You know what is so totally awesome about cancer? Fucking nothing.


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Ronan. Today, I was sitting at my kitchen table pounding out emails, mailing bracelets to people, and missing you. A new email came in and it was an update from your old roommate at Sloan-Kettering, Phoebe. I still check in on her every once in a while. I still try to see her mom whenever I am in the city. We became pretty close after rooming together at Sloan and I know her mom and I both feel that the two of you had this unspeakable bond. I have been keeping up on how well she is doing and watching her get back to her life before she had to deal with that asshole named cancer. I have loved seeing her gorgeous hair come back in and felt really peaceful about the place she is in after she was declared NED from Osteosarcoma; which she developed at the age of 11. Phoebe endured so much, as do all kids who go through this, but her fighting spirit has never wavered. Her smile never seemed to dull. She is stronger than most adults but of course that came with a very heavy price. She shouldn’t have to be stronger than most adults. She should just be a normal girl, living a normal tween life. Unfortunately, that’s not how things have turned out for Phoebe, but you will never hear her complain of a thing. She has handled everything like a champ: much like the way you did.

I think we bonded with Phoebe and her mom for the first time over a bloody nose that wouldn’t stop. I knew that situation all too well. Being roommates in such close quarters, you hear everything. I think I tried to step in and help. Macy was with us. I think Tricia was, too. We will never forget it. Phoebe was scared. Her mom was scared. I did my best to help out because I had been in that situation 50 times before. I was an old fucking pro at the horrific bloody noses that you cannot control. After that bloody nose incident, we became friends forever. You died, Ronan. Phoebe lived. Her mom and I have remained close and her entire family has a special place in their hearts for you. Ellen, Phoebe’s mom, is always reminding me of how much they think of you. I so appreciate that.

I read the headline of Phoebe’s caring bridge journal today. It said, “Bad, Mad, and Sad News.” My stomach dropped. My eyes filled with tears. I knew what that meant, before I even started reading what was going on. Phoebe, after beating Osteosarcoma has developed a secondary cancer. This time, it’s AML- Acute Myeloid Leukemia. I immediately sent Ellen a text that said, “I just read your blog. You have got to be fucking kidding me.” She responded almost instantly and we went back and forth. I told her I would do whatever I could, which normally might mean hopping on a flight to go and help. I cannot do that now so I offered up the next best thing to Ellen and Phoebe which is my little Rachel who lives in NYC. I told them if they were o.k. with it, Rach would be happy to come by to keep Phoebe company, bring them treats, or whatever else they might need. They were very open to it so I called up Rachel who was more than happy to help out because she is not your normal 22-year-old. Rachel is an old soul who has such a passion for helping others that it makes me embarrassed at my 22-year-old self. She is the definition of selfless at such a young age which I admire so much. I asked Ellen if it would be alright if I posted Phoebe’s caringbride website because I know Phoebe tends to be a little more private. Ellen gave me the green light. I just wanted to offer them any and all the love and support that I have. They are a wonderful family and I am so devastated that Phoebe is going to have to go through more of this bullshit which was more than likely caused by the treatment she had when she was dealing with Osteosarcoma. I mean it’s bad enough that kids get cancer, but then to develop secondary cancers due to the treatment that supposedly saved them. That is just beyond acceptable.

I am asking you all to show Phoebe a little love. Stop by, leave her a comment, keep her in your thoughts, prayers or whatever works for you. She has a special place in our hearts here at the Thompson household and we will do whatever we can to help Phoebe through this time. Even if it means just making her mom laugh by my, “You have got to be fucking kidding me,” text. So glad to hear I was able to put a little smile on her face today. I am so glad I have my little Rachel in the city to help out, too. Thanks, Rach. I love you so.

Ronan. Ellen asked me to tell you to keep a special eye on Phoebe. I know you will. I love you my spicy little monkey. I promise to fix this. I promise this childhood cancer world will some day be better. It shouldn’t fucking be like this. This is my last little rant for the night but wouldn’t the world be a much better place if people like Honey Fucking Boo Boo were NOT on CNN? I about shot my TV the other day seeing this. Wouldn’t the world be a better place if people like Dr. Sholler or Dr. Jo were getting the kind of attention they deserve because they are actually doing really amazing work. I don’t understand how these doctors are ignored. How this HUGE problem is ignored. How these kids are just ignored. I guess because it’s easier to live a mediocre life where every day seems to be taken for granted and everybody seems to care about the wrong things. I can’t live in a world like that. I won’t live in a world like that. I’m going to create a new fucking world where shit like Honey Boo Boo or The Real Housewives of Asshole America, do not exist. Because people like Ronan and Phoebe deserve better.

Bye, Ronan. I miss you. I love you. I hope you are safe.

Here is Phoebe’s caring bridge below. Thanks all you lovely souls for stopping in to give her some RoLove. I love you.

xoxo

http://www.caringbridge.org/visit/phoebe26

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19 Comments

  1. As if these kids don’t go through enough. Such fucking bullshit!!

    Reply
  2. Glenda

     /  March 6, 2013

    Omfg!!! Fucancer!!! This is so not fair! Will stop by Phoebes page and show her some RoLove!!!

    XO

    Reply
  3. I’m with you, Ali and Glenda!

    Reply
  4. Val S.

     /  March 6, 2013

    Done!

    Reply
  5. Unfuckingbelievable. I am 100% with you on the fact that we need to get shit done and stop focusing on stupid things like honey boo boo. I feel stupid even writing that. Disgusted that childhood cancer is so often overlooked. You will change this Maya, along with the other parents that should never have had to go through this.

    Reply
  6. jenna

     /  March 6, 2013

    Fucancer! what about a reality show that shows families going through this?

    Reply
  7. Melanie

     /  March 6, 2013

    You soooo hit the bail on the head with your “housewives” comment……..oh the good they could do, but don’t!

    Reply
  8. Makenna Kehler

     /  March 6, 2013

    Phobe and ronan are two of the strongest kids I have ever heard of my mom has brain cancer and we don’t know what type it is yet but anyway my thoughts and prayers are with every child and adult who has cancer/ who passed over from it

    Reply
  9. I just found your blog last night. My son also had neuroblastoma, although we have been more fortunate than your poor precious Ronan.

    I’m so sorry to hear about your friends secondary cancer. So not fair. Cancer is such a fucking asshole. Children’s cancer even more so.

    I hope one day we can learn to kick its ass!

    Reply
  10. Chelsea

     /  March 6, 2013

    Ill definitely stop by with some Rolove and tell everyone I know to do the same thing. It makes me so sick that our society prioritizes things like Jersey Shore and honey boo boo and not horrific things like children losing their childhood to cancer. Ugh!

    Reply
  11. This is sad! Poor family and poor… Phoebe. How awful… I’m so sorry!!!

    Reply
  12. Maddie

     /  March 6, 2013

    And I had almost forgotten about honey boo boo…. It hurts me every time I hear that a kid has cancer. It makes me furious. Poor phoebe does not deserve this. Ronan didn’t. No child ever did. People can’t just let stuff like this glide by like its nothing. I have heard some heartless comments from those supposed scientists and doctors, it makes me sick. Everything about children getting cancer makes me sick.

    Reply
  13. Molly

     /  March 7, 2013

    So sorry to hear the news about your dear friend Phoebe. It’s one fucking crazy world out there. Just not right. I guess each millisecond of joy needs to be appreciated and held dear to get us through the rough spots.
    I do want to share that I know of a young girl who was “cured” of AML at St. Jude’s with an experimental treatment. I’m pretty sure Sloan is probably doing it too, but your friend might want to check on it. Her Caring Bridge page is Leah’s Hope.
    Hang in there Maya, Phoebe, and Ellen!

    Reply
  14. Already sent my support to Phoebe and her family. Is terrible that she has to go through all this again, but we have to keep the faith (or hope, spirit, or whatever works for you).
    Take my friend!

    Reply
  15. Kathy

     /  March 7, 2013

    Left a message for Phoebe and her family. Wishing there was more I could do. I saw a segment this morning on the today show about a Mom who’s son went through childhood cancer and they were advised he needed to eat alot of calories regardless of the source. That didn’t make sense to her so she went for her masters in nutrition and learned how important the nutrional value of a cancer patients diet to recovery really is. Now she goes to the hospital and teaches the kids and parents awesome healthy yummy recipes! So inspired by their story as well. I have a 20 year old bachelor’s degree in nutrition that I never got to work in. This planted a seed in my head that perhaps I too will go for a masters in Nutrition for cancer patients and volunteer my services.

    Reply
  16. Thank you for sharing Phoebe with us. You are so right, Ronan and Phoebe do deserve better. FU Cancer!!

    Reply
  17. Alex

     /  March 7, 2013

    Always thinking of Ronan and now I will think of Pheobe as well. <3 this needs to stop. FU Cancer

    Reply
  18. Annie

     /  March 7, 2013

    What a crazy fucking world. Kids like Phoebe and Ronan get no attention, no CNN time, nothing…while stupid insolent things do. Sending all my love and spiciness to Phoebe, she has a beautiful life ahead of her. Maya, check out Pura Vida Bracelets charities section. You can submit your own foundation/charity/cause and Pura Vida will create a bracelet for it. Thought it was cool. thought I’d pass it along. Also it’s such fucking bullshit that out of over 100 charity bracelets not one is dedicated to childhood cancer. Fuck that, let’s change it. Pura Vida even means “pure life”. I feel like that is a main theme of this blog. Live a pure, happy life. Sending my love to Phoebe and her family and you, woody, liam, quinn, poppy, and of course, always to Ro.

    Reply
  19. Georgie

     /  March 8, 2013

    sending phoebe and all of the tiny, little fighters so much love and strength tonight. It puts everything into perspective in the worst way possible doesn’t it? Cancer just sucks in the most evil way.
    And totally agree with you about bloody honey boo boo, it’s just aired here in australia. uhm words can’t even describe the hate towards that show, if we put half of the money made through that show into research….honestly. Common sense people.
    xoxo

    Reply

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  • Instagram is my BFF

    Car wash babe. #poppy #ronan #poppyrooiloveyou #legsfordays #littlelady This just made my day. 
#Repost from @chloegoulden13
--- OKAY HI. So, as you probably know I am a huge advocate in raising awareness and funds for childhood cancer. Childhood cancer is the number one disease killer of our kids, with 46 kids being diagnosed a day and 7 dying a day in the United States alone. It receives next to no funding federally, and is swept under the rug because it is too sad. Well things have to change. The Ronan Thompson Foundation is a beyond amazing foundation in honour of Ronan Thompson who died at age 3. And through Taylor Swift and Maya (his mama) I've learned Ronan's story and become aware of the tragedy that is the world of childhood cancer. SEPTEMBER is childhood cancer awareness month and the colour is GOLD (official in HRM, HOLLA!🙌) and I intend to do my part. The #BeBoldGoGold campaign (created by Maya Thompson and Kassie Rehorn of the Ronan Thompson Foundation) is designed to spread awareness about this terrible disease in a fun way. Deck yourself out in gold and educate people, challenging them and your friends to do the same. This month I vow to do that... Through running. Throughout September, I will run as many races as need be to reach 50 kilometres (or 31.1 miles for all you American lovies) and spread awareness at each race. However, while awareness is great, funding is even better. So there will be a page set up where you can sponsor me throughout the month and support the cause. All money will go to the Ronan Thompson Foundation and the IWK Foundation to help kids locally and internationally, fight cancer. To learn more about it, go to www.facebook.com/chloesraceforgold or click the link in my bio. There will be a schedule, info and a place you can donate. Ronan, I am so sorry this happened to you. We will fix this broken world. #ronan #beboldgogold #theronanthompsonfoundation #iwk #halifax #fucancer #heshouldbehere Join us in the Be Bold Go Gold Challenge! Snap a pic of yourself all decked out in your gold and nominate some brave souls to do the same! @beboldgogold  I was nominated to do the #beboldgogold💛 and I nominate @mamamaya @knjoy and @woodythompson75. #rtf #empiregogold #ronan
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