Dear Empire State Building, Part 3


Ronan, before he was diagnosed.

Ronan, before he was diagnosed.

 

 

Dear Empire State Building,
My name is Payton. I am fifteen, almost sixteen. I have never been in the hospital. I do not have cancer. None of the people close to me have cancer. Still, I am a pediatric cancer advocate. I read the blog of Maya Thompson after I heard Taylor Swift’s song Ronan. This soon led to multiple children on Facebook, who I look for on my newsfeed everyday. One of these children is Lilly Bumpus. She’s a beautiful toddler, in remission. She suffers from side effects of the 75% adult strength chemo she was given. Seizures and tics, with no explanation. She has night terrors, about people coming in and waking her up in the middle of the night to check her vital signs.

I’m writing this from a hospital bed, as my appendix was just removed. So I can understand how the nighttime checks could scare someone so young. What just happened to me is nothing. Nothing, compared to what so many children go through. They live with IV needles and ports and constant pain. I don’t know if you’ve ever had to leave a needle in your vein for a long time, but it sucks. These children go through surgery and chemo, radiation and clinical trials. While we, as people who understand how horrible this disease is, fight for awareness, these kids, teenagers, and babies fight for their lives. In the US, 7 of them lose everyday. 46 are signed up to fight. Families are forced into this battle, for their kids. I cannot even imagine life without my little sister. Some of those siblings, whose brothers and sisters you refuse to represent, know what that life is like.

Maya Thompson’s older sons learned that at 8 years old. When his 1 year old sister got a black eye in a baby tumble, one of these boys asked his mom if baby Poppy was going to die. An 11 year old. Because he watched as cancer took his 3 year old brother. No child should ever have to fight cancer, no parent should ever have to lose a child to cancer, no sibling should ever have to watch this disease take their brother or sister. You don’t need to know someone closely. You just have to look around and realize how wrong these kids’ situation is. You just have to want to help them. To tell everyone, “pediatric cancer is wrongly underfunded, and we need awareness, so we can save these kids.”

Some people are pulled into this fight for their loved ones,and to make sure it never happens to someone else’s, but I fight for all of them. For Ronan and Lilly, Paxton and Mateo, Ellie and Alyna. I want you to light up gold, so in the future, Babies like Alyna, toddlers like Ro, and teens like Talia won’t die. So Lilly and Kaitlin and so many others can stay in remission. And Mateo and Ellie and every other kid facing cancer can win. Childhood cance is wrong. You don’t have to experience that to know it’s true.

 

Please light up gold,
Payton

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3 Comments

  1. Cal

     /  August 22, 2014

    Obviously these young folks writing these columns have a lot more intelligence, compassion and understanding than the adults making the decisions for the ESB. Perhaps the wrong people are in charge.

    Reply
  2. serena

     /  August 22, 2014

    Go peyton! love all these posts. The ESB can suck it.
    We should start writing the White House too. Why don’t they go gold for September?

    Reply
  3. Christine

     /  August 23, 2014

    This is exactly how I got pulled into all of this, I don’t regret it one bit either. I think about these kids everyday. Thank you Maya, and I am so so sorry. The ESB is run by idiots. These posts are so amazing, I think everyone should, on a social media site, write a “Dear Empire State Building,”

    Reply

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  • Instagram is my BFF

    Someone is about to have the best summer ever.  #ronan #fucancer #summer2015 #teddytakeswashington #nanashouse #bestdogever #goldendoodle Just when yesterday couldn't have been much more of a disaster and after driving for 8 hours we rolled up to our hotel in Redding, CA. This sign was posted on the back side of our hotel. I flipped out, demanded a refund and threw everyone back into the car. Who in their right mind would stay at a hotel with a sign like this posted? After this shit show, I made the executive design to just power through 8 more hours of driving to get us to Washington.  #ronan #fucancer #holidayinn #nicesthotelicouldfind #holidayinnyousuck #movingtoiceland #getusoffofhere #roadtrippin #summer2015 #reddingcalifornia #16hourdrivingday #4amarrivaltime #bitchbetterhavemymoney @brimelone #copilot Lessons learned on the Pacific Coast Highway:

Kids do not like it. 
Young adults who get car sick very easily do not like it. 
It is possible to throw up and cry at the same time and still look sweet doing so.
Kids do not appreciate the beauty of nature when you are driving up and down curvy roads. 
All kids care about is getting off of the PCH1 and back to a normal highway. 
It is possible to get off of the highway and on to another, but doing so you will lose 4 hours of your life that you will never get back. It will turn your 4 hour day of driving into 8 hours of HELL. 
There is no WiFi. I repeat, THERE IS NO WiFi!!!!
There is also no cell service.
No amount of candy will stop the screaming/crying. 
Driving it with 3 kids+baby+dog in a big ass Suburban will make you fear for your life. 
It is probably best to do this drive when you are 80 and all of your kids are grown and gone. 
Pacific Coast Highway Fail 2015. 
@brimelone @quinn.thompson24 #ronan #fucancer #pacificcoasthighwayfail #summer2015 #roadtrippin #getusoffofhere #everoneispukingshittingandcrying #everyonehatesme  #exceptteddy
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