Beautiful weekend, beautiful friends


What a great, long weekend. We spent it pretty low key. We really just hung out at home, watching movies, playing outside, and getting ready for the upcoming week. On Saturday, Charisma, and her family, who had been in Tucson for Thanksgiving, drove up for the day to see us. We spent the day watching the boys play, Charisma and I went and got pedicures while the Woody held down the fort, and then we went to Chelsea’s Kitchen for dinner with some of the girls. I can’t tell you how nice it was to spend some time with my friend. I miss her so much and will never let so much time pass again before seeing her again. The boys really get along with her son. He is such a sweet soul like his mama. Ronan was very playful with her and had no problem warming up. I was surprised considering the way he usually is around people. I am happy CC got to see how “healthy” he looks. He was running around, happy as a clam the entire day and night. It was a great day and night. I was sad to see her go… wish I could keep her with me here forever;) Ronan’s favorite soon to be doctor, Katie, also came by the house for a visit. At the beginning of all of this, when everyone was poking and prodding at Ronan, because they didn’t know what was wrong yet…. Dr. Katie is the only one Ronan would let come near him. She sat in on the surgery when they removed the tumor out of the left orbit of his eye. She is family to us now and it was so good to see her. Ronan is still talking about it this morning. He keeps telling me he loves Dr. Katie and wants to know why he can’t see her at the hospital. So cute and sweet. Thanks Katie for the visit. It meant so much to us to be able to see you. Your being there for us during the hardest time in our life is something we will always be grateful for. You were the only one who put my mind at ease.

Tomorrow, we go into the clinic and we will have Ronan’s platelets checked. We need them to be above 75,000 in order to start his chemo week. Praying that they are. I’m stressing that this is now going to throw off our whole New York plan. We will know more tomorrow depending on if we get to start this round or not. It’s not good to let more than 6 weeks pass in between chemo treatments. I just cannot imagine that he will not be good to go….. he looks and is acting like he is feeling great. He’s been so loving to me lately. I know a lot of it has to do with being home and with Liam, Quinn, and Woody. Today, I sat on the couch with Quinn and Ronan and watched all of the new version of “Alice in Wonderland.” Quinn and Ronan loved it. I couldn’t believe Ro sat through the entire movie. About every 20 minutes he would wrap his arms around me, smile up at me and give me the biggest kiss. It was so sweet. Liam and Woody spent the day watching football and playing some G.I. Joe PS3 game.

Everyone is tired tonight and we all need a good nights sleep to get ready for the week ahead. Last night, I made the mistake of coming home from my evening out and I didn’t take my medication that helps me sleep. I was trying to prove to myself that I was so tired, that I didn’t need it. Big mistake. It was the worst night of sleep. I tossed and turned all night long and had the most horrific dreams. I won’t be making that mistake again. It’s not worth it at this point in my life.

Good morning! I fell asleep soon after writing that last night. Ronan was way too cuddly for me to stay awake. A good night sleep makes such a difference. Boys are off to school and Ro playing Star Wars in his room. I’m ready to check in to the hospital. Fingers crossed. I’ve had our bags packed and in the car for a week now. I have Ronan all prepped and he knows that we have to go in today. He seems fine with it. I’ve come to learn that if I prepare him for things, he adjusts better to the situation. I hope you all have a beautiful Monday. I will keep you posted on if we are admitted today or not. Love to you all!!

xoxo

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4 Comments

  1. Michelle Hobbs

     /  November 29, 2010

    Praying that Ronan’s platelets are above 75,000 so you can get on with the chemo this week! It sounds like it was a blessing in disguise that you were able to stay home Thanksgiving week but that you are rearing to go now so bring it on, right? Will be anxious to hear…take care, michelle

    Reply
  2. Dorene Plampin

     /  November 29, 2010

    What a beautiful picture full of gorgeous women. Maya, since we have never
    met, which one is you. Praying for a great Monday with good outcomes
    of numbers. Love, Dorene

    Reply
  3. Macy Wood

     /  November 29, 2010

    Dear Maya,
    I came across your blog through a friend of mine who lives in Arizona. What an amazing, strong, resilient, and absolutely beautiful little boy you have! Ronan is truly an inspiration to us all and so are you! There is no doubt in my mind that he will beat this horrible disease. I wanted to let you know that I live in NYC and would be more than happy to help you and Ronan out in any way I can, even if it’s just to bring you a coffee or sandwich. I’m not sure how long you will be here for Ronan’s treatment but please know you have a friend in NY should you need one :) I, too, am an ASU alumni – I graduated in ’99 so we might even have some friends in common. NYC is an absolutely magical place around Christmas time; I pray that it will be a wonderful, memorable experience for you and that the MDs at Sloane-Kettering will work their magic on your little warrior. You can reach me at: macywood@hotmail.com.

    Much love,
    Macy

    Reply

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  • Instagram is my BFF

    This just made my day. 
#Repost from @chloegoulden13
--- OKAY HI. So, as you probably know I am a huge advocate in raising awareness and funds for childhood cancer. Childhood cancer is the number one disease killer of our kids, with 46 kids being diagnosed a day and 7 dying a day in the United States alone. It receives next to no funding federally, and is swept under the rug because it is too sad. Well things have to change. The Ronan Thompson Foundation is a beyond amazing foundation in honour of Ronan Thompson who died at age 3. And through Taylor Swift and Maya (his mama) I've learned Ronan's story and become aware of the tragedy that is the world of childhood cancer. SEPTEMBER is childhood cancer awareness month and the colour is GOLD (official in HRM, HOLLA!🙌) and I intend to do my part. The #BeBoldGoGold campaign (created by Maya Thompson and Kassie Rehorn of the Ronan Thompson Foundation) is designed to spread awareness about this terrible disease in a fun way. Deck yourself out in gold and educate people, challenging them and your friends to do the same. This month I vow to do that... Through running. Throughout September, I will run as many races as need be to reach 50 kilometres (or 31.1 miles for all you American lovies) and spread awareness at each race. However, while awareness is great, funding is even better. So there will be a page set up where you can sponsor me throughout the month and support the cause. All money will go to the Ronan Thompson Foundation and the IWK Foundation to help kids locally and internationally, fight cancer. To learn more about it, go to www.facebook.com/chloesraceforgold or click the link in my bio. There will be a schedule, info and a place you can donate. Ronan, I am so sorry this happened to you. We will fix this broken world. #ronan #beboldgogold #theronanthompsonfoundation #iwk #halifax #fucancer #heshouldbehere Join us in the Be Bold Go Gold Challenge! Snap a pic of yourself all decked out in your gold and nominate some brave souls to do the same! @beboldgogold  I was nominated to do the #beboldgogold💛 and I nominate @mamamaya @knjoy and @woodythompson75. #rtf #empiregogold #ronan I totally have the best 11 year old in the world. #ronan #fucancer #nutellaordie #notdramaticatall @knjoy
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