I am either allergic to our house or Poppy is a vegetarian.

Ronan. I really was not going to write tonight, but then I lay here with these thoughts swirling in my head and I cannot sleep. Please hold. I think I might have to throw up. I am back. Throw up I did. Disgusting. I think it’s official. There are two very logical reasons behind why I am still getting sick. 1) I am allergic to our house which makes perfect sense to me, but nobody else. Why wouldn’t I be allergic to our house? I, as a mother am living, eating, sleeping, barely breathing in the house I lived with you, but you are not here because you are dead from childhood cancer. To me, that would make any mom extremely sick. Or 2) Poppy is a vegetarian and is pissed I ate a chicken taco for dinner tonight because as soon as I got to our front door and was yelling at your daddy to hurry up and open it before I barfed all over our porch, I made it inside just in time to barf in our hallway toilet. Those are just my two theory’s though. What do I know, I am only a grieving mom and due to this I think half of the things that go through my mind, are not very rational on many levels. I’m not embarrassed or ashamed to admit that, it just goes hand and hand with always feeling like you really do not know what you are doing, after losing a child. Nothing makes sense. The big stuff that I used to think was so important, seems so trivial. I often feel as though I live on planet mars and everyone lives a normal life on earth. I’m learning to become o.k. with that, but it still feels really, really lonely at times.

Today, I went to my very important office where I did very important things like start a fight on Twitter. O.k., I did not start a fight on twitter, but I got wrapped up in one and before I knew it, my impulsive side took over and I made some snarky remark where I compared someone’s else’s pain (which I don’t understand, because I lost you so sometimes think I know EVERYTHING about pain), to the pain of losing a child. I knew it was wrong to do, but I felt I had every right to comment because I as a bereaved mom tend to get so easily offended when I hear people complain about what I think is really stupid shit. I mean please, what I wouldn’t give in this world to have normal problems which do not include a dead child. The bottom line is, it was wrong and childish and I am very sorry. I learned a big fat lesson which is sometimes I need to step back and shut my big fat mouth. It’s never nice to compare pain but man, how I wish people would also just sometimes take a step back and just be thankful for being alive and in this moment. I guess because you were robbed of that Ronan, I will probably always be overly sensitive to living in this world where I see so many people taking the simplest things for granted. I, of course want to slap them all and throw you in their face, but it is not my place to do that. I am going to try to work on remembering that more. So besides my Twitter war, I was really productive.

I went and surprised your brothers today and took them out of school early. I did not tell them I was doing this because another thing about this world is it’s really hard for me to commit to things because I never know what state of mind I am going to be in. I did not want to tell them I was picking them up early, then not show up because I was having a day where I was shackled to my bed. Thankfully, I did not have one of those days today and I got to surprise them at school instead. I pulled them out early so we could go over to Fernanda’s house to watch Taylor Swift on Katie. They were so excited and happy that it melted my heart a bit. We arrived over at Fer’s house and Stacy and her kids joined us. It was a nice little pow wow of an afternoon where I got to watch your brothers run around and be kids, while also being with my friends. Your brothers had basketball practice so we had to leave pretty quickly after the Taylor show ended. We ended up meeting Stacy and her family for dinner but before we got there, I had to have a talk with Liam in the car. His teacher today, asked me if we have had his eyes checked. I told her we had, and that he has glasses that he is supposed to wear, but won’t wear them at school. I told her how we make him wear them at home, but getting him to actually wear them at school, has been an issue. I told her that I would talk to him about it, this weekend. Of course that meant tonight. I gently brought it up in the car on the way over to dinner. Liam got so upset. As in crying upset. He was still crying when we got to the restaurant. I walked with him and put my arm around him, trying my hardest to tell him how great glasses are and how important it is, that he wears them. He wasn’t having it. I had to bite my tongue as I was watching him cry and let me tell you, it took everything for me to say, “Glasses are NOT something to cry about. Cancer is.” I said it in my head alright, a few times. I thought about how that would make HIM feel, to have that said out loud to him. I decided against it and tried to work some different angles instead. We will talk about this more over the weekend, and hopefully I can have it talked into by Monday. I get it. He’s 9. Glasses will make him different. What kid at 9, wants to be different? He is already different enough by having a dead baby brother. You know how much this breaks my heart. I wish I could fix all of this, Ronan. I so with your brothers did not know what it feels like, to be different like this.

We were driving home and I pulled out my phone to show your daddy the new license plate I ordered today because my tabs are expired. They have a new license plate in AZ for childhood cancer, which you know I am thrilled about. I was playing with it online, getting ready to order my personalized plate. I typed in two options. The first one being FUC (Fuck you cancer) of course. I laughed out loud at that one. The second one being Ro Baby. I went back and forth for a bit and once again those brothers of yours, popped in my head. I made the decision to order the Ro Baby one instead of the one I really wanted, for the sake of them. Of course I wanted to get a rise out of your daddy, so I told him I had ordered the FUC one. Your brothers were in the car, too. They were mortified. Well, at least Quinn was. He goes, “Mom. Why did you have to do that?” When I saw how upset he was, I quickly told him I didn’t really, that I ordered the Ro Baby one instead. He goes, “Thank you for making the right choice.” It’s moments like that, where I am simply blown away by how sweet, innocent, and level-headed your brothers are, even after going through something like this. It reminds me for as much as I think I am doing wrong, I must be doing something right. They are proof of that.

I’m going to end this here now. My stomach is feeling a little better and I am wiped out from not sleeping well at all last night. I tossed and turned in your bed all night long. It feels so wrong, to sleep there without you. I love you, Ronan. I miss you so much. I hope you are safe. Sweet dreams, baby doll.

xoxo

Seriously, the BEST comment I have read in a long time. Thanks, Lisa;) Had to post it.

I too found out about Ronan and you because of Taylor’s song. I went to the very beginning of the blog and fell in love with Ronan. I watched you on Katie today and there are no words to explain the magnitude of this little boy. I read somewhere that he had a heart of gold, the same color that brings awareness to childhood cancers. Not a coincidence I’m sure. I do have to admit that at one point during the show I got lost in thinking “damn Woody is hot”…there I said it, and there’s no shame in my game. Other bitches were thinking it too!I am the very proud daughter of a breast cancer survivor. I wear pink for my Mama, and will continue to do so. With that said, I’ll add that, were that not the case, I too would be fucking sick of the pink ribbon shit, and secretly sometimes am anyway. It is EVERYWHERE, crammed down your throat, and damn, how many pink ribbon bracelets and shit does one person need? BTW, the pink ribbon that sickens people is the color of Pepto Bismal, which is used for upset stomach and nausea. Again, not a coincidence, but funny as hell nonetheless.

I have been involved with our local Relay For Life for over ten years, and even served on the planning committee for four of those years. I am embarrassed to admit that I blindy assumed that the money raised for the American Cancer Society would be distributed equally among various cancers and used in research. Sadly, after reading this blog, I have been enlightened about the fact that this is not the case. I did some research (which for me just means I read some shit online ;) ) and it basically looks like ACS spends more on advertising and party supplies than childhood cancer. Hmmm, good to know. I will now just donate my funds to Ronan’s foundation, and won’t have to force my lazy ass to walk all night to do so!

I have known of other cancer awareness colors, but never knew about Gold for Childood Cancers, and I am one of the guilty ones that never really gave it much thought. It is never discussed on commercials or in print, and the damn WWF has NEVER turned gold for childhood cancer, although children make up most of their audience AND those tacky ass championship belts that I secretly love are made of gold. I’m sure it’s some fake ass gold, but you see where I’m going!

I did not mean to turn this into a novel, and I don’t even know if you’ll see this Maya. Regardless, I wanted to let you know that, while I don’t always agree 100% with all your beliefs and everything you say, I respect you more than most anybody in my life, and I’m poplular and have a lot of people in my life, so that says a lot:) I have learned so much from you about so many things, and although I’m 43, I want to be just like you when I grow up. I now am more thankful for my boys that are considerably older than yours but are still my babies. I spend less time working on making sure I have the most perfect roses on the street, and more time just actually taking a nice whiff of the bastards! And if I feel like crying for whatever reason, I do it, even if sometimes it’s the ugly cry. And I have learned that it’s okay that the word FUCK has always been my most favorite word ever, because you have taught me that it is fucking versatile!

I will continue to wear pink for my Mama, but will now also wear GOLD for Ronan and his Mama as well. I will continue to follow your story and bring awareness to childhood cancer. I cannot wait to see you move mountains; you, my dear, will change the world!