Friends are kisses blown to us by angels


I heard a great story today. A true story about a little boy who at age 5; was diagnosed with Neuroblastoma. And today he is in the 4th grade with a clean bill of health. I also talked to his mom and I can tell just by hearing her voice, that she is an amazing woman. She is a fighter and never gave up hope; even in the darkest of nights. You can read Noah’s amazing story here:

http://www.noahnelson.blogs.com

It’s stories like this that I need to hear right now. Stories of survivors and people who have made it through things like this. We are going to have a story like this someday. A beautiful story about a beautiful boy who beat all the odds. I know in my heart of hearts that Ronan is going to get through this. This is just a bump in the road for our family.

Whoa baby! Ronan was so mad today. I have never seen him like this in my life. I’m not kidding you when I say he spent a good 5 hours of the day hiding underneath his blanket and growling at anyone that came near him; including me. I think he may have learned this from our last roommate, Jose, who hissed and showed his “fangs” to anyone who approached him. The nurses kept asking me if he had come out to pee yet. I just kept telling them that he was hibernating.

My friend, Niki, came to visit us today. It was so good to see her. She held me in the parking lot and we cried together for a few minutes. It felt good to get that out and to be able to look her in the eyes and see the love pouring out. She loves Ro so much. He was so happy to see her  and she spoiled him with a bunch of gifts. We are so lucky we moved into the neighborhood we did because Niki lives only a few houses down and Ronan goes to school with her little girl. He really misses her and asks all the time if she can come over. Someday soon, I tell him.

Trish came tonight and brought me dinner and we sat in the dark for about 2 hours and talked, laughed, and tried not to cry. We talked a little bit about our good friend, Marisa, who is going a stir crazy that she can’t be here because she is pregnant. She is somebody I met through Tricia a few years ago and we instantly became friends. She is one of my dearest and someone who I call on for anything and everything. I know it’s hard on her because she feels so helpless. It’s hard on me because I miss my friend. I also know that we have a long road ahead of us, and there will be plenty of time for me to call on her when I need her most. Right now, she needs to take care of herself and the baby boy who is growing inside of her belly.

I saw the twins for about an hour today. They seem so big and like they have grown up so much since I have been away. I hate that I am missing out on everything with them. The only thing that is saving my sanity is my wonderful mother and father in-law. Those two boys could not be in better hands.

Have I mentioned before that I am mostly writing this from my iPhone? So please excuse all the errors, etc…. I am so anal about that kind of stuff…. so just bear with me. Ronan gets mad if I have my laptop in bed with him. He is so bossy;)

Tonight I told one of my friends, Giangi, that I truly belive it is because of all of of the prayers and love that Ronan will be healed. I know that there is only so much that medicine and doctors can do. So please, continue praying for our beautiful boy… and pass along the word to anyone  and everyone you know.

Goodnight to all of our angels out there.

xoxo

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12 Comments

  1. Candyce Lindsay

     /  August 24, 2010

    Ty and I are praying for healing in Ronan’s little body. His fight is a blessing, a sign that his is unknowingly fighting for his life. I pray that God directs those great doctors and nurses to give the best care for Ronan and God will do the rest of the healing. Take care of yourselves. Candyce

    Reply
  2. Jennifer

     /  August 23, 2010

    Again, a lump in my throat when I read this only because my heart aches knowing you & the boys are going thru this…BUT, I can’t wait to be there with you when Ronan is playing in his first basketball game, or when he graduates from high school….I also know in my heart of hearts that he will come out of this & look back & tell the story. He’s a fighter like you. xo

    Reply
  3. Jennifer Stambaugh

     /  August 24, 2010

    The Kirk of the Hills church in St. Louis, Missouri is praying for you all! Each day, Michaela and Will pray at school and include Ronan in their prayers. You are surrounded by more love, prayers and friendships than you will probably ever realize. We are all pulling for you!

    Reply
  4. amy wright

     /  August 24, 2010

    we are praying for your beautiful son and for you and the rest of your family!!!

    Reply
  5. Bev Nystedt

     /  August 24, 2010

    I begin my day with your blog. I find such inspiration, determination and old fashion grit and I am ready to ‘kick butt’ the rest of the day. You energize me….I, in return, send you all of my prayers and good thoughts. Know that we love you all and miss you here at Sequoya…Give our big guys a hug from us and tell Ro that he makes a wonderful bear….I can hear his growls right now…grrrrrr…….
    love,
    Bev

    Reply
  6. Nance Harris

     /  August 24, 2010

    Prayers are answered and you are surrounded by prayer warriors. I sent out the request for Ronan, his doctors and family. Yesterday in the mail a note came from an Alpha Delta Pi college chapter in North Carolina. They are praying for Ronan. It blew me away. Don’t really know how they got the request, but college girls praying, how wonderful. As you know Mimi Kay received ADPi’s national volunteer of the year a few years ago.

    We will keep the prayers going because God answers all prayers.

    Reply
  7. Olivia

     /  August 24, 2010

    Greg’s cousin’s son was diagnosed with neuroblastoma at 3 months and only had a 15% chance of survival. Yesterday he started 1st grade and lost his first tooth all in one day! Keep believing and praying and know that you have a huge support system out here doing the same for your family.

    Reply
  8. Melanie Buck

     /  August 24, 2010

    My son and I say prayers for you all every night, and will continue to do so ’til this is all behind you!

    Reply
  9. Kimball Arnold

     /  August 24, 2010

    Thank you for your postings. While many of us cannot begin to understand all you and your family are going through, you are showing us the tremendous love you all have in your hearts for each other. Also, by sharing your story, you are touching hearts all over – hearts that will more readily reach out to others who are on the journey. You also may find that sometime, somewhere, somehow, sharing your journey will help other parents as they also fight on behalf of their precious children. Prayers abound in Prescott and thank you!

    Reply
  10. We will be praying for your family!

    Reply
  11. Sarah Braun

     /  August 24, 2010

    I know we don’t know each other that well — only from early dawn hours at bootcamp as we run through the mountain preserve park and do what we can to care for our bodies. I wanted to take a moment and reach out to you and offer my prayers and hope for Ronan’s speedy recovery. I am a pediatric ICU nurse and I worked at PCH for quite a few years. As I’m sure you have discovered, you are in fantastic hands (many of my best friends work as nurses, physicians and social workers at PCH). I have seen children come back to visit over the years that have fought and overcome some of the most challenging injuries and illnesses. Your son will be one of those strong, resilient children. Please reach out to me if there is anything I can do, even if it’s just to stop by the hospital and bring you your favorite restaurant takeout!

    Reply
  12. susan day

     /  August 26, 2010

    Although you don’t know me, I feel like I know you simply from reading your journal entries and I have to say – what an amazing son you have (sons) and what an amazing family you are! I am friends with jennifer wood and have been praying for ronan and your family over the last few weeks. I am so thankful that you all have so much love, support and determination surrounding you – it just shows what amazing people u are and how special ronan is to those who know him…and to those who don’t. We are all behind u and the strength of prayer and positive thoughts are always with you. Xo

    Reply

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