Not ready for the real world yet

Going home in a few hours. Ronan is getting platelets and blood before we will be released. Woody and I also have to show them that we are comfortable with the broviac and shots. Our scan came back today and Dr. Wood came in to tell me it didn’t show anything that we didn’t already know. Big sigh of relief there. I’ll take that as great news:) Dr. Maze came up to give me a hug and say goodbye. That man has been so comforting to me the entire time I’ve been here. He really goes above and beyond the call of a normal doctor. I’m waiting to meet Woody for a quick-lunch at Houston’s, even though I look like a homeless person. In my old life I would have totally cared about that. Now, I don’t at all.

Lunch was not as I expected. I have not been out in the real world in 2 weeks. As much as I hated being at the hospital, it has become comfortable and a way of life for me. I full on had what I think was an anxiety attack in the restaurant. All of the people and loudness of the restaurant was way too much. Some little girl in a tutu kept wondering over to our table. I wanted to scream and cry all at the same time. My head started spinning, heart was racing, and I basically had to force feed myself. I couldn’t get out of there fast enough. I ended up throwing up in a bag on the drive home. How can anything ever be normal to me again? I can’t wait to get Ronan home to the safety of our house. I don’t think I’ll be venturing out in public for a while. I’m ok with saying inside our little bubble.

I’m going to shower now and head back to the hospital to get Ronan ready to leave. I’m scared but also excited to be coming home. It will be so nice to be able to see Liam and Quinn and get somewhat of our normal family life back. I have missed being a mom to my twins so much.

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  1. jennifer murphy

     /  August 26, 2010

    I am praying for your transition back to home life. What a blessing to be going there! Jesus is right there holding your hand. Love you all, Jenn

  2. Julie

     /  August 26, 2010

    I am a friend of your mom and stepdads. Your son and entire family are in my thoughts and prayers. Ronan is so lucky to have a loving family and friends surrounding him. Keep the faith, if God leads you to it, he’ll get you through it…

  3. christy

     /  August 26, 2010

    You all are going to be great at home in your true comfort zone. Wonderful to hear that Ronan is well enough to leave the hospital. Big kisses to you and all your boys.

  4. Denise McClain

     /  August 26, 2010

    (I’m Denise Gooding–that’s my maiden name–a friend of Woody’s from LSP at ASU and I’m good friends with Kay and Charlie too…just so you know who I am) YAY!!! on being able to go home today :) When my little nephew was having a feeding tube put in him at PCH, I ran into Kay and Charlie in the PCH cafeteria and then stopped by after my nephew’s surgery to see little Ronan. What an amazing little boy he is…and what an amazing family you have! My family prays for you all each night…and we’ll continue to do so!

    Big hugs and lots of strength to each of you….just take it ONE DAY AT A TIME!! :)

    -Denise (Gooding) McClain

  5. Danielle

     /  August 26, 2010

    Home is where the heart is. xo

  6. sheryl

     /  August 26, 2010

    At least you can still communicate from the comfort of your own home, since you won’t be going out in public for awhile. I don’t blame you. My life is hectic, but I can’t imagine how hectic your life must be… take care of YOU! I know you don’t want to, but that’s the only way you can be there for your kids. Glad you at least tried lunch with your hubby. I agree with Dr. Maze, you need to make sure to nurture your marriage. I wish I could come over and give you a big hug (even though you haven’t showered ;)) I’m thinking of you a lot, every day…

  7. sandra gonzales

     /  August 26, 2010

    What a amazing woman you are! With all of the strength God has giving you there is no wonder, Ronan is who he is. Strong, sensitive, loving, patient, unpatient, fun, happy and yes even sad, Yes,God made him well. I love you and your family with all of my heart. Sandra

  8. Sarah Braun

     /  August 27, 2010

    Hi again, Maya. I will be around Saturday evening, Sunday and Monday if you need help with dressing changes, injections, or any “nurse stuff.” Feel free to email or call me, Tammy at bootcamp has all of my information (Daryl does too).

    • Thank you, Sarah! I think the shots are going to be o.k. It’s the dressing changes that are going to be the hardest. It took 4 of us to do it yesterday. Thankfully, we only have to do it once a week and have an at home nurse coming on Thursday to help. I am hoping to see you at BC on Monday. Trying to get Ronan back into his routine so I can leave in the mornings for a bit without him noticing.


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    Lorde with my little royal. @quinnthompson24 #ronan #fucancer #lorde #imthecoolestmomever #hessocute Miss you already, lover. #poppy #ronan #fucancer #rideordie #mommynumbertwo @macymwood Dedicated to my @macymwood. Ride or die for life. #ronan #fucancer #iwillloveyoutilltheendoftime #lanadelrey #iwouldmakeoutwithlana Hipsters. #ronan #fucancer #middleagedhipsters #youngforever #forgotourflowerheadbands #lanadelrae Been trying hard not to get into trouble... #ronan #fucancer #lanadelrae #mymusicalsoulmate @macymwood This is my happy place. #poppy #ronan #fucancer #hidingfromtheworld #sundaysnuggles @macymwood @knjoy Sundays are for sleep. @macymwood @knjoy #poppy #ronan #fucancer #sleepingbeauty #wornoutfromsomuchdancing Just making out with my favorite homegirl. #poppy #ronan #youdownwithopp? #yeahyouknowme #homegirllove #fucancer Poppy's other mom is in da house! #poppy #ronan #fucancer #mytwomoms #thesebitchesarecrazy @macymwood A bunch of little ballers and a P-Ro, too. #poppy #ronan #fucancer #basketballislife #arcadiatitans This has secretly been being worked on for quite some time. As you can imagine, it was a very emotional thing. We as board members/friends at RTF decided it was time for the little seal logo to go. We needed something that really spoke to who Ronan was/is. This is what our amazing friends at Fervor Creative came up with after many meetings with us and many do overs. (pro bono might I add because they have such beautiful hearts) I think they nailed it this time as it shows the beauty, strength and bravery that Ronan had, in such a simple way. How no matter what, you always keep walking up that hill and fighting, and even in death, you wont stop fighting for a world that so badly needs to be fixed which is the world of childhood cancer. Looking at this makes me proud, it makes me cry, it makes me strong. After everything Ronan went through, he always held his little chin up with such dignity and pride. At 3 years old, he was such a little man who never felt sorry for himself or let what he was going through get him down. He was my greatest teacher in life and will continue to be as I carry him with me in everything I do. I love you, Ronan. I will never stop fighting for you and this fucked up world of childhood cancer that everybody just seems to ignore. We will change this, because of you. I hope you all like our new Ronan Thompson Foundation design. @ronanfoundation #ronan My favorite place to be on a Friday night. #poppy #ronan #fucancer #fridaynightsnuggles #mybabe

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