Life’s no way to treat an animal


It is with a heavy heart tonight that I tell you we are returning back to Phoenix. We came out here, full of hope; yet Woody and I both knew that it was going to be a tough road to travel. We met with Dr. Mosse about starting MIBG therapy to try to get Ronan’s disease under control; but with much sadness in her eyes she told us that this therapy would never cure Ronan or much less do anything for him. I knew this morning before we left the RMH for CHOP that there was little hope, as Ronan’s pain is getting much worse. I do not in the least regret coming out here. It was something that Woody and I, as parents had to do to make sure we could know in our hearts that we tried everything we could for our son. I believe it was a gift to have Dr. Mosse deliver this heartbreaking news to us, as I would not have wanted to hear it from anyone else. I cannot even express to you what an amazing woman she is and I am so thankful that she has had the chance to spend a little time with our son. I know she will work harder because of him and will one day, find a cure for this disease. After Dr. Mosse told us that the treatment would not work, Woody broke down and I went into complete shock. I could only focus on holding my husband, watching his tears, and just as he started crying, it started pouring rain outside. The rain only lasted about 5 minutes on this sunny Philly day. I know the reason for this rain.

The rest of today has been a blur. We have Ronan’s pain under control and are planning to head back to Phoenix on Friday. Woody and I have spent most of the day crying, talking, and whispering together. We have made promises to each other that we will keep. As Woody said, “Cancer will not take anything more from us than it already has.” It will not destroy our marriage, our family, our boys. We will take control over the things that we can. While Ronan has been awake today we have been very hush hush about everything, as he does not need to know that our hearts are broken. We have made phone calls to a few people, but that is about the extent of the phone calls today. All of this is just too much. Woody and I have both decided that we hate the saying, “Everything happens for a reason.” There is no reason for something like this.

We have some tough decisions to make yet I have no doubt that our little man will guide us though. We will do what is best for him and respect his body, his life, and his time. I have spent the entire night curled up next to him, singing to him, whispering sweet nothings in his ear, and kissing his little face. Ronan has filled my life with so much more love than I ever knew existed. The almost 4 years that I have had with him have been pure magic, bliss, and we have an unbelievable bond that will never be broken.The thought of being without him is eating at my soul, as he is the best thing that has ever been mine. I don’t know how I am going to go on without him but I have a feeling my twin 7 year olds will be great helpers. They deserve the best life possible after living through this nightmare and Woody and I are determined to give it to them.

I am not brave, strong, or fearless anymore. I am just a mom. A mom to the most beautiful boy that was put on this planet and whom I will think about every minute of everyday for the rest of my life. Being his mom, was the best thing that I have ever done and will ever do.

Tonight, I asked to speak with Dr. Mosse one more time. We went alone in a room and I told her, as a mom, I had to know in my heart that I had done absolutely everything possible for Ronan. She told me I had done that and more. I begged for clinical trials, asked about things I had heard about in Germany, Canada, homeopathic hospitals…. asked for anything. She told me if there were anything, she would have done it for us. I asked if we made mistakes on the choices we made as far as his treatment went. She said absolutely not, and that we couldn’t look back. His disease is everywhere and spreading so rapidly that the best thing we can do now is just love him like we’ve never loved him before. I cried to her, asked a few more questions, and thanked her for her compassion and grace.

There are not enough drugs in the world to knock me out or make me numb to this. Nor would I take them if there were. As of now, you know I am still hoping for a miracle and not giving up. I will never give up on Ronan but I will respect him and his life. He is going to lead me to where he needs to go, when it is his time. I, as his mother, could not ask for a braver soul to surround me at this time. I will not leave his side until he is ready for me to go.

Please continue to pray for Ronan and our family. Please don’t take anything in your life for granted. And please don’t send any mother fucking flowers. I told Fernanda tonight, if anybody sends me flowers, I will lose it. If you feel compelled to do anything, send a card, write on my blog, spread around Ronan’s story, ask for prayers, donate blood or platelets, or donate to his foundation. I will do something amazing with the money we are raising and I know it will come to me when the time is right.

Thank you to all of our friends and family who did not disappear during this time and who chose to surround us with the love that we so need. Thank you to all of you who love our baby even without knowing him. I am so thankful for all of our nurses and doctors who have stood by our side and who continue to do so. Please send us your strength to get though this. We are a strong family, but we are about to walk through HELL, even more so than the past 8 months. We have to come out the other side.

Love you all,

xoxo

THE CHOSEN MOTHERS

By Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit.

Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation.

As He observes, He instructs His angels to make notes in a giant ledger.

“Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard.”

Finally, He passes a name to an angel and says, “Give her a child with cancer.” The angel is curious. “Why this one God? She’s so happy.”

“Exactly” smiles God, “Could I give a child with cancer a mother who does not know laughter? That would be cruel.”

“But, does she have patience?” asks the angel.

“I don’t want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it.”

“But, Lord, I don’t think she believes in you.” No matter, I can fix that. This one is perfect. She has just enough selfishness.”

The angel gasps -”Selfishness? is that a virtue?”

God nods. “If she can’t separate herself from the child occasionally, she’ll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn’t realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see…ignorance, cruelty, prejudice…and allow her to rise above them.” She will never be alone. I will be at her side every minute of every day of her life, because she is doing my work as surely as if she is here by my side.”

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164 Comments

  1. sonia

     /  April 27, 2011

    wow, i really don’t know what to say. nothing i say would matter anyway at this time. just know your family is in my thoughts and prayers each and every day. miracles happen EVERY DAY and i don’t doubt one second that something amazing is still yet to come!

    Reply
  2. Jen Albright-Burns

     /  April 27, 2011

    I don’t know what to write other than the tears won’t stop and my heart is breaking for you, Ronan and your family. I know nothing can take away your pain, but I hope you gain strength from everyone who has been touched by Ronan and his fight. Please know you Ronan, and your family are in my thoughts and prayers to the universe.

    Reply
  3. Adrianne

     /  April 27, 2011

    Maya,

    I will continue to hope and pray for you and your family. You are so strong, you are such a wonderful mother.
    Thinking of you <3

    Adrianne

    Reply
  4. Jennifer

     /  April 27, 2011

    Stupid fucking cancer!!!!!! All I want to do is say fuck cancer right now! I am so truly sad that you all have to go through this! It is not fair and it is not right! It truly broke my heart to read this tonight. I don’t even know you other than reading you blog and I am sitting here in tears. I know you did everything you could above and beyond, you and your husband. No one deserves this. Ronan and your family don’t deserve this! We will be continually thinking and praying for your family!

    Reply
  5. Marquita Ward

     /  April 27, 2011

    My heart is breaking for your family..I will continue to pray for your strenght and Ronan’s comfort..you both as parents have given your all..give your hearts to Jesus even if they are in a trillion pieces..He will take care of your family through this. He is your Father in heaven and cares so very much..yet still we all ask why..and will possibly never know..why we go through the pain we do..perhaps helping others get throug theirs..

    Reply
    • Candi Frost

       /  April 28, 2011

      My wish for you is peace.
      I have been following along since you
      started this blog. Praying for you and your
      family every single day many times over.
      Words are never enough and the most stupid
      comment anyone could make is “things work out
      for the best” The best for whom??????? So I totally
      understand how you feel about that.
      From what I can see is your are an amazing Mother,
      Woody is amazing as well. You have done everything
      that is possible, but don’t give up…..ever.
      I know you don’t know me (I did meet Woody when he
      was a young man, I used to live across the street from
      Brandon) and you seem to have a great
      support system but I wish I could be there for you somehow.
      You have so opened my eyes to his entire process of cancer.
      How is it is so unfair, but there hope, with the wonderful
      doctors you have had and the progress they are making but you
      are so right it isn’t coming fast enough, and I ma so sorry for that.
      You have brought so many things to light…How great or not so great the
      hospitals are, How wonderful RMH is and even how nice the cities you have
      visited are. I thank you for that. We all need to know so we an send our hard earned
      dollars to places that really do good work.
      Home is always the best no matter how far you travel and I pray
      your trip home is easy and little Ronan stays out of pain.
      If ever I could do something for you I would be glad to.
      Blessings to you,
      Candi Frost

      Reply
  6. Nichole

     /  April 27, 2011

    Praying for strength..
    Praying for guidance..
    Praying for Ronan & all who love him..
    Heartbroken..

    Praying for a miracle!!

    Reply
  7. Rosemary S.

     /  April 27, 2011

    It is with a purely heavy heart to read your blog tonight…tearing at me through and through.
    I will not send flowers…I will uplift your family with my prayers of HEALING, of LIFE, of MIRACLES, of SUSTAINING HOPE and VICTORY.
    It is all still there for little Ro. He is a child beyond measure and is teaching us all about how to be a better person in this world.
    I won’t give up. Ever.
    I am on my knees ~ prayers flowing.

    Reply
  8. Marie Brigman

     /  April 27, 2011

    Its been a long time since I’ve cried this hard. All along I have been praying (I’m sure we all have).Tonight I will pray like I’ve never prayed before.

    Reply
  9. melissa

     /  April 28, 2011

    It has been so many years since i have seen you, and can honestly say I never really got to know you. My memories of you are from HJH, and I remember coming back after Christmas break and saw you in the hall. You were so tan, I am not sure where you went, maybe a cruise, but i was so jealous as i never got to leave the greater metropolitan area of kels/longview! Isn’t it funny what our memories choose to remember? Many years after that seemed to be a blur for me, which was probably a good thing because I was doing very little with myself, or my life. However, people grow, change and find the paths they are meant to take in life and I am grateful that I am one of those people. I have been working in healthcare for many years. I am pursuing my bachelor’s degree in nursing and will go on and get my NP license. I have worked in an Internal Medicine clinic for the last 6 years and have found my true calling. It is so diverse as it in tells the whole body, the good, the bad, and even the cancer! It is such a trying job emotionally, but pushes you everyday to be strong for the patients, the family and further research. I was talking about little Ronan today with the doctor i work for and we both ended up teary about it. We are both mothers who care immensely for our children and would give our left arm if it was ever asked. Maya, i cannot imagine what you, your husband, two boys, and mostly poor Ronan have experienced over the last 8 months. It is a nightmare that nobody should ever experience! I want you to know that your blogging and sharing such a personal story has brought so much awareness you cannot even imagine. Ronan is a darling little boy and I get lost in those blue eyes on the photos you have posted. If i could trade places with him I would. I don’t think that you realize how much awareness you have brought to this word “Neuroblastoma” (I wish it was only a word, and that it was not a reality for him or your family) and with awareness comes education, understanding and hopefully early prevention. Ronan was placed on this earth to send a message and through you and your blogging he has…….FUCK YOU CANCER!!!!!! He was born to two smart, educated loving parents who will never let his message fade! I have no doubt that you will do something great out of this and all of the sorrow you have and are feeling will be focused on a positive light that will help thousands and millions of people! Love what you have in front of you every day, no regrets, and most of all don’t take anything for granted…..you never know what tomorrow holds for any of us. My heart is bleeding tonight, as i am sure many others are, for each and every member of your family! I will pass the torch of knowledge on and keep spreading the word of Ronan in hopes of educating one more person! Ronan is a little man that has touched more lives than most of us will ever do!!……Thank you Ronan you are a light that will never fade!
    You will probably know me as Missy Linden….hugs and kisses to you all and my thoughts and prayers are all heading your way!!!!!

    Reply
  10. Tiffany Berwind

     /  April 28, 2011

    I am so sorry Maya. My entire heart is with you and your family right now and it is broken. I’m a mess. I’ve said it all along, but you are an absolute amazing Momma, wife, and an amazing woman. You are going to help many people- I know it. Ronan is a wonderful little man- a true testament to your parenting. I am here for you Maya and the Berwind family is not going anywhere. You have the most wonderful family and I know that you are surrounded by so many people who will never let you fall. You, Woody and Ronan have fought so hard and you are absolutely right, everything DOES NOT happen for a reason. After meeting Ronan I now know that some things happen simply because fucked up things happen to really good people. I have so much love for you Maya and my prayers will never stop.

    With lots of love,

    Tiffany

    Reply
  11. Glenda

     /  April 28, 2011

    My heart aches for you, Ro, your hubby, the twins and the rest of your families. It’s not fair! Ro does not deserve this. Sending prayers and strength through this difficult time. Rockstar Ronan rock on! XO

    Reply
  12. Michelle Lampkin

     /  April 28, 2011

    I am broken-hearted for your family. There’s nothing to say to make it any better. I just pray that you can feel our hugs and arms around you from all over. I’m truly so very, very sorry.

    Reply
  13. Jen Albright-Burns

     /  April 28, 2011

    I keep thinking about you and your Ronan and I am outraged, pissed off, and hurting for you. We have never met yet I wish I could take all of your pain and suffering away in a heartbeat. Miracles happen and I am hoping, wishing and praying that the universe also says FUCK YOU to this awful cancer!

    Reply
  14. Leslie

     /  April 28, 2011

    My heart breaks in a million pieces tonight, as a fellow mommy, from your hometown. No other words are adequate…

    Reply
  15. Kristina

     /  April 28, 2011

    There are no words to comfort you. The tears just won’t stop… I cannot help but imagine myself in your shoes – I know the fear and pain of the possibility of losing your child. I had a miracle – we were able to revive our 3 year old after she almost drowned. What would give me comfort is a place where I could be together with my family and nature. The ocean has always attracted me – just looking over the horizon and watching the waves come to shore. Maybe you can find a place where all of you can escape to, even if for a day…
    You are the idol family, perfect parents with perfect children. You needn’t try to find answers and reasons – just like you said, there is no fuckin reason for this.
    I don’t know how to pray well, but I’m doing it right now. I hope you can find moments of piece and comfort all of you together as a family.

    Reply
  16. Thompson Family-

    Just want you to know that I continue to pray for you. I continue to pray for a miracle & that you are given strength.

    Reply
  17. Kara Hill

     /  April 28, 2011

    No no no no no no …..I have followed your blot religiously for months and my heart is just broken today. I truly believed Philly was going to be ‘it’ and where you all would finally catch a break and I am just shocked to read otherwise.

    Cancer is so evil – it is the thing I HATE and fear most in this life and I pray we will find a cure before more wonderful souls die. Please know what a wonderful, awesome, amazing STRONG mother you are!!! You have given everything to Ronan and you should have NO regrets – the love you have poured out to him will get him through this. Also, do what you need to do to take care of YOU:)

    Your family is in my daily thoughts and prayers. xoxoxox

    Reply
  18. Ananda Dasi Nicole Billa

     /  April 28, 2011

    We will be praying for you all constantly.

    Reply
  19. Kim Fergus

     /  April 28, 2011

    Bless you, Maya. I have no idea how you were able to share this update. Keep being the most amazing mama and loving family unit that you are. I’m lifting you all up in prayer. You are a beautiful angel of God, Ro warrior!

    Reply
  20. Tanya

     /  April 28, 2011

    Maya- there aren’t any words to tell you how sorry we all are. We wont give up on your family, but we will pray for all of you. =(

    Reply
  21. Amy

     /  April 28, 2011

    My thoughts and prayers are with u and ur family. You are THE strongest mother I have ever “known” and a hero to myself and many other mothers.

    Reply
  22. Kathryn

     /  April 28, 2011

    there is so much love for you and your beautiful family and beautiful friends — we are going to walk with you all the way…

    Reply
  23. Trish

     /  April 28, 2011

    I’m heartbroken and hopeful. I’ve fallen in love with Ronan. Keeping you all in my prayers as you make every day count.

    Reply
  24. Laura

     /  April 28, 2011

    You all are in all our thoughts and prayers. Ronan is blessed to have such a wonderful family. You have tried to move heaven and earth for that precious boy. I still believe on miracles and will pray for one. Just let us know if we can do anything for your family. We are there for you with deep love.

    Reply
  25. Laura

     /  April 28, 2011

    I Really do not even know what to say… I’m sooo upset even though I don’t know You guys, but I love your family just from reading your blog.. I will continue to pray for a miracle! You are an amazing strong person! I will now never take anything for granted and give my 2 babies extra love & hugs. Thank you ronan for bringing me so much closer to my babies.
    “….I got high hopes, I got high hopes, high in the sky hopes..”
    praying always,
    Laura <3

    Reply
  26. Emily

     /  April 28, 2011

    I am so deeply sorry to hear this, and the tears I am shedding are nothing compared to the sadness and pain you and your family are experiencing. I am praying that you find continued strength and peace. Nothing that I can do or say will make this any better but know that you have so many people out there praying for you and your family.

    Reply
  27. Susan

     /  April 28, 2011

    My son the same age as Ronan. And we started following your journey and we have been hoping and praying along with everyone else. I honestly do not have the right words to say but please know that we are hoping for a miracle. Your connection with your son is remarkable. All our positive energy we can send is coming your way…

    Reply
  28. chrisie

     /  April 28, 2011

    So unbeliavably sad. I know no words can make u feel better but I want u to know with all my heart-Im praying for your family. I am so sad for you all. Praying and thinking of you.
    Love
    Chrisie and Ava

    Reply
  29. Corene

     /  April 28, 2011

    I don’t know you, but I feel as if I know you. As a mother, wife and woman I know you. I have been following your story for the past several weeks and have tremendous admiration for your strength and courage. I have been brought to tears numerous times while reading of your journey with little Ronan. He is a very special little guy and he has a very special mother. May peace be with you!

    Reply
  30. Marcia

     /  April 28, 2011

    Dear Maya,

    I am so very sorry. I don’t even know you or your beautiful baby boy but after reading this post, my heart is broken and I have not been able to stop the tears from pouring down. As a parent myself, I can not even imagine the pain you and Woody are in right now. I know you will cherish every moment you have with Ronan. I am still and will always pray for your family, especially little Ronan. I also believe MIRACLES happen every day and I am still praying that you will get yours.

    If there is anything at all that you need, please know that I would do anything to help.

    Love always,
    Marcia and family

    Reply
  31. bev

     /  April 28, 2011

    Through my tears, my heart goes out to all of you. You are the rock that brings me smiles and hope and faith each morning before I begin my day. Thank you for all that you have done and will do for our Rockstar little guy.
    Bless you all.

    Reply
  32. Cynthia

     /  April 28, 2011

    Maya,

    My heart is broken. I found your blog only recently and have spent the last four days glued to it as I came to “know” your family and friends and care for you and little Ronan. I truly expected to come to the end and find a big rainbow full of smiled and happy endings. Not this. Not to your family. With a Momma-Bear so courageous, a daddy so dedicated and such loving and warm brothers. Your Quinn sounds just like 8 yr old, so emotionally astute and connected at such a young age.

    I also saw a lot of similarities between you and I, both ferocious Momma-Bears who will do whatever it takes to get their kids what they need. Our challenges haven’t been near the magnitude of what you and other parents of children with cancer face, but my daughter’s ASD has given me my own small share of battles. And “fuck” is my favorite word too.

    Small consolation today. I don’t think FUCK CANCER even begins to cover it. All I can offer is to send all the strength I can to help you and your family through this nightmare. Please know that there is a Canadian over in Brisbane right now, praying for and thinking of you. How amazing that your little man’s message has been so far reaching – and it can only keep going…

    Reply
  33. My heart is breaking along with yours…..Praying for your sweet Ronan and your whole family.

    Reply
  34. Heather Tuttle

     /  April 28, 2011

    I’m very sorry that your family is going through this! I don’t know you, but I have followed your story for a while now. I learned of the fight through Amie…I have shared your story and I will keep you in my thoughts and prayers!

    Reply
  35. Jennifer

     /  April 28, 2011

    I have read the posts about your family and my heart has cried, but this time my eyes pooled with tears knowing that I have three amazing Healthy children and that God has not put me through the pain of losing one, because I am not strong enough. Any mother that loses a child or is looking at that as an outcome, know that those are shoes I could never fill.
    Your strength, pride and grace through this has been amazing and I wish peace to your heart and soul as you do those things that come your way. My friend once told me when I could not take life day by day… to take it minute by minute. You have the right to take it however you and your family choose, my heart and prayers will be with Ronan and your family as you walk through this.
    Love from Idaho.

    Reply
  36. Mandy

     /  April 28, 2011

    Maya and Woody, I have been reading your blog and keeping up with Ronan’s journey since day one and I am so heartbroken to read your last post. Ronan is such a special loving boy who has two amazing parents, loving brothers and an extended family and network of friends that is unmatched. Truly. Our family prays for Ronan every single day and we will continue. No mother or father should have to endure what you have endured. I am continually amazed and in awe by your love for your son, you both are inspiring, role model parents. Let peace, love and serenity fill your heart as you continue to love your son unconditionally. We will be praying. Love, Mandy (Caldwell) Scandlen

    Reply
  37. Farrah

     /  April 28, 2011

    My heart is breaking for you all. I only know you all through this blog, but I have come to feel such love for your whole family. You are all beautiful and wonderful souls. I have no words of wisdom, I have no idea why this has happened to you all. But I know it sucks, and it’s stupid. I will continue to pray vigilantly for little, beautiful Ronan, and for you, Woody, Liam, and Quinn, as well as all who know and love you. I will keep praying for a miracle. I am in Knoxville, Tennessee. Please let me know if there is anything you all want or need from here. We have pretty good whiskey! Sending lots of love and prayers to you all.

    Reply
  38. Stephanie

     /  April 28, 2011

    Maya,
    As my heart is breaking, I am at a complete loss for words. The tears started rolling as I was telling my coworker about your post. She and I have been following Ronan’s journey since he was diagnosed. I can’t begin to imagine how you and Woody are feeling right now. Just now that our thoughts and prayers are with you.

    MUCH Love,Hugs & Kisses to sweet Baby Ro!
    Stephanie R.
    Texas

    P.S.
    I join you in saying:
    FUCK YOU CANCER! YOU CAN GO SUCK BIG DONKEY BALLS!

    Reply
  39. Amy

     /  April 28, 2011

    This was definitely not the post I was hoping for when I woke up this morning anxious to check your blog with news from Philly. I’m at a loss for words….Heartbroken is about the only word I can think of right now. I know I’ve said this every time I’ve posted on here; even though I don’t personally know you or your family, your blog has made me feel like I know all of you and your insanely incredible friends. I agree with your statement about “everything happens for a reason”. That’s just a bunch of b.s. Nobody should have to go through this, and you have tackled Ronan’s cancer head-on with the most amazing strength. I really would still love to send Ronan a card with a picture so he can see who’s thinking of him and still praying. Please let me know where I can send it. I will be thinking of you guys all day, everyday…

    Reply
  40. Travel - Jen

     /  April 28, 2011

    This was the post I was dreading. You have all battled so long and hard. I will be sending happy thoughts, and wishing for something awesome to happen, but i am going to have a good cry now.

    Reply
  41. Sarah Wendt

     /  April 28, 2011

    My eyes were first open to this nasty disease when I began to read about little Layla Grace though twtter and her parents blog. Never before had I thought about childhood cancer, not to mention all of the families facing it. 1 child dies every 4 hours from cancer!!! This is something that does not sit well with me. It just pisses me off!!!! I feel so blessed to have 2 healthy children, but am angry that your family and many others have to travel this painful road. Since reading about Layla Grace and Ezra Matthews, I guess you could say I became a little obsessed with this particular disease because I am so MAD at it! Last semester I was asked to write a persuasive research essay and I wrote mine on Neuroblastoma. I got an A! I received the A because the content of the papar focused on more funding, more testing, more awareness, and more publicity focusing on the reality of this beast. I don’t think anyone has to have a close relationship with cancer to raise awareness and help. Please know that since finding this blog, Ronan and you family have caused me even more drive to try and bring more attention to this asshole named cancer! You remind me so much of myself Maya. You are and AMAZING mother!!!!!!!! You are always talking about how your friends are AMAZING and you could never get though this without them but you are equally if not more AMAZING!!!! You are real and have kept this blog real letting us all see the reality of what this disease does and that is so very important. There is no doubt in my mind people will be talking about Ronan’s fight 100 years from now. He has made such an impact in his almost 4 years, and that is truely unbelievable. Please know that you and your family have touch my heart, and please tell Ronan that I promise to do all I can in this small town in Kansas to spread awareness!

    Reply
  42. Kerry Embrey

     /  April 28, 2011

    What shocking news Maya. I am sitting here with tears flowing down my face. I am praying that some miracle will happen. Ronan’s story is so dynamic, and your love for him and your family is inspiring.
    Please let me know if there is anything I can do for you.
    Sincerely,
    Kerry (Amber Bishop Matus’ Aunt)

    Reply
  43. Maya,
    Because of Ronan, I enrolled back in college yesterday – so that I can go to school to work in pediatrics with children like Ronan. I have been thinking about it for a long time, but your story is the final decision maker for me. I absolutely have to do something to help fight this beast. So know that THERE is one example of your story making a difference in the world.

    We are all with you, PRAYING and HOPING and sending love your way to your little one, you, and your family. I am asking your angels to bring you comfort and peace, and I am also praying for a miracle for Ronan. Hope and blessings to you… and know that you are a WONDERFUL mama to your boy.

    Reply
  44. Cheryl

     /  April 28, 2011

    I sit here in tears without words and wonder how in this day and time we cannot find a cure for cancer. I believe in miracles and I am looking for one to happen. I am so sorry that this is happening to you and your beautiful family. I will continue to pray for Ronan and your family. You are a strong woman, and I know you will continue to fight.

    Reply
  45. Cindy

     /  April 28, 2011

    I am so heartbroken…words cannot describe how horrible I feel for Ronan. His beauty, love of Star Wars, and boisterous spirit has captured my heart. I don’t know him, but I love your child. I HATE cancer…it sucks and rips people apart. It steals too much time, too much love, and too much joy. I hope and pray for comfort for Ronan and that any pain is reduced and that joy fills every day of his life. He is such an incredible child who is blessed with such an awesome family. You don’t know me, but know that I am sending prayers, hugs, and kisses your way.

    Reply
  46. Lynne

     /  April 28, 2011

    I have no words…even though we’ve not met I’ve become very attached to you and your family…I hope that all the love that you receive helps you get through this…It’s just not fair and I don’t understand, I never will.

    Reply
  47. Meg

     /  April 28, 2011

    I wanted to find a quote or something to try and make you feel better but nothing fit. I don’t know you guys yet I love you. My heart hurts to read this. If I could do something, anything, I would.

    With love,
    Meg

    Reply
  48. Vanessa

     /  April 28, 2011

    I was on my way to work, halfway into NYC on my bus when I read your post. I got off the bus and instead of going to work I called out and went right back home. I picked up my kids from their schools and we’re playing fucking hooky today because life is a gift and our time together fleeting. Healthy or sick – we just don’t know what tomorrow will bring. It’s small or no consolation when you’re in the midst of your pain but I believe that aside from raising children’s cancer awareness, you and your sweet baby boy have also inspired many mommas to cherish their children that much more. God Bless you both for that.

    Reply
  49. Mary

     /  April 28, 2011

    I too am lost for words…the tears just poured reading this update, I can’t imagine the pain and anger and hurt you’re going through…hell, I don’t want to imagine, i just want to scream with Jennifer “FUCK CANCER!!!” but, instead I will pray…
    I couldn’t agree more about hating the saying “everything happens for a reason”…it sucks, it’s true yes, but I have to say, there is NO reason for this, but you were chosen to be Ronans Mom, he couldn’t have had a better one in anyone else :)

    Reply
  50. brandi

     /  April 28, 2011

    Wow, I can’t imagine what you guys are going through. You guys will be in my prayers now more than ever.

    Reply
  51. Dorene Plampin

     /  April 28, 2011

    We can never truly walk in another’s shoes. But today I feel such a sense of pain and sadness for all of you. Remember that Ronan is alive and giving and receiving love and hope.
    Your comment about marriage and togetherness are so right on. cling to each other always. Love the boys and each other with all your hearts. That is what will get you through all of this. Sending an abundance of prayer and love and more Angels.
    D

    Reply
  52. kim van alen

     /  April 28, 2011

    Fuck! Fucking neuroblastoma. Maya, Ronan is a rockstar, and has proved that without a doubt, this fucking cancer can’t tke that from him. I read this last night, and of course was sick. Tried to fall asleep after and all I could think of was you guys, and how fucked up this is. I’m not going to tell you, you are all in our thoughts and prayers, you know that. What I am going to tell you is how Ronan and your family and his journey have forever changed all of us, and I am so honored to be a part of this horribly fucked up journey. As weird as that sounds. He is a gorgeous little Angel and the simple fact that you share him and his story with all of us is just a blessing. We will never give up on Ronan or your entire family! Love on him for all of us, and as I kiss my three babies daily, you are always being thought of! You are one kick ass mama, and nothing can stop you! Pleae give your sweet twins our love as well. XOXO

    Kim Van Alen

    Reply
  53. Maggie

     /  April 28, 2011

    Maya,

    I read your latest blog post, as I do every morning over coffee, in complete shock and sadness. As I am also a mother of young children, I have found myself thinking of you, your family and especially Ronan all day, finding it very difficult to concentrate on my work. My heart so deeply ACHES for you. I know there are no words that will make you feel better, but just know that I keep praying as you, your husband, Ronan and the boys continue fighting.

    Sincerely,

    Maggie Leep
    Oklahoma City, OK

    Reply
  54. I have no words beyond I’m sorry. There’s nothing else I can say. And, you’re right. There’s no reason at all for something like this happening to Ronan and your family. None.

    Reply
  55. Dawn

     /  April 28, 2011

    I just came about your blog this morning and am heavy hearted reading through it. Your entire family is in my thoughts and prayers and will continue to be.

    From my favorite poem, Footprints in the Sand:
    ”My precious, precious child, I love you and I would never leave you! During your times of trial and suffering when you see only one set of footprints, it was then that I carried you.”

    Reply
  56. Rozella

     /  April 28, 2011

    I don’t know you but someone on my Facebook shared this and I can’t help but tell you how amazing I think you are. I am a mother of two little girls, one of which just turned 4, and I could never imagine going through something like this. You inspire me to never take anything having to do with my kids for granted. I will be praying for you, your family, and your little Ronan. Miracles do happen so never give up on thinking your family could be the next to receive one! <3

    Reply
  57. There is another way to help take away the pain and possibly help cure him. You have to completely eliminate the acetaldehyde build-up in his body. You have to start gradually and work up as there can be some detox side effects, but this protocol will do it. All the vitamins/minerals and supplements are important, especially MSM. http://nourishingachildwithcancer.blogspot.com/2011/04/laylas-tumor-busting-protocol.html

    Feel free to contact me for dosages if you choose to go this route to help save your son or at least help take away the inflammation and pain.
    Sincerely,
    Weldon Williford

    Reply
  58. This was a beautiful, yet heartbreaking post.

    Reply
  59. BTW, I am available on Facebook or my e-mail is weldonwilliford@hotmail.com

    Reply
  60. I just learned about your son from a friend who’s daughter McKenna is battling this same horrible disease. I spent a good part of Monday afternoon entering your lives, feeling your pain, celebrating your joy and strength, praying for what was to come. My heart literally aches for each and every one of your family and friends. There are no words I can say or probably anyone can say beyond expressions of sorrow and love. At the same time I am filled with awe at how you are handling life’s hardest moments… with resolve to LIVE through it together. LOVE beyond measure… acknowledge the Pain so in time you can find HEALING… CELEBRATE the precious and amazing gift of RONAN. You are right there is ‘NO REASON for this to happen” I will continue to pray as you navigate what is to come. Patti from Mesa

    Reply
  61. I just found out about your boy on FB and just read your last entry. I want to tell you that I have been exactly where you are. Last Nov. we lost our 2 1/2 yr old daughter to stage 4 NB. She battled for 11 months and was in partial remission. But then this monster just took over and there was nothing more we could do. Dr gave her 2-6 weeks, she lived 12 days. I remember asking the Dr about clinical trials, begging for them but none of them would accept her with so much disease. I tried homeopathic at that point. But it was growing too fast. I remember the Dr telling us that he had never seen parents go as far as we did. We left no stone unturned.
    Just try to stay positive and hold on to it.
    We did start a foundation in our daughter’s honor for NB. We would love to have Ronan as a little hero on our site. May we?
    Please feel free to contact me if you would like to talk. I’m always here.

    Gen
    http://www.sierrarayn.org

    Reply
  62. K. Rapattoni

     /  April 28, 2011

    I cannot begin to imagine your heartache. I came across your blog through a link posted on a web page and I just cried as I read about your precious Ronan, and the fight that your family has been having with this horrible disease. My heart really hurts for you. However, I want to tell you how much I admire the enormous love you have for each other. I feel blessed to have been introduced to your family through your writing. Your words paint such a vivid picture of not only the anguish and pain that you are struggling with, but also the fierce love and devotion that you share. What a special little boy Ronan is and what an amazing family you are. I will pray for for Ronan. And I will also pray for each of you who love him and will have to endure the pain of letting him go. I have a feeling that Ronan will have a legacy that will live on and touch many other people and I hope you will continue to write.

    Reply
  63. Heather Berry

     /  April 28, 2011

    I have been following your blog for months and I have prayed for your family and Ronan many times. My heart is breaking for you all, but I pray that God will perform a miracle and heal your son’s body. I pray for strength for you and Woody and your boys. Take care.

    Reply
  64. Kimberly Anderson

     /  April 28, 2011

    My heart is breaking for you Maya, and for your family. Stupid Fucking Cancer.

    Reply
  65. lisa

     /  April 28, 2011

    you have my strength and the strength of so many others around our community who love you and ronan even though we may have never met. stay present and please let us know if you need anything from your community. sending much love and support, prayers never stop as well.

    Reply
  66. Wendy Ledford

     /  April 28, 2011

    Dear Maya and family…
    I have no words….only prayers for your precious family and little rockstar Ronan! Praying for another miracle and asking God to wrap you all in His strong arms of love, comforting you, encouraging you, and showing you His Hope that only He can give…..in the mighty name of Jesus Christ I pray.
    Love, Hugs and unending prayers.
    Wendy and family (Atlanta, GA)

    Reply
  67. Mary

     /  April 28, 2011

    Sending love and prayers to you all……continuously.

    Reply
  68. Liv

     /  April 28, 2011

    I want to fucking punch something. I hate this fucking disease. I promised you in the beginning, I will never stop fighting for Ronan. I love you.

    Reply
  69. Renae C.

     /  April 28, 2011

    My prayers are all yours,Ro’s, and your family…. I’m wiping my tears and catching my breath and going to do something that shows our commitment, support sand love.

    Reply
  70. Amber

     /  April 28, 2011

    “Life is an opportunity, benefit from it.
    Life is beauty, admire it.
    Life is a dream, realize it.
    Life is a challenge, meet it.
    Life is a duty, complete it.
    Life is a game, play it.
    Life is a promise, fulfill it.
    Life is sorrow, overcome it.
    Life is a song, sing it.
    Life is a struggle, accept it.
    Life is a tragedy, confront it.
    Life is an adventure, dare it.
    Life is luck, make it.
    Life is too precious, do not destroy it.
    Life is life, fight for it.”
    -Mother Teresa

    Reply
  71. Kristin

     /  April 28, 2011

    Enjoy your days as you have them, keep on keeping on as you and your family has because Maya, you and your family have been such an inspiration to everyone that has met you and all that have followed this blog. I remember a blog you posted that if Ronan’s looks get people to notice this terrible disease then so be it, but in reality it has been your determination, strength (no matter the amount) and your commitment to an angel who no matter how you put it, is 100% you in all ways. Your children live through you everyday, what you teach them, the stories you tell to them, the lessons that you teach eachother and love that is shared. Ronan is a little you, and you have shown him the best you that God offers. You may feel like you are no longer strong, but that is when you rest and let those around you carry you through these tough times. I know that you will feel peace, though maybe not right away, and that no matter the outcome, Ronan will always be there for you and your family as you have been for him. Keeping you in thoughts and prayer daily.

    Reply
  72. Garrison

     /  April 28, 2011

    I do not know this family or this person but a good friend of mine posted this on facebook. i will be praying for Ronan none-the-less

    Reply
  73. Tricia Rodman

     /  April 28, 2011

    Maya and Woody,

    My heart is breaking for all of you. I cannot imagine the pain you are experiencing, feelings you are going through, confusion, shock, frustration, disappointment. I was so praying and hoping for a miracle for Mr. Ronan. I am just sick. I will continue to pray for you all and that you find the right answers for the remainder of your journey.

    When your Mom came to New York, she brought with her a little “creature” my daughter made for Ronan. On the back is her special label. She makes these in memory of her friend, Conner, who sadly passed away last June. I’ve been holding off in supplying you with Conner’s mom’s blog as I didn’t want you to become discouraged. Now I would encourage both you and Woody, when you have time, to read her blog. Although the diseases of your children are different, I think you will find hope amidst all this sadness. Her blog is: http://notsobrightandshiny.blogspot.com.

    Another foundation that is great to look into is called Gloria’s Angels: http://gloriasangels.org. They may be of assistance to you both. They helped me, help Conner’s family and helped them personally as well.

    Always praying and loving you guys from afar. You have a warrior in Ronan. A warrior in both you and Woody as well. May God hold you in his hands throughout this journey and bless you with many memories.

    All my love,
    Tricia Junker Rodman

    Reply
  74. Christa

     /  April 28, 2011

    I don’t know you and your family, but I am so deeply touched by your love and courage and the agony of the journey you are walking. You are held in hope, in shared belief in miracles, in your grief – in whatever comes. God bless.

    Reply
  75. Monica

     /  April 28, 2011

    May God give you…
    For every storm, a rainbow,
    For every tear, a smile,
    For every care, a promise,
    And a blessing in each trial.
    For every problem life sends,
    A faithful friend to share,
    For every sigh, a sweet song,
    And an answer for each prayer.

    Maya – take deep breaths, put one foot in front of the other, and know that you have hundreds and hundreds of people praying for you and your family….and simply loving your little boy.

    Monica

    Reply
  76. Marilyn

     /  April 28, 2011

    Maya.
    You have come so far in 8 mons. You and your family have been enduring one of life’s most dreaded adventures. We will prayerfully continue to support the 5 of you and your extended family as you continue to on the is adventure. Your journaling is amazing as you have been pouring out you heart to us all.
    With our care and prayers Marilyn (Mark’s Mom)

    Reply
  77. Peggy R

     /  April 28, 2011

    Maya, I think there are 349,479 people around the world shedding more than a few tears after reading your blog. I just want to thank you for sharing this part of your life with all of us, you’ve inspired us in so many ways. I for one am going to hug my 4 daughers and 8 grandkids a little tighter and a little longer. We are going to keep you and your entire family in our prayers.

    Reply
  78. jennifer Benedict

     /  April 28, 2011

    As I sit here with tears pouring down my face I can only think of one thing to say and that is over the last 8 months myself and my Family have fallen in Love with your Family/Friends and your amazingly strong courageous son whom has suffered more then any child should ever have to. I have started a prayer Chain on FB because I believe God always works his best miracles in the most impossible situations. We will be praying and thinking of all of you and I hope knowing there are so many fighting for him brings you a little calm in this devastating storm. Ronan is one hell of a little man & he has and will keep teaching us all.

    Reply
  79. Jill Hill

     /  April 28, 2011

    Maya and Woody:

    We don’t know each other but I feel like I need to write you. I have been following your blog and praying for your beautiful, brave Ronan and will continue to do so. Words truly cannot express the deep sadness I feel for your family and the pain you have been through. May you find your peace and may God’s loving arms enfold you.
    Jill Hill

    Reply
  80. Michelle

     /  April 28, 2011

    Hi Maya,
    I don’t know Ronan, and I think I’ve only met you once myself – I’m Michelle, Rex’s wife. But I’ve followed your family’s struggles partly through your blog and updates via Donna, Sandy & Rex. I just want you to know that we’ve been silently sending prayers your way and continue to do so. It’s very difficult for us to hear these things since we have kids of our own and it just breaks our hearts. But it is, of course, not fair that you should carry all that weight in your heart, especially at this time. I hope that having you in our thoughts is enough to share at least a little of that burden so you can concentrate your efforts on making your time with Ronan as happy & full as possible. Joy is the strongest emotion against such difficulty – it’s the one reason we are here to share our lives with each other. Take care and send our love to your boys. -Michelle Richards

    Reply
  81. Michele

     /  April 28, 2011

    My heart started to break as I read your story. I wish there was something, anything I could do to make him better. You are right, there is no reason for this. I will hold my children closer and always remember that no matter how hard it gets with my own son, that I should be grateful that his issues are so trivial compared to yours. Your son will change our lives and many other lives who read his story. He will forever be a hero to all…and so will you. You are a warrior mom. I am not a religious person but I will pray, pray pray for a miracle!!

    Reply
  82. Maya,Its not over yet,ya still have The Lord to go to and he will help you through all this!He is the answer,why not give him a try??You’ll be glad you did!I believe in miracles and thats what God is good at,making your baby well!!

    Reply
    • Renae C.

       /  April 28, 2011

      Dearest Woody & Maya, listen to the message that Denise is sharing. Pastor Mark Buckley 602-957-7500 with living streams has an incredible,healing,gift. Repent,put all of your fears and Ro in God’s hands. There is also a small church near Ixtapa Mx that it`s known for miracles “The church of miracles” I can get a hold of our friend/taxi driver to drive to the church and pray for Ro. God’s way works. Denise from the water connection read a scripture from her bible today that sent me into tears in her shop, Denise is also a very religious gift to Ro and the family, she also says the rosary evryday for all of you.

      Reply
  83. Kirk Maasen

     /  April 28, 2011

    Maya & Woody

    There are no words…… If I can do anything – ANYTHING please feel free to let me know and my family continues to pray for you…

    Love you guys! – Kirk

    Reply
  84. Kerri Witbeck

     /  April 28, 2011

    Your family is in my prayers and I pray you find comfort and peace. You are a great mother and your husband a great father. All of you are blessed to have Ronan in your life and he is blessed to have you as parents and his brothers as his siblings. God chose Ronan for you, and you for Ronan. Nobody is asking you to be strong, and nobody expects you to be.

    I agree with you, saying “everything happens for a reason” doesn’t at all seem appropriate in this situation.

    Please know in honor of Ronan, I will be hugging my daughter so much tighter tonight (not that I wasnt’ before). I have learned from you, and your very honest blog, that life can change in a snap and to live in this very moment each and every day. And to most importantly cherish all I have. Ronan….and you…have taught me that. So I know it doesn’t seem appropriate, but Thank You from the bottom of my heart for sharing Ronan with all of us.

    I’m sending up my most deepest and hardest thought prayers for you and for Ronan.

    Kerri

    Reply
  85. amy donaldson

     /  April 28, 2011

    Maya and family, I remember you from school and it breaks my heart to hear about what pain you and your family are going through. God is a powerful man and I am a new christian and the power that man has is unbelievable. I have prayed he will take care of lil Ronan. He is a special little boy and I believe it is in the lords hands now. The amazing thing is, the lord doesn’t need medicine, he needs faith and he needs believers such as you and your family. And all of your friends and the people who follow your blog. I promise you the lord will take care of this pain everyone has and that my friend is more powerful than any drug that a dr can prescribed. My thoughts and prayers are always with you. – amy

    Reply
  86. July Hogue

     /  April 28, 2011

    I do not know you and I’ve never met you but my tears are falling and prayers are being lifted for you and your family.

    Reply
  87. Nikki Reno

     /  April 28, 2011

    Continuing to think about Ronan and his entire family.. I will be keeping you all close to my heart and praying … lots of love.

    Reply
  88. Jennifer Tayman

     /  April 28, 2011

    Maya~ I do not have words to comfort. I do not have something profound to say, words fail me at this devastating news. I have been following this blog since day 1 and your strength,grace and unending patience have truly inspired me. I know I can never know what you are feeling, but I can tell you I am feeling it with you for this beautiful Ronan is a gift to us all. Thank you for your honesty and sharing yourself and your family with us. My life has forever been changed by a Rockstar that I have never met. Love and prayers are coming your way. We love you Maya and we love Ronan and your family, continue fighting for Ronan’s journey is far from over! Miracles can happen!!!

    Reply
  89. Rhanda Salma

     /  April 28, 2011

    I have nothing but LOVE for your family and I am sending you all my strength, compassion, hope and support for your sweet boy and your entire family at this time.

    Much love,
    Rhanda (Macy’s friend)

    Reply
  90. Amy

     /  April 28, 2011

    Dear Maya,

    I opened the computer today right after work, hopeful as I typed in your website, first thing. My heart is breaking because you are sad and in shock – but I am still hopeful, Maya! Miracles DO happen. You and Woddy are incredible f-ing parents. Ronan is truly an inspiration (and quite possibly one of the most beautiful children I have ever seen – and I have children of my own!). I think about you all often, and pray for you. I have spread the word about Ronan. People are praying – sending positive energy. People everywhere! Like I told you, you have a whole army of people praying for you in Indianapolis. (I am a friend of J.W. and posted to you on FB the other day.)

    Miracles DO happen! And I know you and Woody will never, ever give up. I love that you call yourself a mama bear….you will go to the ends of the earth and beyond for your beautiful son. And will go to the ends of the earth to fight FUCKING CANCER.

    In quiet ways, I have drawn strength from your grace and stamina, and most certainly Ronan has inspired me beyond words. For that I thank you. I’ve been reading your blog since the beginning and have never posted until now. I’ve let J.W. know what an inspiration you are, and what an impact you’ve had on my heart – now i felt compelled to reach out to you.

    Thank you for being so raw, so honest – and even funny. Thanks especially for continuing to do so, even at this point in your journey. All of us out here can just pray more, send you more strength and all the positive energy the universe has to offer….and to SPREAD THE WORD about Ronan and childhood cancer.

    My heart literally aches for you all. Please know what an inspiration you, Woody and Ronan continue to be. Please know that people are praying and will never give up hope for Ronan.

    We have something in common as I have one 3-year-old and one 7 year-old. Both girls.

    YOU ARE AN AMAZING MOTHER. Ronan is surrounded by your loving arms every single minute. He KNOWS how fiercely you love him.

    Continuing to pray, hope, and believe.

    Lots of Love to you ALL,
    Amy

    Reply
  91. Sheryl Mobley

     /  April 28, 2011

    :( Tears! Tears! Tears! I pray for God to be with you every moment of every day for the rest of your lives. http://www.youtube.com/watch?v=ChslgqtdBc0&feature=related Love you!

    Reply
  92. Jenny

     /  April 28, 2011

    I have been following your story for a while and am saddened to read your latest update. I have to agree with you 100% when you said that not everything happens for a reason. I used to agree with that saying, but now I hate it. Too many bad things are happening to good people, so there is no good reason for that! Please know that thoughts and prayers are coming from California.

    Reply
  93. bianca

     /  April 28, 2011

    You do not know me but I sit here with tears streaming down my face and I am holding my babies tight. I chanced upon your blog when a friend posted a link on FB. Nature’s indifference is wrenching. Cancer is insidious. I will pray that his journey over the great divide is as peaceful and swift as can be and that your spirits find balance. Tons of love from me to your family. In my office hangs a sign that helps me, perhaps it will help you just a tiny bit. “If you’re going through hell, keep going.”

    Reply
  94. Jenn

     /  April 28, 2011

    http://www.healingroomsaz.com/

    When you have done all you can do…turn to Jesus. He paid the price for all sickness and holds the cure. Consider the healing rooms in Arizona! Start speaking life and health over Ronan’s body.

    Reply
  95. Kara

     /  April 28, 2011

    I am amazed by your pure honesty, strength, unending love for your son. What a beautiful and very true poem. You are a beautiful family. Thoughts and prayers are with you.

    Reply
  96. marcy lyon

     /  April 28, 2011

    maya, words cannot even begin to express my feelings of sadness for you today. to say i am sorry does not even begin to touch the surface, but for lack of better words, i am sorry for so many reasons. i am sorry that you did not get the outcome you wanted and that everyone was praying and hoping for. i am sorry that you are having to see your precious baby boy in pain. i am sorry you were told the mibg therapy would not help. i am sorry life is not fair and you were dealt this awful hand. i am sorry that liam and quinn are living this horrible nightmare. if all of my praying, hoping and wishing could take precious ronan’s cancer away, it would be long gone. you continue to hold your precious ronan tight under your mama bear hug and i am going to continue to pray for a miracle. you and ronan deserve it, as do woody, liam and quinn. the entire thompson family is in my every thought, and i just wish i had the right words to say.

    much love and many hugs are being sent your way from me. i hope that you can feel the love and strength surrounding you.

    Reply
  97. Randy Barnes

     /  April 28, 2011

    Our prayers will be for your family to find peace.

    An extremely apropriate book for a time such as this is–How to Deal with the Loss of a Love.
    It certainly helped in my situation. Maybe it would help you too.

    Reply
  98. K.M

     /  April 28, 2011

    I have never met you guys but still feel such a connection to Ronan & your family. I read this last night, cried my eyes out then went & got in bed with my son. I don’t even know what to say other than Thank You.
    Thank You for sharing your life and your story with me. Thank you for keeping me in check about what’s truly important. Thank you for teaching me what true strength really is. Thank you having such a beautiful child that so many people who do not know him, love. Thank you for being a raw, refreshing voice against childhood cancer. Thank you for letting us all in.

    I still believe in miracles and refuse to believe
    you might not get yours.

    Reply
  99. Sweet, sweet family. I have not one word. But the only thing i can offer to you is a gift from our family and those who were affected by our sweet Conner’s story…please let me know how i can get these to you…see link and plz msg me so i can get them to you asap!
    Love Love Love
    http://notsobrightandshiny.blogspot.com/2010/11/cuddles-from-conner-event.html

    Reply
  100. Colleen

     /  April 28, 2011

    this is just beyond heartbreaking. like the others have said, it’s difficult to even find words after reading this. i have heard of such wonderful work being done at St. Judes Hospital – is there any hope there? I send you and your beautiful family and wonderful friends so much love and many prayers. You are all in my heart.

    Reply
  101. tamicamoberg

     /  April 28, 2011

    I just wanted to say my heart truly goes out to all of you.I am so sorry and thank god Ronan has the parents he has because without you both and the doctors he wouldn’t be where he is today.We are praying for a miracle and praying that god gives you all the strength and peace that you need to get thru everything you have to face.Dont ever doubt yourselves as parents cause you have done everything humanly possible and still are.I wish there was more I could say but theres not a million words that could ever make you feel better or take all the pain away,just know that ronan and the family will always be in our hearts and prayers…

    Reply
  102. Michele

     /  April 28, 2011

    Maya, I began reading about Ro when I saw the Us article. I love yall and don’t even know you and your family. I want you to know that I have thought of him daily! I pray for his healing while seeing his precious face on my phone. You have given me the most amazing gift! I no longer dread carpool, practices, fights between my kids. I am thankful for everything I am blessed with and hopefully will never take anything else for granted! I am in Louisiana and would love to do anything I can to help. Thank you for being selfless and sharing with us your Ronan.

    Reply
  103. millie

     /  April 28, 2011

    mama-
    my heart aches for you and your family…please know that i am praying everyday for all of you…
    my friend Jen Kivi says she doesn’t know you but wants you to know that she thinks of you and prays for your family everyday as well…
    xo

    Reply
  104. Teresa

     /  April 28, 2011

    I’ve been where you are. I’ve heard the words, “we’ve done all we can,” and I’ve held my boy because it’s all that can be done. I know what it’s like to be “just a mom”, not brave or fearless or strong, and I know it is enough. You are enough. I will continue to pray for your family and your journey- for strength, for peace, for unexpected joy, and for tomorrow.

    Reply
  105. Therese in Ireland

     /  April 28, 2011

    I’ve been following your blog, daily, for a very long time now and I’m sure a lot of people like me just follow Ronan’s story quietly, all the while praying and hoping. I am so very, very sorry for your pain and I’m sure I speak for a lot of your followers when I say I would do anything to change it for you. You are an amazing family and I am so thankful that Ronan has extremely loving parents and brothers around him, that is truly a blessing. Sending you heartfelt prayers for peace, comfort and love.

    Reply
  106. Kiona

     /  April 28, 2011

    Your story was shared by Sandy Fromm, a friend from yesteryear. I read your words, your love for your family, your husband, your Ronan. I wept for you. As a mother of a 4 year old I was quickly swept away in your heartbreak. I don’t have even the first word to say but your son is a living example of everything that it stands for to be a mother. Your unending strength is apparent. From one mother to the next, I will stand beside you in the belief of a miracle. May you, your Ronan and your family be wrapped in the invisible blaket of healing and strength and Love.

    Reply
  107. Rebecca

     /  April 28, 2011

    I found your website through a post on laylagrace.org and have followed your journey since. Ronans eyes immediately drew me in and there was no turning back. I have two young children and cannot imagine fighting a monster such as this with as much courage and grace as your family has. I wish that I could come up with something, anything to say other than I am so very sorry that this is happening. But when it comes down to it, that truly is the best I can come up with. I am SO sorry that this has happened to your family. My family is praying for Ronan as well as the rest of you during a time that I cannot even begin to imagine. I have never met you, but in my book, you are the BEST mother a child could ask for and by far the strongest.

    Reply
  108. chelsey

     /  April 28, 2011

    i think the story “the chosen mothers” you put at the bottom of this post…..well i think it suits you just perfectly.

    those stupid lines people say…”everything happens for a reason” or “this is for the best” its crap. in no way shape or form is whats happeneing to your family for the f-ing best. but the saying “god will only give you, what he knows you can handle” well that one i do believe in, and maya….he couldnt have chosen a better mother.

    you have been exactly what ronan needs throughout his cancer…you have been super mom/woman. you have done more in the last nine months than most do in a lifetime. you have managed to be the best you can be to your baby, your twins….and especially your loving husband. the trauma you and your family has gone through…it would tear most relationships apart…but i KNOW it has made the 5 of you that much stronger.

    Im sorry. so sorry.
    but in throughout the devastation your family has experienced, you have bettered the lives of so many people. you have given encouragement and strength. maya, you have given people a reason to hope, dream….and love. and for this….i thank you.

    The world is a better place maya….because of you, ronan, woody, liam and quinn.

    “BE THE CHANGE YOU WANT TO SEE IN THIS WORLD”

    Reply
  109. Brandy Walton

     /  April 28, 2011

    I am so sorry that our comments were not enough to heal him and make him better. I wish they were! I am NOT one that believes “everything happens for a reason” and I really hate it when people say that. I do believe there is a god and there are angels too….Miracles can happen anytime, I think the doctor is right…..to just love him and make everyday a memory. If the medicine isn’t helping then maybe just your love and support will! We will all pray for a miracle but if god decides to send angels for Ronan early then remember that you will see him again in heaven and his soul will still be with you, so he will still always be with us, we just won’t see him!

    Loves and Hugs
    Brandy

    Reply
  110. Laura

     /  April 28, 2011

    I don’t know you or your boys. I have never met Ronan. I grew up in the same grade school and high school as Woody. I wish there was something I could say or do to help you and your family. I will pray for you. I will hold my children closer and feel blessed for them. I also will think of you when I have hard times and need to be strong. I will put Ronan’s name in our temple prayer. I am so sorry and wish I could do more. Sending you, Ronan, your boys, and Woody love and prayers.

    Reply
  111. C

     /  April 28, 2011

    I’m so sorry! Words cannot express my sadness for you and your family. If we want to send something, where should it be sent? Also, will you or someone for you be updating us anymore on little Ro?

    Reply
  112. Patrice Metzler

     /  April 28, 2011

    Maya, I thank you for letting us all into your life and its difficult last 8 months. You have been and will always be an inspiration to many many people (over 350000!).
    I am feeling deep sadness today for you and your family. Ronan does not deserve this. But, what a blessing he has been to the world and to all of the lives he has touched.
    You have taught me to appreciate each and every second of life, and I thank you for that. I have no doubt that you will savor each and every second of Ronan’s days to come, and I do believe a miracle can still happen.
    My thoughts and prayers will forever be with your family.
    You are a beautiful person, and your children and husband are lucky to have you.
    LOVE to Ronan and family…
    Patrice

    Reply
  113. Cindy Martin

     /  April 28, 2011

    Maya, I just cannot believe the news. I am so upset for the boys, you, Woody, and especially Ronan. On Saturday he climbed up the bunk bed in the twins rooms and I asked him if he needed help. He looked at me and yelled a warrior cry of “NO”. Later, when he wanted down, he asked for help. So strong, yet so vulnerable. I love him. I love your family. I cannot think or say any words to make this make any sense to me and especially to you. You do not deserve any of this, and there is no reason for it. As I was reading your blog, my Katie who is 14 was in the background playing the piano. She had no clue as to what I was doing, yet her song was so beautiful and so sad. It’s amazing how these unplanned things happen. I hope that you have many unplanned, beautiful, sad, and amazing moments with Ronan and your boys. Wrap your arms around them and breathe it in. You are an amazing family and I am here. Please call me anytime for anything. I love you, Mrs. Martin :) As you insist on calling me still.

    Reply
  114. Patty

     /  April 28, 2011

    I often visit Ronan’s page to read your blog. You are an amazing writer…….I am completely heartbroken with your last blog. I don’t know you or Ronan but feel that I don’t need to know you to understand this severe pain. Please know that I will continue to pray for your baby and your family. He is absolutely a beautiful little man……..

    Reply
  115. Michelle H.

     /  April 28, 2011

    Hi Maya~ I read this earlier this morning and have been thinking of you all day long…your post was truly devastating yet your words are somehow still so inspiring. For what you are going through to be able to articulate your feelings so well…that is such a gift. You are such an incredibly selfless mama and Ronan is so blessed to have you and Woody by his side. Thank you for having the courage to share where you’re at in Ronan’s journey…your words bless & inspire so many of us in ways you might never know. Thank you. Much love~

    Reply
  116. Tanya

     /  April 28, 2011

    Maya,
    I’m crying my eyes out for your precious baby boy that I don’t know or will probably never have the honor of meeting. He has touched my heart in a way that I can’t explain and I will never forget about him. I heard this song on the radio, and it reminds me of how you are with Ronan. I’m going to continue praying for Ronan’s miracle.

    If that song didn’t post right, it’s Rascal Flatts song “I won’t let go”

    Reply
    • Glenda

       /  April 28, 2011

      Tanya… what a beautiful song!!!

      Reply
    • K.M

       /  April 28, 2011

      Tanya,
      What a beautiful song. I think Maya would love the words. I don’t know Ronan either but have been crying my eyes out and thinking about the Thompsons all day trying to send the happy strength. Thinking about how all Ronan’s Warriors feel about this news I can not and do not even want to fathom what they must be going through. Thank you for posting this song.

      Reply
  117. Friend

     /  April 28, 2011

    Though we have not met, I wanted to let you know that I know what it feels like to ask God for a miracle and to have the answer be “no.” I guess that is why they are miracles –not everyone gets to have one. And I guess that is why moms and dads and friends and family are not allowed to make the decisions regarding who gets one. I certainly think Ronan is entitled to one. It’s a terrible tragedy to have such a loved soul taken from you so early. You must feel like not only you are robbed, but the entire world has been robbed of what your precious son would have bestowed upon it. I wish you tremendous strength in the days ahead. I admire your resilience and trust that your journey will not be in vein. Much love to you from a stranger.

    Reply
  118. Ashley M.

     /  April 28, 2011

    It’s so strange to think that my heart can break for someone I’ve never met and probably never will meet but it does. I have followed your blog since the beginning and hearing this today makes me want to cry for this little boy and his family who did not deserve this.

    My aunt had a brain tumor (Glioblastoma multiforme), which has a very low survival rate. Almost every night I would go to and read this story that I found online about a guy who had the same thing she did, but miracously survived for over 15 years. His disease had started to spread and then just stopped. His name was George, and I kept hoping that maybe my aunt would be a “George” too.
    In the end, my aunt didn’t get to be a “George,” but I sure hope Ronan is. Not giving up because you just never know.

    Reply
  119. Dana Steward

     /  April 28, 2011

    “I have been driven many times upon my knees by the overwhelming conviction that I had nowhere else to go” Abraham Lincoln

    May you find strength in your family, your amazing little rockstar, and all of us who love and support you. Much love to your family and especially little Ro.

    Reply
  120. Juliet

     /  April 28, 2011

    I’m thinking of you nonstop. you are stronger then you know. all our love and positive energy is going to you right now. love, j

    Reply
  121. Anne

     /  April 28, 2011

    Maya,
    Long time reader, first time posting. Thank you for sharing your story. Reading it has made me a better mother. Love, prayers and strength to your beautiful family.

    Reply
  122. J

     /  April 28, 2011

    “I have been driven many times upon my knees by the overwhelming conviction that I had nowhere else to go” Abraham Lincoln Beautiful
    words from a great Leader.

    Ditto to that.

    hugs to hold you tight. Never letting go of such a wonderful mother. You are the queen of love, love, and shining thru such a darkness. Ronan knows how much he is loved. I don’t have children but I so love—- your love story.–mother and son.. Best Love Forever.
    You can you have not left one stone uncovered.. Keep going the distance…You are a runner keep running for him and with him. The marathon life of Ronan… we’re your cheering section…
    Much love and hugs

    Reply
  123. Maureen

     /  April 28, 2011

    my heart is broken tonight. i will continue to pray for Ronan and your family. i believe in miracles. may god bless you all.

    Reply
  124. Jennifer Kehs

     /  April 28, 2011

    I was first attracted to your story because I have a Ronan too. He will be five in September. When I started reading I saw you have a Liam as well. So do I. He’ll be ten in a few weeks. At that point I knew I needed to keep reading and follow your baby’s progress. I’ve been following along regularly. As a stranger, I was devastated to hear the latest news. I’m crying and cannot even begin to know your pain. I’m so incredibly hurt for your family and especially for you as a mother. I pray for peace and strength for you and your family.

    Reply
  125. Beth

     /  April 28, 2011

    You are an amazing mom with an amazing little boy! Sending lots of prayers for your family as you continue on this difficult journey. I still believe in miracles!

    Reply
  126. Kate

     /  April 28, 2011

    NO NO NO NO NO NO NO NO NOOOOOOOOO!!!!! I was so hopeful, so believing for you and Ronan ….the tears and prayers are flowing. You and Ronan inspire, enlighten and humble me. I am not giving up on this guy!!!!!

    Reply
  127. Annie

     /  April 28, 2011

    I, along with the thousands of others who read your blog and feel like they know you and Ronan, are in complete shock and sadness after reading this update…. The tears for someone I have never met will not stop falling :( You are beyond amazing Maya..the love that you have for your child is truly inspirational and you have made me want to be a better mom to my boys. I will keep praying for you and Ronan and the rest of your family. Miracles do happen and I know you will never give up Hope. <<>>

    Reply
  128. Erica

     /  April 28, 2011

    Thompson Family,
    We have never but I have been reading our blog for months now. Your strength and love for your children is incredible! Know that people far and wide, people just like me who you do not know, are praying for you, Woody, Liam, Quinn and most of all Ronan. Keep fighting and love that little boy as much as you can. You are loved!

    Reply
  129. Arayah

     /  April 28, 2011

    There are no words I can say, my heart breaks for you. my thoughts and prayers are with you and your family.

    Reply
  130. cynthia

     /  April 28, 2011

    God will hold you up in his arms untill time is to join.
    Love you guys and I pray for his pain to end so he can smile at you all.
    Love you forever and ever.
    Katherine and Cynthia

    Reply
  131. Krista

     /  April 28, 2011

    Praying for you, your family and your amazingly tough little guy.

    Reply
  132. Megan

     /  April 28, 2011

    no words can express how sad i am by this. my thougts and prayers are w/ you, Woody and the boys. Fuck cancer and neuroblastoma…if anyone can make a difference you can.

    Reply
  133. Claire

     /  April 28, 2011

    Just came across your blog and felt the need to write. I’m a student at the University of Pennsylvania, and I can see the roof of the children’s hospital from my dorm room window. I’m looking out at the lights right now, wishing that you could have found your miracle there. Your Ronan is a tremendously brave little boy and he is so lucky to have a mom like you. Nothing about this is fair. It never, ever is. As a stranger there’s not much I can say to make a difference, but you’ve got another person here keeping Ronan in her thoughts. I wish your little fighter all the best and more!

    Reply
  134. Joy (Corkran) Gaeraths

     /  April 28, 2011

    Cried my eyes out last night when I read this and had no idea what to write….still don’t. Other than cancer can fuck off and you and your family are in my thoughts and prayers. I have followed your blog since day one and even thought I haven’t seen Woody since high school and I have never met you, I feel like I know you….even just a little. Know that there are so many people out there rooting for you guys……and will continue to.

    Reply
  135. RA

     /  April 28, 2011

    My heart has been breaking for you all all day. Ronan’s story has been an inspiration to me and has given me such perspective on life. May God bring you all comfort, peace and wisdom in the coming days.

    Reply
  136. Colleen

     /  April 28, 2011

    Just wanted to let you know I have been praying for Ronan. My son had cancer when he was 3 too. I know what your struggle to this point has been, but from here on out I have no idea. My heart aches that yours is not an outcome as mine was, and I feel so desperately bad. I dont understand why some are healed and others are not. I DO know though that it has nothing to do with how much God loves all of you & especially Ronan. It just plain SUCKS. I will continue to pray. No words will make a difference, I guess it is just sort of selfish of me to want you to know that I am sorry.

    Reply
  137. Dana Solberg

     /  April 28, 2011

    i won’t stop praying for your family. praying for a miracle.

    Reply
  138. Todd & Kara Schierscher

     /  April 28, 2011

    I have no words – no perfect song – no perfect poem. I just want you to know that I haven’t stopped thinking of you – and admiring your strength, honesty and courage – since we first learned of Ronan’s Neuroblastoma while spending a mid-August weekend at Aunt Sheri’s Yachats home. My parents and sister were learning about Ronan from your Mom that same weekend. You have been part of our daily conversations since the battle began and we wear our purple Rockstar bracelets often. Our thoughts and prayers are with you…
    With love,
    Kara
    ps Before reading your blog this morning, I had strange dreams about donating blood and plasma….gonna make that happen in ‘real life’ REAL SOON,

    Reply
  139. Patricia Scalise

     /  April 28, 2011

    I keep returning to today’s blog in an attempt to absorb what is written…I can’t…I never wanted to read these words…My heart told me that the beautiful baby would be saved…All his precious heart knows is love…Surrounded by love every day of his life…anything else is unacceptable. Lord we are good people, we live each day in the best way we know…..We need a miracle to save Ronan and we need it soon. His amazing family needs him and the world needs him…He is capable of making this a better place………..please hear this prayer..Our hearts are shattered..

    Reply
  140. Kelly Iacovone

     /  April 28, 2011

    I am a friend of your cousin – the beautiful Shannon Bade. She is so proud of you and your mom. Shannon tells me how wonderful you both are. Ronan, you are an angel. I live in Scottsdale, so I hope that we can all meet very soon. Much love, Kelly

    Reply
  141. Kim Walters

     /  April 28, 2011

    “Be who you are and say what you feel because those who mind don’t matter and those who matter don’t mind.”
    Dr. Suess

    Woody and Maya, Sending love and prayers your way!
    May the Lord bring to you all the peace and comfort that you need! With our deepest love…..

    Jeff and Kim Walters

    Reply
  142. Bren

     /  April 28, 2011

    My heart is breaking for you and Woody. You are amazing parents. My thoughts and prayers are with you. You inspire me. I have never donated blood…and I am O neg. I will be doing this very soon. I know there are no words that will really help right now… I wish I could be there in some way for you.

    Reply
  143. Bern

     /  April 28, 2011

    Thoughts, love and prayers from me to all of you…always.

    Reply
  144. Maria

     /  April 28, 2011

    Sending Love. Lots and lots of love.

    Reply
  145. Gayle T.

     /  April 29, 2011

    So do not fear, for I am with you; do not be dismayed, for I am you God. I will strengthen you and help you, I will uphold you with my righteous right hand. ”

    Isaiah 41:10

    Reply
  146. Brad Jones

     /  April 29, 2011

    Woody and Maya

    My name is Brad Jones. First off I want to let you know that I am praying for God to flood you with a peace that passes all understanding. I pray that you find comfort in all the support you are receiving. I don’t know much about your sweet little Ronan other then what I have read on this post and My Heart Breaks with true sadness for you and your family. I have walked in your shoes and I know the pain you are feeling and the thoughts that are going through your minds. My son Conner gained his angel wings June 24th 2010 after a 7yr courages fight with Cystic Fibrosis. It is truly not easy going through what you are going through, but please remember that God has Chosen you two to be Ronan’s parents and to walk through this journey. We may not know the reason why we were Chosen to have to deal with this heart break until we are selfs get to heaven. God knows your strength, your determination, your willingness to fight with every ounce of energy for your son. I just hope and pray that you will cherish every second of everyday from this point on. Not that you haven’t already, but even more so. Stay strong as much as you can for your boys and remember how many people are out there praying that God will comfort and hold you during this time. I want you to know that my wife Sarah and I are here for you. If you ever need to talk or vent or anything please get a hold of us and we can exchange #’s (I truly mean this). When I read your post I felt God tugging at my heart to reach out to you both as I have walked this path before. May God Bless you and keep you in the days, weeks, months and more. Take care and Please Please don’t hesitate to send me an email at brad@cni.net I would love to talk with woody.

    God Bless

    Brad

    Reply
  147. Jodell Allinger

     /  April 29, 2011

    I am a grandmother from Kelso–there are no words for the deep pain you are experiencing in the deep love you have for your precious son. Will continue to pray for Ronan and your family. May you be held tightly by those who know the power of the silent, supportive embraces to hold you up and walk through this soul wrenching valley with you.

    Reply
  148. Kristen Wagner

     /  April 29, 2011

    You don’t know how this touched my heart. I suffered through Cancer with my Grandaughter. Please know it sounds like you’ve done the best you could possibly do for your son. No one deserves this. I have watched your website for a long time now and it kills me to know there is nothing else that can be done. Beautiful Boy. You are brave and strong and have endured something that no one ever wants to have to battle. I will pray for your entire family and probably not stop thinking about you for a long time now. I can’t tell you how sorry I am, because I was there once. I know, I felt the feelings. Our results were different than yours but I know the pain, and the every second thought process that goes with what you are going through. If I hadn’t had Doernbechers and the caring Nurses, support staff and the particular Dr we had, I wouldn’t have made it through. Nothing in this world makes us understand just how much Love we have for our families and friends until something like this happens. I will be with you in Heart and Soul, thoughts and prayers probably always and forever. Kris

    Reply
  149. Amanda Oliver Kop

     /  April 29, 2011

    “Life may not be the party we hoped for, but while we’re we should dance.” Unknown

    Keep dancing Thompsons, you are loved.

    Reply
    • Amanda Oliver Kop

       /  April 29, 2011

      What that should have said is:

      “Life may not be the party we hoped for, but while we’re here we should dance.”

      I am sorry I messed it up. Sentiments are all still the same. You are loved. Your whole family is loved.

      Reply
  150. Taralea

     /  April 30, 2011

    If I Could

    Author: Alvie Aguilar Conboy

    It’s hard to see someone I love
    be hurt in any way.
    If I could make soft raindrops fall,
    they’d melt your pains away.

    If rainbows brought a smile to you
    then rainbows I would send.
    For peace of mind and happiness
    may keep you on the mend.

    If I could send you sunshine,
    I’d do it in a flash.
    I would wrap the rays around you
    like a warm, comfy sash.

    Instead I’ll send you what I can
    and this is it happens to be;
    A little verse of what you mean
    the most of all to me.

    You’re in my thoughts all thru the day
    and in my prayers too,
    for in my heart I have a place
    especially for you.

    Although we have never met Maya, your famliy has a spot in my hart that will never fade. There is purpose in your life and Ronons.. my hart crys for you…

    Reply
  151. Maya and Woody,

    I have never met your beautiful son and haven’t seen either of you since high school but that doesn’t matter – your latest post still made me cry and made my heart ache for you and Ronan. It isn’t fair!! He should be out playing with his siblings and complaining about school and causing mischief at home. I have been keeping you in my thoughts and will continue to do so. I hope that you all find peace and continue to savor the love your family has – you are blessed to have the love of so many surrounding you.

    Jen

    Reply
  152. marci

     /  April 30, 2011

    Love to you and your family. You forever have a piece of my heart. Peace, Love, and Light.

    Reply
  153. Jodi

     /  April 30, 2011

    Maya,

    There are absolutely no words to describe what I am feeling right now. I have so much love in my heart for Ronan and your entire family. Please know that your family will be in my prayers. Miracles do happen, sometimes in surprising and unexpected ways, but they do occur.

    Ronan will be in my thoughts and prayers through every minute of everyday. You are a hero in my eyes. To have the strength to carry on and not only help your baby son but to bring his condition to light for so many previously unaware people shows a strength of character unheard of in so many.

    As a stranger my words won’t be enough to get you through this time of trial. Cling to those who mean the most to you, continue to find your hope and strength in the ones who surround you with their love. In the years, months, weeks, days, minutes and seconds to come they will be the ones you can lean and depend on. Just know that I will be out there, sending you what strength I can.

    You are in my loving prayers,
    Jodi

    Reply
  154. You are in my family’s prayers and I am going to put you and your son and family on y church prayer request. God is with Ronan always.

    Reply
  155. carrie ball

     /  May 9, 2011

    Beautiful Ronan, Maya, boys and Woody, My heart is broken for you, the pain of your suffering (and Ronan’s suffering) is beyond comprehensible. I have been introduced to Neuroblastoma because Jack was diagnosed in March 2010, Laurie has asked our whole family to give love, prayers and anything you all need that we can give. I won’t give you flowers, I understand as a mother of 4 boys, I wouldn’t want to see those either. I will give anything else that I can. I spread the word on NB every day. It is all over the back of my car. We NEED research funding and need to beat the crap out of this. As a mother, I am so very sorry you all are going through this. Jack changed my life, the moment I found out his diagnosis I stopped getting upset about pointless junk, stopped keeping distance with family when I could make sure I kept in touch. I don’t and never will take one more thing for granted, ever. We are a family in Neuroblastoma, it is an aweful way to become close, but to know of your beautiful family is another gift. These children are such hero’s, going through things I don’t think I could.
    I have followed so many of these warriors, cancer in any form at any age, is horrible. I feel so horrible for all of this pain. I pray that you find any sort of peace, any comfort in knowing that we all care so very much for you and your family. God Bless and please take care.
    Carrie-AZ

    Reply
  156. Michelle

     /  April 28, 2012

    This was the first day I read your blog. Like many others I went back to read you and Ronan’s history on this blog. And shortly after I read the heartbreaking post of Ronan’s passing. I continue to read and wish there had been a different outcome. I think of you and the son of a dear friend of mine who is 5 and has cancer, often. I only wish for peace for you, that one day the pain will be less. But even if it does not, I am still here, reading, wishing things were different.

    Reply
  157. Georgia

     /  September 9, 2012

    hello, you probably won’t ever read this. but i just woanted to say. wow. you are such a strong and amazong woman. and i only found this blog after taylor swifts song the other night but I do not every remember crying so much after reading anything. I am so sorry that you and your family have had to go through this. but, after reading a fair number of your blog entries and realising what a wonderful person you are and how strong, brave, and kind you are that you started a foundation in honour of your late son Ronan, I had an idea. i am highly doubtful that i am the first person to say this but after the success of taylor swifts song ronan, I really do think you should write a book. You have an amazing talent with words. and i have no clue what you were doing for a living before ronan but you are amazing. the way you write is so emotional and you work magic on words that took me on such an emotional journey in 20 minutes its not funny. one minute i was smiling and laughing with you, and the next i am literally crying uncontrollably out of sorrow for you and your family. I would definately buy as many copies as i could afford if you wrote a book about ronan. and i doubt you would have dificulty finding a publisher. anyway, just a suggestion. But one last thing. Thankyou so, so much for bringing your son ronan into our world. i have only known of him for a few short days but he seems like the most delightful, happy brave young child. and if it wasnt for him you probably wouldn’t be taking a stand against child disease, taylor swift probably never wouldv’e written that song and child disease would never of gotten the amount of recognition it has gained over the past 72 hours. I am sorry, but here you said you hate the saying “everything happens for a reason” well i beleive this is true. Ronan’s life was a gift, and just because it was short doesn’t mean it was any less significant. But Ronan’s passing has allowed Child disease to be recognised all over the world in just one weekend. Maybe the reason for ronans passing was so that you could save thousands of other families from going through the same thing? (i mean that in a nice positive way. please, please do not take this in a negative way. i really do aspire to you and i hope that one day i can do something as great and amazing as you are.)
    by the way my name is Georgia i am 14, female and live in australia.

    Reply
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