2 years ago today, I went to Hell

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Ronan. 2 years ago today, April 23rd, I went to Hell. I’ve been to Hell a few times in my life and it’s not the place that people think you go after you die and you have lived a life of sin. Hell to me is right here on earth. Hell to me are the things I have experienced while living; half alive. April 23, 2011, I went to Hell. It was your last scan day at Sloan Kettering. Fernanda was with me. I remember every detail about that day as if it had just happened yesterday. The waiting in the waiting room for Dr. Kusher to come out and read us your results. Watching my friend, Doriet, howl like an animal in that same waiting room as she had just been given the news that there was nothing left to do for her daughter, Esther. Grabbing Doriet as she walked by and squeezing her so tightly as I whispered in her ear that we would find something or someone to help. Looking at Fernanda and saying to her, “They have to walk out of here having just being given the news that there is nothing left to do for their daughter. How are they going to leave here? How can that just be it?” I had no clue that 20 minutes later I would be in the exact same situation.

Fernanda and I sat and waited. Dr. Kushner came bursting through the doors, breezing right past us. Fernanda whispered to me, “There he is! Ask him!” I watched his body movements, the way he avoided eye contact with me and rushed right past me as if he didn’t see me waiting there. I knew he did. My stomach dropped to the floor. My name was called to come back and get you as you were waking up from your anesthesia. I couldn’t wait to scoop you back up into my arms, safe and sound. You were groggy, but so happy to see me. You were upset about the bone aspirations in both of your little hip bones asking me why I let them do that to you. I rocked you out back out in the waiting room to try to calm you down. Then the sign of all signs that everything was about to come crashing down. That damn necklace. My “lucky,” necklace that I had worn religiously on every single scan day, broke in two and went falling on the floor. I watched the necklace fall to the floor in slow motion. I swear time stopped. “Dr. Kushner will see you now!” we were told. I grabbed you, Fernanda followed me, and off we went. I felt like I was walking the plank of a pirate ship with a big sword in my back, waiting to be dumped into a sea of blood hungry sharks.

Dr. Kushner was waiting to see us alright, but not in the way that I wanted. He paced back and forth like a caged animal. He couldn’t or wouldn’t look me in the eyes. “The treatment. The treatment didn’t work.” I sat there, shaking, as you played on the floor with some cars or something. I don’t remember much after this except saying to him, “O.k. well, I know you have a plan, because you said you wouldn’t give up on my child, so I’m going to go back to Phoenix, until you figure out what is next.” He called your daddy too at some point. I don’t remember what was said. I remember feeling like my legs were cement and I couldn’t get up off of the chair. Somehow I managed. I also managed to give that Dr. Kusher a hug and say “Thank you. You are a good man.” I said this to a man who was too much of a coward to give me the decency of looking me in the eyes and just simply telling me he was sorry. I picked you up and off we went, somehow managing to make it back to the Ronald McDonald House to pack up our entire life that we had created in a matter of hours to hop on the soonest fight out of there. I did none of this. I threw Coconut Water at the wall and watched it explode everywhere and I told you we were having a Pop throwing party as I sat on the floor with you and Fernanda and we let all kinds of soda and water explode everywhere as we threw it against the wall and all over the floor. You thought this was funny. I did too as I lost a piece of my mind that day, never to get it back again and I honestly don’t miss it at all.

I sat a the basement somewhere while Fernanda stayed with you and let you chase her about. I screamed and cried into the phone to our Mr. Sparkly Eyes. He could barely talk as he know nothing was going to calm me down. I remember him just begging me to get it together, so I could get you home and he promised me we would go from there. I think I said the words, “No,no,no,no,no,no,” over and over again as I could not even form a sentence at this point. Valium somehow came into play I think. The next thing I knew our 10 suitcases that came out of thin air were packed and we somehow managed to get a late night flight out of New York home to Phoenix. Again, not me. That would be the magic of Fernanda. Only she could somehow manage to orchestrate something of that magnitude in the middle of the biggest shit storm of both of our lives. Somehow we survived scan day from Hell to be plopped back to Phoenix. I remember nothing after this. I don’t remember the reunion with your daddy and how the fuck that conversation went. I don’t remember getting home to our house and explaining to your brothers what was happening. It’s as if my memory of the next few days has been erased. I guess that happens when you suffer from something as traumatic as what had just happened in New York. Part of the PTSD I suppose.

Fast forward and here I am 2 years later having survived one of my many trips to Hell and back. Here I am having spent all day today, thinking about you and what I was doing 2 years ago as I was still fighting with everything I had, to save you. Today, I spent much of the day like I have been since your sister was born. Rocking her. Snuggling her. Feeding her. Taking care of her. Listening to my head as it screams for you, but the screaming is a little less now that she is here. Wondering if your sister is you, reincarnated. Is that a real thing? I don’t know, but it crosses my mind. What if it were. How would I feel about that, if it were? Would it make this pain, any less? I don’t know. It’s because of that dimple of hers that I can’t stop thinking of this. That secret dimple that you had on the right side of your face down by your chin. The tiny little dimple that only showed up when you smiled. I think that she has it too and it is freaking me out and making my mind think insane things like, “What if this is Ronan’s way of coming back to me because he saw how much pain I was in and he couldn’t take it anymore so he came back as a baby girl…” You know me and my imagination… wild and crazy. Then there is the other little voice in my head saying, “Don’t be crazy. This is Poppy not Ronan, but she is here to save you too, but in her very own way. Her magical, special, Poppy way.” Whatever the real answer is, Ronan, I’ll take it. Because either way is a gift from you. I know this.

Your Nana is here and it has been wonderful. She is so helpful to me and I love watching her bond with your sister. She is such a good Nana. It is all bittersweet, but I know you would want it this way. You would want us to be happy as much as we are able to, without you here. Tomorrow, your Fairy RoMo is popping into town, just to take a peek at your sister and meet her god-daughter. I am so beyond excited to see her and introduce the two of them. I know it will be love at first sight. I only wished she could have met you as well. Tomorrow, I feel like she will be meeting a piece of you and it is going to be such a beautiful thing to see. Your little sister is one lucky girl to have a Godmother like her as she truly is one in a million.

Alright little man. I’m sorry I haven’t been writing, but things have been busy, yet calm. We are all truly just soaking in this little window of time with your sister as I know how fast the newborn stage goes by. She is a dream and is such a good baby. We are all amazed at how she doesn’t cry. Ever. She is the most peaceful little thing. I guess somebody must have told her how badly we were all needing a little peace in our lives. Thanks, baby doll. I miss you. I love you. I hope you are safe. Sweet dreams

xoxo

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I was never going to be ready for today.

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Ronan. I was not prepared for today. I was not ready for today. But today happened anyway. It started off pretty normal. A normal check up at Dr. Schwartz’s office. I didn’t even have to see her, I just had to sit in a chair for a good 45 minutes so Poppy’s heartbeat and movements could be monitored. Just routine stuff that I’m having to do, twice a week now. It’s always quiet in this room and it’s easy for me to relax and get lost in my thoughts. Today, I thought alright. Of course about you. I was sitting there listening to your sister’s heart beat and she seemed to be moving non stop the entire time. I know she doesn’t have much room and there, but she doesn’t seem to care. Her movements are strong and never seem to stop. I had a flashback to that time I was at Sloan with you. We were back in a room and they had you hooked up to a machine  where we had to listen and track your heart for a couple of hours. I remember being up on the bed with you, holding you and trying to keep you entertained. You soon fell asleep in my arms. The next thing I knew, I was laying there with you but I was silently crying. I remember I was so overcome with emotion over sitting there listening to your little heartbeat. It was the most beautiful sound I had ever heard and I knew how lucky I was that it was still beating. We didn’t know at this time that your cancer was spreading, but I was just so grateful for your little beating heart. I hated that you were strapped up to a monitor when you should have been just out and about playing like a normal, healthy 3-year-old but I found the beauty in our day, anyway. I’ll never forget that day with you. It sticks out in my mind all the time. Today, listening to your Poppy sister I was taken right back to that day and the tears seemed endless.

I got out of my doctor’s appointment after a couple of hours. They were way behind today and I came home for a sight that I was not ready for. Your daddy and I have talked for a couple of weeks about taking the furniture out of your room to have it refinished to the color that will match Poppy’s crib. I came home to your daddy who had informed me that the people refinishing your things, would be at our house to pick everything up in a few hours. This meant drawers had to be emptied, toys dumped out, clothes moved, stuffed animals pulled out from the storage area under you bed, etc…Your daddy asked if I could empty out your dresser. I started crying and simply just told him, “No.” He did it. He did most of it. By the time the people got to our house your little room had been completely torn apart and I could do nothing but sit on the couch and cry. The lady working with us could not have been sweeter as your daddy had explained our situation to her on the phone so she understood what was going on. She told me how she had some bad luck, too as she lost one of her sons at 17 and also one as an infant. I could hardly get two words out as I was trying my hardest to somewhat control my sobbing. Your daddy was the one who told her he was sorry and did the rest of the talking as I just sat there in a cry fest trance. Your little room that I’m pretty sure I had made up in my mind, would never be touched, has totally been taken apart. I know we are going to put your things back but it still does not make any of this easier.

I sat in your room for a long time today. On one of your mattresses. I sat on the phone and cried to the couple of people I talked to. Thanks, Meg and Stace. I told them both how I was staring at your side of the empty room where your bed once was but now the only thing left there were a few of your Star Wars guys that had clearly fallen off of your bed because you would always insist of sleeping with 50 of them. I texted with Fernanda a bit. She is going to come over tomorrow to help me figure out how we are going to put your room back together while making it Poppy friendly, too. I am lucky to have such good friends who are truly there for me at all times. I am so lucky in that regard and so thankful.

The past couple of days, my emotions have been building up. It was your Sparky’s birthday. I remember his birthday from a couple of years ago when we were in New York. You made me take an extra special picture of you to send to him just for his day. It’s one of my favorite pictures of you, even though your body was all marked up with a Sharpie Pen from your radiation and your little arm was hurting so badly that they tried to make you wear it in a sling which you of course refused to do. The smile on your face was priceless and your eyes were so bright and beautiful as I was taking this picture. They were shining like diamonds. You were so excited to take this picture and send it to him. We called to tell him, “Happy Birthday!!” and I remember you saying this in your squeaky little voice that was full of so much love and happiness. As always, I did my best to try not to be sad on his birthday but I wished more than anything that it was you sitting by my side as I watched your Sparkly open up our gift and two cards. One card from me and one from the both of us. I of course signed your name on the card I picked out from you, to him. You would have liked it and called the card, “cute.” I sat and watched your Sparkly read our words and open our gift. I watched as he chuckled at something while the corners of his eyes got wet. It’s a sight I’m so used to seeing with him. That bittersweet happiness that I know all too well.  I did my best on his day, for you but it was still hard to hold it together without you by my side. I know your Poppy sister will help with things like this when she makes her little entrance into the world. Maybe days like this will become easier and help with the sadness because the happiness I know she is going to make others feel is going to be infectious. Next year it will be nice to have her by my side on days like your Sparkly’s birthday.

I spent much of the day and evening crying. Today was a hard day to get through. I literally went to bed telling myself, “You made it through today and you didn’t die. The pain didn’t kill you.” I’m always so amazed that it doesn’t. The sick joke is I know what I’m waking up to tomorrow and how none of this ever goes away. I don’t get to escape this. I still have to wake up to your totally disassembled bedroom that I said I would never touch. I was never going to be ready for today. You can never be ready for something like this.

I’m tired but restless. Of course, I’m not sleeping well. It’s because of my not sleeping well at night that I’ve noticed that we have this fucking bird outside of our bedroom that seriously sings all day and all night long. I don’t understand this as it’s only something that has started a couple of months ago. What kind of bird, sings all night long? It’s annoying to me and I don’t feel like hearing it’s song. Tweety bird, tweety bird please shut up. Between that and your empty room I’m surprised I’m not outside stalking this bird with my BB gun. That is totally a very Maya Danger thing that would have happened last year when I was in my Danger Baby phase. I’ve been stalking this bird to try to find out where it is hiding but I’ve only been stalking from it from the inside of our house. My body is too tired to truly investigate. Stupid bird.

Time to go, little man. It’s late and I need to try to get a little sleep before I have to start today all over again, tomorrow.

I miss you. I love you. I hope you are safe.

xoxo

P.S. Thank you, Taylor for what you did tonight. You are such a light that keeps me going even on my hardest of days. I know Ronan is so proud of you for all you are doing. So am I. I love you.

 

Your Happy Birthday Sparkly smile. I love you.

Your Happy Birthday Sparkly smile. I love you.

You know what is so totally awesome about cancer? Fucking nothing.

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Ronan. Today, I was sitting at my kitchen table pounding out emails, mailing bracelets to people, and missing you. A new email came in and it was an update from your old roommate at Sloan-Kettering, Phoebe. I still check in on her every once in a while. I still try to see her mom whenever I am in the city. We became pretty close after rooming together at Sloan and I know her mom and I both feel that the two of you had this unspeakable bond. I have been keeping up on how well she is doing and watching her get back to her life before she had to deal with that asshole named cancer. I have loved seeing her gorgeous hair come back in and felt really peaceful about the place she is in after she was declared NED from Osteosarcoma; which she developed at the age of 11. Phoebe endured so much, as do all kids who go through this, but her fighting spirit has never wavered. Her smile never seemed to dull. She is stronger than most adults but of course that came with a very heavy price. She shouldn’t have to be stronger than most adults. She should just be a normal girl, living a normal tween life. Unfortunately, that’s not how things have turned out for Phoebe, but you will never hear her complain of a thing. She has handled everything like a champ: much like the way you did.

I think we bonded with Phoebe and her mom for the first time over a bloody nose that wouldn’t stop. I knew that situation all too well. Being roommates in such close quarters, you hear everything. I think I tried to step in and help. Macy was with us. I think Tricia was, too. We will never forget it. Phoebe was scared. Her mom was scared. I did my best to help out because I had been in that situation 50 times before. I was an old fucking pro at the horrific bloody noses that you cannot control. After that bloody nose incident, we became friends forever. You died, Ronan. Phoebe lived. Her mom and I have remained close and her entire family has a special place in their hearts for you. Ellen, Phoebe’s mom, is always reminding me of how much they think of you. I so appreciate that.

I read the headline of Phoebe’s caring bridge journal today. It said, “Bad, Mad, and Sad News.” My stomach dropped. My eyes filled with tears. I knew what that meant, before I even started reading what was going on. Phoebe, after beating Osteosarcoma has developed a secondary cancer. This time, it’s AML- Acute Myeloid Leukemia. I immediately sent Ellen a text that said, “I just read your blog. You have got to be fucking kidding me.” She responded almost instantly and we went back and forth. I told her I would do whatever I could, which normally might mean hopping on a flight to go and help. I cannot do that now so I offered up the next best thing to Ellen and Phoebe which is my little Rachel who lives in NYC. I told them if they were o.k. with it, Rach would be happy to come by to keep Phoebe company, bring them treats, or whatever else they might need. They were very open to it so I called up Rachel who was more than happy to help out because she is not your normal 22-year-old. Rachel is an old soul who has such a passion for helping others that it makes me embarrassed at my 22-year-old self. She is the definition of selfless at such a young age which I admire so much. I asked Ellen if it would be alright if I posted Phoebe’s caringbride website because I know Phoebe tends to be a little more private. Ellen gave me the green light. I just wanted to offer them any and all the love and support that I have. They are a wonderful family and I am so devastated that Phoebe is going to have to go through more of this bullshit which was more than likely caused by the treatment she had when she was dealing with Osteosarcoma. I mean it’s bad enough that kids get cancer, but then to develop secondary cancers due to the treatment that supposedly saved them. That is just beyond acceptable.

I am asking you all to show Phoebe a little love. Stop by, leave her a comment, keep her in your thoughts, prayers or whatever works for you. She has a special place in our hearts here at the Thompson household and we will do whatever we can to help Phoebe through this time. Even if it means just making her mom laugh by my, “You have got to be fucking kidding me,” text. So glad to hear I was able to put a little smile on her face today. I am so glad I have my little Rachel in the city to help out, too. Thanks, Rach. I love you so.

Ronan. Ellen asked me to tell you to keep a special eye on Phoebe. I know you will. I love you my spicy little monkey. I promise to fix this. I promise this childhood cancer world will some day be better. It shouldn’t fucking be like this. This is my last little rant for the night but wouldn’t the world be a much better place if people like Honey Fucking Boo Boo were NOT on CNN? I about shot my TV the other day seeing this. Wouldn’t the world be a better place if people like Dr. Sholler or Dr. Jo were getting the kind of attention they deserve because they are actually doing really amazing work. I don’t understand how these doctors are ignored. How this HUGE problem is ignored. How these kids are just ignored. I guess because it’s easier to live a mediocre life where every day seems to be taken for granted and everybody seems to care about the wrong things. I can’t live in a world like that. I won’t live in a world like that. I’m going to create a new fucking world where shit like Honey Boo Boo or The Real Housewives of Asshole America, do not exist. Because people like Ronan and Phoebe deserve better.

Bye, Ronan. I miss you. I love you. I hope you are safe.

Here is Phoebe’s caring bridge below. Thanks all you lovely souls for stopping in to give her some RoLove. I love you.

xoxo

http://www.caringbridge.org/visit/phoebe26

A date where no pants are required

 

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Ronan. Another week done. Another week closer to your baby sisters arrival. A lot happened this week for nothing happening at all. I’ve spent most of the week doing I don’t even know what. Taking care of your brothers has kept me pretty busy. I feel like I’ve poured everything I have into them just so they know how very loved they are. There is a new baby coming. I am trying to be fully aware of everything they may be feeling with this. How does a 9-year-old process the death of their little brother and soon after that, the birth of their little sister? I have no freaking idea. So all I am doing is talking with them as openly as I can while pouring every single ounce of love and affection I have to give, into them. Liam finally got his new glasses and has been wearing them around the house and when he is out and about with us. He looks so handsome in them. He won’t wear them to school yet and I’m not pushing that on him. I’m just trying to let him get used to them first. I wish you were here to see him in them and how proud he looked when he put them on and looked in the mirror at himself. The first time he put them on in the car he goes, “Wow! I can see perfectly!” It made me laugh and broke my heart all at the same time. My sweet gentle giant. He slept with your daddy last night and I curled up in Quinn’s bed with him. Quinn must have told me 10 times how much he loves me. I snuggled up with him as we fell asleep. I always picture how it would be if you were here. I know you wouldn’t be sleeping in your bed but you would be snuggling up with your brothers instead. You loved being with them so much.

I saw Dr. Jo today for some therapy which included the chocolate cake she had waiting for me when I arrived. BEST.THERAPIST.EVER. We hashed out the weeks events. We talked about this Poppy girl and her birth. I told her I didn’t think I could make a specific birth plan for her because as with everything I do, winging it seems to be the best and works for me. I know she will be there and that is good enough for me. We have talked about having your Urn in the room with me. My only hesitation with that is that somebody might break your urn and ashes will go flying everywhere. But I think having your urn in the room with me as something to focus on might be good for me. We will see. I feel like I have been crying a lot. Crying when I’ve been hiking. Crying in bed. Crying when I’m driving. Crying over every song that comes on the freaking radio. My tears seem endless lately. It is just because I miss you so much. I just miss my best friend. I just miss my spicy monkey. I just want you back in the worst way possible. Dr. Jo asked me today when I thought I would be ready to forgive myself. I told her I didn’t know. That maybe Poppy would tell me when it is time in a secret way and only I will know what it means. Maybe you will let her know when it is o.k. for me to forgive myself for all the things I hate myself for that I know are truly not my fault. I think your sister is going to bring so much light into our world that I so very badly need. I think she will be able to hold my hand through this darkness in a way that nobody else can. I cannot believe she is almost here. I am so glad because I truly do not think I can wait much longer for her. I know I will be able to breathe much easier once she arrives. Both literally and figuratively.

It’s kind of been breakdown city over here this past week. It’s been one of those weeks where I feel like I have the weight of the world on my shoulders. I walk around every single second of every single day knowing that you, the love of my life, died. I never for a second forget that. I constantly feel like I am just here, doing my best, but blindly stumbling through this life without you. I never forget that I don’t have your hand to hold, your little lips to kiss, your messes to clean up, your hair to wash, you to dress or tuck in at night. Some days, I don’t know how I live without being able to do all of those things with you or for you. What I wouldn’t give to be cleaning up your messes or wiping up your puke from the flu. Even when you were here, doing those things, it was never an annoyance to me. I never got mad or upset or complained about the lack of sleep or things I was “missing out” on because I was just so thankful to have you. Even before you were sick, I knew what a gift you were. I don’t understand how you are now sitting on top of my dresser in a fucking urn. I still don’t understand how this all happened. I promise I am doing my best, Ronan but it feels so hard at times. I still know you miss me as much as I miss you. I still know we were never meant to be apart. I will forever think that this is so wrong and so beyond fucked up.

Today, Dr. Jo asked me if Inferno Fuckwad Bob was still around. Meaning my nickname for my grief. I told her yes, but I didn’t hate him as much as I used to. She told me she knew that would happen as it’s part of this shift. How her grief has become one of her best friends. I nodded my head and told her that made sense as our grief is never going anywhere. She goes “That’s right. So we may as well invite him in for a cup of tea.” I understand now. I can’t spend my whole life angry and fighting with my grief. I live with my grief 24 hours a day, so I’d better learn how to make the best of it. Your daddy went to the Suns game tonight. Your brothers are at a birthday party. If you were here, we’d be off doing something fun. Instead I sit in our house and cry for you, alone, the way I like it. Sometimes I have to take a break from the outside world. It’s still hard for me to be among the normal, happy people of the world. I’d rather sit here with my best friend, Inferno Fuckwad Bob instead. At least I don’t have to wear pants for our date.

I miss you. I love you. I hope you are safe. Sweet dreams, baby doll.

xoxo

 

I miss you and normal still hurts.

tumblr_mgba04Ybll1qbqtjbo1_500Ronan. Things around here have been quiet. The quiet that is so hard for me. A normal quiet that still makes my skin crawl. You know the normal things that we used to do when you were here. Big breakfasts, family dinners, going to movies, playing sports, watching T.V. as a family. Things like that. I thought they would have gotten easier for me by now. I guess they have because I know I used to not be able to engage of in any of those things and now I find myself being able to do so. It still stings though. I still picture you missing in every single thing that we do. Your brothers had a play date this weekend. I happily sent them up to road to play at a friend’s house. I caught myself thinking, “I wonder if Ronan would be going with his brothers, walking up the road to play.” I pictured the image in my head and it broke my heart all over again that you are not here to do so. Some days I think my heart will heal, but it’s things like that where in an instant, my heart is shattered all over again.

Your brothers seem so happy. This will always be the way I can tell that I am an alright job in life. It will always be reflected in the ways that they are. They are happy, well-behaved, and so connected with us. I am amazed at the way our family has been able to stay so intact and connected. I sometimes wonder if it’s weird that your brothers, for the most part, are always with us. They go to play dates here and there, but for the most part they are with me and your daddy pretty much all the time. We spend a lot of time together, doing things as a family. We both have worked so hard to make sure your brothers know they are safe and loved. I think for a long time they both worried about if they were safe or not. I watched as their innocence was shattered and taken away. I feel like we have slowly put it back together for them. Last night Quinn fell asleep in bed with me. We were watching the Oscars and I was rubbing his back. He fell asleep soon after that and I kept him in my bed with me and held his hand as I fell asleep. Just like I used to do with you. I found your daddy in Liam’s room all snuggled up in bed with him. They were both asleep on their backs and Liam was sleeping on your daddy’s arm, just they way you used to always do with your daddy. The sight of this was so bittersweet. It was so beautiful but so sad as well. I then went back to my bed while passing by your little cold, empty room. A year ago I would have taken 5 Ambien after seeing this sight. That thought didn’t even cross my mind last night so is that a clue that I am doing better? I guess so.

I went to see your Sparkly today. The first thing he said to me was, “What’s going on with Dr. Jo?” I gave him a funny look and asked him why he asked me that. He said, “Because I’m worried. I haven’t heard you talk about her in a long time and you normally won’t shut up about her.”

He knows I have been slacking on my therapy. I gave him a little smile and told him he would be happy to know that I have been seeing more of her and I started telling him about some of the things we have been working on and doing. I told him about the little project Dr. Jo is having some of my close girlfriends work on for me. I was in her office a couple of weeks ago and I was telling her how I am so traumatized by everything that I am having a hard time remembering any of the good things about your life here, Ronan. All I can think about is your diagnoses, how awful everything was, and your death. She asked me if it would be alright to reach out to a couple of my friends and ask them to do a little project that she thinks might help me. I told her she could get in touch with Fernanda and Stacy as they knew you and know everyone around us who knew and loved you. Dr. Jo said she was going to have them ask our family and friends to write down little memories of you to keep in a box at our house that way we can go through them and read them whenever we want. It’s such a simple and sweet idea. I don’t know if it will help or hurt but I’m willing to give it a try. Dr. Jo is also trying to get me to write you a letter. I know I write to you all the time, but she wants a real letter written to you. A deep letter, a heartfelt letter, baring my soul. She’s been asking me to do this for I swear a year now. I tell her I think about it a lot, but I’m not ready to do it. She knows why. She thinks in this letter I will find that you have forgiven me for everything. Even though nobody thinks I did anything wrong, not even you. I still feel like I did something wrong because you died and I am not ready to forgive myself. I still like living in that place of deep torture and pain because I feel as if I deserve to feel this way. Someday I might be able to let this go, but I’m not ready yet. It’s like if I let that go, I’m letting a little piece of you go and I don’t want to let any of you go. Ever. Including my self torturous pain that I like to feel because at least it means I am feeling something. I’ll take feeling something any day over being numb or even worse, happy. How do I ever have the right to be happy again when you are dead? I’ll take my moments of happiness in life but I don’t imagine ever being able to go back to a life where happiness filled me 24 hours a day like it did when you were still here and our family was still all together. I can be happy with my moments of happiness because when I feel them, I am fully aware of them and I appreciate them so much more than I used to.

Your Sparkly asked if your Poppy sister is ever going to get here. I pulled out her latest ultrasound pictures to show him and I watched him as his eyes lit up and he let out that great chuckle of his. In one picture, Poppy has her leg pulled up all the way to the top of her forehead. Limber little thing. He said he knows she is going to be the most beautiful little girl. I just want her healthy. Forever Ronan. Nothing else matters. I told him all about her hiccups and how it was the sweetest thing to feel. Not much longer now. I think I start seeing Dr. Schwartz every week starting Wednesday. I cannot wait to have this little one here. We all need this little piece of life to place in our family again. We all need this little gift from you. I know you know how much. I promise she will grow up knowing all about you. How you are her big brother. Nothing will change that.

This is all for today little man. Time to get dinner ready for your brothers as they will be home soon. I miss you. I love you. I hope you are safe.

xoxo

 

A RoLovie sent this to me. Poppy and you, side by side. I love you. I love my RoLovies, too.

A RoLovie sent this to me. Poppy and you, side by side. I love you. I love my RoLovies, too.

 

I am in love with your sister and her hicupps

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Ronan. I have no idea what I did this week. Not only do I have grief brain, I have pregnancy brain to go with it as well. It’s amazing that I can even drive a freaking car. I feel foggy, heavy, sad, tired… this is NOT depression, P.S.

It’s hormones, grief, and pregnancy. And no… I do not need medication. Nor will I ever need medication for my sadness which is just that. Sadness from losing you. My sadness will never go away and I am o.k. with that. It will forever be a part of who I am. I will deal with my sadness in ways that work for me and no pill will be required. I have been daydreaming a lot. About popping this Poppy out and being able to be free again. Free to go running. Free to go hiking. Free to blow off some of this crap that I have been holding in due to not being able to exercise the way I want to or need to. It’s the only thing that makes my head less foggy. I have been missing my running and hiking so very much. That is the time I feel closest to you. When I am connecting with nature and myself. It’s a good thing that this pregnancy is coming to an end because I am about to burst not having the outlet I am so desperately craving.

Most of my week was spent playing catch up with some things and taking care of your brothers while trying to rest up a bit. Your daddy has been the best helper, as always. I am slowly getting ready for your Poppy sister. It is still one day at a time with all of this as I am being very careful about trying to only buy the things we will need right away. I’ve been making Fernanda so nervous about everything that she just went ahead and ordered Poppy’s crib for me, and didn’t tell me until after! Leave it to her to just take things into her own hands. I couldn’t possibly love her more. I sat with Stacy yesterday and went over a list of things I do not have, but will need. Things such as diapers, burp cloths, bottles, a boppy. I ran to the mall today to exchange something and talked myself into going to Pottery Barn Kids to look at some bedding. Your baby sister needs some sheets. As soon as I got in there I was so overwhelmed. I snuck back to take a peek at what they had. I am so indecisive that I almost had a panic attack. I was walking past the counter and the sales lady goes, “Do you need help?” I just politely smiled and told her no. She then goes, “Have you registered?” I just laughed and said, “No, I have not.” I knew I was not getting off that easy and sure enough she goes, “You look like you’re about to pop and you have not registered?!” It was obvious that not only was not registering a sin, but that I had 3 heads as well. I just smiled and walked off. I was not about to explain our situation and how I had tried to register for baby things, but could not even get past the first few things that I was going to register for. I found myself back looking at the boy stuff and all the new Star Wars stuff they have gotten in. I was so sad as I ran my hands across the new Star Wars sheet set and thought how I would have totally bought those sheets for you. All I wanted to do was crawl into the Pottery Barn bed, pull the covers over my head and never come out again. I practically ran out of the store after that. Fuck that place.

I came home and finished cooking up the best meal ever for your daddy and brothers. My short ribs and mashed potatoes. It felt nice to do something nice for all of them. They have been taking such good care of me. Your brothers are the best little helpers around. I knew I wasn’t going to be home for dinner so I wanted to make sure they didn’t have to eat out, again. They were so grateful and thankful for the home cooked meal. I skipped out shortly after they left for basketball practice to go see Dr. Jo.

I spent a couple of hours with her. I’ve been trying to spend more time with her, talking about everything now that I have slowed down a bit and have more time. It feels good. As we were sitting there tonight, Poppy kept thumping me in the same spot over and over again. I said to Jo, “Feel this. What is she doing?!” Jo came over and felt my stomach. After a minute she goes, “She has the hiccups!” OMG. Cutest thing ever. I don’t remember ever feeling you boys have the hiccups in my tummy. The thought of this little baby girl, hiccupping in my stomach, pretty much made my night. I spent the rest of my time with Dr. Jo going over a lot of things and now I am so beat I think I have no choice but to end this and pass out now. I cannot possibly form another thought. Our sessions are always a lot of work and always exhaust me. Your brothers are in my room with me and I am going to snuggle up to them. We all miss you so much.

I love you, Ro. I miss you so much. I hope you are safe. Sweet dreams, little man.

xoxo

Voting doesn’t end until February 24th and you can vote once a day! Thank you! xoxo

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https://www.facebook.com/parentsmagazine/app_124605674371692?ref=ts

I’m not dead, I’m just in New York.

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Turmoil. A state of great disturbance, confusion, or uncertainty.

Ronan. I’ve decided that I live in a constant stream of turmoil. I have known this for a while. I am trying my best to learn to live with this as there is no outrunning it or getting rid of it. It’s not going away anytime soon. It will always be a part of my life, so I’d better learn to just accept it.

I’m in New York. I’ve been here for a few days. I took the Red-Eye out late Monday night. I can tell you I was honestly sad to leave your daddy and brothers. I hate that because of this new life, our family often has to be apart. It wouldn’t be this way, if you were still here. All I ever wanted in this life was our family, healthy, and together. I’m still pissed off that some fuckwad decided that was not o.k. The Red-Eye was a little miserable. I normally love it, but try being almost 8 months pregnant and getting comfortable on a flight while trying to get some shut-eye. Poppy was not happy. I kept thinking I was going to squish her, sitting down for that many hours and not really being able to stretch out. Of course I kept picturing the umbilical cord wrapped around her neck and the cause of her death being the Red-Eye to New York. Insanity often fills my mind and as always, I don’t fight it, I just talk my way through it. I arrived to New York with Poppy still alive and going crazy in my stomach. She seems to always be moving about. I was beyond exhausted and fell asleep as soon as I arrived in the city and my head hit the pillow. Thankfully, I didn’t have any meetings scheduled for Tuesday so I just rested the entire day. I met up with our little, Rachel for a quick dinner and we went to Bloomingdale’s to eat your favorite Fr-Yo, but that was my extent of going out.

The rest of my time here has been full of meetings. Lots of good meetings, interesting meetings, emotional meetings. For the most part, I’ve held it together quite well. I was a little emotional today during a meeting I had at one of the publishing houses. Somedays I can talk about you until I am blue in the face without breaking down. Today was not one of those days. It wasn’t too bad. It’s not like I threw my head down on the table and sobbed into my arms like I often do. Today just proved to me that I felt comfortable enough with the people in the room to let my guard down a little bit. I think it was actually a very beautiful thing. I love when I see in other people’s eyes the way they believe in you, in us, in our never-ending, crazy, intense love story. I saw that today and it is always such a powerful force to be reckoned with. I am always thankful for it.

After my last meeting, I popped over to Solving Kids’ Cancer to see my two favorites, Scott Kennedy and Catherine London. My two sidekicks in all of this because they get this in a way that most people do not. In a way that I wish they did not, but they do and now they will forever be a part of my soul and my life in this fucked up journey. I see myself when I look at them and it is always heartbreaking, but they are also two of the most beautiful people I’ve ever come across in my life. Our visit was short, but I was just glad I was able to see them at all. Even though my time here has been packed, seeing them is always a must.

This is all for my little update. I know it’s short, but I just mostly wanted to check in with you all to tell you I’m alright. I’ve been getting quite a few emails with people worrying about me because I haven’t posted in a while. You all are the sweetest. I am o.k. Just busy and I always try my hardest to unplug a little while in New York. It’s my own little time out to breathe for a bit. Thanks for checking on me, worrying about me, and loving me. You crazy peeps, you;) You all make me smile.

I love you, Ronan. I have a lot to think about. I am trying my best to really take my time with any decisions that will be made in regards to this book. I just want to make you proud. Sweet dreams, little man. I miss you. I love you. I hope you are safe.

xoxo

Hot Off the Press! New Ronan Merchandise!!!

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http://theronanthompsonfoundation.bigcartel.com

I’m on my knees, begging you to sign this. Please. Our kids deserve this.

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O.k… As much as I LOVE Star Wars, the fact that this petition got over 25,000 signatures, enough to make it to The White House, is a little disturbing to me.

http://www.huffingtonpost.com/2013/01/11/death-star-petition_n_2460265.html

PLEASE PLEASE PLEASE take one minute and sign our petition below. These kids deserve the recognition and the awareness as they are fighting for their lives. Please do it for the kids who are no longer here, who are still fighting, and even the one’s who will be diagnosed in the future. This problem is NOT going away just because it is being ignored. I will be heartbroken if this does not make it to The White House.

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX?utm_source=wh.gov&utm_medium=shorturl&utm_campaign=shorturl

Thank you all who have signed and shared. Please continue to share with this everyone and anyone.

xoxo

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