Neuroblastoma
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Hometown Heart
We grew up in the small town of Kelso in the Pacific Northwest. Like with any small town, you can’t wait to “escape” it when you grow up and explore other places. What I don’t think any of us ever realized was how growing up in that small town…our hometown, planted a seed of love…
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Chemotherapy
I will never get used to that word. It will never just roll off my tongue. Today is Ronan’s first treatment and he needs it. He now cries that his legs are hurting and I know the cancer is spreading there. We are up early today because they needed him to pee for me. He is…
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Laughter really is the best medicine
Today I hung out with Ronan most of the day. We played in bed, walked the halls and then around noon, Mimi, Papa, and Wood came to visit. I was trying to sneak out of the hospital to go home and shower and change clothes, but Ronan was not having any of it. He was…
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A day filled with angels
Finally, a day without any tests on my baby. We got very little sleep last night and Ronan was tired today. We spent most of the day curled up in bed together and then Mimi Kay came to see Ronan so I was able to leave for a while. I went home to a quiet…
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I saw a glimmer of hope tonight…. and I’m running with it.
So last night was rough. After a 2 hour meeting with our oncologist, Dr. Wood; Woody (talk about a sign, Dr. Wood and my husband, Woody:)) and I were completely overwhelmed and had no idea where to turn. We were basically given 2 options for Ronan’s treatments and had only heard the opinions of our…
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My first true love
So we met with the doctor last night and while I was holding Woody’s hand I was trying to focus on all the information being thrown our way. My mind kept wandering back to Woody and I couldn’t even look at the doctor anymore, it was Woody’s face that I was staring at. I kept…
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What day is it????
The days are so blurry I can’t even keep track anymore. So much has happened today, but I am only going to talk about the love I saw between 3 little boys. The twins came to visit!! We finally decided that it was ok because Ronan is looking much better. I missed the reunion because…
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” I love you mama. I love you sooo much.”
Those are this words I woke up to around 4 a.m. this morning. Ronan had wrapped his arms around my neck and was telling me he loves me. That’s the baby I know. He’s still in there fighting away with his heart full of love.
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Tricia’s visit
Tonight I got to go and visit Ronan. Maya asked if I would write a little and tell you how it was. When I got there, Mom and Ronan were snuggly in bed and Dad was on a hunt for vanilla ice cream at Ronan’s request. Mom is busy keeping Ronan comfortable, he loves her…
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All you need is love
As I sit here writing from my iPhone, I am trying to block out the screams and cries of a six year old boy, Even, who we are sharing a room with. Not sure what kind of cancer he has but he’s 2 weeks into treatment. His tummy is hurting, his legs are hurting and…
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