Who is that little boy, standing next to you by the Christmas Tree? Oh, nobody. That’s just a mannequin, wearing my dead child’s costume.

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Ronan. Life is all about choices. I have to make choices every single day. For instance, it is a choice for me to get out of bed every single day and be a functioning member of society. That is a choice I didn’t used to have to make in my life, I was just so excited about the day and what was to come, that I would spring out of bed after mostly being woken up by you. Now getting out of bed every day is harder. But I make the choice to do it. For you, for myself, and for your brothers. I have to think about the way the things I do in my life and what they will do to your brothers as well.  I know having a mom who doesn’t get out of bed, would only hurt them. I’m trying my best not to cause them any extra pain. I am trying, but sometimes I get so tired of all of this. It takes a lot of energy to make these choices that do not come effortlessly to me anymore.

Saturday came. I was o.k. with it because we had a very specific plan for the day. I had to finish up an interview with NPR so a girl named Jude came by our house with the last of her questions. Your daddy did a little interview as well. I think it will be a really good piece and I cannot wait to hear it when it is all finished up. Jude came to PCH with us to get some background noise while we decorated our tree. So it was me, your daddy, Liam, Quinn, Fernanda, Stacy and Melissa who spent a couple of hours, getting your Star Wars Captain Rex tree up and decorated. The entire tree is blue, silver and white. Just like the colors that Captain Rex wore. A lot of the time, I can be really strong doing things like this. Or maybe I’m just still numb. Looking back, I don’t know how I did what I did, with your daddy and brothers there with me. The decorating the tree wasn’t bad. The being in the hospital wasn’t bad. I handled it all pretty well, like I always seem to do. I handled it all well, including when Liam went over to your Captain Rex mannequin and picked him up for a picture. I about lost my shit, but I couldn’t. All Liam wanted was a picture with the little guy. He had no clue that Captain Rex was actually wearing the costume you wore on Halloween. So as he put his arm around Captain Rex, then picked him up while saying, “CHEESE!” I had no choice but to snap the picture. I think I almost threw up. I looked back at Fernanda who had seen the whole thing. She looked as pale as I felt. OMG. OMG. OMG. That did not just happen. This is not my reality even though I know very well that it is. We all got out there soon after that. Your tree looks wonderful. So perfect. So very much you. We took a picture in front of it. The very perfect family holiday card picture, right Ro? Looking back at it now, it breaks my heart. Captain Rex looks like an actual little boy standing next to us. He looks about your size. Have we all gone mad? Who in their right minds, takes a picture like this and holds their shit together? We do, Ronan. To honor you. To bring some smiles to other kids’ faces. Because this is one choice we don’t get to make, we just have to do. For all of us. Because if we don’t do things like this, then we all crumble up and just fall apart like I know I want to do, every second of the day. But the fighter in me just won’t give into the weakness of that. I’ve got too much shit to do in this world.

We had some very good friends come into town for the night. My best friend from Jr. High. Her high school sweetheart and now husband and my good friend, too. I set them up when we were about 15. Some of the best people I know. Woody and I love spending time with them as a couple. Laura and I used to always say you and their daughter Cameron, were going to get married someday as you are so close in age. How naive we were, I guess. They came with their kids in tow. As always, it was so good to be with them. We left the kids for the night and headed out to the Bret Michaels concert. Everyone was so excited, including myself but always in the back of my mind is the reason I get to do things like this and it all revolves around because of losing you. This now means that anything beautiful comes my way still stings in a way, too. I am always very aware of our situation and the reason our life is the way it is now. The situations I find myself in, such as a great night out, with great friends, at a great concert, always come with a heavy price tag. One that I wish I never knew but this is our life now so I try to take these little gifts and grow from them as much as possible. In my life before all of this, I am pretty sure I would have been the life of the party. Laughing with friends. Being wild and free. Not having a care in the world. Now I find myself a little more reserved and quiet. I know I will never be the life of the party again. I would just rather sit back and watch the way others get to play that role now. It’s not mine to play anymore. Our night was lovely and your daddy got to blow off the steam that I know he very much has been needing to do. I found comfort in being with my oldest friends. The friends that knew me before your daddy, before kids, during kids, and after the death of you. We got to spend a little time with Bret before the concert. I had the chance to tell him thank you for all he has done and is continuing to do in this world. He has a great heart and I was so glad to finally be able to tell him thank you in person. The concert was amazing. I had to sit down throughout much of it, due to my feet hurting and just being wiped out. I felt your Poppy kicking a lot. I let myself find some solace in that.

Our friends left today. But not before I went to your room to check on Laura and her kids. They were packing up and I could tell Laura was upset. Her little one’s had been playing with your toys all day. I told her it was alright, that somebody needed to play with them. She just grabbed me and we both cried for a bit. She told me how wrong this all is and how she doesn’t know I do this. I don’t know either. I never will know the answer to that other than the obvious one which involves because if I don’t, I will die. I know that is my ultimate truth.

I need to go now, baby. Quinn is sleeping due to a headache he has had today so I am going to snuggle up to him. I miss you. I love you. I hope you are safe. Sweet dreams, baby doll.

xoxo

  • Instagram is my BFF

    Miss you already, lover. #poppy #ronan #fucancer #rideordie #mommynumbertwo @macymwood Goddess. #ronan #fucancer #lanadelrey Dedicated to my @macymwood. Ride or die for life. #ronan #fucancer #iwillloveyoutilltheendoftime #lanadelrey #iwouldmakeoutwithlana Hipsters. #ronan #fucancer #middleagedhipsters #youngforever #forgotourflowerheadbands #lanadelrae Been trying hard not to get into trouble... #ronan #fucancer #lanadelrae #mymusicalsoulmate @macymwood This is my happy place. #poppy #ronan #fucancer #hidingfromtheworld #sundaysnuggles @macymwood @knjoy Sundays are for sleep. @macymwood @knjoy #poppy #ronan #fucancer #sleepingbeauty #wornoutfromsomuchdancing Just making out with my favorite homegirl. #poppy #ronan #youdownwithopp? #yeahyouknowme #homegirllove #fucancer Poppy's other mom is in da house! #poppy #ronan #fucancer #mytwomoms #thesebitchesarecrazy @macymwood A bunch of little ballers and a P-Ro, too. #poppy #ronan #fucancer #basketballislife #arcadiatitans This has secretly been being worked on for quite some time. As you can imagine, it was a very emotional thing. We as board members/friends at RTF decided it was time for the little seal logo to go. We needed something that really spoke to who Ronan was/is. This is what our amazing friends at Fervor Creative came up with after many meetings with us and many do overs. (pro bono might I add because they have such beautiful hearts) I think they nailed it this time as it shows the beauty, strength and bravery that Ronan had, in such a simple way. How no matter what, you always keep walking up that hill and fighting, and even in death, you wont stop fighting for a world that so badly needs to be fixed which is the world of childhood cancer. Looking at this makes me proud, it makes me cry, it makes me strong. After everything Ronan went through, he always held his little chin up with such dignity and pride. At 3 years old, he was such a little man who never felt sorry for himself or let what he was going through get him down. He was my greatest teacher in life and will continue to be as I carry him with me in everything I do. I love you, Ronan. I will never stop fighting for you and this fucked up world of childhood cancer that everybody just seems to ignore. We will change this, because of you. I hope you all like our new Ronan Thompson Foundation design. @ronanfoundation #ronan My favorite place to be on a Friday night. #poppy #ronan #fucancer #fridaynightsnuggles #mybabe
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