I knew something was wrong today. Ronan slept until 9:00 a.m., which he never does and did not want to get out of bed. When I picked him up, he was like a wet noodle. I talked him into moving onto the couch where I put down his favorite blanket and turned on Star Wars for him. He watched for a bit but did not seem interested like he usually does. I made him his favorite breakfast, eggs and sausage. He didn’t touch it. Then, the bloody nose started. I calmly got kleenex and pinched his nose while making him sit up, just like the doctor told me to do. I had Woody get a cold compress to put on the back of his neck. After about 20 minutes, it stopped and I thought I had things under control. I told Woody to go ahead and leave to go over to The Village (our gym) for the twins’ basketball team draft. He left and I continued to try to get Ronan to eat and drink. He was still refusing. 15 minutes later, the blood started pouring again. I repeated the same steps as before and after 20 minutes of not getting it to stop, I grabbed my phone with my one free hand while trying to call anyone and everyone. I couldn’t get a hold of Woody, the on call doctor, friends, etc….. Nobody was picking up and my calm, cool, collected self, was panicking. I even called 911 and I got a recording that all lines were busy. WTF?? Really, 911!??!?!?! Finally, I reached my Wood and told him to get home. At this point, Ronan is looking very pale and was wanting to pass out/fall asleep. We threw him in the car and headed to the hospital. We finally got a hold of the on call doctor and he told us that we did indeed, need to come in. We sat in the ER forever and the blood continued. They tried a saline spray to get it to stop… it worked for about 5 minutes. Then the blood continued to pour. Ronan was so brave and calm. He sat on my lap the entire time and just rested his head on my shoulder. After about an hour of this, the bleeding finally stopped. Knock on wood. We are now in a room back on the second floor where they have him getting platelets and monitoring him because he has a slight fever. He threw up a bunch of blood that he swallowed and I thought Woody was going to pass out. Poor guy. Poor baby.
Ronan seems to be feeling much better after all of this and is now asking for string cheese and just ate a bunch of Otter Pops. As for me, I’ve decided that most of the things that I’ve been going through are like an out-of-body experience. Sometimes I feel like I’m just watching from above. It’s my way of being able to handle it I guess. I talked to little Jack’s mom via text message tonight (the little boy who has the same thing as Ronan) She is one step ahead of me on everything. She said the same thing about the out-of-body experience. I also asked her if I was weird because when I cut off some of Ronan’s hair, I saved some and put it in a plastic baggy. She said she did the exact same thing. She also said, this does get easier… even though it seems like it never will. Woody is out to dinner with her husband, as we speak. We are so grateful to have them to talk to. I hope I can help someone someday, the way that they are helping us. Ronan is curled up in his hospital bed asleep. Before he fell asleep I told him I loved him and that he was my angel. He just looked at me and smiled.