I have been watching this for days. And crying about this for days. This is why new, innovative research is so important. It’s time to think outside of the box.

the-rules-for-being-amazing

I am so proud that the first thing you all helped us fund, went to CHOP. They are doing such groundbreaking, amazing things for the right reasons over there. Thank you all, for helping us support them.

xoxo

http://vimeo.com/54668275

There Are 2 Things in Life I Will Never Say No To. Anything That Has To Do With You and New York City.

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Ronan. I know I’ve been quiet. I know you all worry when I am quiet, but I promise I am o.k. O.k…. I’ll admit it. I did see my life flash before my very eyes a couple of days ago when I found myself in bed, on my 6th Cadbury Cream Egg, and watching “The Kardashians.” I had a moment of sheer panic wash over me as I thought to myself, “Who am I?? In bed? The Kardashians?! OMG. I need an intervention.” I felt myself slipping into a deep depression that I hadn’t felt in a while. After the whole White House petition, I knew I was due for a breakdown. I had spent so much time working on it, losing sleep over it, and mostly obsessing over it… I knew I was going to crack. Then, the very itty bitty baby contractions started. OUCH!!!! Ummmm… ouch!!! It’s much too early for those. I was put under strict orders to slow things down and to stop with the stress. That’s what landed me in bed and somehow sucked me into the land of reality television which is so far from reality that it makes me want to barf. I sat in my bed for a couple of days and pondered life and death. The whole, what am I doing thing? Where is Ronan? And how in the world am I living without him? I did my best all week to do the normal mom things that I have to do to run our house. A Target trip that seemed so overwhelming to me that I had to sit in the parking lot and sob for a good 20 minutes before I could even get into the store to buy the one item I needed. Only my Dr. Bronner Magic Soap that I am obsessed with could have gotten me into that store and I was totally out, otherwise I would have aborted mission. I’ve been trying all week to get over to PCH to grab your Captain Rex costume that we used to decorate the Christmas Tree. I have been mentally visualizing myself walking into that hospital but then having to walk out with my dead child’s costume. In my mind, I’ve walked out with your costume at least 50 times. Through my flood of tears I sent your Sparkly a text, “Can you please get Ronan’s costume for me. I have tried to get it about 3 times, but all I can do is sit in the parking lot and cry.” “Of course I can. Consider it done.” he said. You’d think with all the shit I do, that walking into a hospital to get your costume would be easy, right? Well, that’s the world I live in, Ronan. To me, the littlest things can sometimes seem like the most difficult. I would rather jump out of an airplane, 10 times then have to walk out of PCH with your Captain Rex costume that you will never wear again. Walking in with it was easy. It’s the walking out with it that I just cannot bring myself to do.

I am really glad I did not die by the death of too many Cadbury Cream Eggs and The Kardashians. I am really glad about that because of days like today that seem to just magically fall into place when I need a big slap in the face of why what I am doing, is so important. I had a little secret very important meeting today. Your Fairy RoMo just happened to be in town for this meeting. One that I so badly wanted her at and one that she so badly wanted to be at but did not think she could come for due to her crazy work schedule. The stars magically aligned for the worst reasons possible so your Fairy RoMo has been in AZ for a little over a week now. When I remembered this meeting was taking place, I of course told your Fairy RoMo about it and she was more than happy to go with me. Our super secret meeting required us leaving my house at the butt crack of dawn this morning and driving half way to L.A. a.k.a The Wigwam Resort in Litchfield Park, AZ. I was excited about this meeting but as always I go in not expecting a thing. I have taught myself it is better to go into something not expecting a thing that way less disappointments occur.

Can I just say today, I am so glad I had your Fairy RoMo there with me not only as my dear friend, but as a witness to the amazingness that occurred. Because if I would have left that meeting today and had to report back to your daddy/board members about the conversation that was had, they would have all told me to get out of my fantasy world and back to reality. We both left our breakfast/meeting, speechless to say the least. It all started with the meeting of a lady who is such a badass in the cancer world, that Darth Vader would be scared of her. It all started with her looking  me in the eyes and saying, “What do you want? Tell me your dream for all of this.” So I blabbed all about our Neuroblastoma Research and Care Center. I did it without crying and drowning in my tears. I talked about it in a way that I made her understand why the care is just as important as the research. She grabbed my hand and said, “I promise you, we are going to make your dream, a reality. Now that I’ve met you, you’re in.” It was like I was let into the most exclusive club that ever existed. And in the cancer world, with this organization, that is absolutely the case. Follow up plans were made. It’s taken me all day to wrap my head around what this could mean. I feel like I haven’t been able to catch my breath all day and it’s not just from Poppy suffocating me. Let the evil secret cancer plans to take over the world, begin. Mawahahahahaha….

I had Dr. JoRo over to our house today. We very much needed a pow wow session. It’s been much too long. We talked a lot about Poppy, Inferno Fuckwad Bob, and of course you. Just as I was saying to her, “How am I going to survive these next two months?” A text popped up on my phone. It was my agent, Nena. “Hey, can you meet me in New York next week to meet with some publishing houses?” I just smiled at Dr. JoRo. “Here’s how I’m going to get through the next two months. By taking a little time out to go to New York.” What perfect timing. Of course I’m cutting it close with not being able to fly due to being so far along in my pregnancy, but I’m cutting it just close enough that I will make it. You know I will always say yes to New York. Especially when it involves you, which it always does.

This is all for tonight, little man. I’m mentally tapped out. G’nite. I miss you. I love you. I hope you are safe. I promise to make you proud.

xoxo

2012 in review. Wow. These stats are AMAZING! Thank you for reading!!! xoxo

The WordPress.com stats helper monkeys prepared a 2012 annual report for this blog.

Here’s an excerpt:

About 55,000 tourists visit Liechtenstein every year. This blog was viewed about 8,600,000 times in 2012. If it were Liechtenstein, it would take about 156 years for that many people to see it. Your blog had more visits than a small country in Europe!

Click here to see the complete report.

We aren’t stopping with signatures. We are starting a movement. Are you in?!?!

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Thank you, Cathy. Please go and enjoy Disneyland and your kids now. We are all moved by your story, heart, and braveness. You are an inspiration to us ALL.

 

 

We are consistently amazed by how much support we get from adults who have fought cancer, and say, “kids should never have to go through this.”  We want to show the White House that raising awareness for kids’ cancer isn’t just important to the parents’ of our littlest cancer fighters – it is important to ALL OF US.

 

How you can help:

 

1.  Adult Survivors / All Cancer fighters take a picture of yourself holding a sign (template and examples below).

 

2.  You can hand-write the sign on poster board or have it printed. Make sure it’s large enough to read.

 

3.  Follow the template and keep it simple! We want the message to be loud, strong & clear.

 

4.  We will post the pictures on social media, and make a slide show from the pictures. By sending us your picture, you are consenting to the dissemination of your photo.

 

5.  Send the photos to Rebecca@RonanThompson.org by MONDAY, January 28, midnight EST. (We wish we had more time, but the petition window ends on February 6.)

 

 

THANK YOU!

The Ronan Thompson Foundation

 

TEMPLATE:

 

I’m [NAME]. I am a [type] cancer survivorBut I’m asking you to shine a light on pediatric cancer, the #1 disease killer of our kids. Mr. President, light the White House GOLD this September.

 

Please sign the petition:

http://wh.gov/PkGX

My Dear Friend, Becca, said she would pull her front tooth out if this happened. So here you go!

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https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX

WE DID IT! Together! As a TEAM! I Am SO PROUD of ALL OF US!

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Wow! This was the best thing to see happen! I am in awe, shock, and literally jumping up and down. It is amazing the things that can happen if we put ourselves aside and work as ONE! Thank you all for taking the time to sign, share this, and scream from the rooftops that this is important because these kids, matter!!!

I could not have done this without any of you. And my KICK ASS Board Members who have now earned the title, THE DREAM TEAM! I love you all. This was the best gift I could have ever received for my birthday, besides my Ronan back.

I love you all. Feel free to continue to pass this along. I still think the more signatures, the better. But I understand if you need a break. I know my fingers, mind, and sanity do!!!

I love you all, so much. I know Ronan is so proud. It’s pouring down rain here. I know those are his tears of JOY.

xoxo

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX

A Gold White House!!! We are SO Close!!! Thank you ALL!

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Ronan. I don’t ever watch things on YouTube about you because it is just too difficult for me. There are so many beautiful things on there and for that I am forever grateful, but I leave them for other people to enjoy. Today was different. Today, something came across my way that I could not ignore. I sat and watched it all, sobbing while doing so. I always cry due to missing you, Ronan, but today I also cried because I was so moved by this darling girl and the way she took it upon herself to a voice for you and all kids who are dealing with cancer.

Talk about inspiring. Talk about touching. Talk about watching the world change right before my very eyes and knowing it is all because of you. The youth of today will be different as well as so many others because of you. I don’t know how the White House can possibly say no to our petition. We are almost to 25k signatures and for that I am beyond thrilled! You all really didn’t think we would stop at 25k, did you?! No way. We are going to keep this thing going and get as many signatures as we can until February 6th. Let’s blow this out of the water and give the White House absolutely no reason, to say no. The more signatures the better.

Thank you, Chloe for your amazing YouTube video of Ronan. Thank you for understanding at such a young age, the right things to fight for. I know Ronan is so proud of you, as am I.

Thank you all for rocking this petition. I could not have done it without you. Thank you, Woodddawg, for doubting me. You know the best way to make me get things done is by saying telling me I can’t do it. I love you for that.

xoxo

http://www.youtube.com/watch?v=_v0N5y4AW2A

Keep signing and sharing. YAY!! Almost there!!

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX

Our FIRST Photo! Keep em’ coming! Thanks, Christine!

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CALLING ADULT CANCER SURVIVORS/CANCER FIGHTERS!

SARAHCalling Adult Survivors / Cancer Fighters for LIGHT the WHITE HOUSE GOLD campaign!

We are consistently amazed by how much support we get from adults who have fought cancer, and say, “kids should never have to go through this.” We want to show the White House that raising awareness for kids’ cancer isn’t just important to the parents’ of our littlest cancer fighters – it is important to ALL OF US.

How you can help:

  1. Adult Survivors / Cancer Fighters – take a picture of yourself holding a sign template (below).
  2. You can hand-write the sign on poster board or have it printed. Make sure it’s large enough to read.
  3. Follow the template and keep it simple! We want the message to be loud, strong & clear.
  4. We will post the pictures on social media, and make a slideshow from the pictures. By sending us your picture, you are consenting to the dissemination of your photo.
  5. Send the photos to Rebecca@RonanThompson.org by MONDAY, January 28, midnight EST. (We wish we had more time, but the petition window ends on February 6.)

THANK YOU!
The Ronan Thompson Foundation

*TEMPLATE*

I’m [NAME]. I am a [type] cancer survivor. But I’m asking you to shine a light on pediatric cancer, the #1 killer of our kids. Mr. President, light the White House GOLD this September.

Please sign the petition:

http://wh.gov/PkGX

You all rock my WORLD!!!!

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Wow. Over 3,ooo signatures today. I am speechless. Thank you all for working so hard, together. This is a team effort. It could not be done without all the love and power that only happens when good people, come together for such an important reason. Today, my husband called me crazy in the most loving way possible. All I have to say is all the best one’s are.

If it takes crazy to change this, count me in.

We still have a lot of work to do. 25k is awesome, but I’d love to blow this out of the water and give this White House a very big reason, to say YES.

Keep signing and sharing.

A special thanks to ALL of the Foundations who have come together on this. Thank you for knowing this isn’t just about one. It is about all of us. All of our kids, deserve this.

xoxo

https://petitions.whitehouse.gov/petition/light-white-house-gold-month-september-honor-pediatric-cancer-fighters-and-bring-light-cause/syV6M6wX

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