Pediatric palliative care research study. Please read if you are interested/know anybody who is interested.


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My Dr. JoRo is conducting a study. Please see the information below. Thanks!

 

 

We are inviting those aged 18 or older to participate in a research study intended to explore the experiences of those who utilized pediatric palliative care for their child before and during his or her death. The purpose of this study is to determine the individual, familial, and societal effects of this experience and to improve standards of palliative care for families of dying children. Another purpose is to gather information about which attitudes and actions parents found helpful to them, and which ones they found unhelpful or harmful. Our goal is to improve a model of compassionate caregiving and intervention that fosters resiliency at every level. Our team consists of an experienced researcher (Joanne Cacciatore, PhD, FT), a doctoral student (Kara Thieleman, MSW), and a master’s level social work student (Angela Lieber) from Arizona State University. If you decide to participate, one of these three individuals will arrange an interview with you. Interviews will be recorded and transcribed. Interviews may last between an hour to two hours. Your participation in this study is voluntary and your identity will remain anonymous. If you choose not to participate or to withdraw from the study at any time, there will be no penalty or loss of benefit. Participants will be provided with a list of bereavement resources and we will gladly provide you a copy of the final paper upon completion.

Please contact Dr. Joanne Cacciatore-  jcaccia@me.com - if you are interested in being interviewed for this study.

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3 Comments

  1. Very true, that while I have his wave inside me.we share together as one sou

    Reply
  2. Jodi Frasier

     /  February 16, 2013

    God damn effin cancer. One of my best friend’s boy’s, Conner, just got news that his cancer is back on his spine and in his chest wall. Conner is 20. He is a budding film maker in college. Well, was. Conner was adopted from Korea as an infant and my friend Mary Anne and I could have been placed with each other’s children, since my girl Miranda was placed with me the day before Conner was placed with Mary Anne. I don’t get it. Cancer takes no prisoners. I am so pissed and sick over this. You are not alone.

    Reply
  3. Karen

     /  February 17, 2013

    Little daisy lost her battle yesterday to cancer, this disease is fucking brutal and that little girl fought cancer for 3 years.

    Reply

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