Tonight is the eve of my babies surgery. I know it is a
very good thing that tomorrow is here; but I am still filled with
an overwhelming amount of anxiety, anger, sadness, sorrow, etc…
basicially I have been through about every emotion one can feel
today. We have been waiting so long for tomorrow to come; and now
that it is almost here… I don’t even know what to do with myself. I
won’t be o.k. until I hear the words that Ronan is out of surgery
and he is doing fine. Until then, I am going to be a wreck. I will
find the strength to keep it together as much as possible tomorrow,
but it is going to be a very hard day. I spent this morning with
Ronan, doing our usual things. We went downstairs and I made him
breakfast. We came back upstairs and finished watching “Despicible
Me” from last night. We then all got ready for the day. I had to
laugh at Woody today at a comment he made to me. I was just getting
out of the shower sans no make-up… he looked at me and goes,
“What’s going on with the dark circles under your eyes? “When did
that happen?” I tried my best not to punch him, and just calmly
told him that they have been there for a few weeks now. He tried to
argue with me and told me that they have not; and I then told him,
yes they have and thank god for make-up. Without it, I look like
somebody has given me two black eyes. I’ve never dealt with the
issues of black circles under my eyes before and I thought it was
funny that he just now noticed today. Looking in the mirror anymore
is weird for me… I look different and my eyes definitely tell the
story. I have been laughing about this all day, because for some
strange reason it is funny to me. I’ll take any kind of humor I can
get right about now. After we got ready, Woody sent me out to get
the pedicure he put in my stocking for Christmas. It was so nice to
get out and go pamper myself a little bit. I got a dark purple
color for Ronan of course. New York was cold and dizzily today and
I quite enjoyed my walk. As I was leaving the pedicure place, I was
in the middle of texting my friend, whom I’m calling, Mr.Sparkly Eyes, to please keep Ronan in his prayers tonight and
tomorrow, which I know he always does, but I said something along
the lines of, “you know I have my issues with God, but I’m asking
for anything at this point.” (and please, no snarky comments here,
I have a right to be mad and questioning everything) As soon as I
texted him those words, I passed a small Catholic Church with the
Fleur De Lis symbol on the outside of it. The Fleur De Lis has kind
of become a family symbol of ours. I walked past the church and
then immediately turned around and went inside. It was empty and I
walked right up to the front and sat down. As soon as I did this I
started crying and sat and cried for a good 30 minutes. I cried, I
prayed, I begged, I asked questions and I cried some more. It was
so peaceful inside and I felt such a sense of comfort and warmth. I
lit 3 candles inside that church tonight. One for Ronan, one for
Jack Morton, and one for Mia Foutz. I said prayers for all of them.
I then left the church but not before I filled it with about 50 of
Ronan’s little cards with his picture and story on it. It’s been
about 16 years since I’ve been inside of a church to pray. It was
just what I needed and exactly where I needed to be tonight. I
haven’t talked to anyone really today, besides my friend, Pamela
White. I have kind of gone into hiding today… so sorry to my
friends…I’m a little too weak to talk right now. I needed to talk
to Pam tonight and that was all. I needed her because she has been
exactly where I am standing, litterely. It was her voice that I
needed to hear, the comfort in her voice, and her advice. She
talked, I listened, I cried, and I believed in every word she was
saying. She told me there was no way to prepare for tomorrow, and
told me no day will ever be as bad as the day Ronan was diagnosed.
She is so right. Nothing in my life, so far, will ever be as bad as
that day. Woody keeps telling me tomorrow is the biggest day of our
life and he is right. He also has been so great about sending me
text messages telling me how Ronan can do this, how he is so much
stronger than every other kid. He is so great about doing things
like this… I tend to go into shut down mode and push everyone away.
I just want tomorrow to be over and Ronan to be o.k. I want that
fucking tumor out of his abdomen. We have to be at the hospital at
7 a.m. East Coast time. Ronan is not scheduled for surgery until
10:50 a.m,, but he may be going in earlier depending on how the
morning goes. I will keep you all posted as best I can and I am so
thankful for all of your prayers and how much you will be thinking
of him/us. Thank you all for your messages today, via text,
facebook, phonecalls, emails, etc…. They mean so much to me. I got
a really sweet one from my friend Shelby that I am going to share.
Thanks for this tonight, Shelby, I really needed this.
I wish you a couple of hours of sleep
tonight and a smooth day tomorrow. Your family has been on my mind
on day. I took you to yoga with me tonight and turned my practice
over to you. My teacher pulled off his shirt mid class (yeah!) and
he had a beautiful tattoo that said “this too shall pass”…just
like yours. I take it all as a sign and I know that you will take a
huge jump in your goal to kick cancer’s ass tomorrow when you get
it all out of your baby. Blessings and strength mama!
Shelby My friend, Noelle, also reminded
me tonight that Ronan is a Taurus. A stubborn bull who is
determined to win! He will win, he will fly through this surgery
with such strength and determination. He is our fighter, our hero,
our Rockstar! Nothing is going to stand in his way. Let’s get this
freaking show on the road already. So, I am asking that you keep Ro
and all of his doctors in your prayers tomorrow. Dr. LaQuaglia,
especially as well. He is beyond blessed at what he does and I have
complete faith in him. He is going to save our baby. Sleep well
tonight and I hope your dreams are filled with images of Ronan. I
am leaving you tonight with a beautiful picture of a butterfly. To
me, butterfly’s represent a rebirth…. a shedding of their cocoon
only to be reborn as something even more beautiful than before.
After tomorrow, Ronan will be reborn and free of the mass in his
abdomen. A new, fresh start for him. The rebirth of our baby boy. I
love you all and I promise to update you as soon as we hear
anything tomorrow. xoxo
Tonight is the eve of my babies surgery. I know it is a
Awake. Lovely. Fell asleep for about an hour. Woke up due to horrific nightmares. Not going back to sleep anytime soon. I talked via text messaging to Ashley’s mom today; the little girl who underwent surgery. It went very well and she is now recovering over in the ICU. Her mom told me to prepare myself. Fuck. How do you prepare for something like that. I sent Woody the text message she sent me about what to expect. His response? “Fuck.” Great. My rock who is usually my positive power, knows what we are about to go through is going to be hell. I am trying to mentally prepare myself…. but I don’t even know if this is possible. She did tell me that she is completely in love with Dr. La Quaglia though:) That makes me feel a little better. Cheers to Ashley and her successful surgery. So very happy for her and her family.
Today, we spent the day all together as a family. Liam and Quinn leave tomorrow and I am devastated. Ronan is going to be so sad; those boys are his life. We tried to soak up being together as much as possible and had a great day. Lots of laughing and throwing snowballs:) Tonight, Woody and Quinn ran out to get some dinner down the street a few blocks. Ronan was so upset after they left because he wanted to go with them. He screamed and cried the entire time they were gone which was about 20 minutes. I was dealing with him and I looked over to see the tears pouring out of Liam’s eyes. I immediately left Ronan to his temper tantrum to tend to Liam. I sat and held him and asked him what was wrong. He told me how much seeing Ronan scream and cry, bothers him. I wanted to die right then and there. Of course it all makes perfect sense. Liam has been spending a lot of time with Mimi and Papa on this trip because they are his safety, his security. With them, there is no chaos, no unexpected, no scariness. Liam lives for calmness, structure, and rules. With Ronan, you never know what you are going to get and every second is different from the next. Liam does not like this at all and seeing him tonight all I wanted to do was to take him home, and just be able to put him back in his secure environment where all this madness does not exist. I held him for a long time, let him cry, and just explained to him why Ronan was acting this way. Ronan got so mad that I was tending to Liam that he shut himself in the closet. I let him; Liam needed me. As soon as Woody and Quinn returned, we ate dinner and then he took the twins upstairs to watch football. I curled up with Ronan and fell asleep; for a little while anyway.
So, it is officially New Years Eve. I am so ready for 2010 to be over. Worst year of my life. 2011 is going to be much better; I have a great feeling about it.
My friend, Sandy, sent this to me today. It made me smile and I agree with almost everything on this list. Thanks, ho;)
Written by Regina Brett, 90 years old, of the Plain Dealer, Cleveland , Ohio :
To celebrate growing older, I once wrote the 45 lessons life taught me. It is the most requested column I’ve ever written. My odometer rolled over to 90 in August, so here is the column once more:
1. Life isn’t fair, but it’s still good.
2. When in doubt, just take the next small step.
3. Life is too short to waste time hating anyone.
4. Your job won’t take care of you when you are sick. Your friends and parents will. Stay in touch.
5. Pay off your credit cards every month.
6. You don’t have to win every argument. Agree to disagree.
7. Cry with someone. It’s more healing than crying alone.
8. It’s OK to get angry with God. He can take it.
9. Save for retirement starting with your first paycheck.
10. When it comes to chocolate, resistance is futile.
11. Make peace with your past so it won’t screw up the present.
12. It’s OK to let your children see you cry.
13. Don’t compare your life to others. You have no idea what their journey is all about.
14. If a relationship has to be a secret, you shouldn’t be in it.
15. Everything can change in the blink of an eye. But don’t worry; God never blinks.
16. Take a deep breath. It calms the mind.
17. Get rid of anything that isn’t useful, beautiful or joyful.
18. Whatever doesn’t kill you really does make you stronger.
19. It’s never too late to have a happy childhood. But the second one is up to you and no one else.
20. When it comes to going after what you love in life, don’t take no for an answer.
21. Burn the candles, use the nice sheets, wear the fancy lingerie. Don’t save it for a special occasion. Today is special.
22. Over prepare, then go with the flow.
23. Be eccentric now. Don’t wait for old age to wear purple.
24. The most important sex organ is the brain.
25. No one is in charge of your happiness but you.
26. Frame every so-called disaster with these words ‘In five years, will this matter?’
27. Always choose life.
28. Forgive everyone everything.
29. What other people think of you is none of your business.
30. Time heals almost everything. Give time time.
31. However good or bad a situation is, it will change.
32. Don’t take yourself so seriously. No one else does.
33. Believe in miracles.
34. God loves you because of who God is, not because of anything you did or didn’t do.
35. Don’t audit life. Show up and make the most of it now.
36. Growing old beats the alternative — dying young.
37. Your children get only one childhood.
38. All that truly matters in the end is that you loved.
39. Get outside every day. Miracles are waiting everywhere.
40. If we all threw our problems in a pile and saw everyone else’s, we’d grab ours back.
41. Envy is a waste of time. You already have all you need.
42. The best is yet to come…
43. No matter how you feel, get up, dress up and show up.