My dreams are my reality


Hoping for a quiet weekend, at home with a whole lot of nothing going on. As of now, our plan is that Woody and I will be flying out to Philidelphia on Tuesday with Ronan. We will meet with Dr. Mosse at Chop and we are talking about making the drive to New York to meet with Dr. Kusher once again. We are going into Chop with an open mind and are hoping they can give us some answers as to why we should choose them with the life of our son. I have no doubt they are qualified, but as I have said in the past, there is something about Dr. Kushner that I trust wholeheartedly. I feel the same way about him that I feel about Dr. Adams. Complete trust and as if they are the best at what they do. Maybe I will get this feeling from Dr. Mosse as well. It is worth a shot and it is an option we have to explore. Ronan seems to still be feeling well and his ANC counts were 1600 today which is great news. Hopefully they will continue to stay this high so flying next week won’t be a problem. We will go to the clinic on Monday to have his levels checked again and I am pretty sure they will end up giving him a transfusion of blood for the trip. Praying that he stays well so we can get him out to Philly and New York and find the answers we are looking for.

I am so tired tonight. Ronan is asleep next to me and I am not going to have any trouble curling up beside him and falling asleep. I have been sleeping better lately, but still having my very real dreams. It is so funny how my dreams and reality are pretty much the same now. My dreams at night are all about what we are going through and the choices we are going to have to make. I’ve said before, I never get a break from what we are going through…. not even in my sleep. Maybe that is why I’m so exhausted during the day. No matter how hard I try, I cannot escape even for a second what we are up against. I’m o.k. with this…. it just means I know my entire body, spirit and mind are fighting 24 hours a day for Ronan. I wouldn’t have it any other way. I am his mama bear, I will fight for the rest of my life for him.

That is all for tonight. Hope you all have a beautiful weekend. G’night to all of my loves out there; you know who you are. I love you all so much.

xoxo

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4 Comments

  1. Marquita Ward

     /  February 25, 2011

    I pray for the faith of Jesus to come your way. In His name amen.

    Reply
  2. Alyssa Crews

     /  February 26, 2011

    Thinking about you this weekend and praying for a quiet, peaceful, fun-filled weekend for you and your boys. Hoping counts stay up for flying Tuesday and you find something good in Philly. Sending lots of love.
    Alyssa
    COLE Prayer Team

    Reply
  3. Sammi

     /  February 26, 2011

    I read you blog from the first entry to the most current over the last two days. I found it through my cousin’s facebook, her two and half year old son Caden is fighting leukemia. Ronan will beat this, he is a fighter who comes from a family of fighters. You guys will win. I hope his counts stay high for the flight and that you find the right path for Ronan and your family.

    Reply
  4. julie a. glenn

     /  February 26, 2011

    You do NOT know who I am but I have followed your precious boy’s blog and I am so praying for him and your family. I wrote to you once before as I am very close friends with Emily Snell and although I don’t know you…..I continue to pray for this battle you are fighting. You are amazing and your stories touch my heart……and your son……so adorable…..need I say more???

    Reply

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  • Instagram is my BFF

    This just made my day. 
#Repost from @chloegoulden13
--- OKAY HI. So, as you probably know I am a huge advocate in raising awareness and funds for childhood cancer. Childhood cancer is the number one disease killer of our kids, with 46 kids being diagnosed a day and 7 dying a day in the United States alone. It receives next to no funding federally, and is swept under the rug because it is too sad. Well things have to change. The Ronan Thompson Foundation is a beyond amazing foundation in honour of Ronan Thompson who died at age 3. And through Taylor Swift and Maya (his mama) I've learned Ronan's story and become aware of the tragedy that is the world of childhood cancer. SEPTEMBER is childhood cancer awareness month and the colour is GOLD (official in HRM, HOLLA!🙌) and I intend to do my part. The #BeBoldGoGold campaign (created by Maya Thompson and Kassie Rehorn of the Ronan Thompson Foundation) is designed to spread awareness about this terrible disease in a fun way. Deck yourself out in gold and educate people, challenging them and your friends to do the same. This month I vow to do that... Through running. Throughout September, I will run as many races as need be to reach 50 kilometres (or 31.1 miles for all you American lovies) and spread awareness at each race. However, while awareness is great, funding is even better. So there will be a page set up where you can sponsor me throughout the month and support the cause. All money will go to the Ronan Thompson Foundation and the IWK Foundation to help kids locally and internationally, fight cancer. To learn more about it, go to www.facebook.com/chloesraceforgold or click the link in my bio. There will be a schedule, info and a place you can donate. Ronan, I am so sorry this happened to you. We will fix this broken world. #ronan #beboldgogold #theronanthompsonfoundation #iwk #halifax #fucancer #heshouldbehere Join us in the Be Bold Go Gold Challenge! Snap a pic of yourself all decked out in your gold and nominate some brave souls to do the same! @beboldgogold  I was nominated to do the #beboldgogold💛 and I nominate @mamamaya @knjoy and @woodythompson75. #rtf #empiregogold #ronan I totally have the best 11 year old in the world. #ronan #fucancer #nutellaordie #notdramaticatall @knjoy
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