Ronan’s Progress

If you are going to the game, come see me before you go into the stadium. I will be outside by the Will call booth. We have tee shirts for sale. 20 dollars for adults, 10 for kiddos! Hope to see you all there!

I am so overwhelmed and uneasy tonight that I’m lucky if I’ll be able to form a thought. I had a hard day today and am emotionally, physically, and mentally beat. I would give anything to be able to crawl into my bed for a week, hide under the covers and actually get some sleep.…

After a great day, Ronan is still feeling well. He is as feisty and spunky as ever. He spent the night trying to beat up his brothers. I got out of the house for my follow-up eye appointment and then I went off to my hair appointment after. Or so I thought. I got to…

We had a great day at the clinic. Ronan’s levels are still o.k! They have dropped  a little, as to be expected, but they should be on the up and up by this weekend. Hoping we will be able to keep him home with no signs of fever to send us in to the hospital.…

I feel like the Tasmanian devil today. It’s been a whirlwind of zipping around my house getting things done, researching on the internet, talking to people at CHOP in Philly, Sloane-Kettering, homework with the boys, getting Quinny to the doctor(thankfully Woody took him) for a sinus infection, and taking care of Ronan. A busy day…

Ronan is napping. I was trying to nap with him, but then Woody came home. We had a little pow wow session about what the next steps are. He has been on the phone with the hospital Sloan-Kettering in New York City for the past half an hour. Depending on the next set of scans…

There will be a fundraiser this Saturday from 9-3 on Commerce for Ronan. The New Hope Car Cruise is supporting The Ronan Thompson Foundation this year. My parents will be there and we could use all the support we can get, even if it’s just to give my mom a hug. A huge thanks to…

I have nobody to compare Ronan to, really. But is this how every child with stage 4 cancer acts?? Running around all day long. Eating like a horse. Laughing and acting like he is the happiest child on the planet. Having adult conversations with me and saying things like,”I love my brothers so much!” He…

We had a busy day today and I am exhausted. What was supposed to be a quick little visit to the clinic, turned out to be a 4 hour ordeal. We had to wait over at the hospital forever to get Ronan’s EKJ (heart test) and his chest x-ray. This is standard protocol before they…

What’s different now? Everything. Nothing is the same and it’s like living in a foreign country, stumbling around in the dark, or starting completely over with your life. We are all adjusting to this new life. It’s not fun and I try to just take it day by day, but it’s hard not to worry…