Ro baby. I didn’t die today. I really thought I was going to. I woke up this morning, knowing what the day had in store. I didn’t dare tell your brothers what I had planned. Your daddy chose to ignore my danger day and left the house the way he always does; by kissing me goodbye and telling me to have a good day. We had talked on Thursday night about the skydiving I had planned for Monday. Well, we didn’t actually talk about it…. I more just told him I was doing it. He said to me, “Don’t you think we should sit down and have a discussion about this?” I said, “We’re having a discussion now. I’m going skydiving on Monday.” He said he didn’t want me to go. That I could die. I told him that I could die crossing the street. He didn’t think that was a very good argument. He made his feelings known that he didn’t like the idea and we left it at that. We didn’t talk about it again until after I made it safely to the ground today. Your daddy knows how I am, once I get an idea in my head. There is no stopping me. Especially not now. Your daddy knew I was a handful before losing you, Ro. Now the word handful has taken on a whole new meaning. Yowzer. At least I keep things spicy, right baby doll;) Extra spicy just for you.
I woke up this morning like it was just another normal day, without you. I got your brothers ready and Mandy Bee came over to help me as she was my danger crusade sidekick for the day. She packed your brothers lunches while I ran around the house, trying to get ready. I knew I wanted to take you with me, but there was no way I was going to bring your heavy locket, skydiving. I went and got a small ziplock bag and opened up your Urn. I put my hands inside and went to grab some of your ashes. I grabbed something hard instead. It looked like one of your little bones. I dropped it back into your Urn. I looked down at it, didn’t want to touch it, but then thought to myself there is a reason I was supposed to touch that today. I scooped it up and put it in my little baggie and zipped it up in the pocket of my coat. I didn’t throw up, but paced back and forth, crying instead. I quickly pulled it together so I could get your brothers off to school. I didn’t want them to see me so upset as they would have worried. We hopped in Mandy’s car so we could drop off Liam and Quinn. I hugged and kissed them both and told them how much I loved them and to have a wonderful day.
As we drove off, I got really quiet which is always the first clue that I’m a mess in my head. My silence screams my pain. Mandy asked what was wrong, besides the obvious. I didn’t answer at first but stared out the window instead. After a minute or two, I pulled out your ashes told her the story and starting bawling that I couldn’t believe you, my baby, were in a plastic fucking baggie. She just held my hand, listened, cried, and we talked about how fucking fucked up all of this is. What else could she have said? Nothing and she knows that. That’s the thing I love most about that Mandy Bee. She never tries to make things better with bullshit words. She knows she can’t so she just lets me be. We drove to Eloy and it was mostly a quiet drive. We both started to freak out as we got closer, talking about how we couldn’t believe we were going to jump out of a plane. I told her I fully expected to die. She told me I was not dying on her watch so to shut the fuck up. I just laughed and told her that I thought I was going to and I was o.k. with that. As soon as we started to get closer, we looked up and saw about 10 parachutes falling from the sky. The excitement started to kick in. We checked in, watched a short video and signed a ton of paperwork in regards to our life. Or our death. We sat and signed our lives away without thinking twice. We went and got suited up, met our partners in crime and listened as they gave us very little, but informative instructions in regards to tandem jumping with them. I guess knowing less is better so that way you don’t over think it. I chose to not over think anything at all today. I only thought about you the entire time.
The guy I jumped with was named Jason. I liked him instantly. He was young, tattooed, a great smile, and the icing on the cake was his beautiful blue eyes. I instantly felt like you were there, holding my hand, once I met Jason. As you yourself, had hand picked him out for me today to jump with because you knew he would keep me safe. I know this was one of the reasons why I didn’t ever feel scared or panicked. I felt a peacefulness and a calmness that I have not felt in so long. We waited our turn and climbed on board of the plane which held about 20 people. Up and up we went. It was SO HIGH, Ronan. I had one moment as I was looking out the window of the plane that I thought, “What the FUCK am I doing?” But then I remembered that today, was your 8 months. Today, I remembered that it has been 8 months since I last kissed your lips. Today, I remembered that because I have faced my worst fear in life, that I have have nothing to fear anymore. 13,000 feet up in the air we went and I could have not felt more content or calm. My head has not been this quiet since before losing you. There were no screaming voices today in my head. Only pure silence. Jason was preparing me to jump. He was strapping me to his body and as he was putting me in-between his legs, he said something that was so inappropriately wrong, that it made my entire day and night because it was that raunchy, perverted and hilarious. It made me forget the fact that I was about to plummet to my death. I told you I knew you had picked just the right guy for me today, Ro. You know my sense of humor so well. I looked at Mandy as I was getting ready to jump out of the plane, first. She screamed, “I LOVE YOU!!!!!!!!!!!” I looked back at her, flashed her a smile and said, “I LOVE YOU MOOOOORRRRREEEEE!!!!!!!!!!!!” Jason stood me up at the open door of the plane and told me to look up. ONE, TWO, THREE!!!!!! We jumped. We fell. We flew. We became one. I screamed, laughed, flipped off the camera man who was taking a video of the entire thing. I screamed “FUCK YOU CANCER!!!” I yelled, “I LOVE YOU, RONAN!” We fell, in the sky without our parachute being open for at least a minute. It was the most amazing feeling I’ve ever had, besides being your mama. I wasn’t ever scared. I wanted to free fall, forever. It didn’t feel like I was falling from the sky. I felt like I was floating. I felt closer to you today, then I have since you’ve been gone. Jason pulled the parachute after a minute or so. After that, we were able to talk while we floated all around in the sky. He pointed out the mountains in the horizon. I asked him how I did and he said amazing. I told him all about you and how I was doing this, for you, because of you. Because you’ll never have the chance so now I have to do things like this, for you. If you were still here I would have NEVER done this. But now I wonder why not? It was the most freeing feeling that I’ve ever experienced in my life. I’m only sorry it took you dying, for me to do something like this. The landing was easy, and Mandy Bee was waiting for me. She came running over, jumped in my lap and kissed me smack on the lips. It was one of the top 5 BEST days, of my life.
Today, I didn’t feel like I was buried alive. I didn’t have a hard time breathing. I felt happy. I felt fearless. I felt free. I said to myself, If I can jump out of a plane for Ronan, I can do ANYTHING. I meant that today. All I wanted to do today was to get back into that plane, and jump again. I jumped up and down with Mandy on the ground, instead. My Mandy Bee who is afraid of heights, Ronan. Afraid of heights, but didn’t think twice about going with me when I put this out there about a month ago. My Mandy Bee that you never got to know, but it is because of you that I have found my fearless soul mate in life. The friend who holds on to me the tightest when all I want is for her and everyone around me to let go. The friend that is not scared of my dark side that often exists. The friend who doesn’t judge. The friend that trusts me, embraces my crazy ideas, and thinks I am capable of anything and everything. Thank you for her. Thank you so very much. You have no idea, how many times she has saved me. I don’t know how I would be doing any of this without her. I am so glad I don’t have to.
After our jump of death. Or jump of life…. whichever you prefer… we went and grabbed lunch at your favorite place, Chelsea’s Kitchen. Mandy Bee also went grocery shopping with me, which you know I don’t do well with. I would rather jump out of a plane any day then tackle the grocery store. It helped having her there so much. I’m learning that I do indeed need help with things and for now, grocery shopping is one of them. I’m learning that it is still o.k. to ask for help, especially now that you are gone. It’s too hard to go there alone and without you. So Mandy shopped with me. We rode on the carts like I would have done with you. Remember how you would sit in the cart and I would push you so fast and crazy? You would giggle with fits of laughter. I pushed my cart fast and crazy for you today, only I was the one riding on it. I’m sorry for that. I’m sorry for everything. I’m sorry you got cancer and I couldn’t make you better. I’m sorry I have to live without you. But thank you for letting me live today and making me feel like it might be o.k. That it won’t hurt so badly, everyday without you. I know I can’t jump out of a plane everyday to have good days like this. I hope you can give me some ideas on how else to ease the pain. I’ll be here waiting to hear from you.
I went for a 6 mile late run tonight too. The moon was so full and beautiful. I yelled up at it that I loved you. I know you heard me. I know you hear me all the time. I love you baby doll. Sweet dreams. I hope you are safe.
Ro baby. I guess my last post was pretty happy and upbeat. I wish I could say I have spent the past few days, feeling the same way after writing the things I wrote. I didn’t end up falling asleep peacefully like I had hoped. I tossed until 3 a.m. and had to take the devil aka, Ambien in order to fall asleep. I woke up, feeling like shit…. but I went on with my day anyway. I don’t remember what I did, but I’m sure it was a lot of all the things I’m supposed to be doing, like being productive. All the things I’m supposed to be doing, like living life taking care of your brothers, the house, paying the bills, etc…. Being present. On Saturday, I went down to ASU to participate on a panel that Dr. JoRo had asked me to be a part of. It is for a class she is teaching at ASU on traumatic death. I sat on a panel, in front of her class with about 10 other bereaved parents and a grandmother too for about 5 hours…. but it felt like 10. Dr. Jo basically asked us to tell our stories and she then asked us all question after question regarding our tragedy. I watched as her students listened, wiped tears from their eyes, took notes, and tried to process the things that we were saying. I watched the ways they didn’t have to say anything at all, as I could hear their thoughts in their heads. I know each and every one of them begged whomever it is that they believe in, for this to never happen to them. I so wished I had been one of the students sitting in that class today, taking notes. Not the one the other side, talking about you and this fucked up story. I tried my best to get my words out in regards to you, my grief, and everything else that I am going through, but it was a lot harder than I thought it was going to be, mentally and emotionally. I was the first parent on the panel to be asked the questions, so I had to be quick on my feet with my responses. I had so many things racing through my mind and trying to articulate the words that I wanted to say, is so much easier for me to do in my writing rather then speaking. But I did my best and I did it from my heart. It was the best I could do. It’s one thing to write about you… I could do this in my sleep and I often do. To talk about you, on the spot, hurts so badly that it is almost impossible. One day, I hope to find my voice for you…. where it’s not one where I feel like I am gasping for air. I think I did an o.k. job yesterday…. I caught myself pinching myself on and off through out the day to make sure the day was real. Unfortunately, I felt all the pinches I gave myself. I cried a lot. How weird to be so vulnerable in front of so many strangers. A gig I never wanted. I gig that I’ll have to have for the rest of my life. I think I said the fuck word a few times and I remember making Dr. Jo’s students laugh by flipping them all off when she asked the question what we, as bereaved parents, would we like to say to all the people who say stupid things to us. Things like, “Well, my cat died so I know how you feel.” “You can have other kids.” “Heaven needed another angel.” “You were given this because you are strong enough to handle it.” The list goes on and on. My response to Dr. Jo and her class was, “I like to keep it short and sweet.” I then stuck my arm out and flipped everyone off. I remember hearing everyone laugh. You would have been proud of that, Ro baby. Fuck those people of the world and the stupid shit they say. They will never get it…. they are too fucking ignorant, self-absorbed, and brain washed by society.
After the “death panel,” as I called it to Dr. Jo, I left ASU with her and we went to grab some dinner with 3 other parents and the grandmother of the group who had lost not only her grandson to death, but her son as well to the grief. Her son is still here, but you know what I mean. The grief took him away for some time. It sounds like she is slowly getting him back but, ouch. That hurt hearing her say that yesterday, on that panel. I know that is how your Nana feels. That she not only lost you, but me as well. I know that is how many people feel as I may as well be dead too, because that’s the way I have been acting. The only thing is, it’s not an act. It’s the way I feel and I can’t change that. Someday maybe. But not now. While we were waiting for our table in the bar, where I sucked down my Coke…. the waitress came in to ask for a name for our table of 6. I looked at Jo. She looked at the waitress and goes, “Ronan.” I smiled. A few minutes later, the waitress came back saying, “Table for Ronan!” I had to wonder what the lady would have done or thought if she knew she was calling out the name of a dead child. This is the strange world I live in now. Where you have to make the dead live among the living, in any way possible. Even if it means to hear their name being called out at a restaurant because your table is ready. We all sat and talked about the day, our kids, or lives before this and now. Dr. Jo pointed up at the ceiling and how all the light fixtures were in the shape of little stars. It was your way of being there, after such a brutally hard day. It was your way of giving me the little giggle that I so miss. I then told the table how I used to call you feisty. How I used to say, “Ronan, you are so feisty!” How you would then scream back at me, “I NOT SPICY!” I told them it was one of my favorite things that you used to say to me. I miss that so much. I also told everyone at the table how I feel like it should be mandatory for bereaved parents’ to carry around tasers. And when people say stupid shit to us, we should just be able to taser their asses, instead of trying to answer their dumbass questions. Oh, how everyone laughed at this idea. I think a law needs to be passed for this to happen. I have so many people I would like to taser just to make them feel a tiny piece of the pain I feel 24 hours a day. I actually wish I didn’t have to taser anyone, Ronan. I wish people would just start thinking before speaking. I wish people would just be a little more thoughtful, kind, thankful and compassionate. I actually wish you were just here and I didn’t have to wish any of this shit. I would like to tell you that I left dinner and came home to our “happy,” house and fell into a peaceful sleep. I did not. I hate what I’m going to have to tell you next.
I left dinner, got into my car, and started to drive home. I wish I could tell you what happened for the next 40 minutes, but I can assure you I left my body for that time. I can swear to you that I should not have driven. I can swear to you, that I felt scared which is something that I never feel anymore. I somehow ended up out at Wildpass Resort, which is nowhere near our house. It’s on the east side of the valley. I was crying so hard that I had to pull over at a gas station where I sat, cried, felt my heart racing so fast that I thought it was going to explode. I almost called an ambulance. I had to make myself breathe for I knew if I didn’t, I was just going to suffocate to death. I ended up calling Dr. JoRo….. which is something I never do…. and she’ll be the first to tell you that. I hate to bother her, even though she is so good at making sure I know I am never bothering her. I called her last night as I knew if I didn’t, I would have been in big trouble. I tried to get out my words to her as to where I was and what had happened. I told her there were fireworks going off in the sky and how the fuck can fireworks even exist anymore. I sobbed. And sobbed. And sobbed. She made sure I had pulled over somewhere safe. I told her I thought I had, but how lost I was. I said to her, “If I can’t find my way home, how am I supposed to find my way through life?” What a perfect metaphor, Ronan. I don’t know the answer. But I eventually ended up finding my way back home. Dr. Jo texted me so she could know I was safe and asked if I needed to talk. I told her that I was o.k. That I had made it home…. 2 hours after I had left her. I told her a hot bath and the reeses peanut butter cup that she had given me earlier in the week, had saved my life. For tonight. I fell asleep. I dreamed of you and your little bald head. I got to hold you but I knew you were going to die. I am just thankful that I got to see you.
Tomorrow is a new day. Tomorrow is your 8 months since you’ve been gone. I’m so sorry for that. I miss you so much. I know you know what I’m doing for you tomorrow, but I’m not saying too much about it now. If I’m meant to see you, to kiss your little lips, and feel your soft skin, I will. It’s not up to me, it’s up to you. I’m not scared. I love you so much. Sweet dreams, my not spicy little boy. I hope you are safe.
Ronan. I’ve written to you a couple of times these past couple of nights but I think the words have been writing have been really, really dark and angry. I haven’t finished them and I don’t feel like finishing them now because for the first night in a very long time, I am not in a dark and angry place. I feel hopeful and a bit peaceful. I have to start accepting some things Ronan, in order to move forward and to get out of the arms of grief that seems to be strangling me. I have to accept the fact that you are never coming back and as for much as that kills me, it is a fact. No matter how much I sit here and scream, cuss, cry and beg….. you are not coming back. Acceptance is the first step, yes? I have to start to accept this so I can take this anger, pain, and sadness to a positive place. Yes. I said it. Positive. I know it may seem like I love the dark, negative space that seems to consume me, Ro. But I do not. It’s not me. It’s never been a part of me or who I am. Do you know how much I struggle with this new found emotion? Anger? It’s foreign to me, Ronan. Anger, bitterness, jealously, resentment….. those words didn’t exist in my vocabulary before this. I am afraid they are going to destroy me as I don’t know what to do with them. They are so powerful, they are trying to take over my entire life. They fill my head with so much noise during the day that much of my days are spent just trying to quiet them down. The fighting in my head is constant. I’m trying to get a handle on it. To use this anger in a positive way. I know it may not seem like it by the words I write, but I want my life to be full of positive things and not so dark. I really, really do. To have some light come out of this darkness. To take all of this anger and turn it into something that is so powerful, that it can change the world and the way people live their lives. To help change the outcome of childhood cancer. But we both know this is about so much more then just cancer, Ronan. Because you were so much more, then cancer. I’ve got to start thinking about how to channel this anger in a new direction. I have ordered a punching bag and some boxing gloves. I guess this is a start. My best ideas seem to come in the middle of blood, sweat and tears while my endorphins are running.
I had my board meeting tonight, baby. It was almost 4 hours long. I had it at our house and it was lovely. For as much as I don’t know what I am doing, you would have been so proud tonight. Because I am figuring it out with the 4 most beautiful women that exist. It was a board meeting that was full of everything you. It was a board meeting where I sat back and watched as these 4 women made me feel like we really are going to turn your foundation into something that is so beautiful and pure, that it is going to change the face of childhood cancer. It is so easy for me to slip into the dark world of I don’t need anybody because I can do this alone. But the truth is it doesn’t feel good and I can’t. You know what felt good tonight? Listening to the way we hashed out our agenda for our meeting. The way we talked about the things we need to overcome and figure out. The way we brainstormed ideas and answers. The way we worked as a team. The way I saw all four of our lovelies eyes, sparkle as they talked about you and how much they believe in you and what we are going to do. They way I felt the love that surrounded me the entire evening. I don’t allow myself to get lost in the love part of life very often anymore. It felt so very nice and I think I should try to allow it in a little more often. To live in constant pain and agony is destroying me, baby. And I know it’s not how you wish for me to be. I know this. I wish I didn’t have to have this foundation because you got sick and died from cancer. But I do and I realized tonight that this part of what is going to help heal me. I have to start to heal a little, Ronan. It’s time.
To my lovely of loveliest board members,
Thank you for tonight. Thank you for believing in me, when I sometimes forget to believe in myself. Thank you for reminding me that I am capable and worthy of feeling the love that surrounds me. Thank you for helping me take my son and not letting the “him,” get lost in all of this. Thank you for making this as important to you, as it is me. Thank you for making me feel like he was all around us tonight…. I felt him everywhere. I know he is so proud of this board that we have created. It is perfect. I love you all so very much.
I’m sleepy tonight, Ronan. Without my Ambien. I love you to the moon and back. Sweet dreams. I hope you are safe.
Ronan. The holidays are over. I’m still standing. I’m may be shaking, but I’m still standing. The room is still spinning, but I’m still standing. I wonder how long until I fall. Hard. I wonder if I’ll be able to get back up. Some days I think yes. Other days, I think no. Today, I thought no. Today, I am just trying to breathe. I did a lot of things today. I went to breakfast with your daddy and brothers. We played football, basketball, and went on a bike ride. I’m exhausted from the normalcy of today. My hands have shaken for 2 days now. Your daddy asked me if I was mad at him. I told him I was not. I was mad at the world. I am. I used to believe in karma, Ronan. You know you always hear, you get back what you put out there. Fuck that. I believed in karma, until it kicked me in the face. Now I’m not sure what I believe in, besides you. Without having you to believe in, I would not be here. That is a FACT.
I spent most of the day, hiding my tears from your daddy and brothers. Your daddy asked me what we had planned for next weekend. I wanted to punch him in the face. I don’t understand how he can possibly ask me such a question. Does he not see that I can hardly get through the day, let alone think about next week? I wanted to scream at him that I was not doing anything, until he brought you home. I didn’t. It took everything I had, not to. I just don’t understand, why you can’t come home. Or why you had to leave home in the first place. I still wonder when you are coming back. I walked around most of the day screaming back at the voices inside of my head and staring at your Urn. We had friends over for dinner except I forget to cook for them. I’ll let them say it was a miscommunication but it was not. The old Maya would have never done such a thing. The old Maya would have given Martha Stewart a run for her money. Tonight, I tried to keep myself composed but I was so shaky it was all I could do not curl up into a ball and hide in the corner. I told Mandy Bee this while we sat on the floor of our laundry room and folded socks. Ahhhh, yes! Come for dinner where I totally space everything but you can sit on my floor and help me fold the piles of laundry that won’t fucking go away! What the hell? Whose world am I living in because it can’t certainly be mine! My old world, the one where you were here, where you are supposed to be, the laundry didn’t stand a chance! I always had that beast under control. Now, it is eating me alive. How are the simplest things, so challenging? Oh wait, I know. It’s because I no longer have your clothes to wash, your stains to remove, your socks to fold, your sheets to clean, your bed, to make. I still carry your socks in my purse though. The one’s that I put on your little feet before you died. The ones that kept your little frozen toes, warm. I carry your little socks with me all the time. I told you I was a good mom. I’m still an awesome mom, to you even though you are dead. TOTAL AWESOMENESS, RO!!!!!!!!!!!!!!!!! fucking bullshit, ro.
Mia’s mom called me tonight. I normally don’t answer the phone anymore, but I was sitting on my bed with Mandy Bee and she called. I didn’t hesitate, picking up as we don’t get to talk often. She was crying. She told me she had just read my last post. I told her I wish she wouldn’t have. I don’t remember what I wrote, but she told me she was really worried about me. I didn’t argue. I told her I was too. Because I am. I listened to her and the way her voice quivered, I listened to her as she begged for someone to help me. I listened to her, as she asked if there was anything that was going to make this easier. I told her no, I didn’t think so. I told her I think I am just expected to live with this pain for the rest of my life. I told her, I didn’t think I was strong enough. I told her that I still can’t believe that I was staring at your ashes on top of my dresser. I told her that nothing is getting easier. I told her a lot of things, I wish I didn’t have too. I wish I wouldn’t have had to listen to her as she cried about Mia, how she may never walk again, but oh wait! The cancer is gone, so they have won! Everything is ponies and rainbows and sparkles galore! Bullshit. Sandra knows this is bullshit too. I know she wouldn’t trade places with me in a heartbeat. I know she was not being insensitive to losing you, Ronan. And all they have been though, is fucking awful and it’s not even close to being over. Mia had her childhood robbed from her but she is still here fighting, even though cancer is trying so hard to take anything she has left. So, going back to the fucking karma thing? This is fucking karma? A little girl like Mia, who was perfectly healthy, deserves to have her entire body destroyed because it was trying to fight the cancer that was trying to kill her? She didn’t do anything, to deserve this! And where does that leave you? Karma for you? You deserved to die because what goes around, comes around? Fuck that. I wish people would actually think of other situations, besides THEMSELVES, when speaking. Mia does not deserve this. You did not deserve this. Charlotte did not deserve this. Haley did not deserve this. Esther did not deserve this. None of these kids, deserve this! I don’t know who the fuck is in charge but if I ever find out, it is not going to be pretty. I may not know who is in charge, but I am here to scream and cry and yell until someone fixes it. The world owes all the parents, and children out there, who are dealing with this, better outcomes and answers. They owe us, because too many kids are suffering and DYING from the NUMBER 1 DISEASE KILLER IN CHILDREN!!!!!!!!!!!!!!!!!!!!! HELLO ASSHOLES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What do we have to do to get people to start acknowledge this?????? We have billboards, TV, Movies, Books, Magazine Ads, but NOBODY is willing to take this on? St. Jude’s is not enough to get the word out. It’s not acceptable that when people think of childhood cancer, they think of only St. Judes. It’s a start, but bigger things have to start happening or our kids don’t stand a chance. Ronan did not stand a chance and he should have. He MATTERED. He should still be here but because of the lack of awareness and funding, he is sitting in an URN on the top of my fucking dresser where I get to kiss him goodnight now. So karma, can kiss my fucking ass. This has nothing to do with karma. It has to do with bad luck and a society that would rather look the other way and watch the fucking Kardashians on T.V because that is what matters in this world? Because childhood cancer is too sad and it doesn’t happen to kids. Well FUCK YOU. You know nothing about sad asshole society. Unless you too, have had to bury your child. Unless you too, are now expected to live in a world that is UNFUCKINGLIVABLE. If you know what this is like, then do something about it. If you don’t know what it’s like, do something about it, so that if the awful time ever comes, that you do… and I pray to Ro that it doesn’t,….. you will know that you helped make a difference. Stop standing around like a bunch of ignorant fuckwads! Stop being scared! Be the change you want to see in the world. Stop being so selfish and wasting time on things that do not matter when you could be doing something like helping to save a child’s life by making people aware of how ugly childhood cancer is. How it deserves to be recognized. How people need to stop doing things just to have their fancy name on a fancy door at a fancy hospital to go to a fancy ball so they can dress up in a fancy dress. Clinical trials need funding. Research needs funding. This is the only way the results for childhood cancer are going to change. You can build all the fancy hospitals you want but if the right answers are not there, I hope you felt really good about eating in the new cafeteria while the Friday Night Candy Cart came by all while your child was really dying. I hope that free meal, was worth it. I would have rather sat my ass in a ghetto of Mexico with Ronan if I knew the treatment there, would have been the best chance he had. Not because I cared about what the hospital looked like. I’ll bet you half of the people who are donating, do not even know where their money really goes. Do they ask? Probably not. Is it going to save a kids life? I doubt it. But it makes them feel good because they get to put on the fancy dress and Louboutin shoes and have their picture in a fancy magazine so they can show all their fancy friends and feel good about themselves. Unless you are on the floor of a hospital, wearing your Louboutins, getting down and dirty, holding the babies who need to be held because their parents work 3 jobs so they can’t be there……..Fancy can get FUCKED.
I know I still have not been clear on where this money is going to go towards. As of now, it’s piling up. I am going to NYC Janury 22-30th to meet with a couple of people who I hope can steer me in the right direction. I have to cover all of my bases. I am meeting with Dr. Mosse at CHOP in Philly to look at the clinical trials she is working on. I believe in her and I know she is doing everything she can, to make a huge difference in Neuroblastoma. This money, will NOT be used so Ronan’s name can go on some fancy door. This money will be used to help with research of clinical trials that will hopefully let some children at least celebrate another birthday. I know the doctors are no where close to having a cure for this disease, but FUCK. What I wouldn’t have given, to have had Ronan around to celebrate another birthday. What I wouldn’t have given for some more time, with my baby boy. Anything I had. Everything I had. My hands, arms, legs, eyes, whatever it would have taken. I sold my soul a long time ago to somebody. He can keep that. I don’t want it back. I’m in the process, of finding a new one because the soul that once was me; is DEAD.
Ro baby. I don’t know what else to say. Except I am sorry every second of life. I do not think you are WILD and FREE up in heaven with GOD. Enough with that people. Or keep it to yourself. I don’t want to hear it. I am not on this one all mighty GOD bandwagon. And if he is hanging with God, then GOD is an asshole because he should be here with ME. His FUCKING MOTHER. The only one who was ever supposed to take care of him. Can’t we just leave it at Ronan is wild and free? That gives me a tiny bit of peace. Not much but it’s better then nothing. Ronan was too much of a rebel to be hanging with this “God” dude. He is wild and free all by himself. But I’m sure he’s got a great wolf pack in tow, following right behind him. I love you, Ronie baby. I miss you. I hope you are safe. Please make me a little less sad tomorrow. I don’t know if I will make it if things continue on this way. Why can’t anyone save me? You know why, Maya. Because you never let them. You’ve always saved yourself. The cycle…continues. It’s been this way since you were 9 years old. I doubt things will ever change. The only person that can save you; is you. I know this. I just wish someone could swoop in for a bit so I could take a break. But no breaks here. This mission is too big, but not impossible. You were mine, you changed my entire life, I am here to carry this out for you, baby doll. Just like we talked about. G’nite my sweetest boy. I love you. Sweet dreams.
Throwing this in here for you all tonight. I talk about living a fearless life a lot now. Because I do. I don’t fear much of anything…. unless you count Rats, Mama Kristi…. that was for your Raine. xoxo
So read this. Think about this. Tonight, when I was needing some inspiration, I found this thanks to Dr. JoRo. I felt hopeful once again. I felt like I can do this. I can change this. I’m not afraid. I’m a rebel at heart. Ronan’s Rebel Forever baby. Breaking the rules, all the time.
by Jiddu Krishnamurti
“I WONDER IF WE HAVE EVER ASKED ourselves what education means. Why do we go to school, why do we learn various subjects, why do we pass examinations and compete with each other for better grades? What does this so-called education mean, and what is it all about? This is really a very important question, not only for the students, but also for the parents, for the teachers , and for everyone who loves this earth. Why do we go through the struggle to be educated? Is it merely in order to pass some examinations and get a job? Or is it the function of education to prepare us while we are young to understand the whole process of life? Having a job and earning one’s livelihood is necessary- but is that all? Are we being educated only for that? Surely, life is not merely a job, an occupation, life is something extraordinarily wise and profound, it is a great mystery, a vast realm in which we function as human beings. If we merely prepare ourselves to earn a livelihood, we shall miss the whole point of life; and to understand life is much more important than merely to prepare for examinations and become very proficient in mathematics, physics, or what you will.
So, whether we are teachers or students, is it not important to ask ourselves why we are educating or being educated? And what does life mean? Is not life an extraordinary thing? The birds, the flowers, the flourishing trees, the heavens, the stars, the rivers and the fish therein- all this is life. Life is the poor and the rich; life is meditation; life is what we call religion, and it is also the subtle, hidden things of the mind- the envies, the ambitions, the passions, the fears, fulfillments and anxieties. All this and much more is life. But we generally prepare ourselves to understand only one s mall corner of it. We pass certain examinations, find a job, get married, have children, and then become more and more like machines. We remain fearful, anxious, frightened of life. So, is it the function of education to help us understand the whole process of life, or is it merely to prepare us for a vocation, for the best job we can get?
What is going to happen to all of us when we grow to be men and women? Have you ever asked yourselves what you are going to do when you grow up? In all likelihood you will get married, and before you know where you are you will be mothers and fathers; and you will then be tied to a job, or to the kitchen, in which you will gradually wither away. Is that all that your life is going to be? Have you ever asked yourselves this question? Should you not ask it? If your family is wealthy you may have a fairly good position already assured, your father may give you a comfortable job, or you may get richly married; but there are also you will decay, deteriorate. Do you see?
Surely, education has no meaning unless it helps you to understand the vast expanse of life with all its subtleties, with its extraordinary beauty, its sorrows and joys. You may earn degrees, you may have a series of letters after your name and land a very good job; but then what? What is the point of it all if in the process your mind becomes dull, weary, stupid? So, while you are young, must you not seek to find out what life is all about? And is it not the true function of education to cultivate in you the intelligence which will try to find the answer to all these problems? Do you know what intelligence is? It is the capacity, surely, to think freely, without fear, without a formula, so that you begin to discover for yourself what is real, what is true; but if you are frightened you will never be intelligent. Any for of ambition, spiritual or mundane, breeds anxiety, fear,; therefor ambition does not help to bring about a mind that is clear, simple, direct, and hence intelligent.
You know, it is really very important while you are young to live in an environment in which there is no fear. Most of us, as we grow older, become frightened; we are afraid of living, afraid of losing a job, afraid of tradition, afraid of what the neighbors, or what the wife or husband would say, afraid of death. Most of us have fear in one form or another; and where there is fear there is no intelligence. And is it not possible for all of us, while we are young, to be in an environment where there is no fear, but rather an atmosphere of freedom- freedom, not just to do what we like, but to understand the whole process of living? Life is really very beautiful, it is not this ugly thing that we have made of it; and you can appreciate its richness, its depth, its extraordinary loveliness only when you revolt against everything- against organized religion, against tradition, against the present rotten society, so that you as a human being find out for yourself what is true. Not to imitate but to discover- that is education, is it not? It is very easy to conform to what your society or your parents and teachers tell you. That is a safe and easy way of existing; but that is not living, because in it there is fear, decay, death. To live is to find out for yourself what is true, and you can do this only when there is freedom, when there is continuous revolution inwardly, within yourself.
But you are not encouraged to do this; no one tells you to question, to find out for yourself…, because if you were to rebel you would become a danger to all that is false. Your parents and society want you to life safely, and you also want to life safely. Living safely generally means living in the imitation and therefore in fear. Surely, the function of education is to help each one of us to live freely without fear, is it not? And to create an atmosphere in which there is no fear requires a great deal of thinking on your part as well as on the part of the teacher, the educator.
Do you know what this means – what an extraordinary thing it would be to create an atmosphere in which there is no fear? And we must create it, because we see that the world is caught up in endless wars; it is guided by politicians who are always seeking power; it is a world of lawyers, policemen and soldiers, of ambitious men and women all wanting position and all fighting each other to get it. Then there are the so-called saints, the religious gurus with their followers; they also want power, position, here or in the next life. It is a mad world, completely confused, in which the communist is fighting the capitalist, the socialist is resisting both, and everybody is against somebody, struggling to arrive as a safe place, a position of power of comfort. The world is torn by conflicting beliefs, by caste and class distinctions, by separative nationalities, by every form of stupidity and cruelty- and this is the world you are being educated to fit into. You are encouraged to fit into the framework of this disastrous society… and you also want to fit in.
Now, is it the function of education merely to help you to conform to the pattern of this rotten social order, or is it to give you freedom- complete freedom to grow and create a different society, a new world? We want to have this freedom, not in the future, but now, otherwise we may all be destroyed. We must create immediately an atmosphere of freedom so that you can live and find out for yourselves what is true, so that you become intelligent, so that you are able to face the world and understand it, not just conform to it, so that inwardly, deeply, psychologically you are in constant revolt; because it is only those who are in constant revolt that discover what is true, not the man who conforms, who follows some tradition
The WordPress.com stats helper monkeys prepared a 2011 annual report for this blog.
Here’s an excerpt:
London Olympic Stadium holds 80,000 people. This blog was viewed about 1,900,000 times in 2011. If it were competing at London Olympic Stadium, it would take about 24 sold-out events for that many people to see it.
Ronan. Happy Fucking New Year. No. There will never be anything “Happy,” about it again. This is how I know I will never be normal again. This is how I know, I will continue to live in Zombieland. Because everything stings so much that I can’t be among the living. Everyone is so busy being happy. It’s as if they have all forgotten about you. But what do I expect? For everybody to take this year off, from celebrating their beautiful lives? For the ball not to drop in New York City? Exactly. I told you life goes on for others.
We are back home and I’ll admit it, I’m acting like a brat. We got home on the night of our 10 year anniversary and I just couldn’t do it. I couldn’t fake it at all. The happiness that I am supposed to feel. I am thankful….. For as much as I can be. But feeling happy just does not exist. Your daddy didn’t ask much, but the little he asked, I couldn’t do. All he wanted was some acknowledgment that our 10 years was a big deal. I gave him my snarky commentary about why the fuck does everyone make such a big deal about 10 years, when every year should be just as sacred and valued. I begged him to please just skip over the 10 years and next year we could do something nice. I don’t want to celebrate anything when everything feels so wrong. He told me he had a gift for me which made me lose it even more as I specifically told him there was nothing I wanted. He said he knew, but it was something he wanted me to have anyway. I pretty purple amethyst ring. I told him to take it back. He told me he wanted me to know how much he loved me. I begged and pleaded with him to take it away and told him I didn’t need things to know how much he loved me. That I already knew and would always know. He insisted that you would love for me to have it and that you would have told me how “cute,” I looked wearing it. I just laid in bed and sobbed while I kept one eye on your Urn. I made him take the ring away and told him I wasn’t worthy of pretty things because I let you die. I fell asleep in a puddle of my own tears. I had spent the day being so proud of myself for the stupidest things that I used to be able to do, in my sleep. I got your brothers from Portland to Phoenix, safe and sound, all by myself. I checked in our luggage. We had dinner at the airport. We made it through security, to our flight, and home. This is a big thing to accomplish, when you have a dead child. Traveling with 2, not 3 little guys was such a mental head game, that I really don’t know how I did it. But I did and I of course, did a fucking good job. Gold star for me. After we landed in Phoenix, I listened to myself, telling myself in my head, what a good job I had done. Then I went to, are you FUCKING kidding me? This is something that you now get to be proud of? Something you used to be able to do in your sleep? What kind of fuckery is this? Well, I’ll tell you. It’s the most fucking fucked kind of fuckery that exists. It is my life now.
I ran around all day Friday, catching up on things and being pissed off that I was wearing a strapless dress because it was hot enough in January, to do so. Bloody hell. Where was my rainy gloomy weather that is so able to explain how I feel, without me having to say a word? Where were my rain boots and dirty, muddy puddles of tears? The tears that I was able to take a break from crying because the weather was able to cry for me just for a bit so I let it. They were back in Washington, that’s where. So, I spent all Friday, running about being blinded by the fake plastic trees of this world that I feel like kicking the shit out of. Where I have to put on my fake, sunny smile because that’s what the weather wants me to do but Ro, I don’t want to do it. I want to go and live in my underground world with all the other bereaved parents of the world where happiness and sunshine no longer exist. I don’t want to have to listen to the others in the world as they complain about their bad days which include things like getting a flat tire or their nanny being sick. When I hear these things it is all I can do to not cover my ears and drop down into the fetal position. Maybe I should just start doing that. I wonder how different this world would be if we all acted the way we felt really felt instead of hiding everything behind our lipgloss and dark sunglasses. I’ll bet it would be a complete mess but at least it would be a TRUE complete mess and not so fake and insincere. I was also having some major mom guilt on Friday so one of my errands included going to the grocery store. You know how much I hate this now, Ro. I freeze up, freak out, and panic. I made myself do it because the thought of your brothers living off of processed food any longer is destroying me. I don’t cook anymore, unless you count cereal, frozen pizza, fruit or veggies. Your daddy has taken over the majority of the cooking. It is something that I used to live for back in the days when you were here and you were my favorite little helper. The two of us, cooking together, was my heaven. I wanted to make your daddy feel good by coming home to a home cooked meal, like he used to. The one he deserves to come home to, every night. I made it half way through my shopping, panicked over some mom who was pushing her little boy in the cart and almost abandoned all of my groceries to bolt for my car. I took a deep breath and stopped myself from doing so. I had to talk myself through every next step in order to get to finish up the shopping and get to the checkout line. I couldn’t get out of there, fast enough. I came home and whipped up dinner, without a recipe or anything. Just from memory only. The one that does not really exist anymore. I made your daddy and brothers, homemade Shepard’s Pie. Your daddy said it was the best one I had ever made and wanted to know what I had done differently. I wanted to tell him how the only thing I did differently was cry the entire time I was making it because I couldn’t stop thinking about how you wouldn’t be there, to eat it with us. Sitting down, at our dinner table with your seat, empty is also something that just kills me. So, I may have made dinner, but I couldn’t get out of the house fast enough for the plans I had made a few days in advance.
I spent Friday night with some girls which I never take the time to do anymore either. We didn’t go out, but rather stayed in, instead. I picked up Mandy Bee and we headed out to Kristi’s house for a special night which of course was inspired by you. The best nights, always are. I know you were there, I know you saw and that’s all I’m saying about our night, for now. It was a true rock and roll night, in the most innocent way possible. It was a night that for as painful as it was, I actually felt myself having fun. Thank you, K…. for such a wonderful night. I don’t get those very often anymore. It was nice to let everything slide away for a bit and get lost in a world of beauty parlors, some good reality T.V. laughs, and a little blood, too;) And Mizpah, Mandy Bee. Thank you. I love you my crazy stalker bestie. Thank you for not being afraid of the dark with me. No matter how scary it gets. And for breaking down my door when I won’t pick up the phone, the lights are off, the doors are barricaded shut but you somehow manage to break them down anyway. I know you didn’t know him, but how I wish you would have. Thank you for loving him like you did.
I don’t know what happened today except for we all slept in and that seemed to throw everything off. I woke up, did the big breakfast thing with your daddy and brothers, threw up, showered, and ran out to get your daddy’s car washed just to get out of the fucking house full of loud T.V. and noise. I ran to Smart and Final to stock up your brothers drinks for their school lunches. I had a panic attack in the parking lot and had the urge to do something really self-destructive. Anything. I seriously contemplated driving to the nearest bar to get shit faced drunk. And I don’t even drink, Ronan. But I wanted something, anything, to make this pain go away even if just for a short amount of time. I wanted a break or to feel something differently, than this. Anything. I sat, cried, almost did…..but did not. Self destruct or self control? Today, self-control won. I am scared for the day that it will not. I came home exhausted from the hour I spent crying, fell into bed and drifted in and out of sleep for the next 4 hours. I hid in our bed, until the bright sun disappeared and I had enough of dreaming the dreams where all I can seem to do, is cry and scream in them. I feel like I live in between two worlds. One of real reality and one of fake reality. They both suck and I can’t win either way. The dreams I dream of always involve watching myself cry due to this nightmare. Happiness does not exist, anywhere without you, Ronan. At least not for me…. not even in my dreams.
Alright baby boy. This is enough for tonight. I wish I had something happier to say… an ounce of hope to give you…. a glimmer of the happiness that I hope to one day be able to feel again. But this is me, today. This is the best I can do. I guess just be proud that I am here and I didn’t drive off the cliff that I made up in my head today. I love you so much. I miss you every second of every day. I hope you are safe.
Dear Lovely Little Blog Readers,
Thank you. For sticking with me. For hugging your kids tighter. For appreciating everything in your life, so much more than you did before you knew Ronan and our story. Thank you for helping me keep him alive by thinking about him, loving him, and letting him make you all better people. It keeps me going even during my darkest hours. I wish you all only health and happiness in 2012. Because we all know if health exists, then happiness does too. I love you. Ronan loves you. Please be safe! No drinking and driving!
Ronan. I don’t know what happy feels like anymore. But being back here, is the closest thing to happy I’ve felt since losing you. It’s no secret. I’m a Washington girl at heart. I love everything about the Pacific Northwest. I think it’s one of the most beautiful places on the planet. I really needed to get out of Arizona and the forever bright, sunny skies and fake plastic trees. I needed some rain, gloom, and mud. I needed some down time without feeling the never-ending pressure of being busy and on the go. I needed to get away from the sociopathic “friend,” that I cannot seem to escape. I needed room to breathe. I miss it here. I’ve been hiding out though. Spending time with just your brothers, Nana, and Papa Jim. Normally, I would make time to see all the old familiar faces that I miss so much. But I’ve been too scared. I know what I look like and it’s not pretty. It’s sad and painful. I would rather keep sad and painful to myself. I’ve haven’t really left your Nana and Papa’s house. Except to run the lake. This has been my only escape. The rain has been constant, just the way I like it. I’m going to be sad to leave and get back to the sun that constantly seems to be blinding me. I am glad we came and I am glad we had the best time possible. We all missed you though. That never goes away no matter where we go.
Tonight, your brothers and I went to dinner with Nana and Papa. I’m trying to keep my meal down but I don’t think it’s going to happen. We stopped at the lake after dinner. I told your brothers how when I ran the lake today, I stopped and swung on the swings. I asked if they wanted to swing tonight in the cold, dark, rainy weather. They said they did so we had Papa Jim pull over and let us out of the truck. We ran around on the playground together. They were so excited as the playground equipment is all new and it had lots of fun things to play on. I dared Quinn to go down the big slide even though it was soaking wet. He did. Liam followed and ran around shouting how he was “The King of the WORLD!!!!!!!” as he climbed to some tall tower. We all talked about how much you would have gone crazy on this playground. I was able to put my sadness for you, away in my little back pocket for the 15 minutes that we played. I chased your brothers. I pushed them on the swings. I ran around with them. It reminded me of how much I love them. I mean, I know this Ronan. But when going through something like this, pain overshadows everything and it makes it hard to feel like you are able to feel love again. It might be the protection mode I have gone into as well. There was nobody closer than the two of us and then you got sick and died. I have put up a wall as it seems to be instinctual to me, to protect myself from getting hurt again. This wall was invisible tonight. It disappeared. I watched your brothers and seeing how happy they were, running around late at night, with just me, made everything else disappear. It was a good reminder that I have done such a good job with them so far, and I don’t want to fuck that up anymore than I already have. I want to be a better mama to them. I want to not be so sad all the time. I want to be thankful that I have them. They are everything to me. They deserve to have a mom who has fun with them. It’s been on this trip that I have found that part of myself again. Being here, changes everything. I just hope I don’t lose it again when we head back to AZ. Being here reminds me of how the simple things in life, really are the best. Childhood should not be about watching sports on T.V. and playing video games. It should be about jumping in mud puddles, getting dirty and not caring. It should be about going on trail walks, awesome playgrounds, shooting guns, playing in tree houses, learning about nature, spending time with your grandparents and a little girl named BriBri who is like my little sister. Who I have known since she was 5 and she is now 17. I was so scared to see her. She loved you so much, Ro and you loved her even more. I didn’t even try to hide it. As soon as I saw her, I jumped on her and fell into her arms. I held her and got teary eyed. She didn’t have to say anything…. I know she is broken into a million pieces too. It was hard for me to see. I was always her older sister who was going to protect her from everything in the world. And now this. She has to watch me, go through the worst thing possible. I’m so sorry for that. Our sisterly time together was always spent talking about boys, colleges, high school, make-up, movies, and everything we did revolved around you 3 boys. Now it’s just 2 and it is so wrong that we don’t know what to do. I tried my best to ask her things about her life that are going on. I used to be able to give her the best sisterly advice. Now, I know nothing because there are no guarantees in life, except for death. I am not about to sit and talk to my innocent 17-year-old sissy about that. I used to be so much fun. I used to be “cool” to her. Now I’m just the sad mom who lost the most beautiful boy in the world. I’m the sad mom who fought for 8 months taking care of her cancer baby. I’m changed. I’m different. But the bond between us two girls will always be there. Once you love someone with all of your heart, nothing can stand in the way of that. We will find our place back together again. Baby steps. It’s just so hard because I know deep down, all we want to do is curl up together and cry. And that might have to happen at some point to just get it out there and acknowledge what has happened. The most awful thing in the world that makes people so uncomfortable and sad, that they would rather just not talk about it. I get it. I love you Boo. I will forever think of you as my little sister. I will promise to try to take care of you like I used to. I won’t let this too much reality, come between us. And you are 17 now! So crazy! You are so young, beautiful, and have your whole life in front of you. I know you are going to do amazing things. I hope I can guide you the best I am capable of. I miss that so much.
And today. 12.29.2011, it’s been 10 years. 10 years since I married my best friend. A relationship that started off on a crazy night. A relationship that I knew on our first date, that I was going to marry him. We bonded over late night dance parties to his juke box. Playing Zelda for sometimes weeks when we had off breaks from school. We were both night owls and loved to sleep in late. Our love for concerts and music. His, Pearl Jam. Mine, Prince. But I ended up converting over to Pearl Jam and became just as crazy for them as he was. We were two young kids, who were crazy for each other from the beginning. Here we are 10 years later. It seems like just yesterday that I married my Woo. We had such big plans for our 10 year. Tomorrow, I’ll be in an airport coming home late at night to him. Tomorrow, will just be another day. So it is tonight that I will tell him some things. And I know I don’t talk about him a lot on here and that is mostly because this is about my adventure with Ronan and my pain and sadness. Some things are too sacred to me still….. such as him. I also know that my husband is my best kept secret and I’d like to keep him that way. Could you imagine all the hussies that would try to go after him if they knew how amazing he really is??? I am not up for dealing with skanky bitches at the moment. Because if word got out, that a real life prince charming existed, I would be screwed. But he does. It is him. I married him. He is the best thing that has ever been mine. I’m not going to lie….. this has been super hard on both of us, individually. As a couple, we are still doing o.k. Not great, but that’s just because we are always so sad. But he still opens my car doors, he still kisses me goodnight, he still tells me I’m beautiful and he loves me. I’m the asshole. I’m the asshole who pushes away as I don’t think I’m worthy of feeling his love because I feel like everything is my fault. And he is the last person in the world who deserved any of this. I have a lot of guilt and anger that I am dealing with and sometimes I take it out on my easiest target, which is the person who loves me most. HIM. He is a saint. He is a gem. He is the truest, most honest, thoughtful, caring, brilliant, charming, and witty man on the planet. I sometimes take him for granted because I get stuck in my head that I can’t feel any of the things he so badly wants to give me again because you died, Ro. I hate that I have to admit all of this shit to you all. I wish I could tell you I am just as amazing as him, but I’m not. Not even close. I’m the asshole. And I’m so sorry Woody. I’m crazy about you. I love you so much. I am so sorry we had to lose our little boy. I’ll never stop telling you I’m sorry. But I’ll never stop telling you I love you either. I know we are fine. But fine is not good enough. I know we can get back to a somewhat happy life again because we started this together, crazy in love, and that’s never changed. Not even after going through something as awful as this.
O.k. Stopping now. I don’t want to completely mortify my husband who prefers to keep things a little more quiet and private. I’m an open book and I am so glad he is o.k. with that. He must really love me to put up with me and the shit I write on here:) I don’t think many husbands would tolerate that. So thank you Wood. For after 10 years of marriage, you still make me want to be a better person. Everyday. That’s how I knew you were the one for me when we first starting dating. You made me want to be the best version of myself that I could be. That is powerful stuff right there. You know it’s true when the other person can inspire such greatness in you. I love you to the moon and back. Again, I am so very sorry. I know how much you miss him too. I would give anything to bring him back to you. We are going to be o.k. I promise to try to not be such an asshole. I promise to try to start living the way Ronan would have wanted me to. But I know when the sadness comes, you will be there to hold my hand. I will try not to push you away so much. I love you Woo. I love you Ro. We both hope you are safe. We are both sorry. You were perfect to us. You were our everything to this entire family. We are trying, baby. The stakes are high, this waters rough, but this love is ours.
G’nite my spicy monkey boy. I love you.
Ronan. Cancer is stupid. And people are stupid. I try to ignore the stupid people of the world the best I can but sometimes they get under my skin. I try not to let them but as it turns out, I’m still human. For as dead as I feel I guess I’m really not because I am still able to feel. I wish I really were a dead zombie. Then I wouldn’t be bothered by these stupid, ignorant people. I would just rip their hearts out and eat them and then maybe they would be able to feel a quarter of the pain that I feel on a daily basis. Only in Zombieland, right buddy. Sometimes the stupid people of the world say stupid things like, “You know, there are other mothers out their who have lost children. You’re not the only one.” My reply is, “Really? No shit, asshole.” Please hold on a minute while I punch you in the throat. It is as if they are trying to compare my pain, to somebody else’s. Or justify it by saying there is someone else out there, who has it worse. I am not ignorant. I am aware of the other people out there who have lost their children. But guess what? They didn’t have a Ronan. So there is no comparing or justifying. You were mine and therefore, nobody else knows what this is like. I don’t care if they too, have lost a child. This pain is my own, this sadness is my own, this experience is my own. I would never tell another parent, “Oh, I know exactly how you feel.” Because I don’t. I understand some aspects of it. I can relate but to each his own. I am learning to be respectful of that for others going through this process. I’m still new at this game but this is something that I have learned. Unless you had a Ronan, you don’t fully know.
I survived Christmas? I survived Christmas. It was brutal. I took some time in the morning, before I got up and just cried for you. After that, I was able to go downstairs to watch your brothers open gifts and enjoy Christmas the way 8 year olds should. It was as nice as it could possibly be. All that mattered is I was able to get out of bed and watch as your brothers smiled, giggled, and laughed. I lasted a couple of hours but then the pain became too much and I had to retreat up to my old bedroom where you and I spent all last summer cuddling and whispering secrets to each other. I passed out for a few hours. I dreamed of you. This is the second time in a month that I have seen you in my dreams. They are never pleasant and it is always the same theme. You looking at me. I’m trying to save you, but I can’t. I know you are dying, but you always look peaceful. Thanks for that, little man. My heart was extra heavy on Christmas for another mama. Another mama who wrote to me a few days before Christmas to tell me thank you. I was sick to my stomach after her email. I don’t want a thank you from another mama because her baby girl died of Neuroblastoma. She died on December 7th, this year. This mama told me it was because of what I had written about you after you passed away, that she was able to tell her Charlotte all the things she wanted to say, right before she died. I don’t remember what I wrote about you and I don’t want to know. I guess I am glad it helped somebody else although I wish I didn’t have to. I wish I could give her Charlotte back. I told her I was sorry. I wish I had some wise words for her. I didn’t. Sorry was the best I could do. She told me how she just wants to be with Charlotte. I told her I knew. Oh, how I know.
Yesterday, I spent the day in Portland with your daddy. You know how Portland is one of my favorite cities. It was a nice day. We grabbed lunch. I ate a bit of soup but that was all I could manage to keep down. We talked. But not about normal things anymore. Our talk revolved around everything cancer. I played the game that I am so good at playing now which is we didn’t choose the right treatment. If we did, Ronan would still be here. Should we have done this? Should we have done that? We picked the wrong treatment for him. He insists that we did not. He insists the outcome would have been the same, no matter what. I still don’t believe him. But I guess I have little credibility due to being the irrational broken-hearted mama. I don’t need credibility though. I just need someone to figure out this fucking disease. I need the doctors to get a clue as to what it is they are doing so little kids don’t have to sit around playing russian roulette. I’m not stopping until this changes Ro. I promised you that. After the talk about you we moved on to other fun things like Coach Bemis. The coach in AZ who has Stage IV lung cancer and he is NOT a smoker. We moved on to Katie who is the beautiful 15-year-old girl with Rhabdomyosarcoma. We talked about Charlotte, Will, Dr. Sholler, Dr. Mosse, etc….. We will never be the normal couple again who goes to lunch and talks about the weather. We both agreed that this world is fucked. But we left there, holding hands and we’re not letting go. We know what we have to do.
We walked the streets of 23rd for a while. We passed a boy playing his guitar. He was really good. He had his guitar case open so people could throw money in it. He looked to be around 15. He had a sign sitting in his guitar case. It wasn’t the normal sign that read something like, “Help me, I’m hungry.” It simply said, “Help Fight Boredom.” I smiled and laughed as we passed this boy. I looked at your daddy. I had your daddy give me a couple of bucks and I turned around and walked back to this boy. I threw it into his case as well as your little card and your “All good things are wild and free,” bracelet. He said thanks and continued to play. I caught back up to your daddy and we started to walk. I noticed the boys’ guitar playing had stopped. I turned around to watch him read your bracelet. I watched from a far as he read it. He looked up and waved to me, the girl in the yellow coat. I waved back. That boy made me happy today. He reminded me of you. I hope he never gets cured of his boredom. I hope he remains curious to the world and follows his dreams. I hope he has a mom and a dad who know how lucky they are, to have him. I hope he is safe. I hope he is o.k. I hope he is wild and free. This is what I hoped today, Ronan. It felt nice.
Dear lovely little blog reader: I will address your questions but only because you have pissed me off and I am feeling extra spicy today. Here goes dolly.
Why is it ok to take Ambien, but not an anti-depressant? I think you are being slightly hypocritical. You need something to get out of the abyss you are in – other than your youngest son, which, while totally un-fucking fair, will not happen. The fact that you didn’t care if your older sons’ had winter coats speaks volumes. Christmas Eve and you hadn’t bought your twins any presents??? You need some help. You think you might need to check into a hospital…what do you think they are going to do there? I’ll tell you, they will load you up with anti-depressants. They will monitor your food intake and your vomiting. You will lose the control you so relish. The choices will be taken away from you.
You need to talk to a physician. Your constant vomiting is obviously not healthy – don’t your other sons deserve the same mom that lovingly helped her youngest son? While I’m not suggesting you are bulemic, have you ever read what constant vomiting does to your body, your throat, your teeth? Or is this part of your “danger” crusade?
No, I have never lost a child, so I’m sure that will make you totally disregard my opinion, but do you ever re-read your posts? You are on the edge and if you don’t get some perspective, you are going to fall off. Where will that leave your already devastated family?
It is NOT o.k. to take Ambien. For me anyway. I think this drug is the devil. Obviously you are a new reader and have not read all of my posts, therefore you are the one being hypocritical. I talk about this all this time. I hate myself for the fact that I sometimes have to take this drug in order to sleep. Not all the time, but it is during the times that I am struggling the most, when I know the lack of sleep is going to make the crack, so I give in and just take it to get some fucking sleep. It makes me feel mentally weak. It makes me feel like a loser. It makes me feel a lot of things that I hate but sometimes I need a break from the pain and sleep for a solid 6 hours seems to help. This is not always the case and I am proud of the nights that I don’t have to take anything at all. I try every night, not to take that drug but as I said before, sometimes I need a break.
Why is everyone so bothered by me not getting on the antidepressant band wagon? SHUT THE FUCK UP!!! If it helps other people, great! But it’s not for me. I did the anti depressant thing for about 6 months and it only made things worse. I have tried it, and I didn’t like it. END OF STORY. The abyss I am in is called my son just died 7 months ago. I am so sorry you are so bothered by this inconvenience. I am so sorry that you are so bothered by the fact that I didn’t care about my twins’ winter fucking coats and Christmas presents this year. Lady, are you high?!?! Are you on crack? Are you even a parent? Probably not. If you are, I am scared for you. The fact that you think the above things above are a big deal, in the grand scheme of things, disturbs me. I’m a good mom. I know this. I will never second guess this and anybody that truly knows me, wouldn’t either. Even if I didn’t go out and buy winter coats or Christmas presents this year. I think I deserve a fucking hall pass for this first Christmas, don’t you? I don’t care if you do or not. I’m taking it.
And no. I do not re read my posts. For obvious reasons. Maybe you should go back to the beginning and read them all though, before you judge and spew your words of concern. I’m going to go now. I’m off to go skydiving while I throw up my breakfast to continue my “danger crusade.” Opps. I didn’t eat breakfast today which must mean I’m anorexic. Clearly. I am aware what this constant vomiting does to my body. I’m not proud of this but it’s not something I can control right now. I guess having a dead son will do that to you. I hope the hospital that I am going to check myself into, can bring him back so it will stop. Have a lovely day, thanks for your concern but I think you need to go back and reread what you wrote and try a little harder to put yourself in my shoes. This is not a dog we are talking about, dying. It is a child. It was my son. It is not something a fucking pill can make better. Or a hospital. G’day lovely little blog reader.
Ro baby. I love you. To the moon and back. I miss you. I hope you are safe. I hope you are wild and free.