I love your Poppy sister to the moon and back.

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Ronan. Sometimes I just sit here at this computer screen, wondering what to write because the only words I can think of are… I just miss you so much. That’s it. I just miss you so much plays over and over in my head like a broken record that I will never turn off. Tonight, I guess I have a little story for you that is mostly about your sister. I’m not going to lie, Ronan. I was a little unsure of how things would be once she got her. All of my usual doubts filled my head. The thousands of questions. Will I be able to love her enough? Will she love me as much as Ronan did? Can I still be a good mom? Am I worthy of loving another child? What if we don’t connect, bond, etc… What if I am still so numb, that I feel nothing? Am I betraying Ronan? Would he be mad or sad or jealous? Am I hurting his feelings by having another baby and loving it? The things I worried about in my head seemed to be never-ending and oh so dramatic, but they were my real life thoughts about all of this.

Then that day came that your sister was placed in my arms. I can honestly tell you that I was so overcome with so many different feelings, that it was hard for me to feel a thing. So I just stared at her while she stared at me. The first thing I whispered in her ear was something like, “Ronan loves you.” Then my mommy mode adrenaline rush of I can do it all kicked in. So it was a constant stream of auto pilot everything. Feed baby. Change baby. Sleep baby. Tend to mama just pushed out a baby war wounds. Eat mama. Sleep mama. Drink mama. Shower mama. While taking care of other kids, laundry, people wanting to meet her, phone calls, emails, a few blog posts, foundation things, don’t forget to grieve mama, the questions of “how are you really doing from my friends and family seemed constant. But with all that adrenaline rushing, I was able to keep a safe distance away from really feeling that deep connection with your Poppy sister. Oh, I knew I loved her, but I had been keeping myself so busy as if to not let myself fall in over my head. My guard was still up I guess you could say. My mind was still trying to go to that place of don’t get too attached, in case something happens. So, I guess you could say at first, I was dating Poppy in a way. Testing her out to see how things were going to go.

I’ve spent the past few weeks, slowing everything down. I’ve spent the past few weeks, letting myself and my relationship with Poppy unfold a little more. We spend much of our days, sitting quietly. Her constant need to be fed has helped us to bond. We do everything together. I can’t even put her down in her crib to sleep, so she has been sleeping in our bed. For as slowly as I’ve watch things unfold, I can’t stand the thought of being separated from her. I talk to her a lot, even when she is sleeping. My favorite part of the day is when I lay her down to be changed and she just stares at the big picture we have of you in her room and while she is staring, she smiles at it from ear to ear. She’s been doing this from really early on, when babies aren’t supposed to smile at all. She started this at about 2 weeks when babies are supposed to be blind as a bat. I watch her and say things like, “Is Ronan telling you secrets again?” I scoop her back up, rock her and then sometimes look down at her and think to myself, “Are you really Ronan? Because if you are not, I had no idea I would be able to feel this way again. This close and this strongly connected to a new baby after losing my everything. Either you are Ronan or Ronan sent you because he could not take how sad I was anymore. He sent you to try to help fix my heart and soul. He could not have picked a more perfect baby girl to heal my heart.”

The past few days, I’ve felt nothing but this euphoric happiness. Happiness that has only come because of your sister. I see it through everybody, but it’s through myself that I can actually feel it. I am not dating Poppy anymore. We are full on in a crazy, love affair, forever will be married, marriage that I am over the moon about. I without a doubt know, none of us could have really survived this life and lived this life in the way we should be living it, if it were not for your sister being born. Everything has shifted in such a good way. The energy in our house has changed. I’m getting more of those beautiful moments in life that I often talk about from the simplest things. Beautiful moments seem to be everywhere I look, Ronan. I am no longer fighting them or scared of them. I feel so lucky and blessed and this is all due to this gift you have given us which is her.

Dr. Sholler has been in town and you know I am always crazy happy when she is here. Your daddy, Poppy and I picked her up from the airport on Sunday. Before she got in our car, she sent me a text. “Can we hike?!” I laughed out loud. I said to your daddy, “Giselle wants me to take her inferno hiking. She is such a badass.” I told her of course we could. Your daddy said to me, “Are you sure about that? Did you tell her how you almost killed your intern, inferno hiking?” I told him to hush, that she didn’t need to know that. I did warn Dr. Sholler that it was going to be hot, but she was totally game. I was feeding Poppy in the backseat of the car when she arrived. Your daddy parked and went to walk to get her. As soon as she got in the front seat, she scooped up your sister into her arms so she could hold and love on her. I was blown away. Watching the two of them meet was something that will stay in my mind forever. They sat and stared at each other for a long time and Dr. Sholler was such a natural with your sister in her arms. That’s what makes her so different from other doctors, Ronan. She doesn’t have that compassionate chip missing, for being such a bloody freaking genius that a lot of people do. She doesn’t have a fucking ego or agenda. She cares so much not only about her patients, but the family’s as well. Even the one’s with the dead kids. That is so beyond rare. She is such an anomaly in this world. She is my hero and I am so proud to be a part of the things she is doing and will be doing in the future for these kids fighting Neuroblastoma. I will forever be sorry that we didn’t find her sooner.

I took Dr. Sholler hiking. We talked a lot about cancer things, but other things as well. I asked her the million dollar question which was, “What do I need to do to make sure Poppy doesn’t have cancer?” I said, “Do I do nothing and just trust in the Universe that completely screwed me over? Do I start having her urine tested? Do I get her blood tested? Scanned? Please, just tell me.” We talked about how a urine test after 2 would be a non invasive way to just make sure everything is o.k., but ultimately Dr. Sholler wants me to just trust in you. She told me that your sister is fine and is going to be fine. I tried my best to listen and trust in that, but it’s really hard to do so when your entire world has been shattered. Fast forward to today to prove my point on that.

I fed Poppy this morning. I burped her after. I set her in her bouncy so I could pack Liam and Quinn’s lunches. I heard Poppy coughing a bit so I picked her up. Bright yellow vomit/spit up goes flying all over my shirt, not once, not twice, but three times. I go into show your daddy. I see Poppy looking a little pale. In my mind I’m freaking out and everything in me is screaming, “SHE HAS CANCER!” Your daddy makes light of it. I do not. I text our pediatrician. She texts me right back and says it’s probably curdled milk, but if I want she will check her out and feel her tummy. I of course, ask her to make me an appointment to bring her in. So, I sit and wait at home for our appointment. My mind goes to all of those awful places while the tears pour down my cheeks. This is my life now. This will always be my life now. I’ll never escape this world where a little thing is just a little thing. A little thing to me, will always mean cancer. I know I have to learn to let some things go, but today, this lesson was lost on me. Today, it was all I could do not to run down to the hospital demanding to have her scanned. Dr. Campbell calmed me down and told me everything it could be, none of it being cancer. She pushed down on her tummy and told me it was soft. She told me your sister is fine. Your sister is fine, Ronan but I will never be fine again. Not when it comes to normal things like yellow spit up, tummy aches, aching muscles, headaches… I will always think the worst. I thanked Dr. Campbell and she told me she would do tummy checks on Poppy everyday if I wanted her to. That she would come by our house even and to text her whenever I was feeling uneasy about something. I smiled and thanked her again. Once again, I am so lucky to have such an amazing doctor who truly cares, taking care of our family.

We are home. I am exhausted from not sleeping well last night. I guess I was also a bit wired from the amazing night I had with Dr. Sholler and some great peeps from T-Gen. I took Poppy with me. She goes everywhere with me and didn’t make a peep. Best baby ever. So many wonderful things are in the works and I am so honored to be able to be surrounded by such amazing people, who share the same dreams and visions as I do. Together, we are going to do extraordinary things.

I miss you. I love you. I hope you are safe.

xoxo

The days of hell are over, but never really end.

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Ronan. Your 6th birthday came and went. I kept wondering to myself, what kind of party we would have had? I asked your brothers, “Do you think Ronan would still like Star Wars if he were here?” They assured me that you would have so in my mind, for the 2nd year in a row, I threw you a Star Wars party. I clung to my imaginary party in my mind to get me through the birthday from hell that I had to have without you in real life that fell on Mother’s Day this year. Your brothers and daddy did their best at spoiling me so by telling me how much they loved me, what a great mom I am, how lucky they are to have me, etc… They tried to make the day about me as much as they could but I ended up saying, “This day isn’t about me, it’s Ronan’s day so let’s do everything Ronan would have wanted to do.” So we did. We went to a brunch where I ignored all the 6 year olds running about and focused only on your brothers and Poppy. We went swimming and I watched as your daddy and brothers went crazy going on the water slide that was at our hotel. I sat quietly in the shade and let my smiles, come from them. They played football in the grass and participated in a water balloon fight. After a few hours of that we went back to the room to rest and get ready for dinner. We ate at a really good mexican restaurant and we had plans to go and see Iron Man 3 (which you would have totally wanted to do) but your sister’s breastfeeding got in the way of our making the movie on time so we ended up just coming back to our room. We all snuggled up together and watched a movie from the hotel instead. Your brothers let me pick it which was very sweet of them to do so we ended the night by watching “Oz, the Great and Powerful.” Quinn gave it 5 stars. Liam gave it 4. I was just happy they both enjoyed it and it made a quiet ending to a day that I just wanted to get through without jumping off the side of a cliff.

Now I sit here on the 15th of May, reflecting on what this day was like 2 years ago. It was the day we had your funeral or a.k.a. your celebration of life which is really just a nice way of saying this is fucking bullshit that I had to cremate my kid so let’s try to cover it up by calling it something beautiful. Having my baby cremated is not the way I ever envisioned celebrating your life. Today, I pulled out the white dress I wore on your death day. The white dress that hung on my shell of a body and now hangs in my closet like a keepsake or a wedding dress because I know I will never wear it again. It haunts me hanging there and I often find myself running my hands over it, waiting for the ghost of who I was during that time, to appear. That shell-shocked of a girl who really had no idea of the magnitude of what had just happened because I was in such shock and a deep place of denial. I remember your services, barely. I remember how I was so numb, that I didn’t even cry. I remember making everyone wear white and how after everything was over how Liam went over to a fountain to throw a penny into it. I remember saying, “Make a wish!” and how he looked up at me and said, “Why? Wishes don’t come true.” I remember at that point, it took everything I had to not fall over from the pain of his words. His innocent yet not so innocent words that right then and there, shattered everything I had ever known. Wishes don’t come true, rocked my world in the most fucked up way possible. Wishes don’t come true out of the mouth of an almost 8-year-old that should not be so wise in the way that he is.

I spent a lot of today crying and staring at that white dress while I found the comfort I so desperately needed, in your Poppy sister. I can’t seem to put her down which explains the loads of clean laundry that I need put away. Laundry can wait. I’ll take the snuggles of your sister over clean laundry any day. Your brothers are getting ready for their big basketball game on Friday. So a lot of practicing has been going on over here. Tonight I left Poppy with your Daddy for a bit so I could sneak out for a run. A little 3 mile run that I nearly winced in pain with the entire time. I forgot how bad it sucks to try to get back into running after having a baby. OUCH. Everything hurt tonight but you know nothing can ever hurt as much as the pain I feel from being without you everyday. I ignored the pain from my body and pushed through my 3 miles, slowly, but I was determined not to give up or give in even though every part of my body was screaming at me to do so. I came home just in time to see your daddy through your bedroom window, sitting in on your bed in Poppy’s room. I watched as he stared down at Poppy with such a look of mixed emotions on his face as he played with her little feet. I felt like an outsider, looking in on two strangers. This can’t possibly be my house, my husband, my new baby sitting in my dead child’s room, right? A year ago I would have saw this sight and wanted to run away from it all. Seeing this sight would have been too much for me to handle. Tonight, I had no desire to run away at all and instead I walked inside our house to where your Daddy was walking Poppy all about, carrying her like a little football. I went up to her, let her focus on who I was and said, “Hi Poppy!” I watched as a big smile splashed across her face. “She smiled!” I exclaimed to your daddy. It was a smile that told me that we are all doing alright and that Poppy is the best thing that could have ever happened to us since losing you. I honestly don’t know what I would do without her. She is still the most peaceful little thing. No crying, no fussing, just lots of eating, sleeping, and love. We all cannot get enough of her.

I keep telling myself if I can just get through these tough, tough days, that I have so much to look forward to these coming months. Dr. Sholler is coming into town on Sunday, so I will get to spend a few days with her and pick her brain in regards to my master plan. We have made some plans for dinner and some hikes. I am so excited to have her here and she is so excited to meet your baby sister. I’ve got Macy coming in to stay with us for about 5 days and you know everyone in our house is so excited about that. Bri Bri is also coming out and so is our little, Rachel. It will be nice to see my favorite girls and spend some time with them. As Dr. JoRo says, “Did you ever know that so much sadness and so much happiness could coexist?” I never would have believed her if she had told me this a year ago, but now I find it to be so true.

Alright little man. I must go. Poppy wants the boob. I miss you. I love you. I hope you are safe. Sweet dreams.

xoxo

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Thank all of you…

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For remembering Ronan. You all are insanely amazing. I have literally received thousands of emails, tweets, texts, phone calls, blog comments, etc… about Ronan. I hope you all know how much it means to me. Thank you for remembering my sweet boy. I appreciate each one of you, so very much. If I could, I would kiss the ground you walk on and sprinkle you all with glitter. Thank you for helping this broken-hearted mama, get through this month of May. And an extra special thanks to my very amazing friends who are like family. The best kind of family to have. I love you all and consider myself so lucky to have you all surrounding me. Best sisters ever.

I love you all to the moon and back. Ronan does, too.

Thank you to one of my little Twitter followers for the picture above. So very sweet.

xoxo

A death day and an almost birthday

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Ronan. We made it through your death day the best we could. I didn’t sleep much the night before and I even had my alarm set to go off during the time that you passed away, just so I could be awake. I didn’t need the alarm because your Poppy sister woke me up almost exactly at the time you left this earth; because she wanted to eat. Of course she did, right Ro? Poppy knows what’s up. I did a lot of my crying the day before you passed away, a lot of it the night before, and still a lot of it on the awful day itself. I picked up the phone on your death day for the one person that promised to call and the one person that I would pick up for. Your Sparkly. I started crying as soon as I saw his name pop up on my screen. I let him do what he does best which is say a few things to help me get through the day. I didn’t say much, just quietly cried instead and told him I loved him. Not many words were needed by either of us.

We spent a quiet day in Sedona together by the river and in the woods. We had a little lunch and an early dinner. At one point, your Daddy and Liam ran into the store while Quinn, Poppy and I waited in the car. Quinn was changing the music in my car and a mixed C.D. that I had made, came on. The first song being, “Ronan.” He seemed so excited about it. “Oh! I haven’t heard this song in forever!” I just smiled at him and told myself to let it play while I sat in the back seat next to Poppy. It only took about 5 seconds of listening to that sweet voice and those oh so powerful lyrics before I lost it completely. Full on could not breathe, sobbing, as I wiped tear after tear away. I am still amazed at how Taylor did the most beautiful job at capturing my grief in such a way that it leaves me breathless every time I listen to your song. I love it so much, but it is so hard for me to get through. Quinn just watched as I cried, bent his head down, and held my hand. I don’t know if I’ll ever be able to get through that song without crying. I could see every single word play out in my head like a real life movie except it’s not a movie, it’s my life and it never gets any easier.

Once we were back to our hotel and the sun was setting, we all headed down to the creek with our 6 purple balloons and a Sharpie pen. We all took turns writing on our balloons. I’m sure it was quite the sight the 5 of us, all huddled together, writing our thoughts to you. At first Quinn only wrote a couple of things. It went a little something like this:

“I miss you, Ronan. I love you to the moon and back.”

But then he said, “Wait! I need to write more!” It ended up being a novel for as much of a novel that would fit on one purple balloon. He said some other things that I tried to read out loud, but I started choking on my tears as I read his words.

“I wish you were here. I was really looking forward to watching you grow up and play baseball and basketball. I miss you.”

Liam’s words went a little something like this:

“Ro Ro. I miss you. I am so proud of you. You are so strong. I love you.”

Your daddy wrote his words, I wrote mine, and Poppy wrote hers;). We went down to where there was a clearing in the sky from the trees and let our balloons go. Only Liam’s made it out of the trees. The rest of ours got caught up in the branches above. Liam was jumping up and down in excitement as if it were a competition. It made us all laugh through our tears. I’m sure you giggled, too.

We had to come back from Sedona on Friday because your brothers had a basketball tournament to play in on Saturday. It was the playoffs for the YMCA team that your Daddy has been coaching them on. If they ended up winning, they would play again that night for a chance to go to the finals and play next week at the Phoenix Suns arena. They won the first game. After it was over, we ended up taking your brothers and 3 of their friends/teammates out for pizza. It’s these happy moments that I see through your brothers eyes that keep me going. We all sat there together at a table full of boys and we gave them a pep talk about their upcoming game. There were a lot of laughs and the talking was non stop. I am blown away at your brothers and so thankful for what respectful boys they are. Not only them, Ronan but the little group of friends they have made as well. The table was full of please’s, thank you’s, Yes, Mr. Thompson, No, Mrs. Thompson, all coming from a group of 9 year olds. At one point your daddy looked at me and said, “How much would Ronan have loved all the boys’ friends?” So much, Ronan. They are the nicest boys, the hardest little workers, and just so respectful. I know you would have been in the middle of them, causing your little mischief and they would have eaten it up with a spoon.

Your brothers won both games today, Ronan. I looked at them before their last game and said, “Do this for Ro,” as I gave them both knuckles. They both smiled at me and said that they would. I sat back tonight and watched as your brothers played their hearts out and I know it was all for you. Liam had 19 of our 22 points. They were both on fire and so determined to play in the finals. I love watching them play this game so much. I love watching your Daddy coach them. He is amazing at he and is the reason they have become such good little players. He works so hard with them to make them the best players that they can be. It makes me so proud of all 3 of them. I remember how when you were so little and so freakishly coordinated at such a young age how your daddy would talk about how he couldn’t wait to coach your teams. You would have been such an amazing athlete. Our mini Pat Tillman as we used to say. I’m sorry buddy. So very sorry.

It’s late. As soon as your brothers game ended we headed home to get our things so we could head to Tucson. We didn’t want to spend your birthday tomorrow sitting around our house being sad. So, we are taking your brothers to a resort that has one of the biggest water slides in all of Arizona. We will let them run around and be crazy for you tomorrow. Tomorrow we will all do our best to celebrate you by doing something you would have loved. Your brothers are very excited about doing this for you. I will do my best to put on my bravest smile to get through the day. I have a feeling your little sister will help me out. She seems to have a knack for this already. She is already helping me so much just by being here and making me feel like I have a tiny piece of you back. Thank you so much for her, Ro.

Happy almost 6th birthday my spicy little monkey. I love you so much. I miss you. I hope you are safe. Sweet dreams.

xoxo

P.S. Happy Mother’s Day to all of you mum’s out there. I hope you have a beautiful day tomorrow and I know you all know how lucky you are. Please don’t ever forget that.

To all of my mom’s out there who are in my shoes…I know tomorrow will be rough and for that, I am so sorry. I wish you a day full of gentleness to just get through the day. Just getting through the day is something to be proud of. Here is a little lesson I have learned after going through something like this. Days like tomorrow will never get any easier. Ever. So on a day like Mother’s Day when it is supposed to be all about us, take this one day and stop trying to please other people. Take this one day and acknowledge your grief, don’t apologize for it, and do what it is that would make you the most happy on this day. For me, tomorrow isn’t about me and that makes me happy. I would much rather just spend the day celebrating my Ronan through the eyes of Liam, Quinn, and Poppy with my amazing husband. And you know what?? If tomorrow comes and I decide that I can’t get out of bed and do a thing, I know I am surrounded by the people who love me most in the world and they will be o.k. with that. I have learned that surrounding yourself with people who have no expectations of you, is the best way to get through these holidays that are so bloody hard now.

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Without a doubt, the MISS Foundation saved my life

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I just wish I wouldn’t have had to find them by sitting in my bed in the middle of the day, sobbing, and thinking to myself, “If I don’t find someone to help me, I will not survive this. I then turned on my computer and Googled, “What to do if your child has died in Arizona.” Somehow, that got me to the MISS Foundations page. I thank Ronan for Dr. Jo, every single day.

 

http://drjoanne.blogspot.com/2013/05/as-we-near-mothers-day.html

2 years makes me want to rip my hair out while screaming for you like the wild animal that I am

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Ronan. I’ve started to write a few times, but I’ve erased everything over and over again. I don’t know how to put into words what this day feels like; almost 2 years without you. Your Poppy sister has been a great distraction. So much so that I find myself missing my grief and my pain. So much so that I feel like I am betraying you by not feeling the intensity of my grief as much as I used to because your Poppy sister makes me feel that peaceful. I knew the 9th was coming, but it’s like I’ve had my head buried in the sand because I’ve been trying my best to hide from it. There is no hiding from this day. It will come no matter how much I beg and I plead for it not to. Everybody that knows us, knows what this day brings and those who have forgotten, well what can I say?? Life goes on for them, right? Of course it does. Or as the French say, “C’est la via. Those closest to our hearts are here with us on the day of hell in one way or another. Those closet to our hearts, know how hard this day is for us and are kind enough to acknowledge it. It means so much to me that they do. And those beautiful strangers, Ro. Wow. Oh so beautiful indeed. You would not believe the outpouring amounts of cards, emails, tweets, texts, Facebook messages, etc… that I am receiving. With each and every single one, the tears fall down my face. Love and tears, love and tears, so much love and tears, Ronan. So many beautiful souls are being guided and changed, all for the better. All because of you, the most beautiful little boy to ever walk the planet. Bittersweet beauty I call it. So very bittersweet which you know is the theme of this life I’m now left behind in.

Yesterday was when it really hit me that your 2 year death day was approaching. I went to see your Sparkly before we left town. We sat and I think I looked like a deer in headlights for much of our time together. So much so that at one point I had forgotten for a split second that it was the month of May as I refered to something that was supposed to be happening, to happening in April.

“Sweetheart, it’s May. If that was supposed to happen in April, you need to check up on that,” he said to me while my eyes filled with tears.

Even though I knew it was May, for a split second it slipped my mind because that’s how much I did not want this month, to happen. Seems silly right? I mean, no matter what month it is, you are dead. Nothing can change that or bring you back, even if we could fast forward through this month entirely.

I just looked at the floor. I then looked back up at him.

“2 years, 2 years, 2 years. How can that be already?”

He gave me some smart ass answer to try to make me laugh. I kicked his foot in protest and when he saw that his little wise crack was not going to work, he went into something more serious. Something about my pain and how my pain is never going to go away, but look at all the good I am choosing to do with this pain. How I could have done nothing or even worse, I could have let this pain ruin my life, but I chose the opposite. It was the best pep talk he could give me 2 days before your Deathiversary. We sat a little longer and stared at your sister while catching up on other life things. Right before I left he looked at me and said, “He is o.k. I promise you that.”
I said to him, “How do you know?” “You just have to trust me. I know,” he said. I did what I always do which is made him promise me again. He did. I know he believes this. I believe him, but it still does not take away any of my worry over you. I will forever worry about you, Ronan. I worry about you so much and I don’t think that will ever go away. I am your mother. I will worry about you for the rest of my life even though you are not here on this earth. It’s part of what makes me forever your mom.

We left town. Had to leave town as being in Phoenix tomorrow on the day you died is not anywhere I ever want to be on this horrific day. My idea of putting us all on a plane to Ireland didn’t happen due to not wanting to compromise your Poppy’s sisters non-existent immune system. We drove up to Sedona instead. We spent some time with Dr. JoRo. She bought you a “We miss Ronan,” cake. Please tell me what other therapist in the world would have done something as thoughtful as that, Ronan? I’ll bet you a big fat NO OTHER THERAPIST IN THE WORLD. She is truly amazing and I will forever tell you thank you for her. The world needs 10,000 more of her on the planet. We will spend tomorrow together as a family missing you so much. I will try my best not to reenact the end scene from, “Thelma and Louise,” where they drive off a cliff together. I think your Poppy sister is too young to be my sidekick for that adventure. We will go and throw some rocks over a cliff instead or do something a little more safe but totally dangerous too in a PG-13 kind of way. Please just help me get through the day, o.k.?

This is all I can write tonight. Did I even make sense? I haven’t slept much so sorry if my thoughts are not flowing very well. This was the best I could do tonight through a heavy heart and blood-shot eyes. I miss you so much.

G’nite baby doll. 3:25 a.m. when you took your last breaths will be here soon enough. I’ll be up of course, screaming and crying for you as silently as possible as not to wake up your daddy, brothers or sister. I miss you. I love you. I hope you are safe.

xoxo

P.S. I’ve also decided that tomorrow is National F U Cancer Day. It will never be the day you flew off to go be an angel or went home to where you belong. Fuck that shit. You belong here with me and anybody that says otherwise is a douchebag idiot. Tomorrow is an asshole of a day, thanks to that bigger asshole named cancer so there it is, May 9th National F U Cancer Day. Thanks for killing the love of my life and so many other innocent victims. I will be giving you my best middle finger tomorrow painted extra purple and sparkly just for you, Ro.

As your Mr. Sparky Eyes would say, FUC. I couldn’t agree more.

 

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All I want in life is a cure for childhood cancer and to be glitter bombed.

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Ronan. Hello May and hello constant stream of tears. Also, hello my little shadow, aka, Quinn who seems to be busting me whenever I am a bloody mess. It’s happened twice this week. Both times he caught me crying, in Poppy’s room.

“What’s wrong mom? Why are you sad?”

I wiped my face and just told him I had a hard day and was missing you a lot.

“It’s o.k. that I’m sad about Ronan, right Quinn? I’m allowed. It doesn’t mean I’m not going to be o.k., I’m just really sad today.”

Quinn shook his head. “I love you, Mom. Can I get you anything?”

I shook my head no.

“O.k. well, I love you so much.

“I love you more, buddy. Thank you for checking on me.”

That was a couple of days ago. Tonight, the same thing happened. Everyone was out except for me and your Poppy sister. I guess I kind of lost it, mid rocking her and some how I ended up on my computer, watching old videos of you. Hospital videos. “I love you, mama.” You told me this at least 5 times in a 4:32 minute segment. We went back and forth. “I love you, Ronan. I’m so proud of you.” “Mama, you my best friend.” On and on it went, your squeaky little voice over and over as we went through a book of animals. “What’s this mama?” “A dolphin, baby.” “Will it bite me, mama?” “No, monkey. Dolphins are nice.” “Dolphins are nice,” you repeated.

I slammed my computer shut after that as I held your sister and sobbed. I took her into your room and rocked her as I cried some more. Everyone came home soon after that. Quinn found me in your dark room, rocking Poppy. He saw my red blotchy face.

“What’s wrong, mom? Are you sad?”

“Yes, baby. Just a little sad tonight.”

“Do you need anything, mom? Can I take Poppy?”

“No thank you. I will be alright.”

“Please mom. I don’t mind taking Poppy. I really like holding her.”

“O.k. Quinn. Thanks for helping me. I love you so much.”

I handed Poppy to your brother and watched as he snuggled up on your bed with her and I begged in my head for you to please come back.

I went to wash my face and your daddy had no clue that I had been crying, until he saw my face.

“What’s wrong? Why won’t you look at me? Who upset you today?”

I told him, today, nobody. Tomorrow might be a different story as I swear to god I am dealing with a bunch of petty bullshit again.

“I’m just sad. For the same reason I’m always sad.”

Your daddy said he knew because he has been feeling the same way.

It’s that time of year again. It’s that very, very hard month where our emotions seem to be all over the place. Even the girls at my nail salon know it. My sweet Emily who used to paint your toes, Ronan, remembers what is coming up.

“It almost 2 years, Maya.” she said to me in her very broken english tonight as she rubbed my arm.

“I remember. I think to myself, it almost 2 years. I sorry,” she said.

I said I couldn’t believe she remembered. I thanked her for remembering.

“I sorry I make you sad,” Emily said.

“Oh, Em. You can’t make me sad, I’m always sad.” I said as I somehow held back the tears. I couldn’t tell if they were tears from being sad over you or so touched by the fact that Emily remembered that your 2 years Deathiversary is coming up.

“Purple sparkles, right Maya? Always sparkles.” Emily said as she filed my nails.

“Yes. Purple sparkles for Ro. Always for Ro.”

Today was one of those good day foundation wise though. I got a very wonderful phone call in regards to some things we are going to be working on with one of our celebrity friends. For now, I’m going to keep things on the down low, until we are ready to announce what it is that we are going to be doing. I’ve been quietly working on things while adjusting to Poppy life. I’ve been trying to find that balance of, “Hey I can do it all! But hey, I also really can’t because I have a new baby!” Between Poppy, your brothers, foundation things, our book… well, it’s a lot. But nobody loves a challenge more than me so I’m happy to be wearing all the hats that I am. There are too many kids dying to slow down now, or ever.

Alright little man. This is all the update I can write for tonight. When Poppy sleeps, I must sleep. Or so they say.

G’nite. Sweet dreams. I miss you. I love you. I hope you are safe.

xoxo

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Ronan’s Second Annual Day of Love

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May is officially here. It’s a really hard month for us. So thankful for people like this who continue to do amazing things.

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It’s May. May is the month that we renew our committment to our cause. It is the month of Ronan’s birth, and the anniversary of his death. Last year, Maya, our Founder, was fundraising for to run a marathon without training. She impressed us all with her determination and success. This year, not even a month ago, the Thompsons welcomed the arrival of their baby girl, Poppy Ronan Thompson. There will be no marathons without training. Instead, to kick off our May fundraising, a wonderful man, Jim Fry, is doing a crazy thing to benefit the Foundation. He is riding in Haute Route, a 7 day bike race through mountains and many hundreds of miles in Ronan’s name. And by no coincidence, the race takes place in September, at the very beginning of Pediatric Cancer Awareness month. Follow his journey here and support him with donations.

Thank you, Jim. You are truly inspiring.

http://www.firstgiving.com/fundraiser/jimfry/hauteroute

“This is how dreams die.” -Woody Thompson

 

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I’m not going to go into why I titled this post this way tonight because not everything can be shared. Let’s just say Woody came home and said this to me tonight for a very good reason. All I am allowed to say is screw anybody that sets out to get rich off of kids with cancer. Fucking unreal.

 

Ronan. I cannot believe your baby sister has been here for 3 weeks today. It has went by so quickly. We still have been lying pretty low and I swear it feels like I have been doing nothing but nesting and breastfeeding her since she arrived. The quiet has been good for me. Or at least that is what I am telling myself for the time being. I do miss my crazy insane I’m losing my mind days. Those days got me through a lot of the darkness. I’m sure those days are not over yet… but for now I am just trying to soak in the peacefulness that you sister has brought into our lives. We’ve had a couple of out-of-town visitors. Your Nana came to help out with things and to meet Poppy. It was of course wonderful to have her here as it gave me a chance to do nothing but focus on your sister and let myself become somewhat human again. I was exhausted not from the lack of sleep I’ve been getting, but from the physical part of your sisters birth and the toll it took on my body. Now I am starting to feel somewhat normal again and I know a big part of it is due to the rest I was able to get with your Nana in town. She took a lot of the slack off and for one full week I didn’t have to touch the laundry or cook a thing. It was heaven and so very helpful.

Your Fairy RoMo popped into town just for a day to come and see her new god-daughter. That was a magical day indeed and so special that I can hardly put it into words what it was like to see the two of them finally meet. It was like for once, something in this world without you made sense for  a split second. If I can’t have you here to meet your Fairy RoMo, having Poppy here is the next best thing. We took Poppy all over with us for the day. We had a impromptu Poppy party that was thrown together by Stacy where we sat around at a cute little restaurant and had a nice lunch. It was pretty much her first time out in the world. After that, we took Poppy to your favorite restaurant, Chelsea’s Kitchen. We sat on the patio and went gagaga goo goo crazy eyes over your sister. As I was sitting there, I was taken back to the night of your funeral/celebration of life/one of the worst nights of my life. I was holding your sister and I remembered being there after we had your services. I thought to myself, how in the world could I have come here with a bunch of people the night of Ronan’s funeral? In my white dress looking like a zombie I’m sure. I hardly remember the night except I remember that somebody went and snapped my picture with Quinn on my lap and I remember smiling into the camera. How I even was able to form a smile is beyond me. I know I did it because Quinn was right there and I was trying to act somewhat normal like this is a fucking normal thing to do. Eating Tuna Tacos with a bunch of people after my child had just died and I sat in the front row listening to people talk about about you, holding your brothers hands, without tears streaming down my cheeks because I was too numb to feel anything. And now, here I am, sitting right back at that very same restaurant while holding your sister and kissing her sweet cheeks. How is this my reality again? I wanted to vomit right there on the spot but I just sat there quietly instead doing everything I could do in my power not to cry and hide underneath the table. I let the scene of that awful night play out in my head instead.

Every time I think about you and what has happened lately it’s like my mind is back to not being able to process it. My mind automatically goes to screaming, “FUUUUUUCCCCCKKKKK!!!!” in my head and that’s about it. Sometimes I cry. Sometimes I don’t. I always feel like I’ve been punched in the gut. I took your brothers back to their therapist last week just to check in with them. Quinn did not understand why he had to go because as he told your Nana, “If I needed to talk about something, I would just talk to my mom.” That was sweet to hear and made me feel good, but I still wanted Quinn to check in with Dr. Rachel. I went to talk to her after she met with Quinn. She said that he is doing really well. That the worry brain he used to have, seems to totally be gone. He also told her that he hasn’t seen me this happy in a long time. That stung a little bit. Happy? How can that be? It almost felt like a betrayal to you, Ronan. Don’t get me wrong, I do want your brothers to see  me this way. This is the way they deserve their mom to be… but it still felt weird to hear that. I just wasn’t ready for that word quite yet. It was like swallowing a really big horse pill and doing everything I could, not to choke on it. Dr. Rachel told me she feels like she does not need to see Quinn anymore, even though she would love to because she thinks he is such an amazing little guy, it’s not necessary at this point. Liam on the other hand, still needs some time with her. He is still pretty emotional about all of this. He tends to keep things to himself more so than Quinn does. We talked about making sure she gets some time with him before the shit storm of May 9th and all the lovely dates after, follow.

Your brothers are of course so in love with your sister. It is so strange to watch them with her, thinking they were doing the exact same thing with you after you were born and how you are just gone now. They both fight over who gets to hold her, kiss on her, and love on her. They both say the funniest things about her. The other day I had an outfit on her that was too big because she is so tiny that much of the stuff I have for her is big. The little tank top she had on kept sliding down and Quinn goes, “Mom, why isn’t she wearing a bra? People are going to see her privates.” I almost peed my pants over that one. The innocence at 9 years old melts my heart like crazy. They both can’t get over the fact that she doesn’t have teeth and Liam sits there with her and tries to teach her to talk. He’ll go over and over, “My name is Liam. L-I-A-M. You’re name is Poppy. P-O-P-P-Y.” It is the cutest thing ever. I’m sure if you were here you would be doing things like coloring on her with markers while I had my back turned or taking her hair and putting tooth paste in it or cutting it with scissors. You were always causing trouble in the best way possible.

Your daddy has been doing things with Poppy like playing her guitar. The other night I was sitting in bed with your sister listening to your daddy play to her. I said, “You need to learn a Taylor song for her.” He asked me which one and said, “Not Ronan. I love it, but I don’t think I can get through that one just quite yet.” I agreed with him and immediately went to one of my absolute favorite song of hers. That one from The Hunger Games soundtrack, “Safe and Sound.” Fast forward a week later and your daddy has that song down to a tee. I remember where I was the first time I heard it on the radio. We were in Maine for the 1 year anniversary of your death. Your daddy and brothers ran into a restaurant to pick up pizza and I was sitting in the car alone. That song came on and I started bawling like a baby. I thought it was so beautiful and could not understand how I had not heard it before. I sat there thinking how much I would have loved to sing this song to you as the words resonated with me so much. Now here we are and your baby sister will grow up with your daddy singing this song to her. Once again, the next best thing to actually having you physically here with us.

Our visitors have still been far and few. Your Sparkly came by last week for a bit just to check in. I showed him your room and how different it is now. I think it was hard for him to see, but he said it looked beautiful. It was hard for me to show him. After that, we mainly just sat on our couch and stared at your sister while catching up on some things. Sometimes a lot of words are not necessary. As we were sitting on our couch he asked where your Nana was. She had gone out to run some errands for me so she was not home and I told him how she has a hard time sitting still. He goes, “Now I know where you get it from.” I just smiled at that. He then goes, “Where is your mom sleeping? In Ronan’s room?” I paused for a minute and told him yes. You see this Ronan? This is why Sparkly gets it when not many other people do. Those 3 words, “in Ronan’s room,” meant so much to me. Sometimes the littlest things mean the most and that is a prime example. Sparkly quietly said how he can’t believe how much she looks like you. Cue tears here. End scene with them sloppily falling everywhere as I said I knew. That dimple. I still cannot get over it.

That’s my update for today. I’ve started hiking/running again. I know I’m supposed to wait 6 weeks postpartum, but they don’t call me a rebel for nothing, right little man? The exercise feels good. Today has been a little tough for a couple of different reasons, but mostly just because I seem to be missing you more than ever. Throw May on top of all of that and it’s a wonder I can even leave the house and function like a normal person at this point. I’m going to go for a run to blow off some of this never ending pain. I miss you. I love you. I hope you are safe. F U Cancer.

xoxo

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