Today was day 3 of Ro’s “magic medicine.” He is doing amazingly well with it. But I also know this is a very mild dose. He is having a hardest time getting used to the fact that he has to take medicine orally now, 3 times a day. Along with the mouth care that he is having to do. He hates it and fights and screams when he has to take it. We have been having to hold him down while he spits it out and flaps his little arms and legs and yells, “I need a break!” He is such a little spit fire! I swear, this kid was born with all of my strong parts and all of Woody’s strong parts. I am going to be scared to see how he turns out in his teenaged years!
Lauren came to visit us in the middle of giving Ronan his medicine. She was so great at helping me. She bribed him with presents and made him laugh by putting little matchbox cars all over her head and arms. Ronan’s friends from school made him a big sign and Lauren brought gifts from a ton of people. She had a whole wagon full of stuff. It looked like Christmas around here! Lauren just sat with us and loved him, held my hand and cried with me a bit. It’s hard to hold it together around her or to even look her in the eyes because it’s like she can see right through my soul. She knows that I am trying to be so strong, even though I feel like curling up in a ball and dying.
Mimi Kay and Woody were here most of the evening and night. Mimi helped me shower Ronan which he is not loving. We have to cover up his broviac with a sticky cover and tape. It scares him because he knows we are going to have to rip it off when he is finished. It will be nice to be home in his own big shower where things seem a little less scary. Woody practiced giving an orange shots tonight with one of the nurses. We will have to give Ronan shots everyday in between the chemo treatments. I am not looking forward to that at all. I don’t think there is anyway to explain that to a 3 year old. There is so much to learn before we go home on Thursday. Our life is going to have to be totally different and we are going to have to do things 110 percent all of the time. We have to keep Ronan well, we have to keep our baby as healthy as possible.
I talked to my friend, Lisa, today. I cried when I told her about Ronan. I could tell she was in shock and could not believe what I was saying. Do you know how hard it was to say to her, “Ronan has cancer.” It was awful. It is awful. I still can’t believe it myself. I also had Ro call my step-dad to talk to him. We just spent the entire summer with him and he is devestated. I’ve lived with my step-dad since I was 13 and I have never heard or seen him cry. Today, he bawled like a little boy. It beyond broke my heart. He loves my boys so much and he has a very special bond with Ronan. We have to make it though this; I promised Ronan next summer we would take him to the San Juan Islands where Papa Jim drives the big boat to all of the different harbors. Next year is our year to go… Ronan has been too young to take but we decided over the summer that at age 4, he could go. We will go when this whole nightmare is over and our battle has been won. I’m still trying to figure out why this is happening to us. Did I do something really awful in a past life or something? Is Ronan meant to be the poster child for this disease? As I think I’ve said before, there better be a REALLY, REALLY, good reason. Because none of this seems fair. But I am not going to whine, cry, or crumple up in a corner. I am going to stand strong with my friends and family around me, until our little boy is back home and healthy again.