Wipeout Childhood Cancer!

Ro baby! Even with my mushy mush brain, I have genius ideas! You know how we LOVED that show on ABC, Wipeout? How we would all watch together during our family fun nights?? I’m watching it right now, with your brothers, without you which I HATE, but………

What if I went on that show? And they could call it the “Wipeout Childhood Cancer,” episode. GENIUS!!!!!! Does anybody have any hookups with ABC? Maybe if we write to them, they will agree to do this! How fun would that be?

Anyway, Ro. It’s just one of my 50 thousand ideas. All for you. Always for you. I love you. I miss you. I hope you are safe.



Thank you Grey’s Anatomy!!!!


Ro baby. I don’t watch T.V. anymore. It makes me too anxious. But I am hearing that tonight’s episode of Grey’s Anatomy will feature a story about Neuroblastoma. I think everyone should tune in. I will be curious to see if they will be able to even come close to touching on how horrific this disease is. I am so very thankful that this disease is finally getting the attention it deserves. I feel like a movement is happening in the world of childhood cancer. I feel like you are the reason why. I love you. I’m so tired tonight from the 3 hours of sleep I got last night. No Ambien. I tried everything natural instead but it didn’t work. My mind just won’t seem to shut off anymore. All it wants to do is think, worry, scream and cry about you.

I saw Super Nate today. He’s been declared NED which is so huge. Next step for him, is transplant. Thank you for watching over him. Thank you for making him, remind me so much of you. I smiled and cried today over both of those things. He is such a feisty little fighter. I’ll try to check in with you later tonight, Ro. But if I don’t get to due to being too sleepy, G’nite, sweet dreams, I love you. I hope you are safe.


I love you more than Liam loves Bacon.




Ronan. As you know, your post got hijacked last night due to some man and his ignorant comments about childhood cancer. The only person here that I am apologizing to, is you Ronan. I’m so sorry that I didn’t get to properly tuck you in last night due to having to call some guy a fuckwad. Somebody has to get their hands dirty in this game of childhood cancer, Ro. I guess I’m that person now because I am here to say what is the truth. People need to stop being ignorant when it comes to things like childhood cancer. The world of people who are now aware, are getting really sick and tired of it. I am not going to be silenced because I am worried that I am going to offend someone. I am not here to make friends. I’m here to make FAMILY. A whole, new big family that is going to take this world by storm and stand up for the things they believe in, such as you and childhood cancer. People need to stop looking at childhood cancer like it is the plague. People need to start looking beyond the scary world of childhood cancer and see all the beauty that can come out of it. And yes, I get to say this even after you died. Even after childhood cancer ripped you from my arms, I can still see the beauty in all of this while calling some douchebag a fuckwad. This man has since written a public apology. Actually, I’m not sure he even really wrote it, but that is what he is claiming. Whomever wrote it did a really shitty job. It lacked any ounce of feeling or real emotion. This apology means nothing to me. It’s going to take more than a few words, to even start to undo the damage this man has done and all the people he has pissed off. A lot of people are asking for him to resign. I’m not going to ask of this. I’m going to ask that something really, really good come from all of this. My wish is that because of all of this, he is now aware of how NOT rare childhood cancer really is. I am going to wish that he takes this lesson and hugs his kids tighter. Laughs with them longer. And really takes the time to pour every ounce of love that he is capable of feeling, into his kids. All because he is so incredibly grateful that he is not the parent who is driving down the road while taking their dead child’s blanket and inhaling it just so they can be reminded of how their child once smelled. My wish is that he will become the best father and human being that he can possibly be. And just for good measure, he can donate a ton of money to your foundation. Although that opportunity may have flown out the window when I decided to call him a fuckwad. So maybe he should be the one to now push for this Barbie to get made. He can turn his wrong into a right but it is going to take much more that a heartless apology letter.

So Ro…. what have I been up to? So much. Too much? Maybe, but as of now I’m in “the zone.” I have a lot of things to get done. I left the house at 7:30 this morning and I am just now getting home. It is 11:30 at night. To say it was a long day, is an understatement and I have the headache to prove it. But being the good mama that I am, I could not go to sleep tonight without tucking you in. I could sit here and catch you up on so many things that have been going on, but I am having a hard time even formulating my thoughts so I am just going to tell you this one little bedtime story. The best one of the night where no fuckwads or douchebags are involved. I had a little meeting tonight. A meeting all about you and your foundation. It lasted almost 4 hours. I sat in a room full of the most gorgeous women that ever lived. One’s that I believe in so much because of the way I have watched them believe in you. You know how I often just sit back and quietly watch things? I do this a lot. I like to observe and sit with things. I depend on you a lot to give me the green light on people, places or things. I know you know I listen to you, more than I listen to anybody. Tonight, you were so right. I was in a room that was so full of love that it could have circled the moon and back. I was talking about you to this group of women, which is still so hard for me to do because all I want to do is cry and for you to appear and for all of this to go away. But as we have established, you are not physically coming back and I am now left here to try to fix this broken mess of a world. As I was talking about you, I was in the middle of saying how I want to do amazing things for your foundation to raise money, but how I feel like this market of charity events is oversaturated with things like Balls, Galas, and other fancy things. This is GREAT for other foundations as it does generate a lot of money….. but  I don’t feel like this is the right direction for your foundation. Somebody said out loud, “Then what would be your dream event?” My reply was, “A huge rock concert.” Just as I said these words, a very large, heavy book came flying off of the shelf and landed on the floor. BAM! The timing of this book flying off of the shelf after the exact moment that I said these words, was so uncanny that I know it had to be you. I just had to be. It was your way of giving me the green light. A rock concert is what we shall shoot for, baby boy. You said so yourself. I truly believe this and I am pretty sure so does everyone else in that room tonight. You are the best little boy, Ro. Thanks for being there for me when I need you the most. Thanks for never leaving my side. I’m so lucky to be your mama.

I’ve got to end this tonight due to my raging headache. I’ll do it with tears running down my cheeks like I usually do, but tonight it’s not only because of how much I miss you. It’s also because of how LUCKY I feel to have the support and love that I do. Because of how much of an honor it was for me to be a part of these women tonight. The fact that they have opened their hearts to us will forever leave me humbled and grateful in a way that I never knew was possible. I am in awe of each one of them and I am so inspired by them; for so many different reasons. Tonight my very big, very broken heart feels a little big lighter. Thanks, Ro baby. None of this would be happening if it weren’t for you. I love you.

G’nite baby doll. Sweet dreams. I hope you are safe.