Working on my little Empire State Building Post… Thank you all who have been so supportive. Until I get it finished, there is this. I love you all. I miss you all. I’m sorry I’ve been so quiet on here. Just trying to keep my head above float. Wait… I think I meant head above water. I am so tired, I cannot even see straight.

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Ronan. Somehow our summer is over and I am left here scratching my head. How did summer go by so quickly? How in the world do I have 5th graders? Why isn’t Ronan starting the second grade? When is somebody going to end this sick joke and just freaking bring him back? I still think that, Ro even after all this time, that somebody is just going to knock on my door one day and hand you back to me. I want to scream sitting here at my office staring at your little picture that makes me sometimes wonder for a split second if you were really even real. That life I knew with you seems so long ago. Another lifetime ago. I am trying to cling to the life I had with you with everything that I have, but as time goes on it gets harder to remember. My old memories are being replaced by new memories as if they are in competition with one another. Nobody is going to win this fight. I want my old memories just as much as I want my new. I might just want my old memories, the good memories with you, more. The good memories are hard to come by. Sometimes remembering them is just as painful as remembering the bad, cancer baby memories. I wish I could say I have found just a little peace with all of this, but I have not. I truly do wonder how parents that have watched their child die, find peace. Do they ever truly really find it again, or just pieces of it here and there? Feeling peace about you dying is never going to be my thing and I am o.k. with that because at least I am being honest with myself and what life feels like without you which is still hell on earth everyday.

So… summer is almost officially over. We spent all of June in AZ, which we never do but with your brothers getting older they had committed to a lot of basketball and as much as I wanted to peace out AZ to get to Washington, I had to be supportive of their commitments. June sucked balls. It was really fucking hot and I was really missing my family, but I did my best to put on my fake ass smile and get through it. As soon as July 3rd came, we hopped on a plane to Nana and Papa’s house. Our time there was as close to bliss as bliss can get anymore. It is the only other place that brings me the most comfort, peace, and happiness… besides New York. I love my home. I love going back. I love and miss it so very much. I could not wait to get Poppy there and let her roam free and fall in love with it the same way you did. That is exactly what she did. We played outside from the moment she woke up until the moment she went to sleep. Usually we have a lot of down time there, but this summer I was on a mission to take advantage of everything we could do outside. Your brothers would wake up every morning and go, “What adventure are we going on today, mom?” Oh, let me see… as I would get on my phone to figure out what really amazing place I could take us to for the day. We would pack up the car in the morning and head out until Nana and Papa got home from work late in the afternoon. We did a lot of hiking. A ton of hiking where we would get lost for hours upon hours in the thick of the woods, and I appreciated the nature and beauty so much. I could literally feel my soul exhaling and the peacefulness that never exists inside of me, found me for a few hours each and everyday. I was so thankful for the time out from my life back in Arizona where I often still feel like I am suffocating to death. I’m not even being dramatic. Arizona is slowly killing me.

“Boys! Do you know how lucky you are to be spending your summers here. Look at all these beautiful trees! Look at these waterfalls! Look at all this green! All this fresh air! Isn’t it so amazing? Please tell me you appreciate this. Not everybody gets to experience things like this.”

They both looked at me like I had gone off the deep end, but are to sweet to tell me otherwise. Instead they both told me that they knew how lucky they were to be able to come back here every summer. I know they love it just as much as I do, but I think it’s the spending time with your Papa Jim that they love the most. Quinn also found a new favorite hobby which was “mowing” Nana’s field which really just consisted of him going as fast as he could on her riding lawn mower. Every night we would all find our way in my old bedroom and I would watch as all three of my babes were lulled to sleep by the fresh air that came through my bedroom window during the cool, dark nights. I sleep much better there than I do back at home in Arizona. In Washington, I sleep like a freaking baby. I think it’s the comfort of being back home with your Nana and Papa and all of the fresh air that we get that makes me fall fast asleep and stay that way for more than 3 hours at a time. It was heaven.

While we were there, Poppy had her first little accident. She has been walking for a while now but still takes the normal falls here and there. It was during the middle of the day and I was home with just Quinn and Poppy. Your daddy and Liam were at a movie and Nana and Papa were both still working. I was playing with Poppy in the living room and we were playing one of her favorite games which is her version of hide and go seek. She likes to take a blanket, cover her entire body while standing up while I go, “Where is Poppy?!” She then rips the blanket off of her head and says, “Here I am!” or more like “Ger baa mmmm” which totally means “here I am” in baby talk. We had been playing this game for about 10 minutes when all of a sudden I looked over just in time to trip over her blanket and fall on a sharp corner of Nana and Papa’s fireplace. A corner that I always knew was going to get one of you kids, sooner or later. I ran over and picked her up to make sure she was o.k. She was crying really hard. As I examined her, I saw that the corner of the fireplace had missed her eyeball by about an inch. The lower corner of her eye had turned a shade of black and blue almost instantly and it was starting to swell up. I yelled for Quinn to go and get me a first aid ice pack but he had to go outside instead. He couldn’t stand for one second seeing Poppy hurt. I grabbed the ice pack, a popsicle, and headed outside to try to calm her down while we sat on the porch. She stopped crying after a few minutes as I continued to hold her and tell her how sorry I was. Quinn came walking back over asking me if she was going to die. I wanted to die right then and there. It makes me sick that his little mind immediately goes to the worst of all places. I told him that Poppy was not going to die (the same way I told him that about you, fucking fuck fuck fuck) as we sat together and watched her little eye get worse and worse. I texted your daddy and Nana a picture of it to let them know what had happened. Your daddy joked and told me he was going to call CPS on me, your Nana flipped out. I tried to make as much light of the situation as possible (hey at least it’s not cancer) but I was silently freaking out myself. It just wouldn’t be until later that night that I would come to realize how much this little fall of hers was going to impact me.

I fell asleep that night pretty late right next to Poppy the same way I have done every night since she was born. You know, with her right by my side so I can check her breathing every hour on the hour. (insert psycho mama here) I think I dozed off only to jolt out of bed because of an old familiar feeling a couple of hours later. My eyes immediately went over to Poppy. Oh my god. Her eye now looked sooooo swollen. So black and blue. So much like yours right after you had your first surgery where they removed the mass that had metastasized right above the left orbit of your little eye. That surgery where you looked at me and without a word I could hear everything you were saying which in my mind was, “What happened? I was just running around fine a few days ago. What did you let them do to me? How could you let this happen? You are my mama, you are supposed to keep me safe.” I heard those words over and over again in my head. I curled up in a ball, grabbed a pillow to smother my sobs, and sob is exactly what I did for the next few hours. I sent an email to Dr. Jo around 5 a.m. She responded almost immediately and called my phone. I told her what had happened, the reaction I was having to it, and let her gently guide me through it. HELLO PTSD that nobody talks about after you lose a child, except Jo.  She  We made a plan which mainly just consisted of me acknowledging my grief, nurturing my grief, and getting through the day. I hung up with her once again telling myself how lucky I was to have found her and let her words sink in and prepare me for my day ahead.

We were set to leave Nana and Papa’s house to all go on a family vacation to Bend, Oregon. Nana, Papa, your daddy, brothers, Poppy,- my amazing step-sister and niece would also be with us which we were all so excited about. I spent the morning running off of the few hours of sleep and trying to get everyone packed to leave. I completed all of my tasks, running around, feeding Poppy, making everyone shower while I just lost my shit as there was no containing what I was physically experiencing. Your brothers came and checked on me as I handed Poppy off to Nana while I went and sat on the couch and continued to sob. Quinn rubbed my back. Liam kissed my cheek. I smiled at them both and told them I loved them. Soon it was time to leave for our vacation. I hopped in the backseat of my stepsisters car with Nana and Poppy while the boys and Jady girl went with Papa Jim. I was so thankful I did not have to drive. Between my now raging headache and my tears, I would not have been able to. I spent the new 5 hours in the car feeling like I was massively hungover and when we got to Bend, I headed straight upstairs to rest. I was so thankful to have your Nana there, to help with Poppy and let me cry on her shoulder. I was so thankful for the non-judgement that came from everyone about my little episode. I guess that is why I was able to just let everything out and not feel uncomfortable doing so. I never feel judged around my family and that is the best gift they have ever given me. It means everything to a grieving mother because my grief and pain is something that will be with me for the rest of my life. I am not going to be ashamed of that and I am not going to hide it. To love something so deeply that it makes you feel so much pain is a badge of honor that I will always wear as it is a constant reminder of my love for you.

Another reason the day was so hard was because it was another family trip without you. That hurts so much and I still look for you everywhere.

I have to end this now. I have been trying to finish this post for weeks. Now I have to move on to this Empire State Building stuff. I’m sorry to cut this short, but I need to just get this posted. I feel so badly that I have not written on here in so long. I miss you and this blog so much.

G’nite baby boy. I miss you. I love you. I hope you are safe.

xxoo

Thank you all for your amazing hearts and spicy souls.

 

 

 

 

 

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Because of you all, the Spicy Monkey Spirit Hood was the company’s largest launch that they have ever had. Thank you all so much for buying them and making this venture so successful. Please continue to share this video with anyone and everyone. The more people who see it, the better. I love you all so much.

xx

 

 

http://vimeo.com/78844347

For those of you who want to sponsor me…

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THANK YOU! I’ve gotten so many emails from people saying they can’t run, but would love to sponsor me. What do I say to that?!?! HECK YES! And thank you times a million! You all are such wonderful, beautiful souls.

I know Ronan is so proud of all we are doing. The link to sponsor me is down below. Nothing can stop me from running for Ro. Not even these E size milk filled boobs.

xoxo

http://www.firstgiving.com/fundraiser/rockandro/runlikearockstar

1st Annual Run Like A Rockstar!

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Come join me in a 5k in my hometown! So excited to do this, so thankful for the support! Details for the race are in the link below! Let’s run for Ro!

http://www.active.com/running/longview-wa/the-ronan-thompson-foundation-5k-run-walk-2013

You make beautiful things happen

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Ronan. You make beautiful things happen and last night was proof of that. Taylor Swift was in town for the Red Tour. We were invited to go as a family and could have not been more excited. Last minute plans were made, plans were changed, plans were made again. Brianna was in town staying with us and Macy had just left after being here for almost a week. The time with Macy here or as Poppy is going to call her, “Auntie M,” was so special. I watched Macy fall head over heels in love with your sister the same way she did with you. We did a lot of nothing except live in Poppy world. We celebrated your Daddy’s birthday which was a hard day, but as always, we just go through it the best we could. Tears were shed, but for the most part we tried to make it a fun evening by having some dear friends over. We all just mostly sat around and cooed over your sister. She truly does make many days better, but days like special occasions are still pretty hard. Macy knew this and just sat and played with my hair while I rocked your sister and the tears fell silently to the ground. She just looked at me with tears in her eyes and said, “I know.” She knew what I was thinking, as she always does. How I wished so badly you were there with us to celebrate your wonderful daddy. How I wish every day you were with us to not celebrate a thing, but to just live this life with us that was so unfairly taken away from you. I will never stop wishing this.

It’s taken me a few days to figure out why I am having such a hard time writing this post. I’ll start by saying two years ago when I was first invited to meet Taylor and go to her concert, I was in a completely different place than I am now. 2 years ago I remember trying to get ready for her concert and how I could hardly peel myself up off the floor to go. I was destroyed back then and wasn’t so sure I’d be around to survive this life much longer without you. I was in such a sad place that I didn’t think I deserved to go to a concert, meet this amazing girl or feel any sort of happiness at all. I went because I had a message to share, because of my manners, and I knew how rude it would be not to go after I was so kindly invited. Little did I know that Taylor already knew all about you and our hauntingly sad love story. She already knew the message I was wanting to share and welcomed it with open arms. Fast forward 2 years later and I am now in a very different place.

I spent the day with Liam, Quinn, and Bri Bri, hanging out and getting ready for the concert. I felt excited and happy, and as always, a little sad, too. I knew Taylor was going to be meeting your Poppy sister and for me, that was the best part of everything. To me, it was like she was going to get to meet a little piece of you and I can’t even put into words how much that meant. We as a family, all went to the concert. We ended up splitting up as your daddy, Liam, and Poppy sat backstage with Taylor’s dad for most of the show. Even though we had protective ear coverings for Poppy, it still made me nervous to have her out in the loud arena with everyone. Your daddy was whisked away by Taylor’s lovely assistant and taken back stage where all was safe and sound. Liam went with your daddy also, as the concert was a little too loud for him. He’s never been a fan of anything too loud and crazy. I stayed down at our seats with Bri, Quinn and your Sparkly. There was a lot of dancing, singing, laughing, and maybe a little crying. I sat back and watched the most amazing performance and was of course blown away by the talent before me. She always manages to out do herself that Taylor girl. I felt so blessed to be a part of it. It was a night where I got a chance to put my pain on hold for a few hours and just get lost in the magic and beauty before me. Between Taylor’s beautiful voice, the smile on Quinn’s face, and the insane dancing that I did with Brianna when Taylor sang, “22,” everything about the night was perfect. Almost freaking perfect. You know the one little thing missing was of course you. I tried my best to remind myself that you were there with us, somewhere. Even though I couldn’t see you, I know you were there and I let that be o.k. for a few hours.

After the concert we got to spend a lot of time with Taylor and her dad in the most intimate setting. I’ve now realized why it is that I’ve had such a hard time with this post. It’s because of the way this relationship with Taylor has changed and evolved. It’s because I feel insanely protective of her and the way she’s opened up her heart to us. People try to exploit this girl all day long and I’m just not going to do that. I won’t do that. I’ve felt that way since day one of meeting her, but my protectiveness has only grown over time. I’ve had all of these news stations calling me, wanting to do interviews about Taylor’s concert, what it’s like to have her here in the Valley, wanting to know if she was going to sing, “Ronan,”etc… I politely declined doing any of them. It almost felt yucky to me. To me, the time we spent with Taylor was so sacred and special that I would just like to keep most of it between us and our family. At one point during our time together as I watched her holding Poppy, I asked her a certain question. She looked at me to answer it and said, “I hope I made the right call.” I told her as my eyes filled up with tears that I believed she did. I hope tonight, with this post, I made the right call, too. I don’t mind sharing most of the night, but not all of it. Some things just feel too sacred to be shared. This girl feels like a part of our family now, not some big celebrity. It’s funny because she’s never felt like some big celebrity to me. To me she’s always just felt like a normal girl who fell in love with you and who just happened to be in a position to make something really beautiful happen because she took a chance on us and followed her heart. To me, that has saved me in a way and I will forever be grateful to her and her old, wise soul. I have no doubt that many more beautiful things are to come.

As far as me not wanting to share much about our night, I hope you all understand. To me, the picture below explains everything.

I love you, Ronan. I miss you. I love you. I hope you are safe. Sweet dreams, little man.

xoxo

P.S. Taylor, Thank you for EVERYTHING. You know I have 50 million things I want to say to you, but all I’m going to say is you my friend, could give Hallmark a run for their money. I love you so much.

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I love your Poppy sister to the moon and back.

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Ronan. Sometimes I just sit here at this computer screen, wondering what to write because the only words I can think of are… I just miss you so much. That’s it. I just miss you so much plays over and over in my head like a broken record that I will never turn off. Tonight, I guess I have a little story for you that is mostly about your sister. I’m not going to lie, Ronan. I was a little unsure of how things would be once she got her. All of my usual doubts filled my head. The thousands of questions. Will I be able to love her enough? Will she love me as much as Ronan did? Can I still be a good mom? Am I worthy of loving another child? What if we don’t connect, bond, etc… What if I am still so numb, that I feel nothing? Am I betraying Ronan? Would he be mad or sad or jealous? Am I hurting his feelings by having another baby and loving it? The things I worried about in my head seemed to be never-ending and oh so dramatic, but they were my real life thoughts about all of this.

Then that day came that your sister was placed in my arms. I can honestly tell you that I was so overcome with so many different feelings, that it was hard for me to feel a thing. So I just stared at her while she stared at me. The first thing I whispered in her ear was something like, “Ronan loves you.” Then my mommy mode adrenaline rush of I can do it all kicked in. So it was a constant stream of auto pilot everything. Feed baby. Change baby. Sleep baby. Tend to mama just pushed out a baby war wounds. Eat mama. Sleep mama. Drink mama. Shower mama. While taking care of other kids, laundry, people wanting to meet her, phone calls, emails, a few blog posts, foundation things, don’t forget to grieve mama, the questions of “how are you really doing from my friends and family seemed constant. But with all that adrenaline rushing, I was able to keep a safe distance away from really feeling that deep connection with your Poppy sister. Oh, I knew I loved her, but I had been keeping myself so busy as if to not let myself fall in over my head. My guard was still up I guess you could say. My mind was still trying to go to that place of don’t get too attached, in case something happens. So, I guess you could say at first, I was dating Poppy in a way. Testing her out to see how things were going to go.

I’ve spent the past few weeks, slowing everything down. I’ve spent the past few weeks, letting myself and my relationship with Poppy unfold a little more. We spend much of our days, sitting quietly. Her constant need to be fed has helped us to bond. We do everything together. I can’t even put her down in her crib to sleep, so she has been sleeping in our bed. For as slowly as I’ve watch things unfold, I can’t stand the thought of being separated from her. I talk to her a lot, even when she is sleeping. My favorite part of the day is when I lay her down to be changed and she just stares at the big picture we have of you in her room and while she is staring, she smiles at it from ear to ear. She’s been doing this from really early on, when babies aren’t supposed to smile at all. She started this at about 2 weeks when babies are supposed to be blind as a bat. I watch her and say things like, “Is Ronan telling you secrets again?” I scoop her back up, rock her and then sometimes look down at her and think to myself, “Are you really Ronan? Because if you are not, I had no idea I would be able to feel this way again. This close and this strongly connected to a new baby after losing my everything. Either you are Ronan or Ronan sent you because he could not take how sad I was anymore. He sent you to try to help fix my heart and soul. He could not have picked a more perfect baby girl to heal my heart.”

The past few days, I’ve felt nothing but this euphoric happiness. Happiness that has only come because of your sister. I see it through everybody, but it’s through myself that I can actually feel it. I am not dating Poppy anymore. We are full on in a crazy, love affair, forever will be married, marriage that I am over the moon about. I without a doubt know, none of us could have really survived this life and lived this life in the way we should be living it, if it were not for your sister being born. Everything has shifted in such a good way. The energy in our house has changed. I’m getting more of those beautiful moments in life that I often talk about from the simplest things. Beautiful moments seem to be everywhere I look, Ronan. I am no longer fighting them or scared of them. I feel so lucky and blessed and this is all due to this gift you have given us which is her.

Dr. Sholler has been in town and you know I am always crazy happy when she is here. Your daddy, Poppy and I picked her up from the airport on Sunday. Before she got in our car, she sent me a text. “Can we hike?!” I laughed out loud. I said to your daddy, “Giselle wants me to take her inferno hiking. She is such a badass.” I told her of course we could. Your daddy said to me, “Are you sure about that? Did you tell her how you almost killed your intern, inferno hiking?” I told him to hush, that she didn’t need to know that. I did warn Dr. Sholler that it was going to be hot, but she was totally game. I was feeding Poppy in the backseat of the car when she arrived. Your daddy parked and went to walk to get her. As soon as she got in the front seat, she scooped up your sister into her arms so she could hold and love on her. I was blown away. Watching the two of them meet was something that will stay in my mind forever. They sat and stared at each other for a long time and Dr. Sholler was such a natural with your sister in her arms. That’s what makes her so different from other doctors, Ronan. She doesn’t have that compassionate chip missing, for being such a bloody freaking genius that a lot of people do. She doesn’t have a fucking ego or agenda. She cares so much not only about her patients, but the family’s as well. Even the one’s with the dead kids. That is so beyond rare. She is such an anomaly in this world. She is my hero and I am so proud to be a part of the things she is doing and will be doing in the future for these kids fighting Neuroblastoma. I will forever be sorry that we didn’t find her sooner.

I took Dr. Sholler hiking. We talked a lot about cancer things, but other things as well. I asked her the million dollar question which was, “What do I need to do to make sure Poppy doesn’t have cancer?” I said, “Do I do nothing and just trust in the Universe that completely screwed me over? Do I start having her urine tested? Do I get her blood tested? Scanned? Please, just tell me.” We talked about how a urine test after 2 would be a non invasive way to just make sure everything is o.k., but ultimately Dr. Sholler wants me to just trust in you. She told me that your sister is fine and is going to be fine. I tried my best to listen and trust in that, but it’s really hard to do so when your entire world has been shattered. Fast forward to today to prove my point on that.

I fed Poppy this morning. I burped her after. I set her in her bouncy so I could pack Liam and Quinn’s lunches. I heard Poppy coughing a bit so I picked her up. Bright yellow vomit/spit up goes flying all over my shirt, not once, not twice, but three times. I go into show your daddy. I see Poppy looking a little pale. In my mind I’m freaking out and everything in me is screaming, “SHE HAS CANCER!” Your daddy makes light of it. I do not. I text our pediatrician. She texts me right back and says it’s probably curdled milk, but if I want she will check her out and feel her tummy. I of course, ask her to make me an appointment to bring her in. So, I sit and wait at home for our appointment. My mind goes to all of those awful places while the tears pour down my cheeks. This is my life now. This will always be my life now. I’ll never escape this world where a little thing is just a little thing. A little thing to me, will always mean cancer. I know I have to learn to let some things go, but today, this lesson was lost on me. Today, it was all I could do not to run down to the hospital demanding to have her scanned. Dr. Campbell calmed me down and told me everything it could be, none of it being cancer. She pushed down on her tummy and told me it was soft. She told me your sister is fine. Your sister is fine, Ronan but I will never be fine again. Not when it comes to normal things like yellow spit up, tummy aches, aching muscles, headaches… I will always think the worst. I thanked Dr. Campbell and she told me she would do tummy checks on Poppy everyday if I wanted her to. That she would come by our house even and to text her whenever I was feeling uneasy about something. I smiled and thanked her again. Once again, I am so lucky to have such an amazing doctor who truly cares, taking care of our family.

We are home. I am exhausted from not sleeping well last night. I guess I was also a bit wired from the amazing night I had with Dr. Sholler and some great peeps from T-Gen. I took Poppy with me. She goes everywhere with me and didn’t make a peep. Best baby ever. So many wonderful things are in the works and I am so honored to be able to be surrounded by such amazing people, who share the same dreams and visions as I do. Together, we are going to do extraordinary things.

I miss you. I love you. I hope you are safe.

xoxo

The days of hell are over, but never really end.

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Ronan. Your 6th birthday came and went. I kept wondering to myself, what kind of party we would have had? I asked your brothers, “Do you think Ronan would still like Star Wars if he were here?” They assured me that you would have so in my mind, for the 2nd year in a row, I threw you a Star Wars party. I clung to my imaginary party in my mind to get me through the birthday from hell that I had to have without you in real life that fell on Mother’s Day this year. Your brothers and daddy did their best at spoiling me so by telling me how much they loved me, what a great mom I am, how lucky they are to have me, etc… They tried to make the day about me as much as they could but I ended up saying, “This day isn’t about me, it’s Ronan’s day so let’s do everything Ronan would have wanted to do.” So we did. We went to a brunch where I ignored all the 6 year olds running about and focused only on your brothers and Poppy. We went swimming and I watched as your daddy and brothers went crazy going on the water slide that was at our hotel. I sat quietly in the shade and let my smiles, come from them. They played football in the grass and participated in a water balloon fight. After a few hours of that we went back to the room to rest and get ready for dinner. We ate at a really good mexican restaurant and we had plans to go and see Iron Man 3 (which you would have totally wanted to do) but your sister’s breastfeeding got in the way of our making the movie on time so we ended up just coming back to our room. We all snuggled up together and watched a movie from the hotel instead. Your brothers let me pick it which was very sweet of them to do so we ended the night by watching “Oz, the Great and Powerful.” Quinn gave it 5 stars. Liam gave it 4. I was just happy they both enjoyed it and it made a quiet ending to a day that I just wanted to get through without jumping off the side of a cliff.

Now I sit here on the 15th of May, reflecting on what this day was like 2 years ago. It was the day we had your funeral or a.k.a. your celebration of life which is really just a nice way of saying this is fucking bullshit that I had to cremate my kid so let’s try to cover it up by calling it something beautiful. Having my baby cremated is not the way I ever envisioned celebrating your life. Today, I pulled out the white dress I wore on your death day. The white dress that hung on my shell of a body and now hangs in my closet like a keepsake or a wedding dress because I know I will never wear it again. It haunts me hanging there and I often find myself running my hands over it, waiting for the ghost of who I was during that time, to appear. That shell-shocked of a girl who really had no idea of the magnitude of what had just happened because I was in such shock and a deep place of denial. I remember your services, barely. I remember how I was so numb, that I didn’t even cry. I remember making everyone wear white and how after everything was over how Liam went over to a fountain to throw a penny into it. I remember saying, “Make a wish!” and how he looked up at me and said, “Why? Wishes don’t come true.” I remember at that point, it took everything I had to not fall over from the pain of his words. His innocent yet not so innocent words that right then and there, shattered everything I had ever known. Wishes don’t come true, rocked my world in the most fucked up way possible. Wishes don’t come true out of the mouth of an almost 8-year-old that should not be so wise in the way that he is.

I spent a lot of today crying and staring at that white dress while I found the comfort I so desperately needed, in your Poppy sister. I can’t seem to put her down which explains the loads of clean laundry that I need put away. Laundry can wait. I’ll take the snuggles of your sister over clean laundry any day. Your brothers are getting ready for their big basketball game on Friday. So a lot of practicing has been going on over here. Tonight I left Poppy with your Daddy for a bit so I could sneak out for a run. A little 3 mile run that I nearly winced in pain with the entire time. I forgot how bad it sucks to try to get back into running after having a baby. OUCH. Everything hurt tonight but you know nothing can ever hurt as much as the pain I feel from being without you everyday. I ignored the pain from my body and pushed through my 3 miles, slowly, but I was determined not to give up or give in even though every part of my body was screaming at me to do so. I came home just in time to see your daddy through your bedroom window, sitting in on your bed in Poppy’s room. I watched as he stared down at Poppy with such a look of mixed emotions on his face as he played with her little feet. I felt like an outsider, looking in on two strangers. This can’t possibly be my house, my husband, my new baby sitting in my dead child’s room, right? A year ago I would have saw this sight and wanted to run away from it all. Seeing this sight would have been too much for me to handle. Tonight, I had no desire to run away at all and instead I walked inside our house to where your Daddy was walking Poppy all about, carrying her like a little football. I went up to her, let her focus on who I was and said, “Hi Poppy!” I watched as a big smile splashed across her face. “She smiled!” I exclaimed to your daddy. It was a smile that told me that we are all doing alright and that Poppy is the best thing that could have ever happened to us since losing you. I honestly don’t know what I would do without her. She is still the most peaceful little thing. No crying, no fussing, just lots of eating, sleeping, and love. We all cannot get enough of her.

I keep telling myself if I can just get through these tough, tough days, that I have so much to look forward to these coming months. Dr. Sholler is coming into town on Sunday, so I will get to spend a few days with her and pick her brain in regards to my master plan. We have made some plans for dinner and some hikes. I am so excited to have her here and she is so excited to meet your baby sister. I’ve got Macy coming in to stay with us for about 5 days and you know everyone in our house is so excited about that. Bri Bri is also coming out and so is our little, Rachel. It will be nice to see my favorite girls and spend some time with them. As Dr. JoRo says, “Did you ever know that so much sadness and so much happiness could coexist?” I never would have believed her if she had told me this a year ago, but now I find it to be so true.

Alright little man. I must go. Poppy wants the boob. I miss you. I love you. I hope you are safe. Sweet dreams.

xoxo

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Thank all of you…

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For remembering Ronan. You all are insanely amazing. I have literally received thousands of emails, tweets, texts, phone calls, blog comments, etc… about Ronan. I hope you all know how much it means to me. Thank you for remembering my sweet boy. I appreciate each one of you, so very much. If I could, I would kiss the ground you walk on and sprinkle you all with glitter. Thank you for helping this broken-hearted mama, get through this month of May. And an extra special thanks to my very amazing friends who are like family. The best kind of family to have. I love you all and consider myself so lucky to have you all surrounding me. Best sisters ever.

I love you all to the moon and back. Ronan does, too.

Thank you to one of my little Twitter followers for the picture above. So very sweet.

xoxo

A death day and an almost birthday

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Ronan. We made it through your death day the best we could. I didn’t sleep much the night before and I even had my alarm set to go off during the time that you passed away, just so I could be awake. I didn’t need the alarm because your Poppy sister woke me up almost exactly at the time you left this earth; because she wanted to eat. Of course she did, right Ro? Poppy knows what’s up. I did a lot of my crying the day before you passed away, a lot of it the night before, and still a lot of it on the awful day itself. I picked up the phone on your death day for the one person that promised to call and the one person that I would pick up for. Your Sparkly. I started crying as soon as I saw his name pop up on my screen. I let him do what he does best which is say a few things to help me get through the day. I didn’t say much, just quietly cried instead and told him I loved him. Not many words were needed by either of us.

We spent a quiet day in Sedona together by the river and in the woods. We had a little lunch and an early dinner. At one point, your Daddy and Liam ran into the store while Quinn, Poppy and I waited in the car. Quinn was changing the music in my car and a mixed C.D. that I had made, came on. The first song being, “Ronan.” He seemed so excited about it. “Oh! I haven’t heard this song in forever!” I just smiled at him and told myself to let it play while I sat in the back seat next to Poppy. It only took about 5 seconds of listening to that sweet voice and those oh so powerful lyrics before I lost it completely. Full on could not breathe, sobbing, as I wiped tear after tear away. I am still amazed at how Taylor did the most beautiful job at capturing my grief in such a way that it leaves me breathless every time I listen to your song. I love it so much, but it is so hard for me to get through. Quinn just watched as I cried, bent his head down, and held my hand. I don’t know if I’ll ever be able to get through that song without crying. I could see every single word play out in my head like a real life movie except it’s not a movie, it’s my life and it never gets any easier.

Once we were back to our hotel and the sun was setting, we all headed down to the creek with our 6 purple balloons and a Sharpie pen. We all took turns writing on our balloons. I’m sure it was quite the sight the 5 of us, all huddled together, writing our thoughts to you. At first Quinn only wrote a couple of things. It went a little something like this:

“I miss you, Ronan. I love you to the moon and back.”

But then he said, “Wait! I need to write more!” It ended up being a novel for as much of a novel that would fit on one purple balloon. He said some other things that I tried to read out loud, but I started choking on my tears as I read his words.

“I wish you were here. I was really looking forward to watching you grow up and play baseball and basketball. I miss you.”

Liam’s words went a little something like this:

“Ro Ro. I miss you. I am so proud of you. You are so strong. I love you.”

Your daddy wrote his words, I wrote mine, and Poppy wrote hers;). We went down to where there was a clearing in the sky from the trees and let our balloons go. Only Liam’s made it out of the trees. The rest of ours got caught up in the branches above. Liam was jumping up and down in excitement as if it were a competition. It made us all laugh through our tears. I’m sure you giggled, too.

We had to come back from Sedona on Friday because your brothers had a basketball tournament to play in on Saturday. It was the playoffs for the YMCA team that your Daddy has been coaching them on. If they ended up winning, they would play again that night for a chance to go to the finals and play next week at the Phoenix Suns arena. They won the first game. After it was over, we ended up taking your brothers and 3 of their friends/teammates out for pizza. It’s these happy moments that I see through your brothers eyes that keep me going. We all sat there together at a table full of boys and we gave them a pep talk about their upcoming game. There were a lot of laughs and the talking was non stop. I am blown away at your brothers and so thankful for what respectful boys they are. Not only them, Ronan but the little group of friends they have made as well. The table was full of please’s, thank you’s, Yes, Mr. Thompson, No, Mrs. Thompson, all coming from a group of 9 year olds. At one point your daddy looked at me and said, “How much would Ronan have loved all the boys’ friends?” So much, Ronan. They are the nicest boys, the hardest little workers, and just so respectful. I know you would have been in the middle of them, causing your little mischief and they would have eaten it up with a spoon.

Your brothers won both games today, Ronan. I looked at them before their last game and said, “Do this for Ro,” as I gave them both knuckles. They both smiled at me and said that they would. I sat back tonight and watched as your brothers played their hearts out and I know it was all for you. Liam had 19 of our 22 points. They were both on fire and so determined to play in the finals. I love watching them play this game so much. I love watching your Daddy coach them. He is amazing at he and is the reason they have become such good little players. He works so hard with them to make them the best players that they can be. It makes me so proud of all 3 of them. I remember how when you were so little and so freakishly coordinated at such a young age how your daddy would talk about how he couldn’t wait to coach your teams. You would have been such an amazing athlete. Our mini Pat Tillman as we used to say. I’m sorry buddy. So very sorry.

It’s late. As soon as your brothers game ended we headed home to get our things so we could head to Tucson. We didn’t want to spend your birthday tomorrow sitting around our house being sad. So, we are taking your brothers to a resort that has one of the biggest water slides in all of Arizona. We will let them run around and be crazy for you tomorrow. Tomorrow we will all do our best to celebrate you by doing something you would have loved. Your brothers are very excited about doing this for you. I will do my best to put on my bravest smile to get through the day. I have a feeling your little sister will help me out. She seems to have a knack for this already. She is already helping me so much just by being here and making me feel like I have a tiny piece of you back. Thank you so much for her, Ro.

Happy almost 6th birthday my spicy little monkey. I love you so much. I miss you. I hope you are safe. Sweet dreams.

xoxo

P.S. Happy Mother’s Day to all of you mum’s out there. I hope you have a beautiful day tomorrow and I know you all know how lucky you are. Please don’t ever forget that.

To all of my mom’s out there who are in my shoes…I know tomorrow will be rough and for that, I am so sorry. I wish you a day full of gentleness to just get through the day. Just getting through the day is something to be proud of. Here is a little lesson I have learned after going through something like this. Days like tomorrow will never get any easier. Ever. So on a day like Mother’s Day when it is supposed to be all about us, take this one day and stop trying to please other people. Take this one day and acknowledge your grief, don’t apologize for it, and do what it is that would make you the most happy on this day. For me, tomorrow isn’t about me and that makes me happy. I would much rather just spend the day celebrating my Ronan through the eyes of Liam, Quinn, and Poppy with my amazing husband. And you know what?? If tomorrow comes and I decide that I can’t get out of bed and do a thing, I know I am surrounded by the people who love me most in the world and they will be o.k. with that. I have learned that surrounding yourself with people who have no expectations of you, is the best way to get through these holidays that are so bloody hard now.

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2 years makes me want to rip my hair out while screaming for you like the wild animal that I am

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Ronan. I’ve started to write a few times, but I’ve erased everything over and over again. I don’t know how to put into words what this day feels like; almost 2 years without you. Your Poppy sister has been a great distraction. So much so that I find myself missing my grief and my pain. So much so that I feel like I am betraying you by not feeling the intensity of my grief as much as I used to because your Poppy sister makes me feel that peaceful. I knew the 9th was coming, but it’s like I’ve had my head buried in the sand because I’ve been trying my best to hide from it. There is no hiding from this day. It will come no matter how much I beg and I plead for it not to. Everybody that knows us, knows what this day brings and those who have forgotten, well what can I say?? Life goes on for them, right? Of course it does. Or as the French say, “C’est la via. Those closest to our hearts are here with us on the day of hell in one way or another. Those closet to our hearts, know how hard this day is for us and are kind enough to acknowledge it. It means so much to me that they do. And those beautiful strangers, Ro. Wow. Oh so beautiful indeed. You would not believe the outpouring amounts of cards, emails, tweets, texts, Facebook messages, etc… that I am receiving. With each and every single one, the tears fall down my face. Love and tears, love and tears, so much love and tears, Ronan. So many beautiful souls are being guided and changed, all for the better. All because of you, the most beautiful little boy to ever walk the planet. Bittersweet beauty I call it. So very bittersweet which you know is the theme of this life I’m now left behind in.

Yesterday was when it really hit me that your 2 year death day was approaching. I went to see your Sparkly before we left town. We sat and I think I looked like a deer in headlights for much of our time together. So much so that at one point I had forgotten for a split second that it was the month of May as I refered to something that was supposed to be happening, to happening in April.

“Sweetheart, it’s May. If that was supposed to happen in April, you need to check up on that,” he said to me while my eyes filled with tears.

Even though I knew it was May, for a split second it slipped my mind because that’s how much I did not want this month, to happen. Seems silly right? I mean, no matter what month it is, you are dead. Nothing can change that or bring you back, even if we could fast forward through this month entirely.

I just looked at the floor. I then looked back up at him.

“2 years, 2 years, 2 years. How can that be already?”

He gave me some smart ass answer to try to make me laugh. I kicked his foot in protest and when he saw that his little wise crack was not going to work, he went into something more serious. Something about my pain and how my pain is never going to go away, but look at all the good I am choosing to do with this pain. How I could have done nothing or even worse, I could have let this pain ruin my life, but I chose the opposite. It was the best pep talk he could give me 2 days before your Deathiversary. We sat a little longer and stared at your sister while catching up on other life things. Right before I left he looked at me and said, “He is o.k. I promise you that.”
I said to him, “How do you know?” “You just have to trust me. I know,” he said. I did what I always do which is made him promise me again. He did. I know he believes this. I believe him, but it still does not take away any of my worry over you. I will forever worry about you, Ronan. I worry about you so much and I don’t think that will ever go away. I am your mother. I will worry about you for the rest of my life even though you are not here on this earth. It’s part of what makes me forever your mom.

We left town. Had to leave town as being in Phoenix tomorrow on the day you died is not anywhere I ever want to be on this horrific day. My idea of putting us all on a plane to Ireland didn’t happen due to not wanting to compromise your Poppy’s sisters non-existent immune system. We drove up to Sedona instead. We spent some time with Dr. JoRo. She bought you a “We miss Ronan,” cake. Please tell me what other therapist in the world would have done something as thoughtful as that, Ronan? I’ll bet you a big fat NO OTHER THERAPIST IN THE WORLD. She is truly amazing and I will forever tell you thank you for her. The world needs 10,000 more of her on the planet. We will spend tomorrow together as a family missing you so much. I will try my best not to reenact the end scene from, “Thelma and Louise,” where they drive off a cliff together. I think your Poppy sister is too young to be my sidekick for that adventure. We will go and throw some rocks over a cliff instead or do something a little more safe but totally dangerous too in a PG-13 kind of way. Please just help me get through the day, o.k.?

This is all I can write tonight. Did I even make sense? I haven’t slept much so sorry if my thoughts are not flowing very well. This was the best I could do tonight through a heavy heart and blood-shot eyes. I miss you so much.

G’nite baby doll. 3:25 a.m. when you took your last breaths will be here soon enough. I’ll be up of course, screaming and crying for you as silently as possible as not to wake up your daddy, brothers or sister. I miss you. I love you. I hope you are safe.

xoxo

P.S. I’ve also decided that tomorrow is National F U Cancer Day. It will never be the day you flew off to go be an angel or went home to where you belong. Fuck that shit. You belong here with me and anybody that says otherwise is a douchebag idiot. Tomorrow is an asshole of a day, thanks to that bigger asshole named cancer so there it is, May 9th National F U Cancer Day. Thanks for killing the love of my life and so many other innocent victims. I will be giving you my best middle finger tomorrow painted extra purple and sparkly just for you, Ro.

As your Mr. Sparky Eyes would say, FUC. I couldn’t agree more.

 

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  • Instagram is my BFF

    Off the grid. #poppy #ronan #fucancer #sedona #naturebaby #theadventuresofpoppythompson Good Morning from Sedona! #poppy #ronan #fucancer #poppyroo #sedona #poppyhasanewbestie #francis @jcaccia Sweet dreams, little ones. #poppy #ronan #fucancer #thisroomisrad #sedona #nightynight
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