These 2 “elfs” are requesting unwrapped gifts for The Ronan Thompson Foundation Candy Cart. If you visit Garage Boutique for Kids, Nove’, or High Point this holiday season, please bring in an unwrapped toy to receive 15% off your entire purchase. These toys will be used for Ronan’s Candy Cart when we visit Phoenix Children’s Hospital.
Ronan. Thanksgiving is over. There was no Macegiving this year, as our sweet Macy that saves us on every holiday, could not swing coming in. She was heartbroken about it, as were we. We all missed her so very much, but we will be seeing her soon in January which we cannot wait for. Of course I got all crazy trying to make a plan for Macegiving, without Macy. After a lot of panicking in my head, crying, and thinking how can I possibly do another holiday without you? I aborted freak out mission in my head. I made a different plan instead and it was called, “Stop putting so much pressure on yourself because it’s just another day.” I gathered my thoughts and took some time to think about what this Thanksgiving/Macegiving/Fucksgiving meant to us as a family. I talked to your daddy about what he wanted to do and what I was wanting to do and we came up with the most non-stressful, no pressure plan ever. I knew that I wanted to go to Phoenix Children’s Hospital that day for a couple of hours to take around your candy cart, so I gathered up some of my best “homies” and that is what we did. The hospital was packed, unfortunately. I was hoping it would have been empty on this holiday as it’s so hard to be stuck in a hospital on any day, but Thanksgiving day just seems extra unfair. I was glad to be there and it felt good to make so many kids/parents/siblings smile. Doing the candy cart and handing out gifts is really what got me through the day. We then came home to a super low-key Thanksgiving that wasn’t so bad and it almost just felt like another day. We hung out, ate, watched football, and had ice-cream cake for Brianna’s birthday. You were of course, were missed by us all.
Things seem to be moving at an incredible rate and not slowing down any time soon. Some how, your Poppy sister is 8 months old today. How in the world did that happen? She is getting to be so much fun and your daddy has started calling her, “The Honey Badger” because of the way she is so determined about everything in life. She is already so feisty and fun and has keeps us laughing a lot. She has been so good for us all, Ro. Your brothers absolutely adore her and she has brought back such a positive energy to our entire family. Needless to say, I don’t know what we would do without her and I am so very thankful for this little gift you have given us. I’ve said it before, but she truly has helped to save not only my life, but my soul. Tomorrow, also makes 31 months without you and I still don’t know how that is possible either. The fact that 3 years without you is approaching soon still leaves me breathless with the hugest pit in my stomach that I am starting to really believe will never go away.
I’ve also been having a really hard time writing this book. So much so that the other day, I had a full on break down about it. I’ve been writing a ton, Ronan, but that is it. Only writing and not feeling a thing, while writing. Uh, that has not been good for me at all. Part of the reason I am doing this book is because I have certain things I need to feel while writing as it has become my form of therapy. I’ve been feeling numb and stuck, which has been leaving me frustrated beyond belief. The other night when I was in the middle of one of my pity parties to your Sparkly, I totally lost it and was about to the point where I was not sure what to do or how to fix this problem. I took a little time out, had a long talk with you and what you would want from all of this, and all of a sudden it all became so clear to me. I sat down, printed out all of my words and announced to our entire house hold, “I’m starting over on this book.” Liam and Quinn were like, “WHAT?! You can’t start over! Look at all you’ve written!” Your daddy chimed in, “Boys, sometimes that is what happens and we need to just be supportive of your mom.” I started writing right then and there and I cannot seem to stop. Finally, it feels right and I am so excited about the way I am doing this. I am basically just using everything I had written out, as a road map to help me guide me along. I’m also taking a little advice from my new pal, Ernest Hemingway who says, “Write hard and clear about what hurts.” That is precisely what I am doing, all while keeping you right here with me. Thanks for the good pep talk the other night, little man. I really needed it. Now, back to book writing I go. I’m sorry for the short update, but late at night is the only time I really get to sit down and write, so I have to focus on this book.
I miss you. I love you. I hope you are safe. Sweet dreams, best friend.
We have been privileged enough to be the subject of a beautiful, sensitive, and enlightening article over at The Huffington Post. Our friends David & Jessikah Warfle at “Rock For Ronan”, a musical project designed to help raise funds and awareness for RTF, were interviewed by Huff Post and as always, they made sure Ronan and the foundation got the center stage. Please check out this amazing article!
Because of you all, the Spicy Monkey Spirit Hood was the company’s largest launch that they have ever had. Thank you all so much for buying them and making this venture so successful. Please continue to share this video with anyone and everyone. The more people who see it, the better. I love you all so much.
You asked for this, my childhood best friend. You asked me to give you some motivation to run the full Rock-n-Roll Marathon in Phoenix, this January for Ronan. You, of all people. My childhood best friend who looks like a supermodel, with your long, lanky 5’10 body and 0% body fat. You, my childhood best friend who once considered the high school required one-mile run, to be a death sentence. You, my childhood bestie, who has never in her life, considered herself a runner. You say you want to run a full marathon for the first time and in turn, I say to that… you are crazy. But you know how much I love crazy, so of course this is something I can fully get behind.
You see, it takes crazy person to do something like this. A half marathon is a victory in it’s own right, but a full marathon is a whole other ball game. A full marathon requires dropping every fear you have, and believing in yourself in a way that you never have before. There will be sore aches, blisters, toenails falling off, fatigue, cursing, screaming, crying, puking, (sometimes pissing and shitting yourself-serioulsy, I’ve seen it happen) and of course, wanting to just plain quit. I guarantee in the middle of all of this, you will hate me. But then you will remember why it is that you are doing this. You are doing this because you CAN, and Ronan cannot. You are doing this because you are alive and to truly be alive, we must do things that are outside of our comfort zone, otherwise, what is the point of life? You are doing this because you are so thankful that you are alive and healthy and your beautiful kiddos are as well. You are doing this for not only Ronan, but for all the other kids with the bald heads or who are in shallow graves/pieces of ashes. You are doing this for them, because while you are doing this, thousands of kids are sitting in hospital rooms, having chemo pumped into their tiny bodies, are hooked up to awful machines which means they have to stay inside all day when all they want is to breathe in the fresh air and play outside, but they can’t because they are sick and being robbed of their childhood. They are having body parts cut open, are too weak to open their eyes, are having radiation and transplants to try to save their lives, and you are not. You are healthy, here, and living a beautiful life that you are so thankful for. And while you are doing this, I will be right by your side, running this with you. Fuck. Did I just say that? Yeah. I just said that. I’ll run this marathon with you, even with my bad knee that is trying to tell me my running days are over. You know what I say to that knee? Fuck that knee and fuck cancer for killing my baby, too. I’m in this with you. I don’t care if I have to crawl to the finish line. I am here, I am healthy, I am alive, and I can run another marathon. I’m not letting you do this, without me.
So, you start your training and I will not. I won’t train for this because I’m training everyday of my life anyway living here without Ronan. Let’s raise a ton of money, and run this thing, together. Deal? I hope so, because I’m not doing this without you. There is no one else I would rather have by my side (besides Ronan) than you. The mom of the little girl, that my son was supposed to marry. They would have been the cutest couple, ever. The mom of the little boy, who’s big blue eyes and extra “spiciness,” remind me so much of Ro. The mom who knew my baby, loved my baby, and is still here, fighting for my baby for no other reason than because at the end of the day, you know what truly matters in life and how wrong it is that Ronan will not be waiting for us at the end of that finish line. If you are doing this, I am doing this. Laverne and Shirley until the end of time. I love you so much.
Now, it’s time to find me some corporate sponsors to do my “10 days of fake training,” again. We have some kids to save and a center to build! Hey all you little blog readers! Email us if you know of anyone that wants to sponsor me! I’ll dress up all crazy like I did last time for the peeps that throw in the most money, we’ll post the pics, and promote the awesomeness of the good deed they are doing. Or come out and run with me! Or at least cheer for me on the sidelines and glitter bomb me! Let the games begin!
Ronan. Only for you would I do this again and again and again. Anything for you. Always.
Now that Poppy is here, I’m ready to get my run on. This question is, will it be the full or the half? Will I train or not train? Still deciding. Hope so many of you will join me!!
At the link above you can register online OR print out the form and mail it. The most important detail about registering is that once you do, you must set up your fundraising page through our Fundly page which is linked from the registration page.
Please note: certain mobile devices don’t show the “join this event” and “register as a fundraiser” buttons on the Fundly site. If you don’t see it, please go to the Fundly link from a non-mobile device. Sorry for any inconvenience!Email with any other questions or issues!
Ronan. Is this a joke? I’m sitting at my computer, watching my Twitter feed go crazy about the White House being lit up Pink for October for Breast Cancer Awareness month, while they did nothing in September for our kids. Even after we got over 25k signatures for our petition to light the White House Gold, it didn’t seem to matter at all. What we got was a big fat slap in the face and some generic letter basically saying, “We care, but we really don’t care.” When I got our letter back, I was disappointed, but now sitting here at my computer and looking at the White House being pink, I am just straight pissed. I am not pissed that the White House is pink- good for them as this issue has been being worked on hard for a long time now by a lot of people with a lot of money/power/brains, etc…. What I am broken hearted over is the fact that WE (including all of you) worked our asses off to get over 25 thousand signatures to ask for the same thing for our kids, and we were ignored as if our kids, do not matter. Like my son, didn’t matter and doesn’t deserve the same awareness that breast cancer does. Every fucking person on the face of the planet knows what the pink ribbon means. Nobody knows what the Gold ribbon represents and this would have helped the cause of childhood cancer, so freaking much. This is not a one cause is more important than the other issue. This is I just want equal rights for these kids issue. Kids who are too little to have a voice of their own, so we as adults have to have it for them. I feel like we are screaming at the top of our lungs, but are constantly being ignored. This is what I am pissed about and please do not come on my blog and turn this into something else. I would have given up my life in a heartbeat if it would have meant Ronan would have gotten to stay here and live. I would have taken his cancer in an instant, no questions asked. I’ve had enough time here- he did not deserve to not be a child and live a full and wonderful life. I will always wish it could have been me and not him.
I don’t understand why this is even an issue, because it should be taken care of by now. How many more kids have to die? I don’t understand why everyone in the world, isn’t fighting the hardest for the lives of these kids. I don’t understand why such a simple thing, could not have been done. I don’t understand how everyday, kids are diagnosed, dying, going through wars that they shouldn’t have to go through, while being called “hero’s,” when all they want to do is have the chance to grow up, be normal kids and live long and healthy lives, like they deserve. I don’t understand why kids are being robbed of this and nobody seems to care. Things could change if everyone would pull their heads out of their asses and stop sweeping this issue under the rug. I don’t ever want another mother or family to go through what we have gone through, but this is just going to continue to keep happening if the lack of awareness and lack of funds for childhood cancer, do not change.
While I was watching my Twitter feed blow up, I decided to go and spam the White House Twitter with “Where’s the GOLD for our kids,” etc.. etc… etc… Then I started browsing the First Lady’s Twitter, which is what got me to, “Is this a JOKE,” in the first place. Did you guys know that apparently there is an epidemic running rapid through the world about people not drinking enough water? OMG. I had no fucking idea how out of control and devastating this is. Have I been living in a hole somewhere? It is such a massive problem, that the First Lady has started a whole campaign about it. She says, “Drinking water is a choice that everyone can make.” She is totally right. You know what is not a choice? A 3-year-old getting cancer.
A 3-year-old, getting cancer and having his head cut open to remove a tumor that has spread to his left eye is not a choice. He also doesn’t get a choice regarding all the ADULT CHEMO he is going to have pumped through his body. Which causes nausea, bloody noises, fever, loss of appetite, mood swings, weight loss, fatigue, depression, and loss of hair to MAYBE save his life. And if that works, there is also another MAJOR surgery to have his stomach cut open to remove the mass that originated in his belly. If he gets through that, next is a stem cell transplant to go through, and YAY also radiation and antibodies! WHEW! But I sure am glad he never had to worry about that not drinking enough water problem! But he may have had to worry about it, had he lived long enough to do so. But he didn’t because cancer murdered him. He was robbed of his future as thousands of other kids are being as well. At least we, his family, are all left here to drink our water though. I will make sure that Liam and Quinn get an extra glass of water tomorrow, just for Ronan’s sake. They will drink an extra glass for him because he is not here to do so himself. Thanks for taking on this issue, First Lady.
Fucking bollox. I did not start this to bash the First Lady as I am sure she is lovely and she picked an issue that was easy for her to take on. But to a cancer mom, this is beyond offensive. Childhood cancer is a war and it cannot be won alone without the support of our government and leaders. The fact that childhood cancer only receives 4% of U.S. federal funding, gives me nightmares. As if having a dead son doesn’t give me enough nightmares, now I get to think about this while I’m awake during the day and also while I sleep. I guarantee you, if the President and First Lady actually stepped foot onto an Children’s Oncology Floor, this would not be acceptable to them. If every person was required to step foot in a hospital, on this floor, we would not be dealing with lack of anything in the childhood cancer world as I fully believe this real life epidemic, would be issue number one. Our future generation of great amazing leaders are dying. I know had Ronan been given the chance to grow up, he would have grown up to change this world for the better. Look at all he is doing and he is dead. If that doesn’t say something, I don’t know what does.
Below is the “We care, but don’t really care,” letter from the White House. Thanks for the awesome photo op though, Prez. I really enjoyed seeing how much you care.
Ronan. As always, I miss you so much. I miss you. I love you. I hope you are safe. If they won’t change this, we will. I promise you that.
Fighting Pediatric CancerBy Paulette Aniskoff, Deputy Assistant to the President and Director of the Office of Public EngagementThank you for your petition and for your ongoing effort to raise awareness about the important issue of pediatric cancer.President Obama shares your commitment and, although we cannot light the building gold for the month of September, we’re issuing a Presidential Proclamation to help amplify your important cause, as we have in past years to commemorate National Childhood Cancer Awareness Month. And the President has continued to meet with cancer fighters — including 7 year old Jack Hoffman, a brain cancer patient and cancer research advocate.President Barack Obama greets Jack Hoffman, 7, of Atkinson, Neb., in the Oval Office, April 29, 2013. Hoffman, who is battling pediatric brain cancer, gained national attention after he ran for a 69-yard touchdown during a Nebraska Cornhuskers spring football game. Hoffman holds a football that the President signed for him. (Official White House Photo by Pete Souza)But we think it’s not good enough to simply make more people aware of the issue: The Obama Administration is committed to continued support for outstanding pediatric cancer research. Because this issue is incredibly important — too many children and their families face the devastating effects of cancer. And as you point out, it remains the leading cause of death by disease for American children under the age of 15.That’s why the National Cancer Institute continues to support long-term research efforts to help us better understand and treat pediatric cancer. You can learn more about our scientific efforts here.
We are making progress: Success in treating pediatric cancers has led to large numbers of long-term pediatric cancer survivors with long life expectancies.
In addition, the Affordable Care Act offers a number of important benefits for children fighting cancer. For example, eliminating lifetime caps on care means insurance companies can’t set a dollar limit on what they spend on a child’s care. And insurance companies can no longer deny families coverage because their child has a pre-existing condition like cancer. And the law will help millions of Americans, including children, get health insurance so if an accident or illness like cancer happens, they can get the care they need and deserve and are protected from high, unexpected costs. You can learn more about these benefits and more atHealthCare.gov.
So along with the proclamation, we’re also committed to supporting families battling cancer through the Affordable Care Act, and funding pediatric cancer research to find more effective, safer treatments.
Presidential Proclamation: National Childhood Cancer Awareness Month, 2013
Every September, America renews our commitment to curing childhood cancer and offers our support to the brave young people who are fighting this disease. Thousands are diagnosed with pediatric cancer each year, and it remains the leading cause of death by disease for American children under 15. For those children and their families, and in memory of every young person lost to cancer, we unite behind improved treatment, advanced research, and brighter futures for young people everywhere.
Over the past few decades, we have made great strides in the fight against pediatric cancer. Thanks to significant advances in treatment over the last 30 years, the combined 5-year survival rate for children with cancer increased by more than 20 percentage points. Today, a substantial proportion of children diagnosed with cancer can anticipate a time when their illness will be in long-term remission or cured altogether.
My Administration is dedicated to carrying this progress forward. We are funding extensive research into the causes of childhood cancer and its safest and most effective treatments. We also remain committed to easing financial burdens on families supporting a loved one with cancer. Under the Affordable Care Act, insurance companies can no longer deny coverage to children with pre-existing conditions or set lifetime caps on essential health benefits. As of January 2014, insurers will be prohibited from dropping coverage for patients who choose to participate in a clinical trial, including clinical trials that treat childhood cancer.
All children deserve the chance to dream, discover, and realize their full potential. This month, we extend our support to young people fighting for that opportunity, and we recognize all who commit themselves to advancing the journey toward a cancer-free world.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2013 as National Childhood Cancer Awareness Month. I encourage all Americans to join me in reaffirming our commitment to fighting childhood cancer.
IN WITNESS WHEREOF, I have hereunto set my hand this thirtieth day of August, in the year of our Lord two thousand thirteen, and of the Independence of the United States of America the two hundred and thirty-eighth.
Spicy Monkey Spirit Hoods are back in stock as of 3pm pacific time. The first run sold out in barely 90 minutes, so if you want one…don’t wait! Even if you don’t have kids, or want to wear one yourself, DONATE one or 10 to a children’s hospital. Bald little babes everywhere, should have one of these. http://theden.spirithoods.com/ronanthompson/
We have to thank Alexander and Shayoon and everyone else at Spirit Hoods for this incredible experience! Seeing how enthusiastic and supportive everyone has been about the spicy monkey hood reminds us of how Ronan would have been so beyond excited to see it. Thank you all so, so much. This is honestly a dream come true.
Ronan. This is seriously my life. Last night, I was cooking dinner and I had Poppy in the sink. Let me back up a bit. Every morning and every night, when Poppy eats her solid food, I put her naked in her Bumbo chair in the sink. She gets so messy, so I feed her in there as it makes perfect sense because she is SO messy and I can just wash her off afterwords. (Hi, that’s me OCD clean freak) She likes to sit in her little chair, play with her rattles, and suck on this mesh thing that I put avocados or bananas in. Last night, while I was cooking dinner, Poppy was playing away and sucking on her little mesh holder with her mashed up avocado in it. I turned around for about 30 seconds to tend to my tacos and when I turned back around, Poppy was slumped over in her little Bumbo seat with her head down. I dropped my spatula, screamed her name, and ran over and ripped her out of her chair. The water wasn’t on or anything, but my mind instantly went to, “She’s dead, she’s dead, she’s dead.” As soon as I ripped her out of that chair, she started to cry because I scared her so badly. She wasn’t dead. The poor little babe had fallen asleep, probably because she was so worn out from our very busy day of putting her in a pumpkin and taking pictures.
I felt so bad for scaring her and making her cry because I am a raging lunatic. I felt so badly, yet I know this is the way I will always be. My mind will always go to the worst place possible. I said to my friend, Katie today as we were hiking, “It takes everything I have not to take all 3 of my kids down to PCH to have them scanned from head to toe.” And I’m not kidding. It’s a fight I have with myself everyday in my head. Just because this has happened to us once, does not mean it cannot happen again. That’s not the way life works. I am fully aware of that. I live in a world where all of my kids are going to die and everything they touch or eat, is going to give them cancer. I’m so freaked out by anything that Poppy puts in her mouth, food wise. It was pretty much only organic for you and your brothers. I mean, I even made all of your baby food from scratch. Now, I’m positivly a freak about it with Poppy. And if you think I have issues there, you should see the way I pretty much refuse to leave her with anyone. I mean, I even worry when I leave her with your Daddy for a bit. The separation anxiety I am having with her might become a problem. I can’t leave her and when I do, I’m a ball of nerves. This is my life and as of now, this is just the way it is. Maybe it will change or maybe it won’t. I don’t know how you ever go back to anything ever feeling o.k. and safe again after you’ve watched one of your children, die from cancer.
So, I started this earlier today… before the amazingness of the SpiritHoods Spicy Monkey SELLING OUT happened! Are you guys serious?! I mean, I expected them to sell, but not that fast! You all are amazing. Don’t worry, our friends at SpiritHoods will be making more. I don’t think anybody expected them to sell out so fast. THANK YOU ALL SO MUCH! This is beyond rad. Tonight, I can go to sleep feeling so proud because this is proof that my little guy is changing the world with the help of all of you. I really, really needed this today, so thank you all again for being so supportive. And another HUGE thank you to my brother from another mother, Alexander from SpiritHoods, who shot this video and has been working along my side through this whole thing. He is going to change this world with me and help save some kids’ lives, just you all wait and see. This is just a little taste as of what is to come.
I’m signing off for tonight. More book writing to do. I miss you. I love you. I hope you are safe, Ronan. I love you to the moon and back
I love you all, too. Thank you for helping in this fight and for being better people because of my son.