. Part of this doesn’t even feel real to me yet. And then there is that part of me that still thinks this baby is just going to die, because I know that can happen. I am trying to stay calm and relaxed, but I am consumed with constant worry and sadness. I worry about things like, what if I don’t love this baby, as much as I love you? Is that awful to say? It sounds awful. But in my mind, I cannot imagine loving something as much as you. As of now, anyway. I worry that I won’t be able to be a good mom anymore, because I am so sad. I am trying so hard with Liam and Quinn, but it doesn’t come as easily to me as it used to. I think that is still the grief part of all of this.
Somebody said to me, “You are famous now.” I just replied with a simple, “No I’m not. I’m just a sad mom who lost who son and who would do anything to have him back. I almost threw up at that famous word. Famous because my son died and some beautiful girl wrote a song about him? No. Not famous. Just a mom who is in a very sad world now and someone very sweet decided to do something very beautiful because she has such a wonderful heart. I’m not sure quite what to do with all this attention. I just want it to all go to the awareness that childhood cancer needs, deserves and wants. I want our story to inspire kids to become doctors, who will do everything they can, to change the awful statistics, outcomes and treatments of childhood cancer. I want our story to inspire nurses to go into pediatric oncology, because these kids deserve to have the best people taking care of them with the biggest hearts. I want our story to inspire people to become child life specialists who really will make a difference in bringing a smile to a child’s face. I want our story to impact people in such a way that they follow their hearts and listen to their dreams no matter how many people try to stop them or hold them back. I want all this “fame,” to go to where it deserves to go to. To the real heroes of this story, the kids battling cancer. That is what I want. This spotlight is not for me, but them. This scary world where childhood cancer gets such little support and funding. Childhood Cancer is the number one disease killer in children. I know this the hard way. I am reminded of this every second of every single day. This HAS to change for these other kids. Why is it acceptable that we are just throwing away our future? You would have grown up to be something so amazing, Ronan. I just know this. But now, I’ll never get to see this. I will never get over this or “get better,” from this. You don’t get better from losing a child. You learn to live with it and fight on because you are left here to change this for others.
If somebody had changed these things years ago, you may still be here. Now you are not here, and it’s my job to help do this so maybe someday another little boy or girl does not have to die from Neuroblastoma. Maybe if this disease gets the attention it deserves, breakthroughs will be made and the odds will not be stacked against these kids. That’s my hope for all of this anyway. I am moving forward with my plan. It’s a big one and if I actually sat down to think about my dream and what it is, I’m wanting to do… it might scare the shit out of me. Unfortunately, I don’t have time to sit down and be scared or worried that I am taking too much on because kids are dying left and right. That is unfucking acceptable. You died. That is the most unfuckingacceptable thing of all.
I am tired in a way that I don’t remember being tired in my life, ever. Did I mention that I am not a fan of being pregnant? I never have been. I would rather fast forward and give birth a thousand times than feel like this. I hope there comes a point where I get my energy back again. I don’t like being slowed down in any way. I am trying my best to listen to my body. My mind is restless but my body is exhausted. I woke up last night to one of the worst dreams that I’ve had in a long time. That any memory I had of you, was totally and completely gone. Like you had been erased from all of my thoughts, visions, and dream. It felt so real. I woke up with my pillow soaked with tears, scrambling to find you. I then had to remember that you died as I tried to put together in my head, what it was like when you were here. Please don’t let me forget I thought to myself. Please. My memories of him are all I have left. I would die without them. I spent the rest of today being completely thrown off by my dream of not being able to remember you. I’m still in a funk from it.
I fell asleep early tonight, but I’m up now. I would give anything for a solid, peaceful night of sleep. I would give anything, for a lot of things like having you back here. I miss you. I love you. I hope you are safe. Sweet dreams, baby doll. I wish you were here.
P.S. Fuck Cancer you fucking fuckwad for murdering my baby.
Ronan. Hi. Oy! I got through today despite my tiredness. I spent the morning, doing really important things like seeing my favorite lap dance ass shaker friend who just happens to be a hairdresser and likes to braid my hair. I then came home after seeing her and crashed out on our couch. I didn’t mean to. I had the candy cart at PCH to do, but I knew if I didn’t rest, I wouldn’t make it through the day or night. This pregnancy is leaving me so exhausted and nausea… I feel like I do when I was pregnant with Liam and Quinn. Twins? Again? I’ve thought about it. I think it would be bloody awesome. We will know for sure on September 4th when I go for my first ultrasound. I don’t care either way, just as long as everything looks good. September 4th cannot get here soon enough.
I went down to PCH today to do your candy cart. The same one, that we did for your Ronan’s Day of Love, except I wasn’t there for it. I was planning on going, today. I think a few of my board members were really worried that I wasn’t going to be o.k. I kept telling them, “I got this. I’m totally fine. I will be FINE.” I got to the hospital and started setting everything up. We blew up balloons and filled up your RoWagon with a ton of candy. I sat down, as much as possible while blowing up the balloons. I told you I am freaking tired. I can’t even be on my feet for too long. After everything was ready, we headed upstairs to the Oncology floor. Your playroom Cathy, was there to meet us. I was so glad for her friendly familiar face. She lead us around the entire time. I pulled the wagon and got to go into a lot of the rooms. You should have seen the look on the kids’ faces. Smiles so big I swear it lit up my entire black heart. Some were shy at first, only taking a few pieces of candy. That didn’t last long, once we told them they could take as much as they wanted. I heard things like, “For real?! Is this for free?” I smiled and happily said yes. Everyone was so kind, thankful, and it made me happy, seeing the looks on their faces. I ran into some of our old favorite nurses. It was good to see them, but hard too. They all gave me big hugs and asked how I was doing. I said what I usually always say which is, “Alright. Just alright. Always one day at a time.” I did well on the floor today. I told you, it’s the world that I am meant to live in now. It’s the only world I feel like I belong in. Thank you so much to Bonnie at PCH for being so helpful and kind. Thank you to my lovely little board members and my other two little friends who helped on the floor today, Kassie and Erin. Good souls and your spirit got me through the day, Ronan. I smiled a lot. It was only after I got into my car and ended up in a parking lot somewhere that I let the tears fall and I sobbed like a baby. Not just for you, but for all the kids on the floor today, who are going through this hell and who deserve so much better. I wish today did not have to exist, but it does and probably always will. All I can do is try my hardest to fix it and make it a little better, even if on some days it just means pushing around your little cart full of all of your favorite treats.
It’s raining now. Pouring down rain. Of course it is. I hear your tears. They sound exactly like mine.
I love you, Ronan. I miss you. I hope you are safe. Sweet dreams.
I had a board meeting last night at The W. I am so excited for this party! It’s going to be Romazing! I’ve had so many people ask about the details for tables, which are going fast. As of now, you can purchase a table starting at $700 dollars. This includes: 10 tickets to the party, a bottle of Magnum Champagne and a bottle of Belvedere Vodka.
If you would like to purchase a table, please use the contact info below. But hurry! They are going fast!!!
For VIP table reservations contact VIP@triyar.com or 602-405-0099
Again, here is the link to buy regular tickets. Those too, are going really fast. Thank you so much to everyone who has been buying them!!!
Thank you to my sisters/family/board members who have worked so hard on this. I am so lucky to have you all in my life. This event is going to be so special and fun!
See you all there!
Ronan. I’ve been writing. Just not posting. I know you know why. I’m sorry. Today, I’m doing the candy cart for you at PCH. I think it’s going to take a lot to get me through today. I think I could use you around, to help me. I’ll be seeing lots of little bald heads, but yours will always be my favorite. I love you baby boy. I miss you so much. I promise to post what I’ve been writing, soon. I just can’t right now. I love you. I hope you are safe.
Please somebody come dressed like this.
It’s going to be the BOMB! Tell all your friends! Hope to see you there!!!
Gold is the ribbon color for childhood cancer awareness. September is the month for childhood cancer awareness. I wanted to do something special, to represent both of these things during the month of September. I want to make the whole world know and understand what the Gold Ribbon means and I want to turn the month of September into making the whole world aware of how important this month is to all these kids fighting for their lives.
I played around with a lot of ideas for what we could do for this event that we have slowly been planning. I came back to my first idea after getting a great response when it was brought up at a board meeting.
Let’s have a Gold Party! Let’s invite the whole wide world and have them rock the color gold, for a very special reason. Thanks to the hard work of my board members, and the generosity of The W Hotel, the pieces are falling into place and I am so excited!
My very special dear friend, (who I sometimes think hung the moon) Charisma Carpenter, offered to fly in and host the event. We will have Danny Masterson (Hyde from That’s 70’s show) as our celebrity D.J.! D.J. Mom Jeans is sure to bring the house down with his mad skills. I’ve been watching his beats on YouTube and I can’t stop dancing.
Tickets are not on sale, yet, but I will let you know when they are. I just wanted to get the word out as early as possible, especially for any of you that may want to come from out-of-town for this great event. Tickets are super affordable, 25 bucks a pop. I love that:)
I hope to see you all there, rocking your crazy gold ensembles! Thank you for all you are continuing to do in this fight for childhood cancer. I love your hearts.