78,456

This is the number of Rockstar Ronan blog views…. WordPress keeps track. I know I am only one person, but I am one person who is going to make a difference in Pediatric Cancer. If Oprah won’t listen, someone will. My dear sweet Charisma Carpenter, who is technically challenged (she admits this) has started up a Twitter account. She has been tweeting away and already has almost 15,000 followers. She has been tweeting non-stop about Ronan and his story, sending traffic our way. Thank you, CC. I thank the stars above everyday that fate brought us together that one summer day and our friendship bloomed and stayed strong. So cheesy, I know but it’s true. You have such a powerful voice and if anyone can get his story heard, it’s you. I love you so much.

His little voice deserves to be heard,  as well as all of the other babies/kids who are voiceless out there. I am amazed and truly inspired by all of the people out there…. long lost friends, friends of friends, family, even strangers from France to Australia who are passing around Ro’s story. He will be heard and his story will be shared. Thank you EVERYONE. It is because of all of you helping me fight for him, that I promise you more awareness will come of his disease and other kinds of Pediatric Cancer. Keep spreading, sharing, and loving his story. He is worth it, he deserves it, and he will win this fight. I love you all!!!!

Magic Medicine… Day 2, Round 3

What a day. With little sleep last night, I am feeling very tired tonight. Hoping a few hours of sleep will come my way soon. Right now, there are too many lights, nurses, noisy roommates to sleep. They are pre-hydrating Ro before they start his chemo in a few hours. He just now fell asleep. I was hoping he would have an early night since he didn’t nap today but no such luck. That kid has more energy than the Energizer Bunny himself. It was go, go, go, all day long. We spent the morning and afternoon playing in the playroom. I remember when we first came to this hospital how long it took us into talking Ronan to even step foot in there. You’ve come a long way baby. He loves the playroom and that’s all he wants to do. Auntie Karen came to relieve me around noon and I snuck home for a quick nap/shower/laundry pow wow. It was a nice few hours to myself. I went off to see my therapist after that for an hour. It was a good session, but after I left there I was pretty upset. My friend Janet had called earlier so I returned her phone call and she let me vent/cry. Plus, she always give me good advice and encouraging words so that helped calm me down. I also talked to Liam and Quinn and that made me feel pretty good too. I know this is just a short period of time in our lives and that we just have to get through this.. but it doesn’t make it any easier. I still feel like I’m trapped in a nightmare and can’t wake up. The days/weeks/months seem like they are never going to end.

Tricia came to stay with Ronan  so Auntie Karen could leave. She said they had a blast together and my friend, Gay and her little boy, Cal, came to visit too. Trish said Ronan was in heaven with Cal here. They played for a good hour. I knew Ronan would love that since he is missing his brothers so much. He is in great spirits though and had a very good day. I cannot wait for Friday to get here so we can go home and be reunited with Liam and Quinny.

Woody came by tonight too. Ronan loves having him here and has become so much more attached to Woody than he used to be. He has been getting very upset at night when Wood leaves to go home. We spent the night walking the hallways and Ronan got to see a few of his favorite nurses, one in particular, Katie whom he loves. He was shy but sweet with her. He is so good now about letting the nurses listen to his tummy, check his blood pressure, and anything else they want to do. He like to push around his little cart with all of his medicine on it like a big boy. Makes me very proud to be his mama. He is such a sweet and special little boy.

Alright, I’m officially beat. Going to try my best to get some rest in this place. Sweet dreams.

No sleep for Mama

Still awake. Ronan is almost done with his last bag of chemo, and so far, so  good. He’s slept right through everything. I on the other hand, have not. It’s cold in this room, the bed is uncomfortable, our roomies still have the T.V. on, nurses are coming in and out, and my mind won’t shut off. No amount of coffee will help me tomorrow but I will suck them down anyway. Auntie Karen is coming to give me a break at noon so I can go home and shower. Hopefully I will sneak in some sleep then. This totally 100% sucks. But I won’t tell Woody that. He worries too much about me. Tomorrow when I talk to him I will tell him everything went fine and I am fine. I don’t want him to know how awful and hard this is on me. I’m not a weak girl… I won’t let this break me.

I know I have been asking a lot of all of you lately. But if you have a few minutes, check out this website, www.rideforleo.com. I have yet to meet the mom of Leo, but she lives here and her husband is riding from Washington State (holla!) to L.A. to raise money for Pediatric Cancer. Every dollar would help Adam meet his goal, he is almost there. Seriously, people… skip a coffee for a day and donate 5 bucks. It’s for an awesome cause. In my new life I am going to help raise as much money as I can for Pediatric Cancer. It’s something that needs exposure and funding. I have great hope that in my lifetime there will be less toxic treatments, as much exposure as Breast Cancer, and even cures for these awful diseases. My little Ro is going to have to suffer through this when in this day and age, there could be a much easier way if the funding were there. There has to be a better answer than this chemo crap.

Thank you for taking the time to follow our journey. It is going to be a long one indeed. G’nite, my friends <3

 

Update~ Ronan woke up the night vomiting everywhere. He is sleeping peacefully this morning and I am hoping we can keep this under control today. Sweet baby Ro, I love you so.