A Golden Night All For You

Ronan. I woke up the morning of The Gold Party, sobbing hysterically. I finally saw you in my dreams. You are never in my dreams. It was horrific and left me pretty shaken up for most of the day. I dreamed the entire night, about watching you die. You were in a hospital. You were so sick, that I couldn’t pick you up. You had bed sores all over your entire body. I kept trying to record your voice on my phone, because I knew I would never hear it again. I woke up and tried to put this dream, behind me. It didn’t happen. I came back into bed, threw myself down and cried for you like I haven’t done in a while. Your daddy stroked my hair and asked me what was wrong. It took me a while, to get the words out, about my dream. You daddy listened and then said, “But he didn’t die in pain. He fell asleep in your arms, peacefully.” I wish I could say that made me feel better, but it only made me miss you more. I hate our reality so much. I wish I would have had that nightmare, and still had you to wake up to. That dream will forever haunt me. I hope one day, I can dream about you the way I know you would want me to. In a way that is beautiful and happy, just like you were. The nightmares are awful, but they don’t hold a candle to life here without you.

I have Macy and my little New York hipster, Rachel in town. They are both staying with us. It makes me so happy, to have them here. You would have loved Rachel so much, Ro. Your brothers do. Your daddy does. So does Macy. She feels like part of our family. I try to think about the good things in my life now, this blog of course being one of them for me, just due to all the beauty that has come out of it. I wouldn’t have Macy or Rachel, without this blog. I cannot imagine my life, without them AND without you. They feel like the sisters I never had, but have always had due to the natural bond and connection we have. I love that Rachel volunteered at Sloan and remembers seeing you there, shooting your guns. She is such a good girl. One that will help us change the world and all of this. We all went to watch your brothers basketball game. Quinn was in giggly heaven. Liam was so focused. I felt so proud. I only wished I would have had you there, sitting on my lap. They won their game, again. Those boys are on fire again and I love to watch the way this sport is building their self-confidence. They look so happy, Ro. I know they miss you so much, but I can see happiness from them which is what I need to see from them. They deserve to be happy as they didn’t do anything to deserve losing you. None of us did.

I spent the rest of the afternoon, laying low as I knew I had a big night ahead of me. I took a little nap and got up around 3:30 to head over to The W Hotel to hang out with Charisma. We got ready in her room together. It was a mellow few hours with my friend that I very much enjoyed. She looked so stunning and I was so thankful that she flew in, to host this event for us. I really just wanted her to come and enjoy herself and I think that she did. She got to spend a lot of time talking to our friends and your daddy which I know she loved. The Gold Party was even better than I could have imagined. I knew it was going to be amazeballs, due to all the hard work everyone has been putting in, but everything about it blew my mind. It felt so much like you, which was so important to me. Nothing stuffy or over the top. The evening was laid back with such a good energy filling up the place. I swear I heard laughter everywhere I turned, which you know for me, is so important. It was packed. I cannot believe all the people who came out to support you. I had people fly in and drive from all over the county. Can you believe that? It made me seriously cry. All for you, Ronan. They all came, for you. I am thankful for all the love that you continue to fill this world with. I am thankful everyday, for the people that see the beauty behind all of this pain and sadness. I am thankful everyday for all the people who are going to help us change this awful world. I got to meet so many sweet faces and listen to their kind words. Thank you to everyone who came, helped, donated, and volunteered. Those busy little bees of ours, are the BEST. I spent the entire evening, trying to get around to as many people as possible. It was not a hard night for me, in spite of the reason behind this party. I do really well in situations that solely revolve around all things you. This night absolutely did. Of course, I would have given anything for this Gold Party to never exist, because you were still here. I go over this all the time in my head. I can’t have my way with that. I can’t magically bring you back. This is the way, by doing things like this, that I get to keep you alive while making a difference for others. This is the way, I get to have you still and share you with everyone else who has been so touched by you, that they want to help us too. That is the most bittersweet gift, Ronan. But it is my gift, from you and I am not going to waste it by sitting back and doing nothing. I will forever celebrate your life, your beauty and our love by continuing to do things like this. I just hope everyone at that party took a second to stop and remember why they were there and what truly matters in life. I don’t want our message to ever get lost. Yes, this is our story, but it is the story of so many others out there who have lost a child to cancer, who will lose a child to cancer, who will have a child diagnosed with cancer, who will have a child survive cancer…. Unfortunately, there is no shortage of stories like ours, out there. Unfortunately, cancer does not discriminate based on age/gender/income/if you are a good person or bad person… This could be anyone’s story. I just hope to make this story, a little better for someone else in the future so less people have an ending like ours. I know this is not the end of our story, Ro. But everything would be so much better if I could do all this, while still having you here, because you had survived. I would still be doing all of this, if you were still here.

You know how I know I had a good time at The Gold Party? Because we didn’t get home until 3 a.m. This pregnant lady, stayed out until 3 a.m.! We all came home, so tired. Macy went and curled up in Quinn’s bed. I came in to snuggle with her and giggle about the nights events. Rachel came in a joined us. It felt like a little slumber party. Rachel was saying how she was so excited to sleep with Liam’s cozy brown blanket, that is seriously the softest blanket in the world. I knew which blanket she was talking about. I almost didn’t say what came out of my mouth next, but if you can’t say these things, in front of people that are like your sisters, then who can you say them in front of? “I have something to tell you about that blanket.” “What?” Rachel and Macy both said. “That’s the blanket that Ronan died on.” It was quiet. Macy grabbed my hand. I grabbed Rachel’s. We sat for a few minutes, saying nothing and just cried. No words were needed. I love that about those two. They always know when words are needed and when they are not. I think it was Macy that  said next that you would have loved the party tonight. And Rachel quickly chirped in, “But then he would have kicked everyone out and screamed how this was HIS party and nobody else’s.” That made us all laugh. We soon went to bed after our laughing and crying. It was 4 a.m. before I got to sleep. I fell asleep a little restless and a lot sad, like I do most nights.

Rachel left last night and Macy left today. I was sad to see them both go. I will see Rachel next week though during my little New York trip. I can’t wait. I am ready for a break from all of this sunshine. Nothing makes me happier than the crisp New York weather. I hope my rain is waiting for me. This is all for tonight, Ro. I’ve been having a Poppy puking party most of the day and I am wiped out. Thank you again to all of my board members for throwing The Gold Party together. Thank you, Charisma for hosting. Thank you, Danny, for DJing. Thank you to everyone who donated or bought auction items, tickets, tables, etc. Thank you to the BEST photographer and friend, Emily Carroll for her photo booth. Thank you to all of our volunteers, The W Hotel, and everyone who supported The Ronan Thompson Foundation. Thank you to all of our friends who came out to celebrate Ronan. You all humble me. I know Ronan is so proud.

Goodnight, babydoll. I miss you. I love you. I hope you are safe.

xxoo

P.S. I have one little thing to say, that has been gnawing at me. I THINK most people that were at The Gold Party, were there for the right reasons. I am sure there are a few JACKASSES, who were not. I heard about a little fight over a certain item that was auctioned off. If what is being said, is true… and somebody was bullied over this item, in the most immature way…I AM SO SORRY to the person who really wanted it, but did not end up getting it. The story that is going around, is pissing me off. I wish I would have been there, to intervene. To know that something so petty happened during a night that should have been full of all things sweet and beautiful, just goes to show there is no shortage of douchebags. Sorry, C. Nobody should be treated that way over a material item. Thank you for walking away.

Here are some pics from the photo booth that night. Enjoy them!

https://www.facebook.com/TheFlasherPhoToBooth/photos_stream

Meet Your Host For The Gold Party. I am Honored to Call Her, My Dear Friend. She is a GEM!

 

 

 

 

http://www.arizonafoothillsmagazine.com/features/features/4537-q-a-a-with-charisma-carpenter-for-the-gold-party.html

The Gold Party is this Saturday Night!

It’s going to be amazeballs! Buy your tickets now or you can also purchase at the door! I hope to see you all on Saturday!

http://www.theronanthompsonfoundation.com/node/258

The Gold Party hosted by the lovely Charisma Carpenter!

http://www.arizonafoothillsmagazine.com/extra-extra/news/4375-charisma-carpenter-hosts-gold-party-for-the-ronan-thompson-foundation.html

An L.A. Adventure

Ronan. Hi. Where are you? How are you not here, snuggling with me? Somedays, I can hang out in your room and not even cry. I then think to myself, what is wrong with you? How can you be in here, and not have a full on breakdown? The love of your life is dead and he is never coming back. You are in his room with all of his things and you can sit in here, and be alright with this? Is life moving on for you, too? The way is has for everyone else? Somedays it feels this way and it is like nails on chalkboard. I don’t want my life to move on. I don’t want my life to be alright without you. That to me is so wrong. But what choice do I have? I have to have alright days once in a while in order to survive this, right? I deserve to have alright days, too. I still hate them, but I manage to get through them. Somedays I even laugh and smile. Not often, but I don’t seem to cry as much anymore. I used to cry, every single day, 10 times a day. Now the crying is less. It is not because I miss you any less but maybe because I am just so used to this pain, that I am living with it a little better.

Your daddy and I had a trip planned to L.A. this week to go to a fundraiser of some friends of ours. Our week was super busy and your daddy has been slammed at work. I have been so exhausted that I have been trying to keep up with things, but all I can really seem to do, is sleep. Your daddy looked at me on Tuesday night and said, “You sure you’re up for this? The drive to L.A. for this quick trip?” I thought about it for a few minutes. I told him I didn’t care how tired or how much I was throwing up. We were going. That our friends were counting on us and we were not going to let them down. I may have thrown in plus, “Robyn bought all this really cool stuff, to do our nails with.” He looked at me, smiled and said alright. We left Wednesday evening at 9:30 p.m. Your daddy was writing motions at his office up until then. We hopped in  his car and I let him drive us for 4 hours, after he had worked about 40 hours in 3 days. It was around 1 in the morning when he finally looked at me and said, “It’s 1 a.m. we’ve still got two hours ahead of us. Let’s find a hotel and stay the night.” This was not part of our plan. “No hotel,” I said. “Pull over, I’ll drive.” “Maya, you are pregnant and tired. You are not driving.” I, of course argued with him. “I am totally fine. If I get tired, I promise I’ll tell you.” He pulled over. Into the drivers seat I went, with the music happily blaring. I love long road trips. They always give me a lot of time to think. And think I did.

I got us to Charisma’s house around 3 a.m. I looked at your daddy and said, “Please don’t try to talk me out of doing something, ever again. We are here, safe and sound.” Charisma is away shooting her T.V. show and was sweet enough to let us stay at her place, which just happened to be about 5 minutes away from the venue of the event we were going to. We crashed out pretty hard until 9 a.m. that next day. Dr. Sholler flew into town on the day of the event, that Thursday, and we picked her up at the airport. It’s always a treat to spend time with her. We spend much of the evening, catching up with her and everything that we/she has going on. You know the question I asked her, of course. How could I not?

“You know what I’m going to ask you. What if this baby, has Neuroblastoma as well. I am so scared about that.”

She looked at me in that thoughtful way that she always does. I could literally see her thinking, before speaking, which is something that means so much to me.

“Maya. This baby is not going to have Neuroblastoma. That is unheard of. But I know what you are thinking… that lighting has already struck once. I understand your thought process, but I am telling you, this baby is going to be fine.

I was trying my hardest not to throw my head down on the table and cry. I let myself trust in her words. I cannot believe she never had the chance to meet you are help you. She would have been our best shot at this beast. I know this with all of my heart. That woman has something so different about her, that I will spend the rest of my life supporting her, helping her, and making all of her dreams come true. I know she is going to be the one, to fix this disease. I can feel it in my bones. I believe with my whole heart that she is truly in this, to cure these kids. This is not about money to her. This is not about anything other then her wanting to save these kids. She cares so much. You would not have been just another lab rat to her. You would not have died in the name of research with her. You would not have been just another number and we would not have been tossed out on the streets, to never been checked on again. Fucking assholes.

We went to the event to support our friends. They did an awesome job and I am so proud of them. We are all in this, together. That’s how things will get done. That’s how things will change. It was hard for me to be at this event, I won’t lie. I spent a lot of the night, wiping away the tears. I wished this wasn’t Robyn and Kyle’s story, as much as I wish it wasn’t ours. They are hands down, one of the most amazing couples I’ve ever met in my life. We share a special awful bond that nobody should ever share. They will be our forever friends and you and Ezra, are going to help us do amazing things. I know this, no matter how many people doubt me. No matter how many people tell me, I’m crazy, this can’t be done, it’s too hard. It can be done and it will be done. You fucking died. Kids are fucking dying everyday from childhood cancer. You fought with everything you had to stay here. So, please, tell me again how nothing will change how this world is too hard to fix how nobody will believe in this or trust this or can do this. Tell me that again and I will say to you what I tell myself over and over and over every single day. I have to live every single day without Ronan. If I can do that, I can achieve anything I set my mind to. I know what I am doing. I have a very specific plan and it will get done. I can change this world. It will change. If you knew my son, you would know this, too. I believe in the power of our love. It is the power of our love, that keeps me from doubting anything, Ronan. A love so powerful that the unthinkable can and will be done. I know this in my heart. I know this in my soul. I know this with everything I am.

We drove home Friday just in time to meet some people for dinner at Chelsea’s Kitchen. Some wonderful people who share our same thoughts and visions. Some wonderful people who believe in you and this cause, as much as I do. That’s all I need, Ro. Is people that believe. I spent much of the evening going over our master plan. I spent much of the evening, listening to the advice and help that I so desperately need. I spent much of the evening, feeling thankful for the people that you are putting in our path. I don’t believe in coincidences. This is all you, working away with only the BEST people to help us on this adventure of ours. Thank you for that.

I love you. I miss you. I hope you are safe. G’nite my spicy monkey boy.

xoxo

More Gold Party Details!

I had a board meeting last night at The W. I am so excited for this party! It’s going to be Romazing! I’ve had so many people ask about the details for tables, which are going fast. As of now, you can purchase a table starting at $700 dollars. This includes: 10 tickets to the party, a bottle of Magnum Champagne and a bottle of Belvedere Vodka.

If you would like to purchase a table, please use the contact info below. But hurry! They are going fast!!!

RSVP
For VIP table reservations contact VIP@triyar.com or 602-405-0099

Again, here is the link to buy regular tickets. Those too, are going really fast. Thank you so much to everyone who has been buying them!!!

http://www.theronanthompsonfoundation.com/events/goldparty

Thank you to my sisters/family/board members who have worked so hard on this. I am so lucky to have you all in my life. This event is going to be so special and fun!

See you all there!

xoxo

Ronan. I’ve been writing. Just not posting. I know you know why. I’m sorry. Today, I’m doing the candy cart for you at PCH. I think it’s going to take a lot to get me through today. I think I could use you around, to help me. I’ll be seeing lots of little bald heads, but yours will always be my favorite. I love you baby boy. I miss you so much. I promise to post what I’ve been writing, soon. I just can’t right now. I love you. I hope you are safe.

xoxo

 

 

Tickets are now on sale for The Gold Party!!!

Please somebody come dressed like this.

It’s going to be the BOMB! Tell all your friends! Hope to see you there!!!

xoxo

http://www.theronanthompsonfoundation.com/events/goldparty

The Gold Party

Gold is the ribbon color for childhood cancer awareness. September is the month for childhood cancer awareness. I wanted to do something special, to represent both of these things during the month of September. I want to make the whole world know and understand what the Gold Ribbon means and I want to turn the month of September into making the whole world aware of how important this month is to all these kids fighting for their lives.

I played around with a lot of ideas for what we could do for this event that we have slowly been planning. I came back to my first idea after getting a great response when it was brought up at a board meeting.

Let’s have a Gold Party! Let’s invite the whole wide world and have them rock the color gold, for a very special reason. Thanks to the hard work of my board members, and the generosity of The W Hotel, the pieces are falling into place and I am so excited!

My very special dear friend, (who I sometimes think hung the moon) Charisma Carpenter, offered to fly in and host the event. We will have Danny Masterson (Hyde from That’s 70′s show) as our celebrity D.J.! D.J. Mom Jeans is sure to bring the house down with his mad skills. I’ve been watching his beats on YouTube and I can’t stop dancing.

Tickets are not on sale, yet, but I will let you know when they are. I just wanted to get the word out as early as possible, especially for any of you that may want to come from out-of-town for this great event. Tickets are super affordable, 25 bucks a pop. I love that:)

I hope to see you all there, rocking your crazy gold ensembles! Thank you for all you are continuing to do in this fight for childhood cancer. I love your hearts.

xoxo

 

Happy Birthday to my Charisma, yesterday! And Huffington Post is RAD for the Rockstar Ronan shout out!

 

I didn’t write on here yesterday, but it was our dear Charisma’s Birthday. Happy Birthday to one of the truest souls to walk this planet. We are so lucky to have you in our life. I love you.

Love,

Maya and Ronan

 

http://www.huffingtonpost.com/2012/07/23/charisma-carpenter_n_1693894.html

Updates on The Ronan Thompson Foundation Website

 

 

http://theronanthompsonfoundation.com/

Our new lovie and artist of the month:) Good things happening.

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