The most beautiful girl and the most beautiful boy. I love you both so much.

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http://www.youtube.com/watch?v=tvN7BOAQn9I

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Thank all of you…

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For remembering Ronan. You all are insanely amazing. I have literally received thousands of emails, tweets, texts, phone calls, blog comments, etc… about Ronan. I hope you all know how much it means to me. Thank you for remembering my sweet boy. I appreciate each one of you, so very much. If I could, I would kiss the ground you walk on and sprinkle you all with glitter. Thank you for helping this broken-hearted mama, get through this month of May. And an extra special thanks to my very amazing friends who are like family. The best kind of family to have. I love you all and consider myself so lucky to have you all surrounding me. Best sisters ever.

I love you all to the moon and back. Ronan does, too.

Thank you to one of my little Twitter followers for the picture above. So very sweet.

xoxo

Your song for the night, Ro baby and now Poppy’s, too.

 

 

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http://www.youtube.com/watch?v=RzhAS_GnJIc

Miss Taylor, how I love you so.

I wish this is what the media would focus on. Thanks to one of my little Tweethearts for sending this to me.

I love you, Taylor. Thanks for making  my day a little brighter and putting a smile on not only my face, but this sweet girls as well. I love you to the moon and back.

xoxo

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Today is 22 months since you left this world.

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Ronan. 22 months seems impossible. 22 months seems like a joke. 22 months does not seem real. We all miss you so much.

Today, is also Macy’s birthday. I know you would not want me to be sad on this day. I know if you were here, we would have woken Macy up by calling her on the phone and singing, “Happy Birthday,” to her. I will have your brothers do this. I’ll think of you, while they are doing so. I know how much you love your Macy. How much we all love her. She misses you so much.

I love you, Ronan. Happy Birthday, Macy. You are my other soul mate in life. The sister I never had. Thank you for always making us smile and laugh, even on the hardest days. I always say you are one of the most special gifts that Ronan left us.

We love you so much.

xoxo

http://www.youtube.com/watch?v=LzDPKBk18Zg

It’s 3 a.m. I’m Awake Obsessing About that Petition…

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I have been dreaming non-stop about this petition. Woody thinks there is no way we are going to get the signatures that we need. I love to prove my husband wrong, but so need your help. We only have until February 6th, to do this.

Please, sign this. It’s legit. It takes one minute. I don’t know what else to say except I cannot let Ronan down. I can’t let all these kids down who need this awareness so badly. If the awareness already existed for childhood cancer that it is so lacking when Ronan got sick, he may not have died. I can’t bring back Ronan, but I swear to you, I will help to save the kids of the future who will be diagnosed with cancer.

Please, please, please sign if you have not, and share this with anyone you can think of. We are running out of time just as these kids are and it is just not right.

Thank you.

xoxo

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX

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Ronan. Your song for the night. You were the best kind of trouble. I miss you.

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My favorite line that is not even in this song, but at the end of it. “I don’t know if you know who you are, until you lose who you are.”-Taylor Swift

Wise girl. Wise soul. Forever grateful.

 

http://www.youtube.com/watch?v=vNoKguSdy4Y

Happy Birthday, Taylor!!!

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Dear Taylor,

Wishing the girl with the most beautiful heart the happiest birthday, ever. You have inspired me in such a way that I didn’t know was possible after losing my Ronan. Thank you for being such an old soul in the youngest, most carefree way, possible. Thank you for all you are doing to help fix this very broken world of childhood cancer. I promise to make not only Ronan proud, but you as well. I promise to never give up and to fight harder everyday, because of people like you.

Happy Birthday, darling girl. I love you.

Maya, Ronan and the rest of The Ronan Thompson Foundation board members

2 a.m. Insomnia Parties With A Raccoon and A Cat

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Ronan. Everyday normal things will no longer exist in my life again. Not even a trip to the grocery store, the car wash, the bank, etc… Even the littlest things are different. I’ve been keeping myself busy enough because my life depends on it. I could easily see myself sinking into a very depressed state of mind and not getting out of bed until Poppy is born. That is why it is so important to me to have most of my days, planned out. I no longer love the luxury of not having things to do. Because if I don’t have things to do, I just won’t do anything at all and that is not a good place for me to be.

 I went to see my OBGYN a couple of days ago, just for my 4 week standard check-up. As I said before, everything with your Poppy sister looks great, but I still sat and told Dr. Schwartz about how I made the ultrasound technician check for any type of mass in Poppy’s body. She sat with me for a good half an hour to discuss how I am doing, how I am feeling, how I am dealing with all of this, and how much I miss you. I know she did not have to do this. She is one of the busiest women on the planet, but I so appreciated her taking the time to talk to me about anything and everything. She told me she would send me back to get more in depth ultrasounds whenever I wanted, she would find any excuse to send me. We have decided my next one will be at 26 weeks. She told me had you had this at birth, it would have been so microscopic that nothing would have shown up. If it would have shown up as something bigger and abnormal, they would have seen it and told me. I don’t know if this made me feel better, but I appreciated her taking the time to talk about the questions I have. She is a great doctor. After I left there, my phone rang. It was Dr. Schwartz telling me that she just got the flu shot in and she was highly recommending that I get one. I told her I wasn’t going to. She told me about the study that just came out linking pregnant women and the flu, to autism. I talked with her a bit about how I really didn’t want to get it. I would rather not put something into my body if I don’t have to. She once again, told me she couldn’t make me, but she felt very strongly about it due to how much I’m in the public and traveling. I asked Stacy and Fernanda about it. They urged me to go. I asked your Mr. Sparkly Eyes. He told me to please go and get it done. Of course I listened. I went today. Remember how I said that nothing will ever be the same again? I cannot even get a flu shot without thinking of you. I’ll never forget all the “pokies,” we had to give you after your rounds of chemo. How much you hated them. How I would hold you and your daddy would give you the shot. Shot after shot after shot. How you would scream and cry and try to be brave, but you hated it so much. My shot didn’t hurt for me today. My shot hurt for you. I’m so sorry for all you had to go through. It was so not fair or right. Any of it.
Do you know what else I’ve gotten to do the past couple of days? I went with Stacy and Fernanda to shop for your Christmas Tree that we are putting up this weekend at PCH. Of course it is a Star Wars theme. We decided this year, to do it all after your favorite guy, Captain Rex. The entire tree is going to be blue and white. Fernanda came up with the brilliant idea to find an actual mannequin and dress him up like Captain Rex to look like he is playing next to the tree. We found a kid sized one to dress up. The girls asked if I still had your Captain Rex costume. I knew where it was, but I had not touched it since you wore it on our last Halloween together. They offered to buy a new one. I told them it was o.k. We could use your little one to put on the mannequin. They both asked if I was sure. I told them I was. I can be brave. I can do this. I went and got it. I inhaled it, hoping for it to smell like you. It didn’t. I set it out for Stacy to pick up to give to Fernanda to let her work her magic. She sent me a picture of it today. It took my breath away. The little mannequin dressed up like you, looked just like you did when you actually wore the costume. I must have sat and stared at that picture for a good five minutes. I cannot believe that this is my life. That I don’t have my own Captain Rex here with me anymore to protect me. I cannot believe a mannequin is wearing my dead child’s costume. I do these things for you. Because I know you would want it to be this way. If you can’t be here with me, I will honor you by bringing your little light everywhere that I can. Including a Children’s Hospital ward where we spent so much time.
I have not been sleeping well. My internal clock has been waking me up at about 2 a.m. for months now. Last night, when I was roaming around our house, I looked outside. I saw a cat in our driveway and right behind that, a big raccoon. I don’t think I’ve ever seen a raccoon in Arizona before. I sat and watched it. I tapped on our kitchen the window. It stopped and looked my way. It was weird and creepy and I was so sad when this morning when I didn’t have you to tell my story to. I told your brothers. They thought it was pretty cool. Liam of course tried to tell me it was just another cat. Such a little skeptic he is. My 2 a.m. witching hour can be fun, Ro! Just throw a few raccoons my way. I then went on Google to do some research on if cats and raccoons are friends. Turns out, they are not. That raccoon was very likely stalking the cat to eat it. The things you learn at 2 a.m. I am a wealth of knowledge in all things raccoon now. I am also very productive at 2 a.m.  I would give anything to have you here to cuddle up to because I can’t sleep. I would give anything not to be waking up because I don’t have you here to cuddle up to. I fucking hate 2 a.m. 2 a.m. blows. I usually fall back asleep around 5 a.m. I need to find a hobby during my witching hours. Maybe I’ll start baking.
I saw your Sparky yesterday. He asked me why I looked so perplexed. I just told him I had a lot going on in my head, like always. We sat and caught up. I was having a really, really sad day but didn’t want to let him in on that. So we talked a lot about your foundation and a few other top-secret things I have in the works. I was wearing my most favorite Frye Cowboy boots that I have had for about 7 years. He made fun of them and made me laugh. I told him they were my favorite boots ever. He said he knew. I left there, feeling like my heart was going to explode from the pain of missing you. I attempted to drive home but had to pull over mid way so I could bang my head against my steering wheel and cry. I called your Sparkly up.
Me: “Do you think I’ll ever stop being so sad?”
Him: “Darling. Come on. Your boots were not that ugly.”
Not even his witty remark made me giggle. It was quiet. I just sat and cried into the phone.
Him: “I do. I honestly do. Not right now, but someday you won’t be this sad.”
Me: “I’m so sad all the time. Nothing helps. I miss him so much.”
Him: “I know you do.”
I sat and cried into the phone while he just listened.
Him: “Are you home now? Please get home. I will speak with you tomorrow.”
Me: “O.k.” I’m almost home.”
I got home to our empty house. I laid on our bed and cried for a long time. My face seems to be constantly wet these days. I wonder if my never-ending tears are because of how much I miss you, or all of my hormones due to being pregnant or a combination of everything. I used to be able to go days without crying. Now I’m crying every single day, sometimes every single hour. At least my anger seems to be under control. I don’t want to sit and punch things or hurt myself. I just want to sit and cry, so I do.
I’ve got to go now, Ro. Lots to do but all I really want to do is be busy taking care of you. I’m sorry. I miss you. I love you. I hope you are safe.
xoxo
This is the Captain Rex that will go under your tree at PCH this year. Your costume. I only wish it were your body wearing it.

This is the Captain Rex that will go under your tree at PCH this year. Your costume. I only wish it were your body wearing it.

Not a life full of beauty but one full of beautiful moments instead

Ronan. Today was one of those days where I just could not stop crying. I cried after I dropped your brothers off at school, I cried over every single Taylor Swift song that came on the C.D. I was listening to, I cried when I ran over to the mall looking for a very specific gift which I could not find, I cried when I went over to the baby girl section and tried to look at the clothes. I had a flashback to the days of when I used to ohhhh and awwww over baby girl clothes. Today, I didn’t see anything I liked and I just wanted to rip everything off of the racks. What is wrong with me? Then I remembered. Grief. Hormones. Pregnancy. Stress. Not sleeping well. Missing you. A lot is wrong with me, actually. WTF asshole mother fucker who thought I could handle all of this. All of this is way much for one person to handle. I left the mall, upset and sent my little Mandy Bee a message. “I need your help. Call me.” I told her about the gift I needed to find. She of course made a ninja plan to help me tomorrow, go and find it. She called around to a few places. Tomorrow will be better with my sidekick in tow to help out with my crisis which is actually not a crisis at all. It felt like it today.

I got a text from your Sparkly. I went down to his office. I picked up Starbucks. A coffee for him. A water for me. We shared some fruit and nuts. We sat and caught up. Our weekly little catch up that means everything to me. “Why are your eyes so red today?” He asked. Fuck, I thought to myself. I was not going to mention to him, how I had been crying most of the day but apparently my bloodshot eyes were not cooperating. “Oh, that would just be because I’ve been crying all day.” “Why so much today? Just the usual?” he asked. “Yes. Just the usual. I just miss Ronan so much, all the time, that’s all.” He knows that. He always knows that. We talked about some other things. He was proud of the advice he gave me that I listened to. I told him how he was pretty much the only person I listened to in this life anymore. He knows that too. You know what I told him today? That my life without you is full of so much pain, sadness and hurt. That all I get now are beautiful moments in life. I don’t get a life full of beauty, only moments. Those moments mean so much to me. They are like the air I breathe and I inhale them as much as I can. This is why it is so important to me, the people we surround ourselves with and the life we choose to live. The moments of utter beauty and bliss that I only feel by being with certain people. I soak them up whenever I can, as much as I can. They help me to survive this life I live now, without your sparkly eyes, little laugh and sweet lips. A life full of moments is what I am left with, Ronan. I’m afraid this is the best it is going to get. I will be thankful for those moments. I am trying my best. But I miss the days when life was always beautiful, always joyful, always full of such love and laughter. Back when you were healthy and here. Everything was so simple and so easy. I was always so thankful for what we had. It’s hard to have the all ripped away and still look on the bright side of things. Mother fucking asshole cancer. I hate you.

We went out to dinner tonight to one of our favorite restaurants, Tarbell’s. We sat, just the 4 of us and I tried to let myself relax and enjoy our dinner. This never happens for me. My mind is always wandering to where you would be sitting, what you would be eating, how beautiful your little face would have looked lit up by the flickering of the candlelight. We talked about Poppy for a while. I told your brothers once again, how I really want to name this baby girl, Poppy. They are so not cool with it. Quinn looked at me and said, “Why do you want to name her Poppy? That is basically like naming her Wooddawg.” I had to laugh at that. I told him about the story that somebody told me about the Poppy flower.

Flanders is the name of the whole western part of Belgium. It saw some of the most concentrated and bloodiest fights at the first world war .

There was complete devastation. Buildings, roads, trees and natural life is simply disappeared. Where once there were homes and farms there was now a sea of mud, a grave for the dead where the men still live and fought.

Only one other living thing survived and that was the poppy, flowering each year with the coming of the warm weather. It brought life, hope, color and reassurance to those still fighting.

In Flanders Fields the poppies blow

Between the crosses, row on row
That mark our place; and in the sky
The larks, still bravely singing, fly
Scarce heard amid the guns below.

 

We are the Dead. Short days ago
We lived, felt dawn, saw sunset glow,
Loved and were loved, and now we lie,
In Flanders Fields.
Take up our quarrel with the foe
To you from failing hands we throw
The torch; be yours to hold it high.
If ye break faith with us who die
We shall not sleep, though poppies grow
In Flanders Fields.
John McCrae 1915

I’ve am living in a war zone every single day. I am surviving, just like the Poppy flower. If I wasn’t sold on the name Poppy, I sure am now. Who am I kidding? I think the name is darling and it truly makes me smile. It makes me feel happy. I don’t think there is any deciding until we actually see this baby girl. Even if we name her something else, she will be called Poppy as a nickname. It is already her name, and she is not even here. Now if I can only get those brothers of yours on Team Poppy. I think you would have liked the name. I think it would have gotten the Ronan seal of approval.

This is the end of your story for tonight, baby doll . I am as always, wiped out. I’ll fall asleep quickly as I have been doing so easily lately. Only to wake up around midnight to toss and turn for the rest of the night. I kind of miss my Ambien is the devil days. The devil was kind of fun to dance with. Sometimes, I miss it. I miss you. I love you. I hope you are safe. Sweet dreams, little one.

xoxo

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