Lipgloss Living isn’t easy when your heart is broken


Ronan. I died long before you died. I died on the day you were diagnosed with cancer. I’ll never forgot the way the news was presented to me. Like, “Oh, hello I am an Oncologist. Your son has stage IV Neuroblastoma. Have a wonderful day.” I was stunned, in shock, and the world was literally spinning around me. I was still trying to figure out what the fuck an Oncologist was. I fell to the floor. I died right then and there. But I got back up from my death. I got back up and I fought. We were thrown into the world of childhood cancer and did not stand a chance. Oh, how I thought we did. Because of course you were special and you were mine and we loved each other so much that the God’s from above were going to work in our favor and save you. They did not and you died. And now I will say over and over again, fuck those Gods for taking my child. After you died, I died again, right along with you, by your side, as you took your last sweet filled breaths. “Come with me, Ronan. Let’s get the FUCK out of this place. Take me with you. Please. I don’t want to stay here alone. I am dead, too.” Dead. Dead. Dead. Not once, but twice. So far in my life, I have died not once, but twice.

You die when your child dies. It’s a fact. You die, over and over again. Yet somehow, you just keep being reborn. I often have days where I’ll look in the mirror and say to myself, who are you today? Because I don’t recognize this face. It’s a new face today, but always the same eyes. Those big, sad, green eyes that are filled with so much pain, darkness, and fire it is as if I am looking into the depths of hell itself. Do you know how I go out into the world now Ronan? How I know what kind of day it is going to be? My days are determined by my lipgloss and I’m not even freaking kidding you. What the fuck, kind of way is that to base my days off of? I don’t know, but it is the only thing that seems to work for me. No lipgloss= a really bad day. A clear or light lipgloss= a calm or peaceful day. A bright or red lipgloss= a very, extra spicy day. A red lipstick day! Holy hell. Hold on to your pants, because someone is pissed. I never did this in my life, before I died. I only knew one feeling during that time and it was pure and utter bliss. Lipgloss living wasn’t even on my radar due to the emotions I was feeling. I just wore it because it made me feel pretty and for no other reason then it was girly and fun. Now I wear it to not feel pretty, because I never feel pretty anymore. I feel ugly all the time. I now wear lipgloss like it is part of my survival to stay on this earth. Lipgloss is my imaginary friend that helps me get through the day, the way I need to get through it. Didn’t think I was crazy before? You surely must think I am crazy now. I have imaginary lipgloss friends. It’s o.k. You know I am o.k. with the crazy that exists inside of me. It’s always been there. Now it’s just a little more tangible.

Today had no choice but to be a better day, then yesterday. But last night. That was hell. I think I tossed and turned until almost 5 a.m. I think I beat up some pillows and sent some raving mad lunatic emails to only the one close enough to us, to receive them. Emails that said things like, “What was I thinking, coming here without my Ambien?!! I need it so I can take 5,6, or 7 of them. Or I actually just need my son back, so I can sleep peacefully, again. Can you bring him back for me? I know you can’t, but just thought I would ask. G’nite lovie.” I finally fell asleep after writing a bit. Crying a bit. Thinking a bit. And missing you, a lot. I woke up today, tired but filled with a nervous energy that I couldn’t shake. Adrenaline running through my body like wildfire. Must go, go, today. Do, do, do. I went to visit someone who I have not seen in a long time, but someone who had a hand in shaping me during those very tumultuous teen-aged years. Someone that watched me at my worst and my best. Someone that watched me as a crazy dramatic teenager, grow into a young woman, and now this; a broken-hearted adult. I walked into to see her, like a puppy dog with its tail tucked in between its legs. That’s how I felt anyway. She looked like she was seeing a ghost. We stood and hugged for a few seconds. I didn’t feel like letting go. “Hi,” I said with my eyes falling to the floor. “Oh, Maya. I think about you all the time. But look at you. You’re doing it. You don’t have a choice. I don’t know what to say. You are such a good person. You didn’t deserve this.” Enter my hysteria here, that I tried to keep under control. “I don’t know what happened or how this happened or why this happened. I did everything right. I did everything I thought I was supposed to do in this life, to make sure I had a good life. And this happens to my baby. How??? Why???” No answers were given of course. Just words of sympathy. Maybe pity?? I hope not pity. I never want pity from another person. I stayed for a few minutes longer as it was a short visit, as it only needed to be. She told me she felt honored that I came by to see her. I wanted to say, “Honored? Not honored. It’s just me. I’m just the same. I would always come by to see you, when I was visiting from out of town. I do not want you to see me, so differently, that you are honored that I would pop by. Please, don’t think of me like that. As the broken-hearted woman you see in front of you. Please think of me as just being the same person I was before all of this happened.The girl you used to know, who didn’t know what real pain, felt like. Can’t I go back to being that girl? Please? I cannot. That life is over. That life, will never exist again. Only a new life exists now and I’m not sure what that looks like. It looks different to me, everyday.

Tomorrow is almost here. I have a favor to ask of all of you lovely little blog readers. You all know my Dr. JoRo and how I fully embrace the fact that she has been one of the people who has saved my life through out all of this. Before her, I had no hope at all. She is one of the only people in my life, who has given me the gift of hope back. Tomorrow, her baby girl, Cheyanne, would have been 18 if she had not died during birth. It is because of her death, that I have my Dr. Jo and I so hate that. I would give anything for it to not be this way, and to not have ever known Dr. Jo, so she could just have her daughter. But because of the cruel fates of the world, it is not this way. Dr. Jo has taken tomorrow and turned it into to International Kindness Day. She has been doing this for a very long time now. So long now, that over 1 million acts of kindness have been done around the world. Can you please take tomorrow, and do something extra nice for someone? Even if it is just smiling at a stranger or holding a door open for someone. It doesn’t have to be anything big, but even the smallest acts of kindness, can change the world. Thank you, lovies. You are the best blogosphere friends a girl could ask for. I love you all.

G’nite Ronan. I miss you. I love you. I hope you are safe. Sweet dreams, baby doll. I love you to the moon and back.

xoxo

 
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17 Comments

  1. Annie

     /  July 26, 2012

    My five year old son is snuggled in my bed with me when my phone beeped and it was your blog update. When he saw Ronan’s picture he chuckled and I said, “isn’t he silly with stickers on his face?” His answer was, “they’re not stickers, mommy, they’re jewels because that’s what he is.” I couldn’t agree more.

    Reply
  2. I’m glad you finally go some sleep last night. And I am 100% serious when I say that if you ever want to runaway to Australia, I have a spare room that is yours’ whenever you need it! Love you.

    Reply
  3. Glenda

     /  July 27, 2012

    Thinking of you RoMama.
    Sweet dreams of your Lil blue eyed spicy monkey Rockstar Ro. Always RoLove!! XO

    Reply
  4. Porter Holden

     /  July 27, 2012

    Maya, you are one of the most beautiful people inside and out,I have ever had the pleasure of knowing, and I only know you through your blog. Wishing you lots of Rolove and strength to get through the no lip gloss days. Lots of love!

    -Porter

    Reply
  5. kristen

     /  July 27, 2012

    Kindness day? Done and done. Fucking cancer fucking prick mother FUCK
    <3 your twitter brain tumor friend (kristen)

    Reply
  6. Kate

     /  July 27, 2012

    Yes, we will honor her by acts of kindnesss. Least we could do…..fuck cancer and the horse it rode in on.

    Reply
  7. You.Are.Amazing. No pity, just glad the world has you.

    Reply
  8. Marcia

     /  July 27, 2012

    Acts of kindness? Not a problem. I just wish I could perform the best for you: eradicate childhood cancer and most importantly, bring your spicy monkey boy back to you. Love you always.

    Reply
  9. Melissa V

     /  July 27, 2012

    RIght after International Kindness Day we need International Fuck Cancer in the Ass Day. K? Sending you lots of love.

    Reply
  10. Katie

     /  July 27, 2012

    Acts of kindness? Deal! Maybe some of us can step it up…. Why stop at one act. Aim for 25 and see how many you can get up to! I held a door open for a lady who had her hands full, and now when I go thru my star bucks line I think I’ll pay for the customer behind me… No matter what they order! That’ll be 2 before 9am! I can & will do 25 cause the sparkly dead babies don’t get a chance to do this stuff! I will honor them with kindness all day! (still wishing I could find a bracelette Maya!) :-)
    Katie

    Reply
  11. Thinking of Cheyanne, Dr. Jo, you and Ronan. Extra kindness today in honor of International Kindness Day/Cheyanne. Would send every grieving mom extra lip gloss if I could. xo

    Reply
  12. Colleen Fisher

     /  July 27, 2012

    Only you would take your pain and turn it into kindness for others. <3 I wish so badly I could somehow, someway, somewhere bring your sweet Ronan back to you. xoxo

    Reply
  13. Cols

     /  July 28, 2012

    Many prayers for you and your family. May God guide you down this difficult path and grant you peace in your heart.

    I lost a mother to cancer, have a brother who has been fighting cancer for 8 years and now have an aUnt who has terminal brain cancer. FUCK CANCER! I just continue to fight for those who are suffering from this dreadful disease. Keep channeling that energy to help find ways to kick cancers ass!!

    God be with you!

    Reply
  14. lisa elsdon bell

     /  July 28, 2012

    All i want you to know is i think of you often. you inspire me and have well and truly raised the bar on awereness if childhood cancer. before this i was blissfully unaware of this god awful disease in children and how heartbreaking it is. now because if you and your beautiful boy i am obsessed about spreading the word. every so often i post a status about childhood cancer just make the people in my life sit up and take notice. before this my preffered charity was cancer awareness….now its childhood cancer. i dont have much money to
    donate but i feel by spreading the word im still doing my bit. i cannot put into words how much i want and need this disease to piss off and leave our babiez alone

    Reply
  15. Kelsey

     /  July 30, 2012

    I have lip gloss I call silk sweater….one perfect love

    Reply
  16. hi maya! i know how you feel, but you know, think twice.. don’t hate God. yeah, coz you know, He took ronan to lighten him up.. to stop his struggles upon cancer.. he would benefit too… don’t get me wrong, but if you were the child.. would you choose living, dependent on apparatuses.. rather than living eternally, with the true and loving God.. ronan will surely guide you and your family.. he would be your angel.. you know.. just trying to diffuse the tension.. xoxo lots of love

    Reply
  17. Jamie

     /  September 21, 2012

    Hate God or whoever you want, Maya. You’re the first person I’ve never met yet absolutely adore. :)

    Reply

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