Those Teachers are BRILLIANT, I Tell Ya! Calling ALL Teachers!!

A great idea from a lovely 4th grade teacher! Thank you, D.C.!!


I am a 4th grade teacher.  I am also a mother.  I have been following your blog for a while now.  I am so very sorry for the loss of your beautiful son, Ronan.  I have signed the petition and I just sent an email to the parents of my students.  I told them that I had a “Golden Opportunity” for them.  I am going to offer extra credit to the students whose parents / friends / etc. sign the petition.

Whatever it takes, right?

Best of luck in this endeavor.  I am looking forward to hearing the GOOD news!

Hello friends,

This is a “Golden” opportunity for some bonus points 🙂  I am sending this email in order to raise awareness for childhood cancer.  Maya lost her son, Ronan, to childhood cancer and wants to “turn the White House gold” in order to raise awareness.

Please read the following plea from Maya:

I have been dreaming non-stop about this petition. Woody thinks there is no way we are going to get the signatures that we need. I love to prove my husband wrong, but so need your help. We only have until February 6th, to do this.

Please, sign this. It’s legit. It takes one minute. I don’t know what else to say except I cannot let Ronan down. I can’t let all these kids down who need this awareness so badly. If the awareness already existed for childhood cancer that it is so lacking when Ronan got sick, he may not have died. I can’t bring back Ronan, but I swear to you, I will help to save the kids of the future who will be diagnosed with cancer.

Please, please, please sign if you have not, and share this with anyone you can think of. We are running out of time just as these kids are and it is just not right.

Thank you.

You can watch a short video clip here:

If you would like to sign, you can do so here:

If you decide to sign it, let me know and I will think of a way to give the students some bonus points 🙂  If you can, please forward this to your friends.  Now that I am a mother, my whole outlook on life has changed.

Thank you for your time and consideration,


Fourth Grade Teacher

A Gold White House. I Will Not Stop Begging. Or Crying.


Ronan. I had no idea getting 25k signatures on our petition was going to be so hard. I mean, it shouldn’t be, right? It seriously is something that takes 60 seconds. I have been working non-stop on this and I know a ton of other people have as well. Again, thank you to all who have signed and who are harassing everyone they know about it. This has to work. It is time The White House steps up and starts to recognize Childhood Cancer. It should have happened a long time ago. I’m still blown away that the awareness has slipped through the cracks. Did you know that George Bush Senior, had a daughter that died from leukemia? I believe she was almost 4, just like you Ronan, when she died. Heartbreaking, right? Heartbreaking, but you would think from that, something fucking amazing would have been done, that would have put childhood cancer on the map where it does not get ignored. We had not one, but two President Bushes that could have done something huge, but as far as I can tell, not much was done. So here we sit now, begging for a petition to get the signatures it needs in hopes that The White House will say a BIG, FAT, YES to lighting that White House up GOLD for the month of September. This is not something we should have to beg for. I begged for the life of you, Ronan. Begging for signatures just seems silly, but as I said before, I will do whatever it takes.

I really hope President Obama, takes a stand on this. I really hope the First Lady decides to get involved because trust me, kids are not dying left and right due to childhood obesity. Do kids with childhood obesity have to go through harsh chemo treatments meant for adults? No, they do not. Kids that are diagnosed with cancer get to not only go through awful chemo, but these lovely things as well… Let’s add scary radiation to the list where they are left in a tube, all alone, not understanding a thing. Also, extreme fatigue where they no longer get to be a child. Constant flu-like symptoms such as runny noses, chills, and coughs. Pain that they cannot fix such as headaches, muscle pain, stomach pains, or even temporary nerve damage. Pokes, prods, riding an IV pole around a hospital instead of a bicycle. Mouth, gum and throat sores. Nausea, vomiting, loss of appetite, constipation, diarrhea, bloody noses that cannot be controlled due their platelets being wiped out. Skin changes such as blisters, peeling, and swelling. Feeding tubes.  Weight loss or gain. Lovely hair loss which leaves them to feel weird and different from everyone else around them. Kidney and bladder problems. Anemia, which destroys all types of healthy blood cells and leaves the child often pale, speeds up their heartbeat, and shortness of breath. Blood Clotting problems where everything bleeds non-stop including a small scratch or bloody gums when they brush their teeth. Neutropenia, which leaves the child with an immune system so shot, that they often cannot fight off infections. Let’s not forget all the surgeries that come into play. Stem cell transplants, bone marrow transplants, bone marrow aspirations, the awful port changes, nightly shots to boost their immune system. The endless amount tears, worries, and pain. And those are just the physical symptoms. Don’t forget all the psychological damage that is done as well. Not to mention being torn away from their siblings, parents, friends, and the extreme stress it adds to the family who have no choice but to put on a strong face when all they really want to do is crumble up and die.

Sometimes, cancer treatments can cause permanent changes to a child’s growing body. These long-term side effects can include damage to the heart, lungs, brain, nerves, kidneys, thyroid gland, or reproductive organs. Kids may experience issues such as delayed cognitive development, growth problems, and infertility. In some cases, those who’ve received certain types of chemotherapy are at higher risk of developing a second type of cancer later in life. Let’s not forget that every single day, 7 kids just up and die from childhood cancer and every single day 46 kids will be diagnosed. Let’s not forget, that this could happen to anyone and childhood cancer is the NUMBER ONE DISEASE KILLER IN KIDS. But I totally understand why we have taken such a stance on childhood obesity.

So, here I am, begging for signatures for a petition that I don’t even know The White House will say yes to. Here I sit, with tears streaming down my face not ONLY for the loss of you, but of so many others as well. All I am asking for is for childhood cancer to be as recognized as all the other cancers out there. All I am asking for is for the color GOLD to be as recognized as the color PINK. Just make it equal. Why isn’t it already? These are kids for crying out loud! They should not be thrown into a life of being “fighters,” because nobody is fighting for them.


Every year, thousands of children across America are diagnosed with cancer    an often life threatening illness that remains the leading cause of death by disease for children under the age of 15.  The causes of pediatric cancer are still largely unknown, and though new discoveries are resulting in new treatments, this heartbreaking disease continues to scar families and communities in ways that may never fully heal.  This month, we remember the young lives taken too soon, stand with the families facing childhood cancer today, and rededicate ourselves to combating this terrible illness.
While much remains to be done, our Nation has come far in the fight to understand, treat, and control childhood cancer.  Thanks to ongoing advances in research and treatment, the 5 year survival rate for all childhood cancers has climbed from less than 50 percent to 80 percent over the past several decades.  Researchers around the world continue to pioneer new therapies and explore the root causes of the disease, driving progress that could reveal cures or improved outcomes for patients.  But despite the gains we have made, help still does not come soon enough for many of our sons and daughters, and too many families suffer pain and devastating loss.
My Administration will continue to support families battling pediatric cancer and work to ease the burdens they face.  Under the Affordable Care Act, insurance companies can no longer deny health coverage to children because of pre existing conditions, including cancer, nor can they drop coverage because a child is diagnosed with cancer.  The law also bans insurers from placing a lifetime dollar limit on the amount of coverage they provide, giving families peace of mind that their coverage will be there when they need it most.  And as we work to ensure all Americans have access to affordable health care, my Administration will continue to invest in the cutting edge cancer research that paves the way for tomorrow’s breakthroughs.
This month, we pay tribute to the families, friends, professionals, and communities who lend their strength to children fighting pediatric cancer.  May their courage and commitment continue to move us toward new cures, healthier outcomes, and a brighter future for America’s youth.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2012 as National Childhood Cancer Awareness Month.  I encourage all Americans to join me in reaffirming our commitment to fighting childhood cancer.
IN WITNESS WHEREOF, I have hereunto set my hand this thirty first day of August, in the year of our Lord two thousand twelve, and of the Independence of the United States of America the two hundred and thirty-seventh.

Please, President Barack Obama, stay true to your words. Please fight this fight with us. A change cannot happen without you. Please do so much more than just some words on a piece of paper.

Ronan. I love you. I miss you with every aching bone in my body. I am so sorry this is not fixed already. I am so sorry you had to die from something that is so awful and continues to be ignored. I promise to fix this for you. I promise to never stop fighting for you. I love you with everything that I am. Forever.


I won’t stop posting this petition until it gets the 25k signatures that it needs. This is our only chance. If we don’t get this passed this time, the required signatures goes up to 100k. This is not just another thing of spam that comes your way. Signing this can help this cause. Please. I will do anything. I will shave my fucking head. I will eat worms. I will stand on a street corner and whore myself out, but I don’t think my husband would like that very much. I will jump out of a plane but for those of you that know me, you know I would do that for fun, anyway. Oh, and plane jumping might be off-limits for now due to the safety of Poppy a.k.a. Little PopStar.

Please, just sign and share. Go to your local news stations. Beg with no shame, just like the way I am. Or do the complete opposite. Read this, do nothing, and go about your self-absorbed ways. I have enough tears, that I can spare them to cry for you as well.


I know this picture is hard to look at. But imagine how it felt for him and for us, as his parents. He was 3 years old. The fact that nothing has changed for childhood cancer is unacceptable. The fact that he had to go through all of this as so many others are and will, is something I will not stand for. Please do not just go about your day. Please help us do something. I am not going to stop fighting for my child, ever. He is worth every painful thing I feel, think or see. He is worth all of this pain and suffering. It reminds me of why I cannot give up. I will not curl up and die or go on with my life ever. He is my life.

Thank You, ABC 15. I Know We Can Do This!!!


Dear AZ Peeps,






I’ll be on ABC 15 at 10:00 tonight talking about this petition, Poppy, and all things Ro!  Thanks Channel 15 for being so awesome and wanting to help us get the signatures we need!!!!

Tune in tonight if you can! For those not in AZ, I will provide a link when it is available. Thank you!




It’s 3 a.m. I’m Awake Obsessing About that Petition…





I have been dreaming non-stop about this petition. Woody thinks there is no way we are going to get the signatures that we need. I love to prove my husband wrong, but so need your help. We only have until February 6th, to do this.

Please, sign this. It’s legit. It takes one minute. I don’t know what else to say except I cannot let Ronan down. I can’t let all these kids down who need this awareness so badly. If the awareness already existed for childhood cancer that it is so lacking when Ronan got sick, he may not have died. I can’t bring back Ronan, but I swear to you, I will help to save the kids of the future who will be diagnosed with cancer.

Please, please, please sign if you have not, and share this with anyone you can think of. We are running out of time just as these kids are and it is just not right.

Thank you.



A Rock and Ro Marathon and The Day Dr. Sholler Almost Died




Ronan. This was another whirlwind of a weekend. So much so that my body/mind hit a wall today and I almost passed out at the dentist’s office where I had to take Quinn to get his first filling. I have never been through a pregnancy where I have been this busy. I have never felt the level of exhaustion that I am feeling. We made it through Quinn’s dentist appointment and I got us home and went straight to bed for the rest of the day. As much as I didn’t want to do this… I also do not want to go into labor anytime soon so I made myself listen to my body and your Poppy sister. My body is acting like it is pissed off at me and screaming at me to slow down. Ugh. I do not do well with slowing down.

I spent the weekend gearing up for all things marathon. Dr. Sholler was in town so much of the weekend was spent with her which you know I loved. I had the chance to introduce her to Dr. Jo. One of the highlights of my life! Getting to spend time with the two of them, together was really amazing. They both deserve the noble peace prize as they are two woman who are doing extraordinary things in the world. We had a nice dinner at Chelsea’s Kitchen, your favorite restaurant. You had the best taste for a 3-year-old. I miss taking you there, so much. After our dinner we had to run over to California Pizza Kitchen as they hosted our “Carb Load,” night before the race. So awesome of them to do. I had the chance to meet many of the people who came in from out-of-town to run for you. It was so amazing to hear where everyone was from. I met people from all over and could not get over how many out-of-town runners we had. You are inspiring so many people, Ronan and it really is amazing to see.

The next morning, I got up super early to head down to the race. We had a booth set up at the end of the race and I wanted to be there to tell our runners thank you despite how tired I felt. I am so glad I went and spent the day and was able to meet some of your RoLovies who ran for you. I had a family who decided to skip their trip to Disneyland this year so the dad could come and run the full marathon for you, Ronan. Can you believe that?! They had 3 kids, and they skipped Disneyland this year because running for you meant so much to them. I don’t even have words for that, only tears. I had one girl who ran with your pictures on her back. Oh.My.God. I really tried my hardest not to cry about this, but it was no use. I was bawling. She was bawling. Becca was bawling. Stacy was bawling. Melissa, too. Our rad junior board, was also in a hot mess of tears. (Hi! Yes, we have a junior board now. It’s not official or anything yet, but they are LEGIT. Thank you girls for all your help) Dr. Trent from TGen ran for you, Ronan. I adore that man. I was so excited for him to be doing something so wonderful for you. Dr. Sholler had a great time running for you. I know I say this over and over and over, but I cannot even explain how amazing she is. I wish so much that she would have known you. I’m trying not to play that little game in my head that I often do called, “Ronan would still be here if…” If Dr. Sholler had taken care of you. I don’t know if this is true. I hate the fact that I will never know. What I can do is work with her, support her, tell everyone I know about her, so that I can help her do the only thing she wants to do which is save kids lives who are here now. As Dr. Trent put it on the night we all had dinner together, “Many people talk the talk, but do not walk the walk. Giselle walks the walk like I’ve never seen anyone before. And she gets beaten up for it sometimes. She is a pioneer.” She is indeed a badass pioneer who will change the face of this ugly disease. And she will do it in a way where you know she is not just another mad scientist playing God. She truly cares about the patients she is taking care of, as much as her work if not more.

We might be the first foundation to have almost killed our dream doctor, by the way. I was not a part of this, but between my two board members, Stacy, Melissa, and Dr. Sholler, they had quite a story for me. After the race, Dr. Sholler needed to get back to her hotel. I could not take her as I didn’t have a car and was still needing to stay at the event to tell some people thank you. I put the precious life of Dr. Sholler in the hands of my two very responsible friends and board members. The walk back to the car was long and one of those rickshaw bicycle guys was peddling around. The 3 of them decided to hop in so they wouldn’t have to walk so far to the car. Rickshaw bike ride gone bad! From the story I got a traffic light turned red in a major intersection and the bike guy decided not to stop, but to speed up! I know all 3 of them saw their lives flash in front of their eyes and Dr. Sholler was almost thrown from the bike. I about died when I heard this story. I cannot imagine if something would have actually happened. Stacy has decided we need a reality camera to follow us around at all times due to stuff like this always happening. It is so true. Even at our most serious times, funny things seem to always be surrounding us. I tell myself a lot that it is your way of reminding us not to forget to laugh once in a while even though what we are doing is for a very sad reason. You know we need a lot of laughter to help us through this, otherwise it would be a constant stream of tears. I am very thankful that we can look back and laugh at the little Rickshaw bike ride and nobody ended up being roadkill. Geez. Thank you, Ro!

I had a dream about you the other night. You were sick but instead of cancer, you had some gashing wound on your head. I didn’t care. I was just walking about the hospital, talking to your Mr. Sparkly Eyes all calmly like nothing was the matter. I, of course knew you were dying, but I was just thankful to have you in my arms. As soon as I woke up from that one, I fell back asleep and dreamed of your Poppy sister. Your Sparkly was in this one too. It seems to be a pattern whenever my dreams involve you, he is always there. In my Poppy dream, she was about 3 or 4 and looked so much like you. Your Mr. Sparkly Eyes was chasing her about and they were both laughing. Her little face looked so much like you. I woke up from that dream, smiling. I can’t wait to see this in real life. Your Sparkly is just as excited for your baby sister as I am. A lady passed us the other day, carrying a infant carrier and he just looked at me and said, “I can’t wait for that to be you.” I know why. He knows how much I need your sister. He knows I need to smile more and he knows she is going to help so much with this. He is right. As always.

Alright little man. I’m going to end this before your brothers get home. I miss you. I love you. I hope you are safe.


P.S. Dear Rock and Ro Marathon Runners, Donators, and Helpers,

Thank you. Truly. What an amazing thing it is to see the way Ronan has impacted your lives. So much so that you are letting him make you the most beautiful, selfless souls that exist. Thank you for believing in him so much that you have allowed your lives to be changed, for the better. It is one of the most beautiful gifts that he has left. I am so thankful and honored for all of you. I can’t wait to see you all next year and run the race with you.

Magic Meg. You forking rock. This was all you. Thank you for taking over and making this marathon such a huge success. This would not have happened without all of your badass hard work. Ronan thanks you, too. I love you.

P.P.S. We are accepting donations until January 31st so feel free to keep them rolling in! Thank you all.


I might be Twitter OBSESSED.

So of course, this Ronan slouchy sweatshirt makes perfect sense. I can’t wait to rock it, after I pop this Poppy out!

For a good time, follow us!


A stomach ache will never just be a stomach ache again


Ronan. I know I have Post Traumatic Stress Disorder. I’ll bet every parent who has lost a child has some form of it. It’s one of those things that we all have, yet nobody talks about it. You hear about people who have come back from war having it all the time as I’m sure they do. But what about the parent’s who have been in a war too? It just comes in a different form, such as fighting non-stop, the hardest you’ve ever fought for the life of your child, and then your child dies. Why are we all forgotten? We are thrown back into this world, expected to come out alive and stronger than ever because what doesn’t kill you, makes you stronger, right? I don’t know about that saying. I was a strong person before all of this. I think that’s another one of those sayings that makes it seem like we’ve survived this, so we must be stronger because of it. I don’t really think that’s the case. I’m surviving this because I really don’t feel like I have a choice. I am surviving this because if I don’t, everybody loses. I am not about to be a loser and let you down, along with countless of other people.

Here is just one example of my post traumatic stress disorder. Quinn started complaining of a stomach ache a couple of days ago. He’s been home with a sinus infection all week and has been on antibiotics. Last night, he couldn’t sleep because of his stomach hurting. He then point out a couple of small bumps around his lymph nodes. I kept him home from school this morning due to him saying his stomach was still hurting. I dropped Liam off, and the build up to my panic attack/meltdown was starting to brew. I came home with Quinn and asked him to show me where it hurt. He let me press down on his stomach and gave me a little wince when I hit the spot where it was hurting. I stayed calm. I fed him some breakfast and turned on a T.V. show for him. I left the room and went and sat at our kitchen table. I sat there for a good 10 minutes and quietly sobbed. I not only had myself convinced that Quinn had cancer (again, because he often does in my head every time he gets a headache) but I had a flashback to you and that one time you told me your stomach hurt. “My tummy hurts, mama.” I didn’t take you to the doctor. I didn’t know your stomach hurt because you had cancer. Or maybe it didn’t. Maybe you just had a normal stomach ache like kids get all the time. I won’t ever know. I will forever think that you complained of that stomach ache because of the mass you had growing in your tummy. I won’t ever forgive myself for not rushing you to the doctor and demanding a CT scan. I don’t care how naïve I was. Shouldn’t I have known that a stomach ache meant cancer? I know the answer to this is no. But it is still a hard pill for me to swallow.

I knew I couldn’t freak out with Quinn nearby. I sent your Mr. Sparkly Eyes a text through my tears. He called back instantly and I went out into the garage to talk to him because I didn’t want to let Quinn know how upset I was.

As soon as I picked up I said, “I know I’m not being rational. I know I’m being paranoid. But to me, a stomach ache will never just be a stomach ache anymore.”

He does what he always does best which is calmed me down. “Darling. You are not being paranoid or irrational. You have every right to feel this way. But just listen to me. It’s not cancer. I promise you that. His lymph nodes are swollen because of his sinus infection. That is what you are feeling. His stomach is upset because there is a ton of stuff going around. It is nothing more than that and you have to trust me. ”

“O.k. but I’m still taking him to see the doctor.”

“You do that. Please call me after, but I promise it’s nothing.”

I called and made an appointment with our doctors office. Dr. Campbell wasn’t in so I made an appointment with someone else. This caused me to lose it. I did not want to see anyone else, a totally different person who doesn’t know our story and all we have been through. I don’t want to have to explain why it is that I am at the doctor’s office for something as minor as a stomach ache. I pictured myself having to say, “His little brother died of cancer… so that is why I look like a crazed lunatic.” I couldn’t do that today. I am so sensitive to this now. I am lucky enough that your Dr. Campbell is so compassionate and has become close enough that I was able to send her a text message, telling her what was going on. She offered to come in on her day off, to check Quinn out. How unbelievably nice is that, Ronan? She acted like it was not a big deal, but to me, it meant everything.

We got to her office and she was there to meet us. She did the whole feeling his glands, asked him some questions and then had him lay down on the table so she could feel his stomach. After a very thorough examine, she came to the conclusion that it is the antibiotic that he is on, that is causing his stomach to hurt. She wrote us out a new prescription. I thanked her for coming in on her day off. I will never forget that. Ever. It goes down in my books as one of the nicest things ever. I felt better after leaving there. Your daddy did, as well. He was panicking, too. Life for us, will never be the same. We will never be naïve parent’s who dismiss something like a stomach ache. I hate this world so very much. I wish I lived in the world where a stomach ache was only just a stomach ache. I miss that world, so very much. Of course you know I came home and threw up everywhere. It’s my signature style, yo!

Dr. Sholler is here. I picked her up for the airport tonight. She is so very excited to be running for you this Sunday. It makes me smile that she is doing this for you. I can’t wait to spend some time with her this weekend.

I love you, Ronan. I am beyond beat tonight. I miss you, I love you, I hope you are safe.


P.S. A little side note. I have so many people that do so many amazing things for us. (i wish i could hug all of you) I was at Becca’s tonight and she had a few things for me that some people have sent. There is the sweetest girl, who is making the cutest necklaces. She will make whatever you want on them, but she has been making a TON of Ronan things. If you want something, please check out her stuff here. I am rocking the most adorable necklace. The part you can read says, “Have a nice day.” The part you can’t read, and only I know about says, “you fuckwad.” I have seriously been laughing about this necklace all night. Clever little thing, you. I adore clever. She made a ton of stuff for the marathon. Thanks. You are darling and made my night. xoxo

Hot Off the Press! New Ronan Merchandise!!!


Hey, Wanna Do Something Great?! Sign Our Petition and I Promise You, Good Things Will Happen!


Woody said tonight that there is no way that our petition is going to get enough signatures. He then said, “You are going to freak out, if it doesn’t.”

That might be an understatement. I have been working my ass off, trying to get people to sign this. Ummmm…. if you read this blog, and haven’t signed this, and you can because you live in this country, I fear for your soul. For real.

We have until February 6th. Please help us out. This is not just about Ronan. It is about ALL KIDS, PEOPLE! If you have signed, thank you so very much. Please continue to share this with anyone and everyone. If you have not signed this and are continuing to ignore this… What is your problem?!?! Too many puppies and unicorns, I guess.


You have to live in America in order to sign this. Sorry to all my international readers:( And you have to be 13 or older. Those are the only rules that apply.